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Kokolu
Regular Member


Date Joined Feb 2012
Total Posts : 24
   Posted 2/18/2012 9:07 AM (GMT -6)   
Hi! I am Sonja, I am 35 years old. I don't have any diagnosis yet, but I have pain in my hips, shoulders, hands, feets, vision problems (every few days I can't see well on my eye or eyes). I notice tremor in finger of my left had few months ago, but it happends very rare. So I think I may have PIGD. People who have it, what do you think about my simptoms? And how old are you? I also from time to time have problems with my balance... My neurologist said stres, fibromialgia, etc., etc...

colt45
Regular Member


Date Joined Feb 2012
Total Posts : 35
   Posted 2/18/2012 9:32 AM (GMT -6)   
Hi Sonja, I am definitely no expert having only been diagnosed about 5 months ago. I am 40 years old and would guess by sympton onset have had pd for at least 3 years before diagnosis. My first symptoms were alot like yours. General achy and stiffness throughout my body. Basically felt like 77 instead of 37. I also wonder if this is the form I have and even asked same question on this forum. This is a good place to continue to ask for advice. People with much more knowledge than I can help point you in the right direction. Good luck

Kokolu
Regular Member


Date Joined Feb 2012
Total Posts : 24
   Posted 2/18/2012 12:17 PM (GMT -6)   
Hi!
Just tell me, do you have tremor? I one hand or in both? Problems with vision?

colt45
Regular Member


Date Joined Feb 2012
Total Posts : 35
   Posted 2/18/2012 7:12 PM (GMT -6)   
Hey Sonja..................... The last sympton I had come up before making a doctors appointment was a tremor in my right hand. That went on for a couple of months now its still primarily there but I can feel it more in my stomach and chest and chin and somewhat on my left side. Not really having any problem with vision. Medication has lessened achiness and stiffness. Have you been put on any medication. I am currently on Mirapex but think I am about to switch to azilect. Have heard good things about it. Tell me more when you can............... Colt

Kokolu
Regular Member


Date Joined Feb 2012
Total Posts : 24
   Posted 2/19/2012 6:57 AM (GMT -6)   
Hi!
I don't have any diagnose... Yet... Because when you see me, you can't notice anything... And you? Could everyone tell that something is wrong just when they see you? How your neurologist diagnosed your desease?

Kokolu
Regular Member


Date Joined Feb 2012
Total Posts : 24
   Posted 2/19/2012 6:57 AM (GMT -6)   
Do you have children?

colt45
Regular Member


Date Joined Feb 2012
Total Posts : 35
   Posted 2/19/2012 8:23 AM (GMT -6)   
Sonja...............Even though tremors had began with me by the time I first visited the neuro, the day I first went I didnt have any. The neuro examined me checked out my handwriting and watched the way I walked. Then by listening about my symptoms he diagnosed me and pretty sure he hit it right on the head. Hows your handwriting, is it start off normal then get smaller and smaller and more cramped looking. When you walk do you swing your arms or do you hold them in tight to your core. These are questions your neuro probably already asked them but really think about them. By the way as a matter of fact I do have kids, four daughters and a son. Keep me busy, thats a good thing. Tell me more about yourself and your symptoms if you would like.................Colt

Kokolu
Regular Member


Date Joined Feb 2012
Total Posts : 24
   Posted 2/19/2012 10:33 AM (GMT -6)   
Sorry, my english is not so good, so I didn't understand your fist sentence. Did you have tremor when you visited your neurologist or not? My handwriting is ok, and I swing my arms... This is why I think that I have some nespecific form of PD, which is a much worst option... I also have children, 2 daughters, they are, 4,5 and 6 years old.

colt45
Regular Member


Date Joined Feb 2012
Total Posts : 35
   Posted 2/19/2012 11:00 AM (GMT -6)   
Sonja.......................Sorry I probably didnt word that very well. Yes I did have tremors but at the time I first visited the neurologist my tremors werent noticeable. Even thought the neuro didnt see them he still diagnosed me with pd. I dont know about other pd patients but my tremors vary. Some times I dont have them, though not very often any more. Sometimes they are mild and them sometimes they are very noticeable. Do you have another appointment scheduled with your neurologist? If so here is something that has helped me. Keep a journal, keep track of whats happening with your body throughout the day. Take the journal to your appointment and share it with your neurologist. Keep responding hope what I am telling you isnt confusing you..................Colt

Kokolu
Regular Member


Date Joined Feb 2012
Total Posts : 24
   Posted 2/19/2012 11:33 AM (GMT -6)   
Colt, I am going to visit neurologist spetialising for movements disorders in a 10 days. Do you have some more advices, what to ask him?

colt45
Regular Member


Date Joined Feb 2012
Total Posts : 35
   Posted 2/19/2012 12:42 PM (GMT -6)   
Sonja.....................Like I said just keep track of whats going on with yourself. When a symptom comes on make note of it. From what I understand movement disorder specialists are the doctors you really want to see. Hopefully he or she will answer your questions and get you on the right track. If it truly is pd from what I have learned stressing only makes it worse so try not to let it control your thoughts enjoy the good times...............Colt

Kokolu
Regular Member


Date Joined Feb 2012
Total Posts : 24
   Posted 2/19/2012 1:04 PM (GMT -6)   
Tnx for your advice... But I am on my antidepressives because I am so afraid... And my husband doesn't believe me anything, he thinks that I imaggining my pain and vision problems...

maryar
New Member


Date Joined May 2014
Total Posts : 1
   Posted 5/15/2014 8:52 PM (GMT -6)   
I am 84 year old woman. i had no symptoms until 18 months ago. I have been told I have PIGD type of Parkinsons. i do not have tremor. My legs often refuse to move properly. I have to use a walker at all times and I have fallen lots of times. I take carbidopa/levodopa 25/250 five times a day. I have read that this type of Parkinsons progresses more rapidly and it certainly seems to be doing that in my case. I have no pain, so i feel lucky about that.
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