first support group meeting

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iliobob
New Member


Date Joined Mar 2004
Total Posts : 14
   Posted 3/22/2004 9:33 AM (GMT -6)   
Hello all:

 I went to my first support group meeting on saturday.  I must say I was a bit aprehensive, I have never really been good at being comfortable around strangers.  Plus the fact that I really felt out of my demographic - I was the youngest person in the room.  The only people there below retirement age were the 2 Ostimate nurses, the product rep doing the presentation and myself.

But I found that after we had broken up into groups and I started talking to others who also had Iliostomies, It became easier to talk about things.  The other members of the group were a bit supprised though when as part of the intro they asked me how long I had had my Iliostomy and I replied "Oh, 58 days now."

After hearing about what others have gone through over the long term, I saw how much easier I had it then some.  I related how I had problems at the biggining w/ splashing and mess while emptieing and their responses was something along the way of "well, what other way is there to do it?"  That is when I discoverd how fortunate I was in that the position of my stoma allowed me to empty the bag between my legs. Is it usual to have stomas as high up as These people had?

All in all, after my first ambivilance, the group was very frendly and sympathetic and I found the whole experiance to be very helpfull and informative.  If any other newbees read this, I do recomend that you find a support group in your area and attend.

thx
   Bob


Sexywithabag
Regular Member


Date Joined May 2004
Total Posts : 90
   Posted 5/5/2004 12:30 AM (GMT -6)   
Well I guess you proberly already know that one of the ways to prevent splashing is to put paper in the toilet first. Just had to let you know anyway.
God Loves You!


Sexywithabag
Regular Member


Date Joined May 2004
Total Posts : 90
   Posted 5/5/2004 12:30 AM (GMT -6)   
Well I guess you proberly already know that one of the ways to prevent splashing is to put paper in the toilet first. Just had to let you know anyway.
God Loves You!


T Jane
Veteran Member


Date Joined May 2003
Total Posts : 785
   Posted 5/7/2004 9:09 AM (GMT -6)   
BOB,
I'm glad your experence with the support group was a good one!!!
 
Thanks for the tip , sexy,,, I'll remember that one.
 
Tonia
I Just tell myself, it could be worse !!!
                  T Jane


Sexywithabag
Regular Member


Date Joined May 2004
Total Posts : 90
   Posted 5/18/2004 2:54 PM (GMT -6)   
Hi I'm not trying to bother you but I was wondering why there isn't much activity on this board. I know people have lives but I thought this board was a really good support group for those who need it. I knoww it has helped a lot of people. Well anyway sorry for bothering you.
smurf  
God Loves You!

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