area surrounding stoma

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sedona61
New Member


Date Joined Jul 2007
Total Posts : 15
   Posted 9/22/2007 2:23 PM (GMT -6)   
Hello, everyone I had a colostomy Feb 2007 and ever since I had it, I've had skin irritation redness around my stoma, right now I use Stomahesive powder with no relieve, I also use seals because I have a flush stoma with one piece unit, tryed wafer/pouch that does not work for me.  It looks like my stoma is going inside me is this normal?
 
Thanks,
 
sedona  mad

sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 9/22/2007 9:23 PM (GMT -6)   
Mine is like that. I just had my surgery in August, but I switched to a Convex one piece, and it's getting better. It works better with my itty bitty stoma. I don't know if it's normal, but my stoma looks like it is trying to climb back inside, too. Plus, the opening faces directing up, so it shots poop at me if I'm not careful when changing bags.
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 9/23/2007 8:14 AM (GMT -6)   
When the stoma is active, it does seem to retract. I noticed a real difference in my wear time (see thread called Wafer wear time?) recently after I have gained a little weight. I'm still only 115 but most of the weight went to my abd. No surprise there. about 2 weeks ago, for the first time, I tried a convex insert along with my Convatex 2 piece system. I used to easily get 5-7 days wear time, then it dropped to 3-4, I am back up to 7-8 days with the convex insert. What this insert does for me is it forces the stoma to be pushed out beyond the abdomen a little and therefore it is not as flush with the skin. It just seems like the wafer doesn't break down as quickly because the stoma is not producing stool right at skin level. Does that make sense?
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 9/23/2007 3:18 PM (GMT -6)   
OH BTW, do you use any stomahesive paste, or seals under the wafer opening? I still use a small bead of paste when I change my wafer as I have always done. I have some Easkin seals to try, but I have had such a good response with the inserts, why fix it anymore if it is not broken?!!!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/24/2007 7:48 AM (GMT -6)   
If you have a flush stoma you need to use a convex flange of some sort. You can buy the convex inserts and use them with whatever flange of your choice, or you can buy the pre-cut convex flanges (which are a little deeper convexity). Having a good seal around your stoma is very important, that's why I used the Eakin Seals. They don't wear away as quickly as the paste and actually help heal the area. The paste also has alcohol so burns sometimes.

A convex flange will push the skin around your stoma back, helping the stoma to protrude into the flange. This should help prevent leaking. My stoma was so bad that I used the Eakin Seals, actually overlapped the edge of my stoma a little, then used the pre-cut flange on top of that which fit the stoma. It made my Eakin put a little ledge around the stoma.

You don't mention why you had to have the surgery, could you have ongoing disease? I have CD and the disease actually made my intestines shorter, so they pulled on the stoma from the inside creating an inverse convex stoma.

This is something you may want to talk to your surgeon and/or GI about. You do not want to battle leakage like this forever, you will have to have revision eventually. I put mine off until the disease was bad enough for surgery again, but had to change my appliance every 24 hours for years. That can get very expensive.

Good luck, let us know what happens.
Judy
49 years old, CD since I was a child.    
Six resection surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 9/25/2007 6:16 PM (GMT -6)   
My ET Nurse who has 30 years experience with Ostomies, told me that a belt helps to push the stoma out some. Also, I have extremely sensitive skin and am allergic to several products. I have found the Eakin Cohesive Seals from Convatec work very well for me. No alchohol in them that causes skin irritation for many people. You can either put them on the wafer or wrap it around your stoma.

If you look up Convatec online, you can request samples.

Good luck!
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