looking for cloth covered drainable pouch

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JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 10/27/2007 8:54 AM (GMT -6)   
I recently had another surgery and my stoma is way more active than it used to be.  I have always used the closed end pouches because I hate clips and because they have a nice soft cloth cover which helps because I'm fairly active and tend to sweat.
 
I recently decided I should try some drainable pouches because changing the closed end is leading to more accidents in the rest room because of the high activity of my stoma. 
 
Anyway, to get to the point.  I don't have any of the catalogs and it's been many years since I've sold these types of supplies so I'm wondering if any of you wear the product I'm looking for. 
 
I wear the Convatec 2 piece system, so would prefer the snap on, 1 3/4" flange fitting pouches.  My supplier sent samples but I'm not happy with them.  First off, they have filters which DO NOT work when your output is pretty much all liquid.  Secondly, the "cloth" cover is really just a woven plastic which sticks to my skin.  I can probably get used to the velcro, roll up, openingings instead of the clips. 
 
Does Convatec make the drainable without the filter?  I know they used to, but even in the hospital it's all they had.  And no, I don't want to have to tape over the darn thing every time I put one on. 
 
Does any of the companies make a drainable with the same (or better) nice soft cover that the closed end pouch has?  I thought Hollister used to make one, and some of their products can be used with the Convatec 2 piece.
 
I'd appreciate any info, thanks for your help. 


Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 10/27/2007 9:18 AM (GMT -6)   
I just sent for a sample of the Hollister New Image drainable pouches. The comfort panels look more like what I'm looking for, anyone use them?
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 10/27/2007 10:46 AM (GMT -6)   
Hello Judy,

Seems like us VETS are back into the game of asking the questions... I know just where you are. Why fix it if its not broken.... well mine broke a couple of months ago (& thanks to you, I think I've got it fixed!!!) So a big thank you to you first off.

Secondly, I have always work Convatex Surfit 2 piece drainable pouches... still didn't give them up thru the last couple of months of trials and itchiness and degrading flange! I wear the 12" length and just fold the clip end up to fit inside of panties. I too have a pretty active stoma, and could NEVER even think about wearing the closed end pouches. Just too much activity to deal with that as you are finding out I'm sure. I don't find that the webbed sudo cloth side bothers me any, but once in a while when I know that I will be outside gardening or getting really grubby, I once in a while put a small thin washcloth between the pouch and my skin. But it is really, really rare that I even do that. I guess I'm just used to it by now. Yeh, it does get warm under it, but it is bound to even with a cover on it cuz, after all, you still have 2 layers of plastic that your skin cannot breathe through.

Clips - I almost forgot.... Convatec has been putting in those huge, hard to fasten clips in their boxes of pouches for quite some time now. I, fortunately, have a couple of the really old clips that were smaller and easier to clip stashed away. Not long ago, I checked with my DME provider and I still can purchase those clips from them.. (actually, I am turning in the ones that I really dislike that come with the pouches for the ones that I do like. Kinda of a trade off, but I had tons of the bigger, bulkier ones that I gave them. In turn they traded me some convex inserts someone had given back to them.) So keep that in mind --- if you don't like the clip on Convatec Surfit drainable pouches... there is an alternative. If you can't find it, let me know and I will get the # for you.

I wondered where you have been - not much activity on this forum lately. Do you think you might be up for a "chat" this evening?? Check out "Chat" thread - I'll try to round 'em up for this evening! Glad to have ya back. If you don't mind my asking, what kind of surgery did you have to have done this time?
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 10/27/2007 11:57 AM (GMT -6)   
Not sure I can make it to chat, but thanks for asking. I'm in S. CA and we were evacuated, just came home yesterday. I'm still keeping an eye on the fires though because my in-laws are now in the path of 2 fires and may need to be evacuated.

I HATE clips of any kind, even when you roll them into the panties as the pouch fills they move and dig in somewhere. I hope to find one of the new velcro pouches. It looks like the Hollister pouches are just what I'm looking for, waiting for samples. They should fit my Convatec flange without any problems. I'm pretty active, and heavy, so I sweat a lot. I hate plastic against my skin and won't bother with a pouch cover of any kind.

My surgery this time (number 6) was the removal of the rest of my large colon (about 12-15 inches), moving my ostomy from the left to the right side of my abdomen, and removing a small portion of my small bowel. We were hoping I wouldn't have had to lose my entire colon, but he said it couldn't be helped. I'm left with 250 cm. of small bowel (about 8 ft). At least I don't have an anastamosis this time, the cut part of my small bowel is attached directly to my abdomen, no splicing internally. Hoping this will prevent an early reoccurence of the disease.

My stool has been loose, liquid and acidic for years, but my stoma had a kind of routine/schedule to it's activity. Now, it's just constant no matter what I do (unless I don't eat at all, lol). It's only been 3 months since my surgery, so I hope I can get it back to some sort of routine, but in the mean time I need to change things a little. One of these days I'll tell you all about my little accident at my son's wedding (2 weeks ago), not fun.
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 10/28/2007 9:18 AM (GMT -6)   
I also agree with Judy, I really like the Hollister New Image. I get the extended were flange. and the lock and roll bags. You can get them without the filter, which is a waste of time for me too.
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 10/28/2007 10:23 AM (GMT -6)   
I think I'll stay with my Convatec moldable durahesive flange. It works great with no cutting. My stoma isn't round so I can't get the pre-cut. I hope the Hollister pouches work with the Convatec flange, they "should."
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/28/2007 9:42 PM (GMT -6)   
Judy,
How scary that you had to evacuate from the fires in southern CA. I'm glad that your house was okay and that you could go home so quickly. When my sister lived in Agoura Hills (north of LA and inland from Malibu), she had to evacuate once, because there were fires one mile away from her house. It was frightening. Did your in-laws ever have to evacuate?

