Nasty questions rule! drainage/pus....whatever that stuff is............how much is "normal&q

Will the Patriots lose a game this season?
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of course they will lose... - 50.0%
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yeah right...they are unstoppable! - 50.0%
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the who? - 0.0%
0
isn't it about time another team went undefeated? - 0.0%

 
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Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 12/4/2007 6:22 PM (GMT -6)   
I know this is gross, but where else to talk about this stuff in graphic detail?

Don't want to hear it....click of the page....or "deal with it" as Taylor would say on Kid Nation.

I believe that many of you have temporary ileostomies, right?

I know that some drainage from the real "back door" is normal and to be expected, but how much is 'some', and how much is 'too much'?

For me, I had the surgery due to Crohn's disease, not cancer (yet!), I had developed many fistulas that would simply not go away and the idea was to give the colon and rectum time to rest without any food going through there...then when the fistulas got better, reconnect and "voila" back to a healthy colon...

Now, in reality, while the pain and discomfort have certainly become much less severe most of the time, the fistulas (which now have Setons in them to help them "drain" properly) continue to remain active, either in the sense that they are still painful, that they still drain fistula puss (yellowish puss-y fluid), and there is a few, that did not have Setons placed in them, that seem to come and go. My skin in the area around the rectum is very sensitive, and there doesn't seem to be a lot of flesh under there....I feel like my rectum is still slowly dissolving away from the inside out!!!!!!

anyway, on to the drainage question. Several times a day, I get a strong feeling of urgency to have a bowel movement, but of course, there is nothing to move, except some yellowish, stinky puss-like drainage stuff. Sometimes, it is a pretty significant amount of fluid...like a 1/8 of a cup or so, but usually less. Anyway, any of the rest of you have this kind of thing going on? if so, do you have fistulas, did you have them?

for those without Crohn's, do you still get drainage?

if so, is it yellow, or more clear?

I get some clear drainage, but in much less volume than the yellow kind...

If nothing is going through my colon anymore, why won't this just stop!!!!!!!!!!!!!!!!!!!!!!!! ahhh!!!!!!!!!!!
"All we need is love....love is all we need"


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 12/4/2007 6:28 PM (GMT -6)   
I had UC, and they took most of my colon and just left my rectum so I can have a j-pouch later, but I, too, get this drainage. Mine is typically bloody, though. I heard it was just your colon doing what it does and it would normally have a mucousy layer to help things slide on through. I also wonder what is too much and what is normal. Since mine is mostly bloody and happens pretty much everytime I go to the bathroom, even just to pee.
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 12/4/2007 6:33 PM (GMT -6)   
thanks....now i feel more "normal" mine arent' too bloody....it's like a nasty infection or something....i am starting to wonder if it is a yeast infection down there....i know gross....

Will the questions ever end?
"All we need is love....love is all we need"


Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 12/4/2007 9:01 PM (GMT -6)   
I don't have Crohn's but I too have a periodic discharge and it is yellow and mucousy. I usually feel some urgency before the discharge. In addition, I did have several fistulas that were ***** and infected, the drainage was yellow and *****. They tried to treat them with antibiotics but ultimately I ended up having another resection. I have been doing ok since then (knock wood). It sounds like your situation needs a little more time to see if your system can resolve itself.

Don't you love being able to talk about this stuff (I could use another S word!).

Richard
Indabag
 
Ileostomy since August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection. 8 months in ICU at Westchester County M.C. (I think that's a record). Second surgery for resection due to fistulas in January 2007. Been slowly recovering since then. Possible reconnection candidate.


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 12/4/2007 10:34 PM (GMT -6)   
I received my "temporary" ileostomy on July 23. Believe it or not, from July 23 to mid November, I still had bowel movements through my rectum. I was pretty shocked, but my doctor told me since my large intestines are moving extremely slow because of lack of use, there can still be stuff in there that needs to come out. Now I still get feelings like I need to go, and it is the mucousy stuff coming out. Unfortunately, I still have a recto-vaginal fistula that doesn't want to heal, so the mucousy stuff is coming through my vagina as well. My temporary ileostomy was only to be for three months, but my doctor does not want to consider operating for another three months because I still have lots of swelling down there. He said I have a 50-60% chance of the fistula healing on its own. I wish I wasn't so skeptical, but I know my body. If it hasn't healed already, why would three months make a difference? But time is key. My temporary ileostomy looks like it will be a year instead of three months. I use/lay Bulkee Gauze on my underwear to catch the drainage and change it several times a day.

It is nice to know that we aren't going through this alone.

Take care.

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1243
   Posted 12/5/2007 1:45 AM (GMT -6)   
Gladbag said...
Several times a day, I get a strong feeling of urgency to have a bowel movement, but of course, there is nothing to move, except some yellowish, stinky puss-like drainage stuff. Sometimes, it is a pretty significant amount of fluid...like a 1/8 of a cup or so, but usually less.
Ok, as long as you still have your rectum and anus in place, they are going to produce mucous - it shows it's still healthy and doing what it should. When you were 'bowel intact' this mucous used to help the stool slide through. Unfortunately, there is no way to stop it except to have surgery to remove the rectum and anus. There is also no such thing as too little or too much, it's just what is right for your body. Some people do have problems passing it and have to have enemas to try and move it all - so you're actually lucky in that respect :) It can range in colour from a dark brown through to yellow through to clear.
 
The urgency you're feeling is called Phantom Rectal Pain. Just like a person who loses a limb can still feel it 'itch', so your body has to get used to the fact that it can't go to the loo in the old way anymore. In time it will lessen and eventually disappear altogether.
 
Hope this helps.
I have had an ileostomy for 31 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


Gillcom
Regular Member


Date Joined Nov 2007
Total Posts : 272
   Posted 12/5/2007 4:00 AM (GMT -6)   
I have that too, and thought it was a bowel movement at first, but my colorectal nurse said it was mucus and was normal, because your brain is still producing the mucus so its easier for your bowels to pass through. So i have that urgency feeling maybe twice a week with the mucus coming out.

sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 12/5/2007 10:32 AM (GMT -6)   
So, is it bad when it's bloody all the time? Bright red?
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 12/5/2007 11:56 AM (GMT -6)   
i wish it was only twice a week....it happens to me about three or four times per day.....
"All we need is love....love is all we need"


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 12/5/2007 12:22 PM (GMT -6)   
Sounds like your rectum/colon areas haven't healed yet. If you're having pus, etc., it sounds like there's still infection, you need to find out if that's what it is. Are you on any meds to treat your disease? How long has it been since your ostomy? Unfortunately, for some people, a "rest" or temporary ostomy won't do the trick, and eventual removal of the rectum and/or colon may be necessary.

Sorry, not trying to scare you, but it's certainly something you need to discuss with your doctor. Maybe you haven't given it enough time?
Judy
Crohn's Disease   
 
 
 


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 12/5/2007 1:48 PM (GMT -6)   
Thanks Judy....

I take Humira to control the fistulas, but it hasn't stopped them completely....

I had surgery back in April of this year....with the idea that it would be 6 months to a year with the ileostomy, before getting the reversal, if things go well enough. It does seem I will not end up getting the reversal and prob. end up having em' yank out that screwed up colon and rectum....

as for infection....who knows....is it an infection, or is it just normal Crohn's disease doing it's thing? arghh!!!!!

My main reason for the post was to see how much is normal, and how much is a lot of drainage? I know everyone is different, but just wanted to see what other people are dealing with....
"The things that make us feel so abnormal, are actually the things that make us all the same" - from PostSecret: Extraordinary Confessions from Ordinary Lives - by Frank Warren

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