Slice- I'm seeing Dr. Mark Peppercorn at BIDMC- he's the head of the IBD Center at the hospital & a Harvard Medical Professor. Apparently he's got a phenomenal reputation. I'm interested in talking with him but in reality I'm not expecting much. I think he'll most likely verify my other GI doc's surgery recommendation. Or maybe offer me a clinical trial, but I live on Cape Cod & really can't be driving to Boston on a regular basis for labs, meds, etc.
For everyone else- thanks a MILLION for the replies! I know once I feel better, physically, the body image issue will cease. And I made an appt. today with a surgeon (Dr. David Schoetz) at the Lahey Clinic for a surgery consult, so.... I am heading in that direction, & I'm happy about it. I'm so tired of being sick, being afraid to eat, wearing a diaper for gosh sake!!!!... not being able to take my daughter places cause of the bathroom issue. Just all of it, I want it to be over. I'm not expecting a miracle, but the bag has got to be better than this. Another of my big fears is the ballon bag syndrome reported open awakening, & alsq- the nosies!!! what gives... are they like fart noises?!?!?!
funny, my GI gave me Peppercorn's #! Hey as far as 2nd opinions go, you can't get much better in these parts. Now did he suggest you have surgery? Or was he able to offer you anything your GI couldn't?