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Slice
Regular Member


Date Joined May 2004
Total Posts : 277
   Posted 12/17/2007 7:35 PM (GMT -6)   
So whats the deal Amey?  How are you?  How was the hospital?
 
 Then again, is she reading this?  Was going to send her an email but she doesn't list one.
 
 Come on  C, you live in Florida.  Go find out the deal.  I just shovelled 2 feet of snow and ice and now my butt hurts.  yeah   
 
Crohn's for what seems like forever
Bagged in August 2006
@ssless as of 11/2007
 
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 12/17/2007 8:17 PM (GMT -6)   
Slice, what butt??? tongue

The last I heard, she was going in to have some tests done. I'm going up to Tampa to visit family for Christmas, so I will check on her, if she's still in the hospital.

C from FL (where it's 75 degrees and sunny)

Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 12/17/2007 9:33 PM (GMT -6)   

Cecilia:

Please send props to Amy from me, if you see her. Sending you both snowballs from NY.

Richard



flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 12/18/2007 2:20 AM (GMT -6)   
Thanks, Richard. I will give her a big (((hug))) from all of us.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 12/18/2007 7:32 PM (GMT -6)   

She is HOME and chatting in the chat room right NOW!!!

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


ME!
Regular Member


Date Joined Aug 2007
Total Posts : 185
   Posted 12/18/2007 8:23 PM (GMT -6)   
Hi Amey!!!

Big HUGS!! Merry Christmas! Hope you're doing better. Please update us when you can :) Thinking about you!

vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 12/18/2007 8:51 PM (GMT -6)   
Slice said...
So whats the deal Amey?  How are you?  How was the hospital?
 
 Then again, is she reading this?  Was going to send her an email but she doesn't list one.
 
 Come on  C, you live in Florida.  Go find out the deal.  I just shovelled 2 feet of snow and ice and now my butt hurts.  yeah   

You shoveled 2 feet of snow and now your butt hurts?? I thought you're doing it wrong!!!

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 12/18/2007 9:07 PM (GMT -6)   
Ash83 said...
Amey- I really hope you're doing well! I've missed reading your posts!
 
 
ETA-Peggy I just saw your post. Tell her I said hello since I can't get in there!
Amey checked in with us - said hello.  She just got home today.  But we all got booted and she didn't log back on!  So I hope she has a restful night back in her own bed.
 
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 12/18/2007 10:26 PM (GMT -6)   
The chat room froze up...kinda like Slice's drive way. Sorry Slice...Guess you could always move to sunny Florida!

I am home...YIPPIE! I went into the hospital on Saturday. I had a bad night on Friday. I was in the tub until late at night with a huge belly and nothing would pass. I drank prune juice and sat in a hot tub for hours. I called my doctor in the morning and he said he thought I had an obstruction. He called the hospital and had them reserve a bed for me so I did not have to wait in the ER. They ran several tests and learned that nothing is wrong....or at least so they tell me. They did find that liquids move well through my small intestines and then stop right beyond my stoma. There the foods just sit for hours and then finally pass through the stoma. This may take 5 hours or 12 hours depending on what I ate or drank. They said this is normal. Personally, I disagree. However, when I told them I disagreed I was labeled as being "difficult." It was this slow sitting process that made me think I was obstructed. For all I know, I have some adhesion right behind my stoma that they did not detect with their equipment. However, when I said that, they assured me that I was just "hyper sensitive and overly concerned with my stoma." I asked them about my water retention because I gained 5 pounds of water before going into the hospital when I had an IV of fluids put in at the local emergency care center and then I gained 6 more over the 3 day stay in the hospital and I was not allowed to have food or water in the hospital so it was that they were over feeding me. So, I asked them, "why have I gained over 10 pounds in a week?" They said I should not worry about my water retention or even be concerned about that. The fact that I was concerned about the water and weight gain meant that I possibly had an eating disorder and I was overly concerned about my weight. Ok yes, I like to be thin, but wouldn't anyone be concerned about 11 pounds in a week? The doctors said that they would not even notice if they gained 11 pounds because as long as they feel good and can go to work everyday it is not a concern. They said that since I am a healthy active young woman I should not care about my diet or how much water I hold as long as I feel good. And the fact that I was asking about these problems combined with the fact that they could not find an obstruction meant that I had an eating disorder. So, they called for a psychiatric consult. I was very offended. My degree is in psychology. The last thing I wanted was someone giving me their take on some psycho-babble nonsense. The psychiatrist came to see me and told me he could start me on "medication" if I wanted to set up an appt to consult with him. Was he crazy? I did not need medication for a mental disorder! I needed to find out why my poop is stuck before my stoma! Oh well, I am going to work on this one myself.

The good part of being there was that I know now that I am well hydrated. I learned a lot about my ostomy and that I need to find some things that work for me. Maybe I need to try Boost or protein shakes rather than eating so many solids. Or maybe as my body heals and adjusts my body will work this out on its own. At least I got to see things move through on the x-ray (that was neat) and it only took the liquids 30 minutes to get from my mouth to the end of my small intestines...then it just sits and hangs out for a while. That was neat to see and interesting to learn.

