Awesomeame ~ Are you okay?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/10/2007 7:00 PM (GMT -6)   
Matt,
The last time we heard from you was about 10 days ago, and you were worried about pits on your stoma. sad Are you okay?

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 10/14/2007 3:22 AM (GMT -6)   
I'm re-posting to bring this message to the top in hopes that Matt will see it and respond.
 
Matt - any news?  You have some concerned forum posters.......
 
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 10/14/2007 9:31 PM (GMT -6)   
hey, sorry i haven't been keeping things updated. work/life they both suck but seem to keep me busy enough to keep me from the forum!

i went to the hospital last friday and got checked out by an et nurse...same one that took care of me after surgery nearly a year ago. she ruled out any kind of blockage, but thinks there may be a stricture at the abdominal wall, but my surgeon needs to take a look to determine that for sure....so now i've an appt with him on the 30th, and we'll go from there. so basically there's something structurally wrong, or else the crohn's is back. don't really know which is worse!!!!!! so i'm on a no-fiber diet for the interim since i can feel every little thingy 'pass,' which can be quite painful, if i say eat something fiberous. can't go to the gym either because it hurts! argh! but i'm back on the booze so at least i'm having SOME fun over here =D so that's where i'm at...thanks for the concern :)

--matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 10/14/2007 9:32 PM (GMT -6)   
oh, i should say the stoma coloring is back to normal, although it's still bulbed out and is stll swollen looking...

--matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/15/2007 5:23 AM (GMT -6)   
Matt,
Thanks for the update. I'm so sorry that you haven't been feeling well. sad Hopefully, you'll be able to get some relief with this change in diet. Good luck with your appointment on the 30th. I hope you find out that nothing major is going on. Keep us posted, because you all are my stoma buddies, and I get worried if I don't hear from someone for a while. eyes
Take care,
Cecilia

awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 11/12/2007 6:47 PM (GMT -6)   
been a busy few weeks once again.  i just got back from a week in the bush, deer hunting.  rain/snow/wind i think i've caught a cold...what a miserable week, but i still had a blast!  
 
anyways...the appt on the 30th...i waited 2hrs in the waiting room just to see the doc for 5mins!!  if that even.  he told me to come back on nov 5th for an exam.  so i had my first ileoscopy then.  everything looks healthy from a crohn's perspective, but the opening at the abdominal wall has gotten smaller...so, a stricture has been the cause of my troubles.  they gave me a pile of meds, then he went to work "stretching" the hole bigger.   ouch, it really hurt.  but a week later now, and i feel much much better.  i can eat anything again, although i'm sure i'll be staying away from the nuts.  i have another appt on the 26th, to see if the stretching holds. (hole doesn't get smaller again)  otherwise it'll be knife time.  thanks so much for the concern :)
 
--matt
 
 
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/12/2007 7:54 PM (GMT -6)   
Matt,
Thanks for the update. I've been thinking about you and was hoping that no news was good news. It sounds like it was, but not for the deer!! eyes I hope this procedure proves to be successful and keeps you feeling good. That sounds painful to be stretched like that. Too bad they didn't knock you out first.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/12/2007 9:56 PM (GMT -6)   
I'm with you Cecilia - stretching like that would require some versed (sp?) for me. I would not want to remember that pain!

Matt - I'm glad that you got to have the ileoscopy - wait -- I'm not being a smarta**, but now you have been reassured that it is not a CD issue, right? Doesn't that put your mind at ease some? I'm glad you are enjoying not feeling crappy again. Run, bambi, run!!!!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 5/20/2012 8:50 PM (GMT -6)   
Matt,

How did this turn out. I have an ileostomy stomal stenosis with ileoscopy on Tuesday. I can eat hardly anything without it getting stuck behind the stoma.

Am going to be sedated for the ileoscopy. Did you need resurgery or did the stretching out of the hole hold. My stoma is also swollen and has not gone back to its normal lighter and ribbed appearance. Has stayed redder and swollen looking with the hole VERY Tiny. Even diarrhea out of it hurts. Have to make that happen to pass any solids. Scared. Rosemary

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 5/20/2012 8:50 PM (GMT -6)   
Matt, if you had a stoma re-do where did you have it done and who did it for you. Rosemary

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 5/20/2012 9:19 PM (GMT -6)   
Rosemary,

I'm praying that your procedure goes well on Tuesday. Finally, something is happening! I hope they find out what's causing your stoma not to work and that they come up with a plan to fix it quickly!!

Love, Cece
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.
I'm not a doctor, but I've been told that I look like someone who plays one on TV!
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, October 19, 2017 2:18 PM (GMT -6)
There are a total of 2,884,335 posts in 316,479 threads.
View Active Threads


Who's Online
This forum has 157602 registered members. Please welcome our newest member, Heleneddworr.
431 Guest(s), 18 Registered Member(s) are currently online.  Details
alephnull, notsosicklygirl, BnotAfraid, Kent M., 07kr5, island time, Pirouette, mm57553, Depov, getting by, Brook58, songlady, gabybee, Yellow Cat, AZ Guy, UCinGV, Tall Allen, garyDouglas


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer