Total colectomy part 17

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Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 9/19/2007 10:57 AM (GMT -6)   
Locked out of 16, so here's the new thread.
 
Did anybody else have back pain after their TC? It's strange because my back is bothering me more than anything else. I'm assuming that a lot of the pain I'm having is from things being stirred up and moved around and that things are trying to settle into their new homes.
Terri
 
_________________________________________________________________________________
Breast Cancer at 36. Diagnosed in 2000. Bilateral mastectomy with reconstruction.
Total colectomy in September 2007 for colonic inertia.
Son diagnosed with Crohn's and UC at 17 (now 20). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups.
Husband HLA B27 postive with ankylosing spondylitis and psoriatic arthritis.


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 9/19/2007 1:20 PM (GMT -6)   
Yes, I sure did. You are right about it lingering. It seemed like my back hurt forever. Walking hunched over, protecting my belly after the surgery made it worse. The nurses told me that was common becuase of the hard/cold surgical cut away (?) table. I also ended up with a hairline fracture, can't remember exactly which vertebrae, from the pressure on the back and the bones being so brittle from the steroids.

I think my chiropractor told me years ago that the back and stomach muscles both are what makes you stand upright and straight. And if one of set of them are lazy, then you have aches and pains. Makes sense to me.

Everything is still finding it's new home internally. It will take a little while. I know you have heard it before, just be patient. Keep walking. That is the best exercise you can do.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Amey
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Date Joined Jul 2006
Total Posts : 942
   Posted 9/19/2007 1:22 PM (GMT -6)   
Irish Mom,

YES, YES my back hurt like I had been beat up by a baseball bat. All of my muscles ached and were sore. The pain was intense for the first couple weeks and then slowly subsided. Now, 5 weeks after surgery, my back pain is about a 4. However, two weeks ago it was about a 7 (on a 1-10 scale). It does get better.

Mom2sophia
Regular Member


Date Joined Aug 2007
Total Posts : 262
   Posted 9/19/2007 6:08 PM (GMT -6)   
Hello Everyone...here is more story:
 
Ok, I have had chronic constipation since 14.  Diagnosed with IBS at 14 as well as GERD.  I am now 26.  I will try to explain everything in a nut shell.  When the constipation began, I took Citrucel, other persribed meds for spasmatic activity and Propulsid to help empty my stomach.  Nothing was working.  I ended up over time giving myself fleet enemas.  I was on Zelnorm, Miralax, and the latest, Amitiza.  I tried the natural way...got really sick.  I now have to give myself ho***er bag enemas...it is the ONLY thing that makes me feel relieved.  If I take citrate of mag...it takes almost 7 or 8 hours to start working and it doesn't make me feel empty.  Miralax, I have drank about 4 full caps for 3 days straight...and nothing.  Dulcolax...just cramps.  MOM, sometimes go, but only a little...makes me nauseated.  That is why I stick to the ho***er bag enemas...3 and I am done (takes me about 2 hours to get all the water out though)  I do this about every 3 or 4 days...whenever I can tell I am getting full of poop.
 
I have been to Hershey (live in PA) and they diagnosed me with colonic inertia, rectocele and enterocele back in 2002 I think it was.  I went to Johns' Hopkins this past May after I had my daughter (she just turned 11 mths) and they diagnosed me with general dysmotility...I have gastroparesis (paralysis of stomach...so I can't eat very much).
 
I have spoken to a few surgeons.  One is saying he would gladly do it.  The other is saying if I can relieve myself with enemas then to do that the rest of my life (I don't know about you...but that isn't a life...I had to take my enema bag with me on my honeymoon).  And the final one is saying fix the rectocele and I should go to the bathroom.
 
The Sitz Marker showed I passed 3 rings in 8 days (my study was kind of screwy and it ended up being 8 days instead of 7).  Most of the markers were in the sigmoid. 
 
I don't eat a lot.  With my gastroparesis it is really hard.  But, I really should be able to pass some bowel...don't you think?  My day may consist of a cup of applesauce, a bowel of rice, animal crackers, and a handful of rice cakes or pretzels.  That is about all I can eat...some days not even that much.  I have been given Reglan....terrible side effects, domperidone (not FDA approved in the US and gave me chest pains) and erythromycin.  Nothing seems to be helping.  It should be noted, before I had my daughter, I was able to eat normally and ate healthy.  I exercised regularly, and still no BM.
 
