I still don't get it!!! Smooshing your Stoma.

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sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 9/18/2007 2:42 PM (GMT -6)   
Ok, so my head just can't get around this. How can people wear tight jeans, or roll up their bags into their underwear, or even wrap up their stomas/bags?
Maybe because mine is only a month old, but it is going all the time, and the darn bag is always all poofed up. If you wrap it up, or cover it tightly, where does all that go? I'm always paranoid the bag will pop, or I'll spring a leak.
How does wearing tighter stuff work, tecnically? I'd love to be able to wear jeans again, or smoosh up the bag so it doesn't show as much, especially when I go back to work. If you cover everything up, what happens when it fills up? confused
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


justjenjen
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Date Joined Nov 2003
Total Posts : 518
   Posted 9/18/2007 3:26 PM (GMT -6)   
Personally, I was still poofy after a month. Normal tightness of clothing (i.e. don't have to lay flat on your back and use pliers to pull up your zipper!) should be fine. Try laying your bag different ways when you get dressed. Let in hang, tuck the tail in the waistband of your undies, etc. until something works for you.

JudyK89
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Date Joined Dec 2006
Total Posts : 1986
   Posted 9/18/2007 4:38 PM (GMT -6)   
You should have less and less gas as you heal and your body adjusts. As for output, it is directly related to what/how much goes in. Your body should adjust there also, at least to where you will know when it's most active, etc.

I wear mens jeans mostly, there's more room in the crotch for the fluids in my pouch while the waist area helps hold everything in.

I had a function to attend over the weekend and wore my spanx (a type of girdle). I didn't even notice my pouch was pretty full until the end of the evening because it flattened it out pretty well. No big bulge.

I do wear long tops, always, to hide when I do have a bulge. Mostly because I don't want people to see it on the way to the rest room to empty it, but there's not always a bulge (although since my last surgery almost 3 months ago my output has been pretty steady also).

I think I also use the restroom more frequently when I'm in public, so there isn't a noticeable bulge. That does get tiresome though, but necessary if it's a dinner you're attending that lasts forever with many courses, lol.

I haven't mastered the beach yet. I was wearing a cover up, but it was hot, so started wearing running shorts over my swim suit, but they had to be pretty big and baggy to hide things and didn't look very nice.

It's just something you'll have to play around with. Don't be afraid to experiment with different types of clothes, but you may want to "experiment" at home first, lol. Different body types can get away with different things and it depends on where your stoma is placed and how much output you have.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1246
   Posted 9/18/2007 7:43 PM (GMT -6)   
 for some pics of ostomates doing things they love doing (some even wearing tight jeans and swimming costumes - see if you can see their bags!). There's pics of people skiing, swimming, scuba diving, motorbike riding etc and they're all ostomates.

Right now you're very new to surgery. As time goes on and you heal you can get back to wearing your other clothes. When I was a teenager, I used to wear the tightest jeans possible and no one ever could see my bag under it.

It will get better :)


I have had an ileostomy for 31 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 9/18/2007 8:54 PM (GMT -6)   

It was probably a year before I ventured into wearing anything fitted.  After I started wearing "It's Not Just Another Panty" undies, with a little pressure constantly on my belly, it helped with the discomfort when I walked.  I didn't feel every little jolt with each step.  And it also kept 'things' in place when I moved around.  They were suggested by my ET way back when.  When buying them, buy a size that is just snug, not tight.  That was the ticket for me.  They gave me a lot more confidence.  And smooshing is not a problem.  When I buy dress pants, I still prefer the pleated ones.  They disguise the pouch well when you might not want to run to the bathroom right away, or if you are going out to dinner.  I also have several pair of fitted pants, jeans.  I tend not to tuck tops in anymore, just because it is more comfortable for me.

Back in the 50's and 60's when my mom had some abd surgery, they recommended she wear a girdle during the post surgery healing process to keep the constant support on her incision/abdomen.  I will have to admit I questioned this idea, but it helped me.

