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Crohned
Regular Member


Date Joined Jan 2007
Total Posts : 86
   Posted 10/10/2007 3:07 PM (GMT -6)   
I read a few past posts that mentioned how children cope with their parent's health situations.  How do you explain to your kids about the surgery and the bag?  I don't have kids, but I imagine there are some interesting conversations that take place between parents and children about the realities of crohn's disease.  
Diagnosed Crohn's/Colitis 2003.  
Subtotal Colectomy w/ Ileostomy May 16, 2007.
I'm off the meds!!  
 


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 10/10/2007 3:53 PM (GMT -6)   
I have yet to actually get surgery but it's fast approaching, November 14. I have a 5 year-old daughter, & I was diagnosed after her birth. Since she's grown up with Mommy being sick, she is VERY supportive of my decision to have surgery. I can't tell you how many times we've been out together when Mommy has to pull over the car & poop on the side of the road, or Mommy has to run with the shopping cart to the grocery store restrooms, or how many times we haven't been able to go to the beach, the playground, etc. due to Mommy's stomach. When I made the decision to have surgery, I showed her stoma pics & ileostomy bags on the internet so she would have an idea of what exactly it was I'd been talking about. At first, she says "That is the most DISGUSTING thing I've ever heard of!". Typical 4 year-old honesty, huh? But after the first look, she thinks it's going to be great- now she says "Hey Mom, you can even poop while you're cooking!" tongue She has seen an ileostomy bag & checke dit out. She's eager for me to feel better, so we can do more things together as a family. And finally put an end to the doctor visits, the hospital stays, the meds, etc. I find children to be much more resilient than adults re. body issues.
diagnosed '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Prednisone- 60mgs/day


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/10/2007 6:18 PM (GMT -6)   
I love the "Mom, you can poop while you're cooking!" comment. How cute is that?!? tongue

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 10/10/2007 8:19 PM (GMT -6)   
that is super cute! kids are so funny
i have been sick for eight years, so i was sick when my son was born, and he didnt' really understand, all he knew was that he had to spend alot of time playing in the bathroom, luckily he thought that was fun! it was worse for me than for him, becuase i couldnt' take him anywhere, but he didnt'realize that yet.
Anyway, he was 22months when i had my surgery, and as a result he had to live with my grandma for six weeks, because i couldnt' take care of him, and my husband had to go back to work. That was hard on him, and he his far to little to understand, he only knows that mommy's belly is broken. Well the first time i took him in the batrhoom with me, was right after he came back to live with us (that sounds awful) anyway he looked at the bag, and said, "what's that thing called?" and i said it's an ileostomy, and he said, oh an ileostomy (in two year old speak, but he actually pronoucned it pretty good) anyway he asked what it was for and i told him, and he went about his business, the next time he jsut watched, thought it was really neat. A few times later he asked me again, and i said, "i keep poo in there" and he said, "how did winnie the pooh get in there?" i lauged so hard! i explained it to him, again. and now he seems to get it, i stil have to be careful becasuse he is rather wild and wants to jump on my tummy, and i am afraid he will yank my bag off!

Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 10/10/2007 9:00 PM (GMT -6)   
My kids are science geeks. They love animal shows and nature programs so I am their walking science project. They think my stoma is "totally awesome."
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


Stoma Girl
Regular Member


Date Joined Oct 2007
Total Posts : 55
   Posted 10/11/2007 6:25 AM (GMT -6)   
Physically, can you have children if you have a stoma? I've heard a lot of different opinions on this..
Never Give Up, Never Surrender
 
.. Stoma Girl ..
.. Ileostomy following Crohn's Disease, 2007, aged 18 ..
.. Time between diagnosis and operation - one year ..
.. Journal of stoma-affected life : http://stomagirl.livejournal.com ..


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1245
   Posted 10/11/2007 7:18 AM (GMT -6)   
You absolutely can Stoma girl. An ostomy itself will not stop you from having kids (last I heard having kids had nothing to do with the intestines :) ). However, the circumstances that bought about the ostomy may have some bearing on the situation.

I know many ostomates who have had kids after their surgery. In fact, the majority say that pregnancy with an ostomy is much easier than pre-surgery lol
I have had an ileostomy for 31 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 10/11/2007 7:24 AM (GMT -6)   
Stoma,

That is one of the reasons I agreed to having this surgery...so I may be able to have more children! Before the surgery, I did not eat enough to support my own body. There was no way I could have even considered getting pregnant. But now, it may be an option for me. I am going to give myself 1 1/2 years to heal and see how I feel then.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 10/11/2007 5:16 PM (GMT -6)   
the thing they told me that was the biggest problem was that you might have a harder time getting pregnant. and you would have to have a c-section other than that i don't see any reason why you would have any problems. It would be alot better to be healthy and pregnant

justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 10/11/2007 6:53 PM (GMT -6)   
Well, I have been prego with a stoma. Yes, I had to have a c-section (personally I was only too happy about that!). There are some drawbacks. The first one is the ever changing stoma. At times it was like starting over to find the right fit. Then after I had the baby my stoma was completely different. It was larger and irregularly shaped. Also, I was always worried some strange person or person I would not want to touch my belly would--and they did! It was a co-worker so I told her then about my ostomy b/c of course she put her hand right there! My daughter has only seen me with a stoma and she is very accepting. When she asked why I just explained that I have a very bad disease and my bottom broke. I then pointed out all the cool and fun stuff we do together and remind the only reason I can do these things is b/c of my stoma. She has never told anyone since I told her it was no one else's business. I think if you make it a big dramatic deal then others will too but if you just act like it's nothing everyone is more accepting and generally forget you have it.

Crohned
Regular Member


Date Joined Jan 2007
Total Posts : 86
   Posted 10/11/2007 8:54 PM (GMT -6)   

When I showed my 9 year old nephew my bag, he shrugged his shoulders, pursed his lips to think, and then asked, "well, does this mean that you won't be sick all the time?"  I said yah, and I will be able to a lot more this way.  "Then it's cool with me" he says.  No big deal.

I love their pragmatic attitude towards these situations.  No prejudices, no preconceived ideas formed....just the truth.  Wish we could all be this way.


Diagnosed Crohn's/Colitis 2003.  
Subtotal Colectomy w/ Ileostomy May 16, 2007.
I'm off the meds!!  
 


Stoma Girl
Regular Member


Date Joined Oct 2007
Total Posts : 55
   Posted 10/12/2007 2:04 AM (GMT -6)   
Thanks for the reassurance guys, I'd just heard that ostomies made carrying children difficult. Glad to know when the time comes I'll be ok! :)
Never Give Up, Never Surrender
 
.. Stoma Girl ..
.. Ileostomy following Crohn's Disease, 2007, aged 18 ..
.. Time between diagnosis and operation - one year ..
.. Journal of stoma-affected life : http://stomagirl.livejournal.com ..


xdeex
Regular Member


Date Joined Sep 2007
Total Posts : 42
   Posted 10/12/2007 2:21 AM (GMT -6)   
When I explained to my then 14 year old daughter about the surgery, she
said, " so no more f*rting and embarrassing me?" Deep down I actually think she misses it....... yeah
Diagnosed Crohn's 1994, panproctocolectomy with ileo Feb 2006.


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/12/2007 4:13 PM (GMT -6)   
LOL ~ What a perfect response from a 14 year-old girl!!
Dx'd w/ Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Pain-free, med-free, and very thankful to be healthy again :)

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