That's good news for you and you seem to be oK with it. I take Bentyl also. I usually only take one in the morning, but if I feel that I need it, I can take one with each meal. I've been on it for maintenance for several years now and it works well for me. It does stop any crampiness or discomfort (mine is from adhesions).
Good for you!!!
I'm still around lurking...just haven't really had anything to add to the discussions. I had my colonoscopy this past Monday. It was being done because I was still having issues having a BM. It revealed a severe stricture at the anastomosis site, so the doctor used the balloon on it. He said that I'd probably have to do it again in the near future. He said that there was no way anything other than watery diarrhea would have fit through it, so that answered the question as to why I wasn't able to go. I also have a lot of granulation tissue around the anastomosis, and part of it was also blocking the way. It was left in for now, but if it's still there when I have the next colonoscopy done, it will need to be removed. The good news, for now, is that I won't have to go to Stanford for testing. The bad news is that I haven't gone since Monday, so I just ate my normal 25 prunes to get things moving. He had warning me that this balloon dilatation might not do anything because it needs to be stretched slowly.
I did have problems with the prep. I was using the Fleets Phospho-Soda and threw up both bottles. Since it was a Sunday, I had to call our nurse practioner from our office and have him call in Osmoprep (pills). That worked like a charm and was so much easier than drinking that 'stuff'.
Today I had my throid biopsy and should get the results next week.
PEGGY AND CECILIA - thanks for your warm thoughts - they're very much appreciated!!
IRISH-TERRI - It sounds as though you and I are having the exact same issues right now. I'm so sorry to hear that you're also having problems having bm's. Are you the one on here that works in a medical office? Forgive me if I have you confused with someone else. I'm very much hoping you are as I had a question regarding the narrowing of the anastomosis site. I had my colonoscopy last Wednesday. In the "results" section of the paperwork it says "end-to-end ileo-colonic anastomosis/exam was otherwise normal" - The surgeon then recommended a barium enema this past Monday. After seeing him Wednesday in his office and agreeing on a "medication course of action" for now - I'm very happy with that at this point. I will continue taking MiraLAX twice a day along with 20mg of Bentyl four times a day. This route is giving me bm's about once every other day or so. As he stated to me in his office, the Total Colectomy was "HUGE" and very hard on me and he didn't think I was up to another surgery at this time (my year anniversary was 11-09) and I couln't have agree with him more!
Have you considered taking MiraLAX or the Bentyl? I think the Bentyl has made a difference in the tenderness and bloating of my abdomen and I'm thankful for that. I'm not too sure if it's helping with increasing my bm's but I'll take what I get from the MiraLAX.
AMEY - I couldn't agree with you more - there just isn't a miracle cure for those of us who suffer from motility disorders or chronic constipation. I'm beginning to believe that once we're diagnosed with CI - regardless of having the TC - we still have CI, but that's just my thought/opinion. I couldn't imagine drinking all that prune juice. I'll take the MiraLAX over prune juice any day. Have you tried to take a lower dose of the Bentyl? Half of a half dosage (if that makes sense)? I've been taking it for about two weeks now and in the beginning it made me tired, however, with consistance in taking it this side affect has lessened.
I took Lactalose prior to having the TC and all I can say about taking this is "increased" gas and more discomfort. I've read where a lot of people had this outcome from taking it. For me personally, I wouldn't take it again because of the discomfort it causes.
My heart goes out to you sweetie. I'm sure you don't want to be a "hard" case and/or have to see another specialist. You have truly been thru so much in such a short period of time, not to mention, two big surgeries back to back. I do hope someone or something can be done to help you out.
My thoughts are with all of you!!!!
Thanks for the reply. I haven't tried Lactulose, Miralax, etc., because I'm not constipated per se. The problem is that the anastomosis is too narrow for anything to fit through. Too bad they don't make stents for something like this. The pictures from the colonoscopy were interesting. You can see the staples, which was kind of strange. I go back to see the GI in two weeks, so I'll see what he suggests. He said that we'll get things working one way or the other...and without surgery.
Your memory is fine. I am the one that works at a doctor's office. I don't know if the Bentyl would do anything for me. That's more for people with stomach and/or intestinal spasms. I just need something to keep things watery in order for them to pass. I ate my prunes last night and feel much lighter today.
OK, 1/2 Bentyl here I go! This is a great thought. I figured it cannot hurt to try it and see if it helps. My script is for 20mg 3x per day. Hopefully, taking 10mg will help. Thank you for your kind words. They really made me feel better. MY GI specialist is suppose to call me Monday and let me know if he has any sugestions for me. If he has anything good to say, I will let you know. The only medication that used to give me some relief was Zelnorm but that has been off the market for nearly a year.
Have a great weekend!
We sound so much alike at times that it's scary. I too was hoping that I would never have to take anything again, but again thinking like you, if I can get away with just having to take Miralax, I'll take it! Since it (and many others) didn't work before, I'll be excited if it can do the job.
It's great hearing from you again! I again want to thank you for visiting me in the hospital when I was there. That was so sweet of you.
I'm happy to hear that you continue to do well. What kind of juice helps you the most? I've tried several, including prune, and nada.
Either way, I would do the surgery again in a heartbeat. This is just a temporary setback.
Hi everyone- I need some help. I am going in for a colonoscopy on Wed., which to me is really no big deal as far as the procedure is concerned, but I have been experiencing some pretty bad bleeding over the last few weeks. Has anyone else had a problem with this after their TC? They are going in to check my anastomosis and make sure the connection has not detatched, and they are looking at my internal hemorrhoids. I am hoping and praying that it is the latter of the two. Has anyone else had roid problems after surgery? My surgeon is saying that I am going to have another procedure and have them taken out due to only having one BM a day. He seems to think that it may be blocking my stool. I have the urge but I about die when I try and push, and it definitely won't come about on its own. After reading some of the posts it seems so minor compared to what many of you are going through, I feel rather foolish, but if anyone can spread a little light I would appreciate it. Hope you all have a wonderful week.
Post Edited (Stuck42Long) : 11/21/2007 3:07:39 PM (GMT-7)
I just wanted to wish you the best... I have CD so I won't be able to contribute anything to this post. It's ok to be nervous when you have a surgery pending like you do. I don't think that you would be human if you weren't. Just know that the folks here on this board are very caring and compassionate, so feel free to ask away. I'm sure that someone will have an answer for you (maybe after the Thanksgiving holiday - the board's been pretty quiet the last couple of days!)
What type of surgery are you planning to have? Although many of us still have some complications after surgery, the majority of us in this forum do not regret having the surgery. Our quality of life has improved. There are very few cures in medicine and I consider myself luck just to be able to enjoy a meal with my family or to have a bm without a handful laxatives. I truely believe that you will be gald that you had the surgery. If you have any questions, please post them and I will try to answer your concerns to the best of my ability.
Dear Ostomy Mates...
Have a wonderful Thanksgiving! I am so excited to be able to EAT this year! I have not been able to enjoy Thanksgiving dinner in over 8 years. I know I cannot "pig out" but at least I can enjoy a nice meal!