What do you guys think?  I have a friend who got a TC who has gastroparesis and her symptoms are improving and she is going regularly.  Although her markers were scattered throughout her colon.
 
I don't want to keep trying new pills, giving myself enemas, etc.  I want a permanent fix.  Do you think I am a candidate?
If I hear one more doctor say eat more fiber I am going to scream....that made my symptoms worse!!
 
Any advice is greatly appreciated.
 
Sincerely....Lindsay
 
 

Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 9/19/2007 9:15 PM (GMT -6)   

Peggy/Amey

Thanks for letting me know it's a normal part of the healing process. I was thinking that it may have something to do with the positioning during the surgery itself. My surgeon called me at home today to see how I was doing and I mentioned the back pain to him. He said that it sometimes happens and will get better over time.

 


Terri
 
_________________________________________________________________________________
Breast Cancer at 36. Diagnosed in 2000. Bilateral mastectomy with reconstruction.
Total colectomy in September 2007 for colonic inertia.
Son diagnosed with Crohn's and UC at 17 (now 20). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups.
Husband HLA B27 postive with ankylosing spondylitis and psoriatic arthritis.


Stuck42Long
Regular Member


Date Joined Sep 2006
Total Posts : 250
   Posted 9/20/2007 5:43 PM (GMT -6)   
TERRI - Thank you for starting "PART 17"!!  I knew there would be someone here that could answer your questions regarding back pain!!  Aren't these people wonderful?  For me personally, for weeks post-op, my entire body, even my hips ached.  It really wasn't what I called "pain" just aches" if that makes sense.  I think when one's body goes from doing so much to basically not much at all - it just throws it in shock!!  Just laying and sitting around unable to get comfortable plays a toll on the entire body.  I was to the point that I was walking circles in my own house just to keep moving.
 
LINDSAY - I'm so happy you found this thread!!  There are SO many wonderful, helpful, and encouraging people here!!  I really don't know what I would have done without all these wonderful people before, during, and after surgery.  You will find a WEALTH of information here.  The one thing I can say for you to do is go back to past "parts" and read, read, read.  There is no such thing has having too much knowlege and you will sure find it here.  Believe me it takes time but worth every minute you spend searching!! 
Robin
 
God is SO good - His blessings are endless! 
Trust in Him with all your heart!
Know He's in control over every situation you face!!
 
 


Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 9/20/2007 6:30 PM (GMT -6)   
Robin
 
Thats a good was to explain it; aches not real pain. It's just enough to keep you from getting comfortable when it's time to go to bed at night. I've been doing some light housework and it slowly seems to be getting a bit better each day. 
 
I had something strange happen last night. I went to go to the bathroom and when I wiped, I noticed red. Well, when I stood up, the entire toilet was red! I got scared thinking that something was wrong but then remembered that I had eaten some cherry jello. about an hour later I had to go again and all was clear. I'm assuming that's what it was, but just to be sure I made some lime jello today to see if it comes out green.
Terri
 
_________________________________________________________________________________
Breast Cancer at 36. Diagnosed in 2000. Bilateral mastectomy with reconstruction.
Total colectomy in September 2007 for colonic inertia.
Son diagnosed with Crohn's and UC at 17 (now 20). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups.
Husband HLA B27 postive with ankylosing spondylitis and psoriatic arthritis.


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 9/20/2007 7:55 PM (GMT -6)   
Lindsay,

I think you and I probably support the entire laxative industry by ourselves LOL. I have taken everything you mentioned for consipation. I still take Motilium twice a day for the CI. My total colectomy would have been a success story IF the muscles in my rectum worked properly. The muscles in my rectum do not function together as one cohesive band and therefore stool cannot pass through my rectum (this is why I failed the defocography). However, if you passed the defocography, which indicated that you can evacuate your bowels, then the surgery should be a success for you. After my surgery, I felt foods moving through my intestines but then the movement would just STOP. I thought I had a blockage but it was my rectal issues. I assume you will feel things move through your intestines and then ....evacuate. I had a TC in 2001 and then two more surgeries to help with consipation in 2005 and 2006. It wasn't until 2007, and I was put on a bag, that I have been able to feel healthy. I still have CI. Foods still move slow and the Motilium helps a little. This surgery has saved my life. Like you, I ate very, very little (if I ate at all). I had to have blood taken at the lab every week for several months because I was so low in nutritian. I was in the hospital repeatedly for dehydration, low eletrolytes and kidney failure from the lack of substance. I am 5 weeks out of surgery and I am doing much better.

