New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ME!
Regular Member


Date Joined Aug 2007
Total Posts : 185
   Posted 9/29/2007 9:46 AM (GMT -6)   
My surgery to have my colon removed is Oct 22. I've been in a lot of pain. Colon has been spasming every since doctor made me do the 5 day marker study. I was begging them by the 4th day to let me stop but he needed the 5th day xray. Test revealed 23 of the 24 markers still remaining after 5 days.

I've been taking belladonna for the pain, but have had to take motrin too to actually stop the pain. If I eat I'll have to take a laxative which starts the colon spasming again and more pain, so I don't want to eat

But I'm so hungry and I can't go till Oct 22 w/out eating I'm afraid. I had wanted to put some weight on before the surgery but now I don't even know if I'll be able to keep the weight I have 5'6", 115lbs.

I just needed to vent to ppl who know what I'm going thru. My husband asked me how I was feeling and about eating and I just broke down crying.

I've been trying to occupy my mind by listening to music and surfing the internet, going to the movies, watching tv and playing video games (playing the video games I found is really good at distracting me b/c you have to concentrate so much)

I can't really concentrate on things that I have to think about which is usually what I do b/c I like to learn and I hate feeling like I'm just wasting my time on non-productive things. But I'm trying to give myself some slack and just do goofy stuff that isn't productive.

Thanks for listening :)

Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 9/29/2007 2:10 PM (GMT -6)   
Have you tried something other than Motrin? That's REALLY hard on your GI tract.
Terri
 
_________________________________________________________________________________
Breast Cancer at 36. Diagnosed in 2000. Bilateral mastectomy with reconstruction.
Total colectomy in September 2007 for colonic inertia.
Son diagnosed with Crohn's and UC at 17 (now 20). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups.
Husband HLA B27 postive with ankylosing spondylitis and psoriatic arthritis.


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 9/29/2007 6:27 PM (GMT -6)   
ME,

I was very, very ill for years and none of the Dr's could figure out why I vomitted so much or why I could not have a BM. I had a TC in 2001, but it did not help and I kept getting sick. In Sept. 2005, I was rushed into the ER and into an emergency surgery. My small intestines was completely twisted. The attending surgeon noticed that there was a problem where my small intestines and my colon were connected from the previous surgery. He noticed that the hole which allowed foods to pass was so small he could not even see it. However, he DID NOT fix this problem. He only fixed other obstructions and then he sewed me up. When I awoke, he told me he wanted to send me to another surgeon who was in the top 1% and have him look at my case. I said Ok. I thought I would get to see this new Dr and I would have the surgery to fix the hole....no problem, right? The new surgeon wanted to run tests and more tests. From January 2006 to June 2006, I went through more testing than I care to think about. Prior to this time, and during this time, I could not eat. I was so hungry. I had not had dinner with my children in 7 years. I could not attend b-day parties for my family because seeing all of the foods made me cry, I could not go out to eat on Mother's Day or Father's Day with my family. I could not go any where that had food! I begged this new surgeon to please stop testing me and just FIX THE PROBLEM. I hated TV commercials with Pizza Hut or Olive Garden...I just wanted to cry! I REALLY understand where you are coming from.

Ok, so here is some good stuff to think about...you will get through this. You will become stronger through this challenge. You will be able to relate to other people who are going through this type of experience. You will have a better appreciation for your surgery. I am now 6 weeks post another surgery, not a TC this time but a ileostomy, and no matter how many times my bag leaks, or how much poop gets in my bed...I appreciate having this surgery. I am not hungry anymore. I took my kids to Taco Bell last week...this is the first time I HAVE EATEN with my kids at a fast food restaurant EVER! My daughter said, "Mommy, you are actually going to eat a taco?" She was shocked. She had never seen me eat a taco before and she is almost 10 years old.

The best thing I found to help me get through the hunger were Jolly Ranchers hard candies. I sucked hard candies a lot and that helped. Also, sugar free popcycles to suck on and I ate a lot of ice. I am sorry I do not have more to offer you. But sometimes it just helps to know that others have been there and there is light at the end of the tunnel.

Take care..

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/29/2007 7:17 PM (GMT -6)   

Me, I'm so sorry that you're not able to eat without being in pain. sad  My heart goes out to you. Can you drink anything without getting spasms? If so, maybe you could have a protein shake to take away your hunger or juice some fruit and veggies in a juicer. V-8 makes a strawberry banana 100% juice drink that is good. You have to get some nutrition somehow. TPN and fluids by IV would be another option, if you can't tolerate anything by mouth. Can they do the surgery any sooner than October 22?


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 9/29/2007 8:15 PM (GMT -6)   
i was gonna suggest a milk shake, or a smoothie

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 9/30/2007 4:17 AM (GMT -6)   
I kind of understand the eating causing pain scenario but it has been many years for me, and my was from CD. At the peak of my disease, I was so afraid to put any food in my mouth that I would go all day w/o eating to avoid the major pain so that I could continue to work. Then in the evenings I would try to eat something and usually spend 1/2 of the night writhing in pain. I, too, was on Belladonna at the time but in suppository form; plus oral pain meds as well, just to get thru the day. Be sure you drink plenty of fluids....you don't want to get dehydrated on top of everything else. I also did the hard candy trick - help satisfy the craving to put "something" to eat in my mouth. As soon as I would drink or eat anything digested as a solid, even something like a smoothie, I would be in pain. I do understand eating = pain. It is a horrible thing to deal with, but just keep in mind that there is light at the end of the tunnel.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


ME!
Regular Member


Date Joined Aug 2007
Total Posts : 185
   Posted 9/30/2007 10:23 PM (GMT -6)   
Amey, I'm so glad you have gotten relief. I'm so sorry you had to go thru all that.

Thanks everyone for the understanding.
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, August 20, 2017 5:51 AM (GMT -6)
There are a total of 2,857,667 posts in 313,538 threads.
View Active Threads


Who's Online
This forum has 155149 registered members. Please welcome our newest member, ejacobs176.
329 Guest(s), 1 Registered Member(s) are currently online.  Details
Loutucky


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer