Grrr. I can't find a bag that works for me!

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sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 10/1/2007 4:02 PM (GMT -6)   
My insurance covers Hollister products. The wafers for the regular flat one piece and two piece systems irratates my skin. The convex with tape doesn't irratate as much. But, my stoma is weird, and the opening faces up, instead of out, and is VERY close to my skin. So, EVERY single wafer I've tried comes up and unsticks by the opening. Everytime it goes, the gunk gets under it, and then the wafer only lasts a day or two at the most, and my skin gets even more irratated. I've tried paste, but it doesn't seem to work, either, and it makes me itchy. I haven't tried an eakin seal, but it seems like it's so thick, that it would cover the opening on my stoma completely.
Any suggestions?
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 10/1/2007 7:23 PM (GMT -6)   
I had the same problem! My stoma is tiny and the wafers degrate quickly and I do not get more than 2 days out of them. I called Convetec and had them send me a plastic insert. The insert goes around your stoma and goes over your wafer not under it. It holds the wafer area very close to your stoma so nothing can get underneath. I do not wear Convetec wafers I wear Hollister New Image. My wafer is 1 3/4 so that is what I ordered from Convetec and it fit into my Hollister wafer just fine...As a result, I got 4 days out of my wafer. I could have gone 5 days, but I was too nervous to keep it on another day. When I removed the wafer, it looked good. No stool had leaked underneath!

I hope this helps.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 10/1/2007 8:21 PM (GMT -6)   

I kinda have the same problem with my stoma.... INSERTS are great, and not too costly.  They have increased my wear time too!  Try them before you get too discouraged.  Judy recommended them to a couple of us here on this forum not too very long ago.

(Judy ---- we are passing your recommendation on to another person who sounds like Amey and I!!)

Let us know how it works for you.
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 10/1/2007 8:27 PM (GMT -6)   
Also, see thread titled INSERTS in the forum for a little more info.....
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 10/2/2007 7:42 AM (GMT -6)   
Also, the Eakin seals can act to create a deeper convexity. I used them with a deep convex flange because my stoma was actually being pulled inward, was deeper than my skin and they worked. Unfortunately, you may not get long wear time no matter what you wear. I went years with a 24 hour wear time, and I used to sell these supplies so I tried everything. I was just happy I found a solution that didn't leak so I could work and go to school.

You can always have a stoma revision, I opted not to because I have severe crohn's and knew I'd have to have another surgery eventually (of course I went a full 7 years of remission last time, so I had a long wait, lol).

And I think I've mentioned this before, but I've never heard of an insurance only covering one product, too many people with too many different needs. I think all you have to do is get a new Rx signed by your doctor (which the supplier should do for you) and they should cover what ever you need. Call an ET nurse to help find a solution, or get a bunch of samples and come up with your own.
Judy
49 years old, CD since I was a child.    
Six resection surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


redspout
Regular Member


Date Joined Sep 2007
Total Posts : 27
   Posted 10/2/2007 7:06 PM (GMT -6)   
I would suggest to retry with the eakin seal. I got a few free samples of these once and noticed that I could pretty much shape them how ever I wanted. I also thought they were too thick, so I flattened it a bit by using a rolling pin, and then recutting the inner hole and outer diameter to the proper size. If you do this, don't press too hard, and to prevent any sticking the the rolling pin, put a little prep powder on the seal. Just as if you were going to make a mini pizza. Don't make them too thin either, or else it won't work too well.

Bon Appetit.
"The world hates change, yet it is the only thing that has brought progress."
-Charles Kettering


"He who rejects change is the architect of decay. The only human institution which rejects progress is the cemetery."
-Harold Wilson

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