I dont have any advice for you yet . I am getting my ileostomy on the 12th. So I just wanted you to know that I hope things will start getting better for you soon.
I know I will probably be going through all the things that you are going through now. I am hoping that I will be able to deal with it better because I suffer from Crohns disease and severe fistulas. I am always in pain, so my quality of life has to get better.
I wish you could feel better, I think you will in time. This is a great place for support. Please stay in touch.