Good luck,

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 9/18/2007 9:45 PM (GMT -6)   
I had surgery 4 weeks ago and I wear low cut jeans. They do itch my stoma because I am still a tiny bit bloated from the surgery. I usually flip my bag upward and it lays flat. When ever it fills a little, I empty it. You can try some panties from whiterosecollection.com. I bought a couple pair of their underpants but even their smallest size is too big for me. Also, you can go to Wal-Mart and buy some support panties that are tight. I know several people who where them. As for me, I just wear my regular underpants and flip my bag up on itself and go. I even went snorkling this past weekend in a one-peice bathing suit. I just flipped bag up (so it is folded in half) and put my suit on. Personally, I do not care too much if people see that I have a small buldge. I am working on getting better and healing; I am not out to impress anyone around me. So, if your pants stick out a bit at your waist...who cares. Your getting better and that is what matters.

I hope this helps....sorry to be so blunt, but that's just me.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/19/2007 6:03 PM (GMT -6)   
it always worried me about how it would smoosh all the stuff around too, but it doesn't I can't say i understand it, but it works, lol. It hasn't been that long since your sugery, so i can't imagine you would even want to put on anything tight, it will take awhile for the swelling in your tummy to go down, and the gas, and output will lessen. I have a bathing suit, that i wore and i don't think anyone noticed, I am gonna post a pic of me in it, well my bottom half, my hair looked too bad to show my face, lol, on the pic page. I thought it would smush the stuff up too, but i stayed out on the beach for a few hours, and it didn't bluge. The pic is after we had been out there for about three hours.

badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 9/20/2007 9:36 AM (GMT -6)   
I wear tight jeans or pretty much what I want to. I just bind my bag close too my body with an ace bandage or spanx. Your stoma is probably very tender from your surgery mine was for about 2 months. It will get better! Just let it all hang out until then!
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 9/20/2007 1:03 PM (GMT -6)   
I just have to put my two cents in the discussion. I had my proctocolectomy about 7 weeks ago now. Being overly concerned about people noticing the bulge, I resorted to wearing only skirts. Actually, the little flouncy ones are kind of popular here now. My husband tells me it's all in my mind about people being able to tell I'm wearing a pouch. With time I will feel more comfortable -I Hope.
NeNe205

Arundinaria
Regular Member


Date Joined Apr 2007
Total Posts : 160
   Posted 9/20/2007 1:10 PM (GMT -6)   
yeah I know guys are not as concerned with fashionable dress as ladies, but we have problems that way as well. I have a very large herniated stoma and it protrudes something fierce. Not long ago I was fitted for a MU Form support belt. It is 9: wide and flattenen the bulge a freat deal, by keepiing the stoma partly inside of me instead of dangling out. It is comfortable and feels good almost with 24 hour wear. The belt is not cheap, I think something about $125 and I think it does require a prescription.. I would think a lot of ladies girdle type garments might work as well.
AS the others say "This too shall pass" (Don't ask when)
Arundinaria
When there are no more choices, tha decision is easy!


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 9/20/2007 1:23 PM (GMT -6)   
Amey said...
Personally, I do not care too much if people see that I have a....buldge.



I have to say, as a guy.....i second that emotion! if my pants look extra buldgey - it just makes the ladies wonder!

sorry...i had to say it yeah yeah
"All we need is love....love is all we need"


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 9/20/2007 1:34 PM (GMT -6)   
Too Funny! Hey, in that same content, you may make some guys wonder to...

Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 9/20/2007 2:07 PM (GMT -6)   
indeed...wait....now it makes sense....that's why all those guys were staring at me last week when i was in West Hollywood!
"All we need is love....love is all we need"


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/20/2007 3:59 PM (GMT -6)   
lol gladbag, you didn't tap your feet in the bathroom did you?  :-)
 
i saw a pic that my husband took of me on my son's field trip today, and i was convinced that i could see it in the pic, and he said you are crazy, and then i looked again, and realized that i was looking at my left side, where i thought i saw it lol.  Goes to show you how we do tend to make it worse.

badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 9/20/2007 4:25 PM (GMT -6)   
or bend down to get the toilet paper off the floor?