Thanks for your support. Your words of encouragement keep me feeling hopeful and ambitious.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 12/19/2007 11:55 AM (GMT -6)   
Amey:

Young lady you are a fighter! I admire your tenacity and spirit. As you probably know from my constant whining, I too have hydration problems and my weight does fluctuate quite a bit depending on how hydrated I am. It is so disappointing that your docs took the easy option and fell back on a psyche diagnosis. You are to be commended for standing up for yourself! I think the Boost and/or Ensure sounds like a good idea.

It's great to have you back!

Richard
Indabag
 
Ileostomy since August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection. 8 months in ICU at Westchester County M.C. (I think that's a record). Second surgery for resection due to fistulas in January 2007. Been slowly recovering since then. Possible reconnection candidate.


Gillcom
Regular Member


Date Joined Nov 2007
Total Posts : 272
   Posted 12/19/2007 1:12 PM (GMT -6)   
Amey,

Glad your back home, i bet you are too! I actually didn't realise you only got your ileostmy in Aug of this year which is only 4 mths ago!! You are so knowledgable, i thought you had it for many years. I do hope you start to feel better now that you are much more hydrated, maybe your body is still adjusting to having all your surgery, anyway glad to have you back with us on the forum, take care and Happy Holidays from freezing Scotland, Gillian
Ileostomy - Feb 05, Hernia on site.
Fluoxetine - 20mg March 05 - july 06
Citalipram - 20mg July 06 - upped to 40mg now.


april417
Regular Member


Date Joined Jul 2007
Total Posts : 204
   Posted 12/19/2007 4:38 PM (GMT -6)   

Amey

so sorry to hear you were in the hospital, I had no idea, I haven't been around lately.  You are such a fighter, I hope things get better for you. Miss talking with everyone but it's hard because I feel like I keep repeating my self My husband says I know you have to take it one day at a time.  What the H-ll does he know. Some times he can be such a ass. ( At least he has one).  I finally got a job but it's full-time and I have not worked in 2 years.  I am scarred that I'm going to let the company and myself down.  I can't get through a day with out a nap, how am I going to work 8 hours ? Problem and problem and more problems. Any way after all my *****ing I'm gonna go and take care of my sick daughter, she has been sick all week, so I have not been able to finish my shopping.

Peace


Apri
 
 
                                   Total Coletomy Feb. 07
                                       Bi-polar since 1994
synthroid, Lamictal 300mg, cymbalta 90mg, Trazodone 200mg,
Diazepam 20mg, ambien 10mg use to be on ambien CR


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 12/19/2007 5:40 PM (GMT -6)   
Wow, I am overwelmed with emotion. I wish I could give each of you a huge hug for your wonderful support. Your posts remind me of how grateful I am to have found this forum. I was surprised and tickled when I saw my name "Amey" as one of the headings. It really made me feel special. Thank you for that and for your help. My husband is so wonderful and he tries so hard to understand what I am going through. However, a part of me wishes he really could relate and understand me and how I feel. That is where this forum comes in, it fills that small void for me and gives me a place to really feel understood. I do not have enough words to show my gratitude. I hope this vitrual hug is enough to express my thanks....

{{{{{{BIG HUGS}}}}}}}
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 12/19/2007 6:11 PM (GMT -6)   
well i am late in this, but i am really glad you are home too! however i wish you hadn't gotten treated like that. It's horrible for them to think you have an eating disorder, when when it comes to stuff like that you are probably the healthiest person i know, all that exercising and eating right and stuff. I would surely be horribly upset if i gained 11pounds in one week, that's crazy!
Hopefully you can find a group of drs who will actually help you, instead of writing you off as crazy.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 12/19/2007 7:07 PM (GMT -6)   
Amey,
I am so happy that you're out of the hospital and are going to spend Christmas at home with your family! :-)  
 
However, I'm sorry they treated you like that. sad The same thing happened to my brother in law after he got angry with the lack of medical attention after spending 15 hours in the ER. It was terrible.
 
Just a thought... could they remove the part of the intestine that is causing the back up and give you a new stoma? eyes I still don't understand why you were having trouble peeing, though. Did they check your kidneys?
 
I hope you feel better now that you sort of know what's going on.
 
Take care,
Cece

Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 12/19/2007 8:29 PM (GMT -6)   
Cece,

They said a young active woman should not be concerned about whether or not she goes pee and I was over reacting to not peeing for a day or two. When I tried to explain that I was holding water they looked at me like they were going to put me in a white jacket and send me to the loony floor. My husband was right there validating my symptoms but because I am not overweight (even when I gain 11 pounds) they said they could not see that I had gained any water weight since I was admitted. I told them that their own scale said I had gained since I got there and they argued that their scales were wrong. Then I agrued that the pants I wore to the hospital did not fit me and I had to have my husband bring me some elastic waist pants. At that point they said I was being "difficult" and "obsessive" and of course I was stunned.

I asked about redoing my stoma and shortening my small bowel. They said abosolutely not. They said it would cause all kinds of problems because every part of your small does something important (unlike the large). If they removed the end of my small I would need to take B12 shots the rest of my life and it may not improve my situation. They felt it was best to give my body a year to heal and see if the problem works itself out. They said my body may be adjusting to its new anatomy and it make never improve but it is better to wait since things are moving...even if it takes 12 hours to pass an egg.

Yes, they cheked my kidneys through my blood work. My blood work was normal.

Thanks for thinking of me Cece. Sorry to hear about your brother.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot

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