i read alot of your posts and sounds like your CI case is very similar to mine and my TC was not sucessful. i just posted about colonic inertia question. i had no way of emailing you but i would really like to talk with you some how. i am at point where to feel better docs are suggesting going back to ileostomy, but permanently....i am scared becuase it's my 3rd surgery and i really struggled with the ostomy, to feel good about myeslf.
physically the ileo helped me to regain back alot of lost wt and eat but wearing the bag was very very difficult emotionally as it triggered flashbacks of sexual asssault and felt like trash. i wanted to run from the bag so bad and tell it to get off me...and i would cry, the smell made me get sick alot and developed a bad relationship with food.
yes, physiologically it may have helped but docs don't get what it's like to be young woman in college who is single, fearful of intimacy enough with out the ostomy and yes, i have taken my concerns to counseling.
i am a very strong person and yet i feel so worn out lately. i have lost 25 pounds past 6 months but stable not losing anymore....i swim alot but i know with ostomy it will take some time till i feel comfy swimming again. i really have enjoyed bag free living...yet pain is getting worse.
were you ever back on laxatives and enemas after TC? miralax does not workfor me...i been on every med and over counter product out there....i get so sick though that i am getting fed up and sad.
i am an art student and i use art to help me express myself and yet i don't know what to do as classes start again in 3 weeks. i was supposed to get ileo surgery Dec 12th but wanted be home for holidays...mydoc agreed to let me wait till summer to do school but i am not sure if i can sanely keep up with enemas and laxatives and pain....i have tried herbal stuff, casstor oil, get some relief but yesterday back in x ray department for obstruction series
scary when you think youru stomach i the problem and really its' fact you are full of crap up to your rib cage...can i say YUCK!!!!!! i have small and large dysmotility issues
i ahve tried biofeeback and pelvic massage to help mymuscles relax and not tighten up or hold stool in....helps to relax body but not like you said a real cure....
myquestino to you or any one out there is i know i am only one who can make this ileo decision or stay way i am but i am scared what to do; i have seen many surgical opinions and gi specialist...my case too is complex and have an older sister with a similar rare gi disorder but more stomach and small intestinal issues....
i have had frineds with colon issues but more complex illnesses that ended their life early in 20s. i don't have the same other illnnesses as them like heart issues...so i been searching for any support or forum then found this thank the Lord i did this morning
i wanted to cry becuase it's Christmas and i try so hard to wear a mask and be happy even when it hurts inside...going to go do a fleet enema cuase i can't go, bloating and every time i eat get more backed up....ahhhhhhh! i feel like a cow becuase if i could just not eat i would not get backed up as quickly...
i know i have to eat but it sucks! any suggestions or support i need it please!!!