PIGD Postural Instability and Gait Disorder Subtype

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

axon20xx
New Member


Date Joined Feb 2011
Total Posts : 2
   Posted 2/11/2011 8:33 PM (GMT -7)   
According to my reading of learned medical texts PIGD accounts for 30% (or thereabouts) of all PwPs. I have yet to meet anyone else or hear of anyone else with PIGD as their primary symptom?

Are there other out there who like me have PIGD, with no tremor to speak of?

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1476
   Posted 2/11/2011 10:23 PM (GMT -7)   
We don't all understand all the medical abbreviations. Please explain.

Dan

axon20xx
New Member


Date Joined Feb 2011
Total Posts : 2
   Posted 2/12/2011 3:53 PM (GMT -7)   
Dan, Parkinson's Disease comes with tremor or without tremor as the major symptom (generalisation). I have Parkinson's Disease without tremor. On the other hand I find it very difficult to move without Sinemet in my system. PIGD is Postural Instability and Gait Disorder (or Disturbance). One of the subtypes of Parkinson's Disease. With Sinemet I can walk fine so the Gait problem is taken care of. I still have balance problems with our without the Sinemet so I use a walking stick when out and about.
Now statistically there should be 4 out of every 10 people with Parkinson's Disease who have no tremor according to medical researchers so the question is: Where are all these no tremor People with Parkinson's (PwPs)?

Ciao Brett

MeAndPD
New Member


Date Joined Aug 2011
Total Posts : 2
   Posted 8/31/2011 9:43 PM (GMT -7)   
I also have PIGD with no tremor. And my dad has "classic" Parkinson's with tremor.

I have balance issues and loss of fine motor on left side - not taking meds yet.

here's an interesting youtube on PIGD and Parkinson's in general: http://www.youtube.com/watch?v=pf6BGBl8-0U

The doctor is from NPF and seems to know his stuff

Good luck, Brian

never giving up
New Member


Date Joined Nov 2011
Total Posts : 1
   Posted 11/10/2011 12:52 AM (GMT -7)   
I to have PIGD and tremor dominate Parkinson's PIGD is rare not many people have this form of Parkinson's. I was told by my Dr having both PIGD and tremor dominate is very rare and to be even rarer is mine being Young onset.
Most ppl understand Parkinson's as a slow progressive disease that effects older ppl ,most have never heard of PIGD or know this is rapid progressing form of Parkinson's. Myself being young onset find it difficult as there are many that still are unaware that this is not just a disease that strikes the elderly I get strange looks and have gotten some very nasty comments from ppl I dont go out much by myself much anymore.

momofriend
New Member


Date Joined Nov 2011
Total Posts : 0
   Posted 11/19/2011 9:12 PM (GMT -7)   
I also have PIGD and have dystonia as well with my Parkinson's. I am also a young onset, being diagnosed before I was 50 and having had symptoms for at least 8 years before my diagnosis. I listened to the youtube talk with Dr. Joseph Jankovic, and wondered what the difference is between PIGD Parkinson's and Multiple Systems Atrophy, which is a Parkinson's plus disorder.
I am anxious to see my neurologist in a couple of weeks to ask about these subtypes of PD. From what I see on the internet, it seems that this is something that is getting more attention and study now. It was never mentioned at all when I was first diagnosed in 2007. I first heard the term, PIGD, when I was called and asked to participate in a study at our Medical University. I was called and asked because I have PIGD. Another friend from a PD group in town has this as well. She was frightened by learning that this subtype progresses faster. I am too, for that matter!!
Does anyone know how long these subtypes have been identified and studied?

Kokolu
Regular Member


Date Joined Feb 2012
Total Posts : 24
   Posted 2/18/2012 8:06 AM (GMT -7)   
Hi! I am Sonja, I am 35 years old. I don't have any diagnosis yet, but I have pain in my hips, shoulders, hands, feets, vision problems (every few days I can't see well on my eye or eyes). I notice tremor in finger of my left had few months ago, but it happends very rare. So I think I may have PIGD. People who have it, what do you think about my simptoms? And how old are you? I also from time to time have problems with my balance... My neurologist said stres, fibromialgia, etc., etc...

Kokolu
Regular Member


Date Joined Feb 2012
Total Posts : 24
   Posted 2/19/2012 5:53 AM (GMT -7)   
No one???

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1476
   Posted 2/20/2012 7:00 PM (GMT -7)   
PIGD and tremor.

Dan

Kokolu
Regular Member


Date Joined Feb 2012
Total Posts : 24
   Posted 2/21/2012 2:41 AM (GMT -7)   
Dan, how old are you?

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1476
   Posted 2/21/2012 9:50 AM (GMT -7)   
I am 67 YO. PD since 63.

Dan

grandmalois
New Member


Date Joined Aug 2013
Total Posts : 2
   Posted 12/23/2013 6:04 PM (GMT -7)   
After viewing the video of Joseph Jankovic on Facebook, I believe my husband has PIGD.  The description the dr gave fits him exactly.   Is there a special med to take, other than sinemet?
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 18, 2014 1:09 AM (GMT -7)
There are a total of 2,298,536 posts in 255,225 threads.
View Active Threads


Who's Online
This forum has 159712 registered members. Please welcome our newest member, rachnicole48.
228 Guest(s), 5 Registered Member(s) are currently online.  Details
rachnicole48, Ravineman430, Vicky888, Blu's Mama, sueg


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer