ya know, I get so happy when I read these replies I truly can't wait to just go under the knife & get on the healing side! I know I will be much happier, despite the "body image" issue... It's not like I'm some swimsuit model anyway, I'm a 37 year-old married mom of one! gimme a break.... I'm frightening enough as is in a bikini! Slice- I've been on 60mgs of pred now for a few months, which is too long for me. Every time I've started pred in the past (this is my 3rd? 4th? course) I start at 60, then have been able to taper, with mixed results. This time however, I go below 60mgs & BAM! Bloody mess. I would like to get down to about 30mgs just prior to surgery- I have one last Remicade infusion this coming Monday, which I don't really want to do but I need to try to stabilize myself- like I said, I've been SICK. Even the high pred dose is doing next to nothing, I'm still bleeding & going 15+ times a day. I'm going to try to taper after the remicade infusion. My surgeon said I could stop the Asacol & Imuran the day of the surgery, & they will start a pred taper right off the bat. I know it sukcs, pred tapers- it does feel worse than actually being on the drug. Stoma Girl- kudos to you for undergoing this at your age! I don't know if I'd be able to do it when I was 18. It sounds as if you're doing great with everything- it's so uplifting to read the positive replies! Thank you both!!! PS- I can't wait to eat... the Ensure liquids are NOT cutting it!
Everyone else here has pretty much covered all of the basics, I think. The only thing that I can think of is that a pillow will be your best friend for a couple of days out of surgery. Esp when trying to move. If you hold it against your stomach with just slight pressure, it really does help. Also, if you feel a sneeze coming on or have to cough, or if you get nauseous - remember this: HUG your pillow! I too tried the waterproof pads when I got home - just in case. Helps build confidence and you can get some much needed rest since you can't get much in the hospital.
I also would be careful with stuff that is more difficult to digest just until you can become more accustomed to how your stoma will work. Experiment with small portions and drink lots of fluids.
Best of luck to you and please ask any questions that come to mind. That's what we are here for.
I do have a pretty high tolerance for pain, & after the first couple days how bad can it be??!?! I'm not looking forward to getting up & walking the day after surgery but I know it's gotta be done. My surgeon mentioned an epidural as an option also- he must've meant after the surgery, as obviously I'll be out cold during it! There is more chance of swelling with an epidural though.. I guess these are things I'll talk about with the anesthesiologist at my pre-ops. I'm not planning on an epidural- I didn't even have one for childbirth, for gosh sake!