PIGD Postural Instability and Gait Disorder Subtype

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axon20xx
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Date Joined Feb 2011
Total Posts : 2
   Posted 2/11/2011 8:33 PM (GMT -6)   
According to my reading of learned medical texts PIGD accounts for 30% (or thereabouts) of all PwPs. I have yet to meet anyone else or hear of anyone else with PIGD as their primary symptom?

Are there other out there who like me have PIGD, with no tremor to speak of?

polishdan
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Date Joined Mar 2010
Total Posts : 1595
   Posted 2/12/2011 4:23 AM (GMT 0)   
We don't all understand all the medical abbreviations. Please explain.

Dan

axon20xx
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Date Joined Feb 2011
Total Posts : 2
   Posted 2/12/2011 3:53 PM (GMT -6)   
Dan, Parkinson's Disease comes with tremor or without tremor as the major symptom (generalisation). I have Parkinson's Disease without tremor. On the other hand I find it very difficult to move without Sinemet in my system. PIGD is Postural Instability and Gait Disorder (or Disturbance). One of the subtypes of Parkinson's Disease. With Sinemet I can walk fine so the Gait problem is taken care of. I still have balance problems with our without the Sinemet so I use a walking stick when out and about.
Now statistically there should be 4 out of every 10 people with Parkinson's Disease who have no tremor according to medical researchers so the question is: Where are all these no tremor People with Parkinson's (PwPs)?

Ciao Brett

MeAndPD
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Date Joined Aug 2011
Total Posts : 2
   Posted 8/31/2011 9:43 PM (GMT -6)   
I also have PIGD with no tremor. And my dad has "classic" Parkinson's with tremor.

I have balance issues and loss of fine motor on left side - not taking meds yet.

here's an interesting youtube on PIGD and Parkinson's in general: http://www.youtube.com/watch?v=pf6BGBl8-0U

The doctor is from NPF and seems to know his stuff

Good luck, Brian

never giving up
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Date Joined Nov 2011
Total Posts : 1
   Posted 11/10/2011 12:52 AM (GMT -6)   
I to have PIGD and tremor dominate Parkinson's PIGD is rare not many people have this form of Parkinson's. I was told by my Dr having both PIGD and tremor dominate is very rare and to be even rarer is mine being Young onset.
Most ppl understand Parkinson's as a slow progressive disease that effects older ppl ,most have never heard of PIGD or know this is rapid progressing form of Parkinson's. Myself being young onset find it difficult as there are many that still are unaware that this is not just a disease that strikes the elderly I get strange looks and have gotten some very nasty comments from ppl I dont go out much by myself much anymore.

Kokolu
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Date Joined Feb 2012
Total Posts : 24
   Posted 2/18/2012 8:06 AM (GMT -6)   
Hi! I am Sonja, I am 35 years old. I don't have any diagnosis yet, but I have pain in my hips, shoulders, hands, feets, vision problems (every few days I can't see well on my eye or eyes). I notice tremor in finger of my left had few months ago, but it happends very rare. So I think I may have PIGD. People who have it, what do you think about my simptoms? And how old are you? I also from time to time have problems with my balance... My neurologist said stres, fibromialgia, etc., etc...

Kokolu
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Date Joined Feb 2012
Total Posts : 24
   Posted 2/19/2012 5:53 AM (GMT -6)   
No one???

polishdan
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Date Joined Mar 2010
Total Posts : 1595
   Posted 2/20/2012 7:00 PM (GMT -6)   
PIGD and tremor.

Dan

Kokolu
Regular Member


Date Joined Feb 2012
Total Posts : 24
   Posted 2/21/2012 2:41 AM (GMT -6)   
Dan, how old are you?

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 2/21/2012 9:50 AM (GMT -6)   
I am 67 YO. PD since 63.

Dan

grandmalois
New Member


Date Joined Aug 2013
Total Posts : 2
   Posted 12/23/2013 6:04 PM (GMT -6)   
After viewing the video of Joseph Jankovic on Facebook, I believe my husband has PIGD.  The description the dr gave fits him exactly.   Is there a special med to take, other than sinemet?

luckysusan
New Member


Date Joined Feb 2015
Total Posts : 2
   Posted 2/22/2015 10:57 AM (GMT -6)   
me too. it sucks. do you appear "drunk" all the time?? That's what I look like. I think i"d prefer tremors!!

maary
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Date Joined Mar 2016
Total Posts : 2
   Posted 3/29/2016 6:25 PM (GMT -6)   
New member - I am also a new member and caregiver.

You asked about PD patient's without tremor. Phil has no tremor. He has gait problems and balance problems and dizziness and hypotension, neurogenic bladder, slurred speech, difficulty swallowing and fatigue - No tremors. He started on Requip, moved to Sinemet and is now on Rytary and Azilect. The Azilect slowed down the fast progression. He was diagnosed 3 years ago! No symptoms before then really. He now uses a walker and has started falling. I am thinking more MSA, but the meds seem to be working for now.
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