When you say a food is a no-no...

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sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 11/5/2007 3:23 PM (GMT -6)   
...what exactly does that mean?
 
Like, we can't eat peanuts because they don't digest. Does that mean they get stuck? Cause pain?  Or with veggies and skins and seeds? Is it just we run a risk having getting a blockage?
I had a veggie-Brie quiche yesterday (so GOOD, BTW) Anyhow, it was full of veggies - carrots, lots of squash, zucchini, peppers, etc. I noticed (this may be TMI), a lot of the veggies came out pretty much the way they went in - it was like a salad in a bag. (HA HA.) But, it didn't hurt or anything. So why is it bad?
Also, if all my veggies and fruits seem to come out undigested, does that mean I'm not getting nutrients from them? I've eaten all kinds of veggies and fruits - tomatoes, grapes, oranges, carrots, broccoli...Did I just get lucky and I'm playing with fire by eating them? The only foods I've stayed away from are lettuce, nuts, and popcorn.
 
Thanks!
 
 
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


Clyde01
Regular Member


Date Joined Oct 2007
Total Posts : 56
   Posted 11/5/2007 4:07 PM (GMT -6)   
Well, so far I have not had any problem eating those things either. I have not eaten broccoli though. I have had carrots and peas and they come out the way they went in. Everyone is different as far as what foods they can handle. So I say eat what you want and just be careful.
Ileostomy Oct. 17,2007 Only temporary till next year

No meds at present


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 11/5/2007 4:34 PM (GMT -6)   
I have a jpouch and I eat everything, nuts, seeds, popcorn, fruit skin, vegetables both cooked and raw. I haven't yet found a food that bothers me. You are getting all your nutrients. The insoluble fiber you see was also in your stool when you had a colon, it was just disguised in the stool because the stool was formed. Now that stool is looser you are able to see the fiber that does not digest.

As long as you are gaining or maintaining weight, you are not lacking in nutrients.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


Bluz4Greeny
Regular Member


Date Joined Oct 2007
Total Posts : 60
   Posted 11/5/2007 5:02 PM (GMT -6)   
Geesh, you know to be honest with you all I'm not sure of what you can and can't have I have been staying in the safe zone? I have an iliostomy, And I don't know if you can eat raw anything. I used to be a big fruit and veggie eater before my surgery, and quiet frankly I miss them alot, yet I am so leary to try. That is such a good question, it will be 6 months since my surgery and I don't even know what I sould be adding to my diet. I'm going by a menu that was on my tray when I was in the hospital. But one thing I do eat is lettuce, I know I can have that. I know I must sound like the dumbest person in the world right now, but I just wasn't told certain things that are important to know. Bluz
Illnesses; crohns, ulcerative colitis, ibs, barretts, gerd hiatal hernia, acid reflux, May8, 2007 lost my entire large intestine due to crohns, obstuction, and an abcess


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/5/2007 5:14 PM (GMT -6)   
If you have no active disease left, you should be able to eat anything you want. Usually when you have an ostomy procedure it goes hand in hand with taking out the diseased area, or at least by-passes the diseased area. I think the people on here who have problems eating certain foods have some issues with narrowing (meaning scar tissue or inflammation) or it wouldn't be an issue.
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 11/5/2007 5:19 PM (GMT -6)   
That helps! I had my colon removed due to UC, and so all active disease is indeed gone. It's been a couple months since my ileostomy, and I've tried mostly everything. I'm excited to know veggies abd fruits are probably fine and I can continue eating them. Thanks for the clarification, Judy and everyone else!
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


Amey
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Date Joined Jul 2006
Total Posts : 942
   Posted 11/5/2007 6:05 PM (GMT -6)   
You are so fortunate. Last night I made breaded squash for my hubby (I dip squash in egg whites and then lightly bread them in homemade bread crumbs. Then I bake them in the oven for 10 min or so). I took one bite of the squash to make sure it was done and that was enough for me. about 2 hours later I started to have stomach cramps. My stomach ached for a good 20 minutes or so and then a small piece of squash popped out of my stoma followed by some stool. The stool was trying to pass and the squash was blocking it. This really frustates me! I love fruits and veggies and salad. They are usually 85% of my diet. I am having a hard time finding foods that I can eat.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/5/2007 6:41 PM (GMT -6)   
Sounds like you have a narrowing, does your doctor know?
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/5/2007 6:58 PM (GMT -6)   
I certainly hope you all at least "try" and "experiment" with various foods... and different ways of preparing them. Trying them in small portions, and along with a "safe" food is usually a good way to start. Some folks just never have a problem. Others, well, just have to be careful.

