Muscle spasms & leg cramps

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Bob F.
New Member


Date Joined Nov 2006
Total Posts : 4
   Posted 3/25/2007 9:57 PM (GMT -6)   
Hi... I was diaagnosed with PD a little over a year ago and have accepted the problems and symtoms associated the best I can except one. I am having muscle spasms / leg cramps most of the time which can make walking almost impossible. They can get so bad at times that if I move the wrong way it can take me down. I am taking sinemet 25/250 every 4 hours and it has helped a great deal with most except this. Are leg cramps & muscle spasms in the legs and hips a symtom of PD. My neurologist asked if I wanted x-rays for arthritus etc. but he didn't think it had anything to do with my PD and to take Aleve or Ibuprophen for the pain if that works. Any thoughts? confused     Thank you in advance. 

Strengthenme
Regular Member


Date Joined Mar 2007
Total Posts : 78
   Posted 3/26/2007 12:39 PM (GMT -6)   
Hi Bob I can't offer any advice on this one, hopefully someone else on this board will be able to answer your question.

Take care

yekkimo
Forum Moderator


Date Joined Apr 2003
Total Posts : 1279
   Posted 3/27/2007 6:23 AM (GMT -6)   
Bob,Over the years I have talked to many with PD that have suffered with cramping.I do believe that those with PD suffer with this affliction.What seems to help me is keeping my calcium and potassium levels up thru bannanas,orange and tomatoe juice.Worth a try .Wish you the best.Ed
Ed-Moderator Parkinson's disease forum.
Diagnosed with Parkinson's Disease in 1998.As long as I can fish life is good.Keep a great attitude.It benefits all.Meds:Stalevo,Mirapex
 
support Healing Well thru the sponsors and with donations.The light is always on stay well,and listen to your neurologist.


philjo1
New Member


Date Joined Apr 2006
Total Posts : 5
   Posted 3/29/2007 6:42 AM (GMT -6)   
hi bob ,ya leg cramps are bad painfull aswell, doctors dont seem to much about it my GP gave me some quinine tabs to try, its a bit better but not much , hope we can find something

yekkimo
Forum Moderator


Date Joined Apr 2003
Total Posts : 1279
   Posted 3/29/2007 7:25 AM (GMT -6)   
Philjo,Quinine is not approved by the F.D.A for leg cramps,and is considered risky.If you Google this you will find plenty of info on the danger of using quinine.Wish you the best .Ed
Ed-Moderator Parkinson's disease forum.
Diagnosed with Parkinson's Disease in 1998.As long as I can fish life is good.Keep a great attitude.It benefits all.Meds:Stalevo,Mirapex
 
support Healing Well thru the sponsors and with donations.The light is always on stay well,and listen to your neurologist.


philjo1
New Member


Date Joined Apr 2006
Total Posts : 5
   Posted 3/31/2007 6:52 AM (GMT -6)   
re quinine thanks for the info i,ll go back to the docs, i,ll let you know what he says, prob take 2weeks to see him c u then

minmark
Regular Member


Date Joined Mar 2007
Total Posts : 182
   Posted 4/4/2007 8:59 PM (GMT -6)   
I have that problem before when I was taking Comptan. In my experience the more medicine you take the more complications you have. Evaluate your medication, probably your getting too much. Have a thorough analysis of your medication. You're taking 4x a day of Sinemet 25/250. This mean a thousand miligram a day. This is too high, this is probably the cause of your musclle spasm. Try to adjust your medication> As much as possible try to decrease it. You can cut your Sinemet into 3 x a day. Try if it will be beneficial to you. One more option, Instead of taking whole tablet take half tablet every two hours make it 6 x a day. OR change your Sinemet 25/250 to regular sinemet 25/100 make it 2 tablet 3 x a day or 1 tab 6x a day. In this case you are consuming 600 mg a day not 1000. Save your years with a low dosage of carbidopa.

