Experimental Foods

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Amey
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Date Joined Jul 2006
Total Posts : 942
   Posted 10/24/2007 12:34 PM (GMT -6)   

Has anyone experimented will different foods after their ileostomy?  I normally eat the same things because I do not like surprises.  However, today I was an hour from home and very hungry. I never know what to eat while I am out and about.  I am allergic to wheat so I have to avoid hamburgers, breaded items, and subway sandwiches.  I went to Wendy's and got a small side salad and a small chili.  I ate 1/2 of both items.  My stomach has been girggling like crazy!  When I push on my tummy, foods will come out of my stoma but nothing seems to want to come out of its own. I am not sure if I am paranoid, if I should be more patient (it has only been 3.5 hours since I ate), or if these foods are a big NO NO. nono  

 

I normally stick with the low residue diet regimine that I was given in the hospital. 

 

Any ideas?  tongue


Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


peggy113
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Date Joined Aug 2007
Total Posts : 1998
   Posted 10/24/2007 4:32 PM (GMT -6)   

Amey

Remember a while ago when I talked about "if the food dissolves in water - you know you shouldn't have a problem"?   Well, the skins on the kidney beans are hard to digest for me (I just had Wendy's chili yesterday too!)  Just be sure to chew well and drink fluids.  Lettuce is another one of those that I eat carefully.  Usually I eat it after I have eaten something I KNOW won't bother me.  ie.  when I order a steak and baked potato and salad, I don't eat my salad before my meal.... I eat it with my meal.  

Be careful eating a lot of fiberous foods - ileostomies digest differently than colostomies or the regular digestive tract.  High fiber foods do not necessarily clean you out.  Just be careful and drink plenty of  fluids.  Skins, peels, seeds all can come out undigested...

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


flchurchlady
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Date Joined Jul 2007
Total Posts : 2765
   Posted 10/24/2007 5:32 PM (GMT -6)   
Amey,
Ordering off the dollar menu, are we? Who am I to talk... because that's exactly what I usually order from Wendy's, but I've never had any problems from it. Our husbands must love that we're cheap dates!! "That'll be $2.12...please pull around to the first window...." tongue

I don't know if I'm just lucky, but I can eat pretty much anything. The only thing I stay away from is popcorn, and that's only because I was eating a lot of it right before I got sick with Crohn's. I have this fear that those little sharp edges are going to tear up my healthy insides. It's called Orville Redenbacher-phobia!!

peggy113
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Date Joined Aug 2007
Total Posts : 1998
   Posted 10/24/2007 6:34 PM (GMT -6)   
Boyscout popcorn - I don't have quite the phobia.... but I am a little shy with it!  Cautious is my word of the day for this thread.

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 10/24/2007 7:44 PM (GMT -6)   
like they said, stay away from seeds and nuts, i was told a long time ago that the body, noones body can digest seeds or nuts, at first i kind of thought tha was crazy, but then after i thought about it, it made sense, cause animals in the wild eating those and then pooing them out is how plants get spread.
So, it's good not to eat those, cause they could easily get stuck
Anyway i eat lettuce but i just tear it up really little

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1245
   Posted 10/24/2007 8:00 PM (GMT -6)   
I can eat anything I want to as well including all the supposed 'no no' foods, ie, mushrooms, peas, corn, nuts, etc. I don't eat chili simply because I hate spicey foods though (it has nothing to do with my ostomy). Just remember to CHEW, CHEW, CHEW!

I'd say give it a little more time. Sometimes food goes through me pretty quickly, other times it can take a few more hours. Hopefully, by now it will all have passed.
I have had an ileostomy for 31 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


peggy113
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Date Joined Aug 2007
Total Posts : 1998
   Posted 10/24/2007 8:06 PM (GMT -6)   

You will be fine - drinking lots of water, which I know you do and staying active, which we all know you are the poster child of!!!  Experiment with small portions, maybe mix new stuff with old just to see if there is any difference.   You know, the "known" vs. "unknown" process of elimination.

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 10/25/2007 8:48 AM (GMT -6)   
Corn is my big no no! I can eat nuts though. I just make sure I chew each one very carefully - just chew one at a time. I was afraid to eat shrimp, but I seem to do well with it. Carrots and peas are hard for me to digest. Peas sometimes come through the pouch whole.

I absolutely love popcorn, but have not eaten it since I've had the ileostomy (July 23, 2007).

I also eat alot of peanut butter, honey and Special K waffles - yum!

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 10/25/2007 8:45 PM (GMT -6)   
why are mushrooms bad? i tried a portabella burger today, only 90 calories a serving. And i think that is only because you can only stand one bite and you have to spit it ou! I don't even know who thought that thing was fit to pass off as food!
anyway, does anyone know what could make the output sticky?

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 10/25/2007 8:48 PM (GMT -6)   
summer - by sticky, do you mean thicker?  Shrooms are bad cuz they are really hard to digest.. really fibery, stringy almost.

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 10/26/2007 10:20 PM (GMT -6)   
no, just sticky.
shrooms? lol, that makes me think of the "fun" kind!