Only a group like this could turn around a simple question and make it humerous. So I have to put my 2 other cents in. When women go through a transition (an operation to alter their bodies to that of a man, surgery that makes an ostomy look festive) some wear a fake (I think I will be censored by saying the correct name) .... unit. It's referred to 'packing'. My girlfreinds and I joke around that I am just "packing" (not that I would want a unit, having a hard enough time with the equipment I have .....
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 9/20/2007 4:34 PM (GMT -6)   
ok, topic change, so badbaggirl? how's the cabin romance doing? still ok, i hope..

as for me....nothing new in my romance-free life...
"All we need is love....love is all we need"


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/22/2007 3:51 AM (GMT -6)   
I've never worried about smooshing my stoma when I wear clothing, but one time, my cat stepped right on my stoma when he was climbing onto my stomach. nono I didn't like that, so now I cover my stoma with my hand, and he steps on the back of my hand instead. :-)

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1246
   Posted 9/22/2007 4:23 AM (GMT -6)   
lol, both of my kitties are good at avoiding my full bag when they jump on top of me first thing in the morning to say 'good morning'. Somehow, they just know it's not a good thing to jump on.
I have had an ileostomy for 31 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 9/22/2007 9:09 PM (GMT -6)   

GladBag - You really SHOULD come see the Dodgers in Spring Training. My Husaband and I have a friend that would be perfect for you. She's a Doctor, so she wouldn't care about a lil' old bag. She's not a Dodger fan, though.

And those of you with well behaved cats, please have them come teach my dog. She's forever trying to lay down on my darn bag.  nono


UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 9/25/2007 6:44 PM (GMT -6)   
Shaz032 and flchurchlady,

I'm the same way with my cats. Both of them crawl up and lay on my chest. I have to put my hand over my stoma in fear that they'll step on it. They also look at me strange when I'm naked with the pouch just hanging down. They're trying to figure out what it is.


sfgiantsjo,

I've had my ileostomy since July 23. I know how you feel about the bulge. I started back to work parttime on Sept. 17. I figured parttime would help me adjust to dealing with the draining of the pouch. I work 10 a.m. to 2 p.m. and find I'm in the bathroom 2 to 3 times. It hasn't been bad wearing my regular clothes. Most of the pants, capris and skirts have 1 to 2% spandex in them so they're quite comfortable. I was told by my ET Nurse to drain my pouch when it is about 1/3 full. Otherwise, it gets heavy. My stoma is on my right side about 1" to the right and below my belly button. I've cut up pieces of cloth from cotton pillow cases and slip it under my belt and then fold the pouch up and over just a bit to lay on the cloth. I don't like the feeling of the bag laying directly on my skin. Then my underwear holds the bag in. The poo does seem to collect up near the stoma, but if you're draining the pouch and rinsing it out (which I do every time), you shouldn't have a problem with it irritating your skin.

Do other people rinse their pouches out everytime you drain?

Love to get responses!

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 9/25/2007 6:54 PM (GMT -6)   
Ohio43 --
 
Since I almost always have a watery output, I don't usually rinse my pouch throughout the day.  But I do rinse in the morning before I leave for work about 6:30 a.m., usually when I get home around 2:00 p.m., and then before bed.  If I'm not home or staying at a home base, like a hotel, etc., I usually don't rinse.  In other words, if I am out and about, I don't.
 
So how's your stamina been getting back into the swing of things at work?  What type of work do you do?  Do your co-workers know about your surgery?  Are they understanding?
 
Congrats on your progress!
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/25/2007 9:09 PM (GMT -6)   
what do ya'll mean by rinsing it out?  do you take the wholl ething off?  i use a water bottle and clean out the end.
anyway, i work abotu five hours, and usually empty it once, but mine goes down towards the bottom

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1246
   Posted 9/25/2007 10:20 PM (GMT -6)   
I don't bother rinsing out after I empty. Since I have an ileostomy, the bag is only going get dirty again a couple of minutes later so it's not worth the effort.
I have had an ileostomy for 31 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 9/26/2007 6:16 PM (GMT -6)   

I have a small plastic cup on the side of the shower/tub that I can reach from the loo and I just put some water in it in the morning and use it thru the day.  After emptying I just pour enough water in the pouch so that when I hold the tail closed, and slosh it around a bit, it reaches the stoma/wafer.  I believe that helps a little with controlling the odor as well, even when I use the deodorizers.  Judy, I agree, it just gets dirty again in minutes, but if there is any accumulation around the stoma, it rinses that out.  It still only takes me about 2 minutes to "go potty" each time, even when I rinse!  Like I said, I don't rinse every time.   I clean out the tail opening with tp each time that I empty, so that is not the issue in doing the rinse step.  I just feel a little more "refreshed" when I rinse!!!  :-)     Personal preference, that's all.  Definitely not a necessary step.

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/26/2007 8:34 PM (GMT -6)   
that is what i do too, only i have a little squirt bottle, and i clean the tail with mouthwash, on the outside.
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