PS. I have been laxative free for 5 weeks! First time in nearly a decade!

I am glad that you can have a surgery that will change your life. I hope your surgery will be a great benefit to you.

Mom2sophia
Regular Member


Date Joined Aug 2007
Total Posts : 262
   Posted 9/21/2007 7:21 AM (GMT -6)   

Amey...what were your symptoms of malnutrition/dehydration/low electrolytes?  I get dizzy a lot. 

I am so happy that Motilium works for you.  I am a little depressed that I can't take it...I got severe chest pains and ended up having an EKG done.  The EKG came back normal, but my GERD got worse when I took it.  Sometimes, if I really feel bad, I will pop a pill and deal with chest pain...but it kind of scary...I have read some have blood pressure issues with it as well.

I did the same thing with my rectum on the anal rectal manometry.  I couldn't push the baloon out.  But when I had the defacography I pushed most of the barium out, but not all of it...which the doctors are contributing to my large rectocele...did you have a rectocele?

I have an appt with the gyno on Oct.22 to discuss fixing my rectocele...I want to get his opinion on this...the GI says if we fix that, then I might be able to move my bowels.  I am not convinced that will help.  What do you think?  I am curious to see what the gyno says.  If he says probably not, then I will just find a colorectal surgeon who will do the TC and fix the rectocele all in one shot.

Where you on any supplements for you nutrition?  What is a good multi-vitamin to take?


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 9/21/2007 6:06 PM (GMT -6)   

Hello Irish (Terri),

I just want to let you know the cherry jello will turn things red!  I have an ileostomy, and I sometimes scare myself with the "red" thing when I forget what I have eaten or actually, just not paid attention UNTIL I see the red results.  It scares the bejesus out of me when that happens until I STOP, THINK, and REMEMBER!  The green (lime) doesn't come out green for me. (????)  I can't explain that.  I do know that grape Powerade, which is my favorite flavor, does turn things a strange, sorta green color.  Don't get that either.  Even tho cherry is my favorite flavor of jello, I tend to stick with orange or peach, when I eat it, just to keep from scaring myself.  It's really weird.  I drink a cranberry/black cherry juice mixed 1/3 juice and 2/3 water all the time.  (I mix my own and put in water bottles.  And freeze them to make slushies.)  NO RED when I drink that.  But let me eat cherry or raspberry jello!  And, I read somewhere else on this forum and agree, beets will turn everything red.  Let us know what you experiment shows for you.

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 9/21/2007 6:40 PM (GMT -6)   
Mom2sophia,

What is rectocele? I haven't heard that term before. My symptoms for dehydration were...dizzy (nearly faint), constantly thirsty ( I even got up twice in the middle of the night to drink water), I rarely ever urinated (not even in the morning when I first woke up), I could not stand up with out holding on to something for support, I had shortness of breath and had a hard time talking without weezing on the phone ( I always sounded like I had run up a flight of stairs even when I was sitting because I was so out of breath), my heart rate increased dramaticly when I stood up because of the lack of oxygen to my cells (water has hydrogen and oxygen which your cells need to live, if you are dehydrated, your cells do not have enough oxygen to help you breath), and other symptoms that were more minor like lack on concentration, severe cramps in my feet and legs. These were my symptoms, however, I was severely dehydrated. When the hospital put me on an IV drip, I gained 19 pounds in 4 days. They said my cells where attempting to soak in all the water that they needed but were not getting from me. My cells were like a dry sponge soaking up the water.

As far as supplements go, I did not take any. I refuse to take a pill of any kind...I just do not like pills! A lot of my symptoms were not only from the dehydration but also from the lack of nutritian. And the fact that I was still teaching my fitness classes did not help matters much.

I cannot give you my opinion about your situation because I do not know what a rectocele is. I can tell my that if my rectum could be repaired, I would try that first.

Mom2sophia
Regular Member


Date Joined Aug 2007
Total Posts : 262
   Posted 9/21/2007 7:46 PM (GMT -6)   
A rectocele is where the muscle/skin tissue that seperates the vagina and rectum collapses and forms a pouch.  It is up pretty high though.  It comes from years of bearing down, weight lifting believe it or not, and of course child birth. 
 
I intend to get that fixed first, but I am almost positive that is not going to help the stool move quicker through my colon.  It may help with the evacuation, but my colon needs to move faster...and I have tried everything out there to get it to do just that. 

Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 9/21/2007 9:44 PM (GMT -6)   

Peggy,

Thanks for the reply. I'm glad I was able to figure out that it was probably the Jello and not blood. My son has Crohn's and sometimes when he bleeds it's solid blood with blood clots. I haven't tried Jello since then. Today I was actually having problems with going at all. I knew I had to go and could feel that I had to go, but I just couldn't do it. I finally ate a bunch of raisins and was able to go. I'm hoping today was just a fluke and I'll return to normal tomorrow.


Terri
 
_________________________________________________________________________________
Breast Cancer at 36. Diagnosed in 2000. Bilateral mastectomy with reconstruction.
Total colectomy in September 2007 for colonic inertia.
Son diagnosed with Crohn's and UC at 17 (now 20). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups.
Husband HLA B27 postive with ankylosing spondylitis and psoriatic arthritis.


april417
Regular Member


Date Joined Jul 2007
Total Posts : 204
   Posted 9/22/2007 7:54 AM (GMT -6)   
Terri,

Also to give you a heads up, if you eat strawberrys' your stool will be red also, and if you eat
blueberry's your stool will look like tar. I scarred my self several times until I realized what
I was eating.
Good luck

April

Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 9/22/2007 10:26 AM (GMT -6)   

April

Thanks for the heads up on those additional foods. I ate some sweet and sour shrimp last night that did the same thing, but at least this time I was expecting it.


Terri
 
_________________________________________________________________________________
Breast Cancer at 36. Diagnosed in 2000. Bilateral mastectomy with reconstruction.
Total colectomy in September 2007 for colonic inertia.
Son diagnosed with Crohn's and UC at 17 (now 20). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups.
Husband HLA B27 postive with ankylosing spondylitis and psoriatic arthritis.


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 9/22/2007 1:15 PM (GMT -6)   
Hi All,
I wanted to give you an update on my last 4 mos.  I have been seriously ill (as most of you know)since 4 weeks post-op from my TC.  I have been in the hospital 7 times and on home TPN thru a PICC line for 14 weeks.  My surgeon didn't know what the problems was, she ran CT's, barium swallow, gastrografin enema and numerous xrays that showed a hugely distended and dilated small bowel.  She thought I had an obstruction but it wasn't showing on film.  I was slowly dying, losing hope and in terrible pain. 
 I was admitted the Wed. before labor day once again because the pain/vomiting were too bad to handle at home.  The GI doc on call ordered another CT w/ contrast and it showed the usual but it also showed what appeared to be an obstruction.  He did a scope and it wouldn't go past the anastimosis sight.  I had surgery the Tues. after labor day to remove the stricture.  I stayed 11 days in the hospital and am thrilled to say I am able to eat now and should get off the tPN and the PICC line out this week.  What an ordeal.  I thank God for my surgeon, she didn't give up and she was the only doctor that was following me closely.  I know I could have died but I am so greatful to be alive.  I pray I never have to go thru anything like this again.
 
I also found out I don't have MS but I have severe autonomic shutdown and mixed connective tissue disease.  I have chronic anemia and low white count from this disease and I had to have 2 pints of blood while in the hospital due to my anemia of unknown cause.  Hopefully my rheumy and neuro will figure it all out.
 
Thanks for all your care and concern.
Michelle ><>
 
 

Happy Moments, Praise God.
Difficult Moments, Seek God.
Quiet Moments, Worship God.
Painful Moments, Trust God.
Every Moment, Thank God.


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 9/22/2007 2:13 PM (GMT -6)   
ShellyPoo,

Your message sounds so hopeful and positve and yet so troubling. I cannot imagine what you have had to endure over the past several months. It must have been challenging to live through all of those examinations and tests, painful days, and unanswered questions. I am so grateful that you have a surgeon who is watching over you so carefully. When I had my first TC, my surgeon sent me home before I was even able to keep down solid foods. Because of his incompetence, I spent the last seven years unable to eat and very, very ill. Congraulations on finding out you do NOT have MS! This is huge! My mother had MS and she pasted away 6 years ago. It is a horrible disease.

Good Luck in the rest of your recovery.

Amey

Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 9/22/2007 2:41 PM (GMT -6)   
Lindsay,

My doctor said that my pevic floor falls really low when I push to have a BM because I have had to strain for so long to have a BM. He said I have the pelvic floor of a 90 year old woman and I am only 33. He also showed me the defocography xray. On the xray you can see that the interal muscle of my rectum "baffles" (his words not mine) inward blocking the rectal passage way which obstructs stools from passing. He did not think this could be repaired. I have already been through biofeedback to retain my rectal muscles and it was not successful. My doctor never said the words "rectocele" so I am not sure if you and I have the same thing. I will tell you that I have had this problem for years and the TC did not make it better. The only thing that worked was closing up my rectum and putting me on a bag. However, I doubt most surgeons would give you a bag at this point. Your probably going to need to see how you do with the TC first and then evaluate things at that point.

I hope this helps.
Amey

april417
Regular Member


Date Joined Jul 2007
Total Posts : 204
   Posted 9/22/2007 3:50 PM (GMT -6)   
Shellypoo
 
I glad to hear you are doing better.  I'm so sorry to hear what you had to go through.
Please keep us inform of your progress.
 
Amey
 
How are feeling, still running?
 
To All
 
Hope everyone is doing well, I am hanging in threre, I still have alot of cramping and
going to the bathroom 6-20x's a day.  Today I have so much pressure and I can't
go to the bathroom which is not like me, has anyone gone through that? I keep
feeling like I have to go but I can't.
 
 
April

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/22/2007 4:10 PM (GMT -6)   
Michelle
What an ordeal you went through! My heart goes out to you. I'm so glad that your doctor did not give up looking for what the problem was and that she was able to fix it with surgery. How wonderful that you're feeling better and can eat again! I praise God that you are alive and on the road to recovery.
Cecilia ><>
Dx'd w/ Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Pain-free, med-free, and very thankful to be healthy again :)


ucRick
Regular Member


Date Joined Jun 2007
Total Posts : 75
   Posted 9/23/2007 9:48 PM (GMT -6)   

Hello everyone,

Again, I want to thank everyone for their thoughts and prayers.  I came home after my colectomy on Wed., 9/19, after 2 weeks in the hospital.  Most of that time my bowels were distended and not moving, and I couldn't keep anything down.  During that time they had to insert and subsequently remove NG tubes 3 times.  Finally, my intestines decided to wake up and start working again, maybe it was because  the surgeon had put me on the OR schedule for 9/19, and told me about it on Monday, 9/17.  Talk about incentive to get better. 

I was able to start eating and actually keep it down on 9/17 and was discharged on 9/19 and am recuperating at home now.  In looking at the dischage papers, the surgery was called a sub-total colectomy with ileo-sigmoid anastomosis, and I do remember the surgeon saying that he left about 3 inches of the bottom part of the sigmoid colon.  I hope I didn't leave too much, because one of the biopsies from the ascending colon showed a tiny bit of  colon cancer just starting.  They are sure they got it all out and it had not crossed over into the lymph system, but I'll have to go for scopes at least once a year as follow-up to check that little bit of sigmoid colon and rectum that is left.

I am feeling a little bit better each day and even walked with my wife outside for about 8 blocks today, albeit a little slow.  It just felt so good to be outside.

Thanks for listening to my ramblings.
 
Rick


53 yr old male, UC since 1978
800mg Asacol x 3 daily
Multivitamin
Forteo(for osteoporosis)
600mg calcium + 200 iu Vit. D x 3 daily
Advicor(for cholesterol)


Stuck42Long
Regular Member


Date Joined Sep 2006
Total Posts : 250
   Posted 9/24/2007 7:31 AM (GMT -6)   

WOW - THIS BOARD HAS SURE BEEN BUSY!!!  I will try to address as many and all as possible!!

RICK - It's so nice to hear you're home and on the road to recovery.  Congratulations on your walk - I know you enjoyed being outside even if you moved slowly.  I know you must be thankful that you're able to eat again!!  I wish you continued success and hope you continue to post and let us know how you're doing!!

MICHELLE - My heart sure goes out to you sweetie and all you've been thru!!  I'm sure you were extremely scared during this trial.  Thank God your doctor kept a close eye on your situation and didn't give up.  I'm sure you have a very long road to recovery ahead of you considering how sick you were.  Remember to take it one day at a time and pay attention and listen to your body!!

APRIL - You will notice that you will have better days than others.  I know it's hard to do, considering the fear of being "constipated" again, but don't get too alarmed.  You will have better days than others.