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 10/27/2007 11:14 AM (GMT -6)   

"sticky"?   HMMMM -  I'm stumped.  Maybe someone else can chime in on this one?!  You got me,

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Bluz4Greeny
Regular Member


Date Joined Oct 2007
Total Posts : 60
   Posted 10/27/2007 3:04 PM (GMT -6)   
I HAVE A QUESTION? I had my surgery, an iliostomy on May 8th, and I don't know what I should be eating. I have crohns disease, in my small intestine also, I lost my whole large intestine due to an obstruction , abcess, and a perferation. I don't have the knowledge yet because I am a newbie to this, I have lots of questions, because I was not properly informed on what to stay away from, and frankly I am afraid to try things, and stay in the safe zone, can anybody help? thank you for any and al advice, Bluz4Greeny

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 10/27/2007 9:13 PM (GMT -6)   
well i don't know if chrons gives you any limitations or not, but with a bag, pretty much be careful of seeds and nuts, and be sure you chew really really well.
Introduce new foods one at a time, like if you want to see if carrots will make you have gas, eat just them, and then if that's ok the next day try something different.

Amey
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Date Joined Jul 2006
Total Posts : 942
   Posted 11/4/2007 11:51 AM (GMT -6)   

What about grapefruit?  I have 5 large, juicy, yummy pink grapfruit calling my name and I want to eat them!!!  tongue   know that I cannot have diced tomatoes, salads, or foods with seeds.  nono   I can eat these things but they take over 24 hours to pass...and that is a long time for an ostomy.  I have not had fruit yet...no bananas, apples, oranges.  However, I have had prunes without major problems.

Thanks for your thoughts.

 


Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/4/2007 2:12 PM (GMT -6)   

Amey -

IMO only ----   be very careful of the seeds & try NOT to eat the membrane on the outside of the slices (just inside that is more tender).  A little won't hurt, but don't overdo the first time around.  I'm sure others will post that they don't have any problems with them....   I, personally, do have to be careful of the membranes.   (FYI - If I eat canned mandarin oranges - no problem.   If I peel and eat a fresh orange incl all the membranes - I have a problem.)

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 11/4/2007 9:23 PM (GMT -6)   
i ate part of an orange the other day, hadn't had one in years, then i remembered i don't like oranges, lol. And then some tangerines today, and i did the same thing i do with fresh pineapple i spit out the tough parts, like the skin and the stringy part of the pineapple.
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/4/2007 9:57 PM (GMT -6)   

Yep - I do that too Summer (when I'm home alone!!)  You know what is good - when you go out to eat at a Chinese restaurant buffet and they have those  oranges cut like into quarters...  perfect to eat the part we can!.

 

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 11/5/2007 1:37 PM (GMT -6)   
Last night I boiled some tomatoes...I love tomotoes and cannot eat them ((BOO HOO)). So, I boiled them and then put them in the food processor. The turned into a nice liquid and then I added a little seasoning. I got a large glass of ice and drank the juice (after straining all the seeds and any large pieces). It was SOOOO GOOD!

Just thought I would share this idea.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 11/7/2007 10:43 AM (GMT -6)   
I REALLY miss eating veggies and then I remembers....I HAVE A JUICER!  DUH!  This morning I juiced 3 lbs of carrots (this makes about 14 ounces of juice).  I think I was a little too exctied because I drank the entire glass.  I will let you know what happens.  I took all of the carrot shreddings and placed them in my food processor with a banana.  So now I am making bran muffins and I am going to mix in the carrot and banana combination.  I am not sure if this will help me speed things up or slow things down but I won't know until I try it.
 
Any thoughts on this?  What will carrot juice do to my system...speed it up or slow it down?  What about the muffins? 
 
 
I feel like I am a constant experiment. Hopefully someone will benefit from this info.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 11/7/2007 1:30 PM (GMT -6)   
not sure about that, but bananas slow mine down. However i ate some pineapple friday and saturday night and saturday and sunday my thing was soo busy! it was crazy
 
 
snaej ni tfel eht no cip


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 11/7/2007 1:39 PM (GMT -6)   
I have some results from this experiment....After about 2 hours my stoma starting "doing its thing" and stuff is slowly moving like play-doh! This really makes me frustrated. How can it go in as liguid and then solidify in the smal intestines. My bowels are crazy!
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/7/2007 6:26 PM (GMT -6)   

Amey,

Tell me again about how much fluids you drink in a day?  Any coffee, tea?


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 11/7/2007 6:34 PM (GMT -6)   
Peggy,

I drink about 20 ounces of water while at the gym...another 30 ounces or so of water during the day and about 16 ounces of juice. I also drink V8 juice during the day (about 10 ounces or so). On my bike rides, I fill my camelbak (a back pack that holds water and has a hose-like attachment that you keep in your mouth to suck water while you ride). I keep about 50 ounces in my camelbak and I usually finish all of my water on my rides. I have tried to drink more water, but I keep gaining weight so I backed off. I thought I was drinking too much. It does not make since that I should gain 4-6 pounds in one day. I try to stay moderately hydrated (enough that I am not thirsty but not too much that I get bloated and gain weight)...does that make sense?
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/7/2007 7:33 PM (GMT -6)   

Amey,

I'm not sure exactly what carrot juice would do to my output, but I can tell you that the muffins, tho they sound delicious, would definitely slow things down for me quite a bit.  I would be able to eat them under certain circumstances, like as dessert after a meal.  Certainly would not be able to eat them on an empty stomach- too much fiber for me.

It sounds like you drink enough fluids to float away - no river needed!!  Good for you.  I've been working on drinking more and did really well over the summer.  It is harder for me to drink in the winter tho. 

Here's a thought and might be worth experimenting with ---- ANOTHER challenge yeah

What happens to your output if you eat something like Fried chicken?  I know that you eat really healthy and you miss your veggies and fruit and all, but I am curious what happens when you eat something with more fat in it, maybe even pork chops?  Personally, fat increases my output.  Not necessarily french fries because the potato slows it down, but definitely fried chicken, pork chops, etc.   Are you up for the experiment???  

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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