Amey, I am sorry you are having such issues with fruit and veggies. I have nearly always had some issues, but mine don't seem as bad as yours. I do know that if I eat a known problem food (sometimes I just can't resist a little), I'd better NOT eat it on an empty stomach. I like them, but I can guarantee ya that they never were 85% of my diet, even when I could tolerate them!!! I do crave chef salads and the like, but I KNOW better!!!

Judy, you hit the nail on the head ---- I'm sure my partial blockages are from scar tissue/kinks. I have always, from my very first surgery, had problems with abnormal amounts of internal scar tissue. I wouldn't know that except when I've had subsequent surgeries, my surgeon always commented on how full of ahesions I was. Since I have had this problem for a long time I have just learned over the years thru trial and error!! ( and pain!) What irritates me is that I can eat the very same thing --- one time I am fine, and another time I am not. It usually gets me in the middle of the night too - no matter when I eat it, but I still 'sample' my favorites, even if only a couple of bites.

Bluz, you have come to the right place to get the answers to just about anything! There are so many "eyes" on this board, certainly someone will have a suggestion for you. But I can't stress enough that everyone's body reacts differently. You should be able to sample different things at 6 months out.... experiment cautiously and enjoy. Have a Breeze for me Friday too!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/5/2007 7:01 PM (GMT -6)   
sfgiantsjo said...
I had a veggie-Brie quiche yesterday (so GOOD, BTW) Anyhow, it was full of veggies - carrots, lots of squash, zucchini, peppers, etc.
That sounds soooooo goood!!!  
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/5/2007 7:30 PM (GMT -6)   
suebear said...

As long as you are gaining or maintaining weight, you are not lacking in nutrients.

Sue
This is not always a true statement.  I've gained steadily in the last few years and I've also become vitamin B12 deficient, low on calcium, vitamin D and my hemoglobin is low, so low iron. 
 
Weight is not a good indication of nourishment (even doctors are guilty of this judgement), just fat ;0) which I have plenty of even though they tell me I don't absorb fat correctly due to short bowel.  Go figure. 
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/5/2007 7:45 PM (GMT -6)   

And I  have only begun to gain some weight (ie. not underweight) in the last year or so.   I have taken B12 for years, but other than that, my labs had come back pretty good.  Now, they have found I am deficient in D also.  And I have been gaining weight.  The body always confuses me!!!   

Judy - have you had a bone density scan?  Are you on any bisphosphonates?  Have you heard of Reclast or Forteo? 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/5/2007 7:50 PM (GMT -6)   
Believe it or not, my bone density tests were fine the last time I had them which was about 1 year ago. I think a lot of the vitamin deficiencies are new for me, although it takes years to become deficient in B12.
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 11/5/2007 7:55 PM (GMT -6)   
Judy ----   can you go to chat?

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/5/2007 7:57 PM (GMT -6)   
For a few minutes, it's dinner time in CA, lol.
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 11/5/2007 10:37 PM (GMT -6)   
i eat lettuce like a crazy woman! i etiher buy the shreds or tear it into to teeny tiny pieces, and cut out the hard part in the middle. For some reason, lettuce was on the diet they sent home with my after hte surgery. Before i had surgery i couldnt' eat any fruits or veggies, and i hated it. I have eaten broccili, i just don't eat the stems, they don't taste good anyway. I have eaten carrots, and tehy did come out the same way, the lettuce does a little, but teh broccoli didn't show. I ate some squash, in a casserole and fried, yummy! i just ate around the seeds. Nuts and seeds cannot be digested by anyone, it's natures way of spreading seeds. Anyway, i think part of the problem is blockage, but also if a nut or a seed comes out whole in your bag it could poke a hole in it! there was a guy, maybe on this board, who said one of the few leaks he had was caused by a peanut that wasnt' compelty digested coming through his bag! If i eat something that i think might stick in there, i just chug water like crazy!
 