There are things you can do to help move things along during the "slower" days.  Try drinking Mott's apple juice - eat some prunes - sugar free chocolate candy - even some MOM or magnesium caps (of course not all at the same time).  You'll be surprised at what these things can do for you!!  Please keep us posted.

MOM2SOPHIA - I think I mentioned that I had a large rectocele as well, which was discovered during the defogram.  I was immediately referred to the colorectal specialist/surgeon because all the other tests confirmed CI.  During one of the consultations I asked if he was going to "fix" the rectocele during the TC, however, he informed me that he wouldn't need to fix or repair it - it would take care of itself after the TC because I would no longer be bearing down.  A rectocele will basically go away if one doesn't bear down. 

Now on the other hand, if the only reason one isn't able to have a bm and the cause is solely a rectocele - not colon problems - then they would do surgery to repair it.  But as you've indicated - all your tests are coming back as CI.  I think I would bypass the OBGYN and find a good experienced colorectal specialist/surgeon to talk to and see if they feel a TC is in order for you.

IRISH - How are you feeling?  I hope you're regaining your strength each passing day and continue to grow stronger as the days pass!!

I hope I didn't leave anyone out!!  For everyone here, please keep in touch.  Everyone has something to contribute to this thread that will help and encourage others going thru difficult times!!!


Robin
 
God is SO good - His blessings are endless! 
Trust in Him with all your heart!
Know He's in control over every situation you face!!
 
 


Mom2sophia
Regular Member


Date Joined Aug 2007
Total Posts : 262
   Posted 9/24/2007 9:10 AM (GMT -6)   

I think I am going to see what the gyno has to say.  I little personal info....but it also hurts to do the deed with my husband...so something is going on.  I want to get his opinion before I see the colorectal surgeon.  I have not really had to bare down since giving myself enemas...so it really should be getting better, not worse. 

Thanks for your opinion though.


Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 9/24/2007 10:45 AM (GMT -6)   

Rick

I'm so happy to hear that you were finally able to escape the hospital. Yipee! Doesn't it feel to be home? I don't know about you, but I can't stand hospitals and always feel better being at home.

I can understand your concerns regarding the cancer thing. The good news is that the sigmoid is the last part of the large intestine and your cancer was in the ascending colon which is the beginning of the colon. The beginning of the ascending colon is where the ileum connects.

Robin

I'm doing pretty good. I still have that backache, but it is getting better each day. Other than that, I feel pretty darn good. Sometimes when I'm doing certain things, I notice a sharp pain on the inside. It's one of those pains that takes your breath away for a second. I see the surgeon tomorrow, so I'm going to ask him about it. I wasn't told what I can or can't do, so I've been doing whatever I feel like doing. The only thing I have been staying away from is lifting heavy things (over 40 pounds), but I have been able to carry laundry baskets full of clothes, vacumn, and the normal housework stuff. I just don't do a lot at once and take breaks when needed.


Terri
 
_________________________________________________________________________________
Breast Cancer at 36. Diagnosed in 2000. Bilateral mastectomy with reconstruction.
Total colectomy in September 2007 for colonic inertia.
Son diagnosed with Crohn's and UC at 17 (now 20). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups.
Husband HLA B27 postive with ankylosing spondylitis and psoriatic arthritis.


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 9/24/2007 1:57 PM (GMT -6)   
Rick,

I am glad things are moving along...:o) You will recover so much faster at home. Surgeons like to leave a little sigmoid so that your stools will have some form to them. If the attached your Ileum (the bottom of your small intestines) to your rectum, you would have pure liquid bowels. This can be very troubling. I am so glad that you are cancer-free and on the road to recovery. Please keep us posted on your progress.

April,

Yes, I am still trying to run. It is not easy. My legs are WEAK! But, I am able to go a little further and a little harder every time I run. I am going to attempt to teach all of my scheduled fitness classes this week...wish me luck. I have been taking classes at the gym and trying to find out which bag I should wear when I teach. The bag I tried last week leaked right when the class was over. The bag I used Saturday held up fine :o) My fear is that I will poop all over myself while teaching. I would be so embarrassed. I am sorry to hear that you are still going to the bathroom so often. Have you tried to avoid wheat/gluten to see how you feel?

Mom2Sophia,
How did the appt with the gyno work out? You may want to research "rectocele" problems and see if Robin is correct. Maybe the issue will fit itself once you are not straining so hard. Wouldn't that be great.

ShellyPoo,
How are you feeling?
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