I also hope that this latest surgery will be your last and that you'll never have a recurrence of Crohn's again. I'm so sorry to hear that you had a leak at your son's wedding. Were you the only one who noticed it? Did you have a change of supplies with you? I'm so bad about keeping extra supplies with me. I need to start doing that.

To answer your question... I use the Coloplast Assura extended wear wafer with the Coloplast cloth covered drainable pouch. They have an opaque soft cotton cover with a velcro enclosure. I have used them for over a year and have been very happy with them.

Take care,
Cecilia
Dx'd w/ Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Pain-free, med-free, and very thankful to be healthy again :)


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 10/30/2007 9:53 AM (GMT -6)   
judy89 said...
 
One of these days I'll tell you all about my little accident at my son's wedding (2 weeks ago), not fun.
 
 
Judy,
 
Should we start a new topic called "funnies" for those embarrassing experiences we all go thru at some time or another?!  I know it is frustrating at the time it happens, but if you/we don't just laugh about it later, it will end up driving you nuts!  So, are you ready to laugh about the above and share yet?!
 

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/5/2007 5:11 PM (GMT -6)   
AAAAARRRRRRG!!!!! How frustrated am I?

I just talked to a Hollister Rep because the samples they sent me were wrong, and when I stated that I was going to use the drainable New Image with my Convatec flange she told me she could guarantee that it would not hold and that it would fall off. Seems that since I used to sell these things the companies decided they didn't want to be compatible so they made sure you couldn't use them together. AAARRRGGG!!!!

I like the Convatec moldable, I want a drainable with cloth panels which only Hollister makes, is that too much to ask?

Does anyone out there use the two different products? Did the rep just say that so I would switch to a Hollister wafer?

Thanks for letting me rant, any help is appreciated.
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/5/2007 7:24 PM (GMT -6)   
Well, against my better judgement, I tried to use the Hollister drainable pouch with the Convatec flange. Please do not do this at home ladies and gentlemen. What a mess. I'm so frustrated I feel like boycotting both companies.
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/5/2007 7:33 PM (GMT -6)   

Judy ----   take a deep breath, count to 10.  We will work something out.  Isn't that what us ostomates are good at?  Figuring out what is best for us and, no doubt, thru a lot of trial and error.  Sorry your error was terrible! LOL  How frustrating when you think you have it all figured out.  What's your next step?  Any ideas?

 

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/5/2007 7:56 PM (GMT -6)   
I guess since it's starting to get cooler out I'll use the Convatec drainable, with the horrible plastic "comfort panel" but I'm making some phone calls to Convatec to get them working on a new pouch.

And I'll also call Hollister and make a complaint about their policy. Instead of getting some of my business, by not letting me use some of their parts with other company parts they are losing all my business. The rep at Hollister said they're working on their own version of the "moldable" but I'm angry enough about the policy that I won't use it now.
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 11/5/2007 8:52 PM (GMT -6)   
Judy,

If I was not allergic to almost everything out there and I was looking for comfort...I would use the Coloplast Assura. That is the MOST comfortable bag I have ever used. The cloth material is so nice against your skin and it feels wonderful. Also, the stool slides out nicely. I do not know what Coloplast uses inside their pouches but it makes everything nice and smooth. I encourage you to get a couple samples sent to you. You will be impressed. I have used the Convatec moldable and they are like owning a Lexus...a real luxury! I am allergic to Convatec and the only wafer my skin will tolerate is the Hollister New Image. I have to say...these two do NOT go together. Convatec does not fit on a Hollister. I believe Convatec is the only company that makes a moldable...don't ask me why! They should all makes a moldable, caps, and inserts. But NO! Convatec is the only one who makes inserts...Coloplast is the only one that makes two-piece caps, and Hollister is the only one who makes cloth wafers with tape. Why do they all have to be so different? It is annoying! If I want to wear a cap when I swim, I have to switch brands.

Judy...you always have such GREAT words of advice. I wish I had something to offer you for a change. I am sorry that I don't. I hope you find a solution to this whole dilemma.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/6/2007 11:02 AM (GMT -6)   

Thanks for your kind words, I was just hoping the Hollister rep was telling stories.  I know years ago you used to be able to mix and match the 1 3/4" pouches and flanges, I had many patients who did.

I've tried the Coloplast in the past, the main reason I don't use it is because I don't trust their 2 piece and I'm not comfortable using a one piece. I don't want a clear pouch (I don't like looking at my stool), and feel that putting a one piece on that isn't clear can be "hit or miss", lol.

I also don't want to cut the wafer each time (my stoma is oval), I know I'm lazy, but I've been doing this for many years and love the convenience of the moldable.

I know, I'm old and set in my ways, but sheesh, these companies should work together a little more. Other medical supply companies have "standard" sizing and such so the parts can be mixed or matched depending on the needs. Just look at IV and tubing, catheters, etc...

When I have a little more time, I will write a strongly worded letter to both companies from a long time ostomate who will have to use their lousy products for the rest of my life.



Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 

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