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1243
   Posted 11/6/2007 2:29 AM (GMT -6)   
I'm one of those who eat everything and anything (and it shows!), incl peanuts (I love salted peanuts - gotta get my salt fix!), corn, mushrooms, tomatoes, raw stuff, etc. Just CHEW, CHEW, CHEW! Yes, I often see these (and more) come out looking just like they did before I ate them (I swear corn, no matter how much I chew it, regroups in my tummy and comes out looking whole again!), but that doesn't stop me from eating them.

Introduce new foods into your diet, one thing at a time. That way, if it does cause problems, you can identify the culprit and either limit it or totally eliminate it from your diet.
 
I often think that those of us who have had our ostomies for many many years are lucky in that 20+ years ago (for the most part) we were never handed pages of foods to avoid, etc and have just gone on to eat whatever we want without a problem (ie we were never told not to and, for the vast majority, it hasn't harmed us). Nowadays, I find a lot of newer ostomates are very cautious in what they eat and a lot are scared to add new foods to their diet simply because of something that MIGHT happen. I have met so many who religiously stick to the diet they were given in hospital and don't realise that it's a diet for them mainly while they're healing. They're missing out on so many foods they love because they're too afraid to try anything new.

Remember, only about 10% of blockages are caused by food. The other 90% are caused by adhesions. Most ostomates will never experience a blockage at all.


I have had an ileostomy for 31 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!

Post Edited (Shaz032) : 11/6/2007 1:36:55 AM (GMT-7)


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/6/2007 12:08 PM (GMT -6)   
Since my last surgery, which was removal of what little was left of my colon and a few more inches of my ileum (ending up in an ileostomy), I have been able to eat anything I want. Raw veggies, nuts, seeds, high fiber foods, etc. It helps that there was no anastamosis this time, meaning I didn't have anything sewn together inside which can create scar tissue and/or narrowing.

I've never had a nut, or anything for that matter, cause a puncture in my ostomy pouch, but I guess it's possible, lol. Just another thing to worry about, but certainly not a good enough cause for me to stop eating seeds and nuts.

The only thing I adhere to is some advice a surgeon once gave me. No fresh coconut, never, no how. But I have Crohn's disease, and coconut is known to cause tiny little cuts along the digestive tract which is just another excuse for my innards to become inflamed. I don't know it this is gospel, but it's what was told to me, and I'm not crazy about coconut anyway, lol.
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 11/6/2007 12:52 PM (GMT -6)   
OK, That's it! I am tired of reading about all of the foods you CAN eat. You all make me sick! LOL just kidding
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 11/6/2007 1:28 PM (GMT -6)   
I'm sorry Amey, you've been through the ringer in the past few years and you have an anastamosis right? Unfortunately, in CD patients (which I'm one of) this is usually the case and can limit what you can eat. It's been the rule for all my surgeries except this last one. I'm enjoying my salads while I can.
Judy
49 years old, Crohn's Disease   
Six resection surgeries, permanent ostomy, adverse reactions to Remicadeback on 6MP for maintenance, hoping for a long remission from this last surgery. 
 
 


NashRambler
Regular Member


Date Joined Jan 2007
Total Posts : 22
   Posted 11/6/2007 4:35 PM (GMT -6)   
Have to put in my 2 cents at this point. There is no need to eat something that comes back out whole as far as I can see. I take vitamins and they help tremendously. Drink, drink & drink more water. I have had a craving for cashews and broke down and picked up a can, hmm hmm good. I did make sure I chewed and chewed some more so I wouldn't suffer any pain. It all went well. I looked for the can today and found out my wife finished off the rest. lol I eat apples but don't swallow the skin. Like everything else it does pay heed to watch out. Something will get ya.
1 thing that got me was salt water taffey. Came out whole & it hurt!!!!

Total collectomy and permanent Illeostomy April 2006
Pain free and enjoying life again
Have a Blessed day


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 11/6/2007 7:31 PM (GMT -6)   
Judy,
That's good to know that people with Crohn's should stay away from coconut. I've never heard that before and with the holidays approaching, I will go for the chocolate covered caramels instead!!
 
Shaz,
I'm like you and can eat basically anything. However, I choose to stay away from popcorn, only because of the little sharp edges. I agree that it's important to experiment, chew everything well, and drink lots of water.
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