Thanks for letting me know it's a normal part of the healing process. I was thinking that it may have something to do with the positioning during the surgery itself. My surgeon called me at home today to see how I was doing and I mentioned the back pain to him. He said that it sometimes happens and will get better over time.
Amey...what were your symptoms of malnutrition/dehydration/low electrolytes? I get dizzy a lot.
I am so happy that Motilium works for you. I am a little depressed that I can't take it...I got severe chest pains and ended up having an EKG done. The EKG came back normal, but my GERD got worse when I took it. Sometimes, if I really feel bad, I will pop a pill and deal with chest pain...but it kind of scary...I have read some have blood pressure issues with it as well.
I did the same thing with my rectum on the anal rectal manometry. I couldn't push the baloon out. But when I had the defacography I pushed most of the barium out, but not all of it...which the doctors are contributing to my large rectocele...did you have a rectocele?
I have an appt with the gyno on Oct.22 to discuss fixing my rectocele...I want to get his opinion on this...the GI says if we fix that, then I might be able to move my bowels. I am not convinced that will help. What do you think? I am curious to see what the gyno says. If he says probably not, then I will just find a colorectal surgeon who will do the TC and fix the rectocele all in one shot.
Where you on any supplements for you nutrition? What is a good multi-vitamin to take?
Hello Irish (Terri),
I just want to let you know the cherry jello will turn things red! I have an ileostomy, and I sometimes scare myself with the "red" thing when I forget what I have eaten or actually, just not paid attention UNTIL I see the red results. It scares the bejesus out of me when that happens until I STOP, THINK, and REMEMBER! The green (lime) doesn't come out green for me. (????) I can't explain that. I do know that grape Powerade, which is my favorite flavor, does turn things a strange, sorta green color. Don't get that either. Even tho cherry is my favorite flavor of jello, I tend to stick with orange or peach, when I eat it, just to keep from scaring myself. It's really weird. I drink a cranberry/black cherry juice mixed 1/3 juice and 2/3 water all the time. (I mix my own and put in water bottles. And freeze them to make slushies.) NO RED when I drink that. But let me eat cherry or raspberry jello! And, I read somewhere else on this forum and agree, beets will turn everything red. Let us know what you experiment shows for you.
Thanks for the reply. I'm glad I was able to figure out that it was probably the Jello and not blood. My son has Crohn's and sometimes when he bleeds it's solid blood with blood clots. I haven't tried Jello since then. Today I was actually having problems with going at all. I knew I had to go and could feel that I had to go, but I just couldn't do it. I finally ate a bunch of raisins and was able to go. I'm hoping today was just a fluke and I'll return to normal tomorrow.
Thanks for the heads up on those additional foods. I ate some sweet and sour shrimp last night that did the same thing, but at least this time I was expecting it.
Happy Moments, Praise God.Difficult Moments, Seek God.Quiet Moments, Worship God.Painful Moments, Trust God.Every Moment, Thank God.
Again, I want to thank everyone for their thoughts and prayers. I came home after my colectomy on Wed., 9/19, after 2 weeks in the hospital. Most of that time my bowels were distended and not moving, and I couldn't keep anything down. During that time they had to insert and subsequently remove NG tubes 3 times. Finally, my intestines decided to wake up and start working again, maybe it was because the surgeon had put me on the OR schedule for 9/19, and told me about it on Monday, 9/17. Talk about incentive to get better.
I was able to start eating and actually keep it down on 9/17 and was discharged on 9/19 and am recuperating at home now. In looking at the dischage papers, the surgery was called a sub-total colectomy with ileo-sigmoid anastomosis, and I do remember the surgeon saying that he left about 3 inches of the bottom part of the sigmoid colon. I hope I didn't leave too much, because one of the biopsies from the ascending colon showed a tiny bit of colon cancer just starting. They are sure they got it all out and it had not crossed over into the lymph system, but I'll have to go for scopes at least once a year as follow-up to check that little bit of sigmoid colon and rectum that is left.
I am feeling a little bit better each day and even walked with my wife outside for about 8 blocks today, albeit a little slow. It just felt so good to be outside.
WOW - THIS BOARD HAS SURE BEEN BUSY!!! I will try to address as many and all as possible!!
RICK - It's so nice to hear you're home and on the road to recovery. Congratulations on your walk - I know you enjoyed being outside even if you moved slowly. I know you must be thankful that you're able to eat again!! I wish you continued success and hope you continue to post and let us know how you're doing!!
MICHELLE - My heart sure goes out to you sweetie and all you've been thru!! I'm sure you were extremely scared during this trial. Thank God your doctor kept a close eye on your situation and didn't give up. I'm sure you have a very long road to recovery ahead of you considering how sick you were. Remember to take it one day at a time and pay attention and listen to your body!!
APRIL - You will notice that you will have better days than others. I know it's hard to do, considering the fear of being "constipated" again, but don't get too alarmed. You will have better days than others.
There are things you can do to help move things along during the "slower" days. Try drinking Mott's apple juice - eat some prunes - sugar free chocolate candy - even some MOM or magnesium caps (of course not all at the same time). You'll be surprised at what these things can do for you!! Please keep us posted.
MOM2SOPHIA - I think I mentioned that I had a large rectocele as well, which was discovered during the defogram. I was immediately referred to the colorectal specialist/surgeon because all the other tests confirmed CI. During one of the consultations I asked if he was going to "fix" the rectocele during the TC, however, he informed me that he wouldn't need to fix or repair it - it would take care of itself after the TC because I would no longer be bearing down. A rectocele will basically go away if one doesn't bear down.
Now on the other hand, if the only reason one isn't able to have a bm and the cause is solely a rectocele - not colon problems - then they would do surgery to repair it. But as you've indicated - all your tests are coming back as CI. I think I would bypass the OBGYN and find a good experienced colorectal specialist/surgeon to talk to and see if they feel a TC is in order for you.
IRISH - How are you feeling? I hope you're regaining your strength each passing day and continue to grow stronger as the days pass!!
I hope I didn't leave anyone out!! For everyone here, please keep in touch. Everyone has something to contribute to this thread that will help and encourage others going thru difficult times!!!
I think I am going to see what the gyno has to say. I little personal info....but it also hurts to do the deed with my husband...so something is going on. I want to get his opinion before I see the colorectal surgeon. I have not really had to bare down since giving myself enemas...so it really should be getting better, not worse.
Thanks for your opinion though.
I'm so happy to hear that you were finally able to escape the hospital. Yipee! Doesn't it feel to be home? I don't know about you, but I can't stand hospitals and always feel better being at home.
I can understand your concerns regarding the cancer thing. The good news is that the sigmoid is the last part of the large intestine and your cancer was in the ascending colon which is the beginning of the colon. The beginning of the ascending colon is where the ileum connects.
I'm doing pretty good. I still have that backache, but it is getting better each day. Other than that, I feel pretty darn good. Sometimes when I'm doing certain things, I notice a sharp pain on the inside. It's one of those pains that takes your breath away for a second. I see the surgeon tomorrow, so I'm going to ask him about it. I wasn't told what I can or can't do, so I've been doing whatever I feel like doing. The only thing I have been staying away from is lifting heavy things (over 40 pounds), but I have been able to carry laundry baskets full of clothes, vacumn, and the normal housework stuff. I just don't do a lot at once and take breaks when needed.