Hi Winter, I'm brand new to this forum - to any forum in fact. Your post hit me in the gut - where it's counted for the last several years! I've been putting up with UC related symptoms for I'm pretty sure forever now and I am now 2 weeks post-op. No more nasty colon! It's amazing! Yes, I'm sore and worn out, but there's no pain, no urgencies, no embarrassing accidents, no fear in leaving the house, no looking for bathrooms immediately on entering a building, no changes of clothes in the trunk, no explaining to my children how I can't do (anything) because my tummy hurts, no more nasty, diseased colon. It's an amazing feeling of freedom. OK, the ostomy is a definite adjustment, but I got the j-pouch and look forward to a takedown in a few months. I spent a lot of time reading many posts on this forum and a couple of others b4 making the decision to have the "big cut," and I was incredibly fearful, but I have to say at this point, it was well worth it. I don't know if I would have done it if the urgencies, pain etc., hadn't been so intense for so long, but it really is a huge burden lifted. You'll have to figure out how much you can take - living your life around a bum organ - and then, when the time is right, the decision will come to your with a clear tone. Good luck!
Welcome to HW.com!!! I am glad that you have decided to post a message and let us know that you are recovering. I hope that we have, in some way, helped you. How are you getting along? Adjusting well? I bet it is a relief to be rid of all of that nasty colon and running to the bathroom around every corner, isn't it? I can relate, tho it's been many years for me. Good Luck on your recovery. Let us know if we can help you in an way.... that's what we are here for.
Keep us updated on your recovery. How is your appetite and how does food taste now? Another new experience for you? And your diet?
You guys are the best! This forum has been such a mood lifter for me for quite a while and especially now. It feels good to know that I'm not alone in this crazy world of poop and D and other such lovely matters. There's a whole crew of us walking the streets and driving the roads and nobody has shunned us to a deserted island. What a relief! Thanks so much for the welcome and the inquiry as to my recovery. My appetite is starting to come back, but it's funny you should ask what food is tasting like because my tastebuds seem to have taken a vacation. I don't know what's going on, but everything tastes like my tongue is burned. Thrush maybe? I got that a couple of times before the TC when I was hospitalized with UC complications and put on strong IV antibiotics. I don't think I was on very many for very long after the big cut, but I guess I still might have gotten it again? Eight days in the hospital - who knows? My surgery went very well, but recovery has it's challenges. Mostly my biggest issues are back pain (read about that somewhere else in here - again thought it was just me!) and weird creepy "gray matter" seeping out my bottom. Today I was very crampy which was different. It seems like I feel better and stronger for about 3-4 days and then have a day where I just don't want to move. Mostly tho, I'm just thrilled not to have to run to the bathroom all the time and to leave the house without worrying about getting to the next place. Wahoo!! Thanks again to you and Amey and everyone else on here who make this more bearable. You guys should know how much good you do for everyone.
When I was reading your post, the thought popped into my head that once the pain of my CD was gone, and each day that I recuperated from the surgery... food began tasting better and better. I think the brain has a part to play in that: if it causes pain .... it doesn't taste good. If it no longer causes pain .... it begins to taste better. That's the way it has worked for me. So what foods are you eating now?
I know what you mean about feeling good for 3-4 days, then having a 'down' day. It is almost like you pushed your body too hard during those 3-4 days, and then you pay for it. I did the same thing.
It is so good to hear from someone who is adjusting so well. We all had to go thru it, so we do know from experience what you are dealing with. You have a great attitude. Your kind words are much appreciated.