calming
New Member


Date Joined Mar 2007
Total Posts : 14
   Posted 4/5/2007 10:27 PM (GMT -6)   
smurf  I get muscle spasms,or dystonia in my right hamstring, right calf, right hand, right side of my neck, and my toes. I used to get them 50-100 times a day. My mirapex was increased from .25mg 2x day to .5mg 3xday. It helped so much. Now I only get them about 5-10 times a day. My right leg used to be so stiff and it hurt. I seem to have problems when the medication wears off. I also started physical therapy and due stretching exercises 2x day. That has helped. I know alot of people don't like mirapex, but for me it is doing a good job semi-controlling the rigidity, dystonia and tremors. The only negative is the weight gain. I have gained 20 lbs in the past year. That is kind of freaking me out. I am in the creatine study, and I read that creatine can make you gain weight. So now I will be a chubby person with semi-controlled PD. I was diagnosed 6/2005 at 52. The absolute worst symptom of PD that I've had was major depression and anxiety.It is so wonderful to have message boards to communicate with others going through similiar senarios. Best wishes. Calming

philjo1
New Member


Date Joined Apr 2006
Total Posts : 5
   Posted 4/7/2007 3:54 PM (GMT -6)   
hi id just like to say im on stalevo 100mg /200mg ,4 times a day , amantadine 100mg two a day, & ropinirole 3mg three times a day , had PD for 10 years dx at 39 all the best phil

The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 4/10/2007 11:28 PM (GMT -6)   
Hi Bob, thisis the Bear. May i quote from a book II found extremely useful in making sense of what was wrong with me before I went to see my GP [MD]? It's called the Parkinson's Disease handbook by Dr. Richard Godwin-Austen.
In the section on levdopa it states;
".......painful cramp [dystonic spasm] affecting especially the muscles of the calf or foot is a late side effect of levodopa treatment. It is usually worse in thee early part of the day , when it may interfere with walking and lead to considerablediscomfort.................many ..find that they can walk it off and it is seldom a case for altering dosage. In some cases it is necessary to try additional treatment to relieve the spasm..........te drug which is most effective is baclofen". This may be of use or no but elsewhere n the booklet it sates that in its ealry stages it was commoonly misprescribed as arthritis because some of the types of pain involvedare very similar and even vice versa. I can vouch for tht as I have one hip replacement and am awaiting another in August. It is still difficult sometimes to differentiate between what is causing my pain - arthritis or pd. It is the referred pain that causes the problem as it can crop up anywhere from the lower spinal region to the foot and ankle. I do find it incredible reading through the site the difficulty some people have getting good and consistent diagnosis or maybe I struck lucky. The point is made elsewhere on this site that half of al doctors came in the bottom 50% in their class adn it really is pot luck which half ours and yours came in. Take it easy Bob. The Bear.

sylvie74
Regular Member


Date Joined Mar 2007
Total Posts : 443
   Posted 4/11/2007 1:05 PM (GMT -6)   
I've never heard of dystonia before, but what is the difference between that and spasticity of the muscles? I am assuming what I have is spasticity, but the doctor hasn't really given it a name. Whatever it is, it started in my outer left thigh, somewhat near the knee. Intense muscle spasm- tightening. Doesn't matter if I'm sitting, sleeping, exercising.. it just comes and goes of its own free will. Nothing relieves it. Tried heating pads, "Icy/Hot", and the last time I was at the Neuro's office, she gave me Zanaflex. That actually made it worse, and my spasms kept me awake most of the night. Since then, I have felt them in my left knee, sometimes in my left calf, in my right ankle, right wrist, and so on.. not nearly as severe, but it is worrisome to me that whatever this is (that is causing this problem) is spreading. confused
(undiagnosed) chronic pain, for nearly 10 yrs and counting..


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 4/15/2007 12:38 AM (GMT -6)   

I am very sorry to read about your problems with muscle spasms and leg cramps.  I have an atypical form of PD, but also have a major problem with muscle spasms and leg cramps.  My diagnosis is dsytonia in combination with atypical PD.  As you have probably well learned, dsytonia is an extremely painful form muscle condition.  For people that have not experienced it, dsytonia feels exactly like when you have a major muscle spasm or “Charlie horse” in the calves of your leg.  The only difference is that we get them in other major muscle groups and they can last from minutes to hours.  People not only have pain when the cramp and spasms IS occurring, but then the muscles are terribly sore and uncomfortable afterwards from being over used and damaged during the actual cramping.  I know several people that have dsytonia in association with their PD, and the majority experience good relief with the anti-spasmodic medication called Baclofen.  In the beginning, I was able to control my dsytonia taking Baclofen orally, in combination with my other PD medications.  As my dsytonia progressed, I maxed out on my oral dose.  In most people taking over 80 – 100 mgs daily, the adverse events over shadow the benefits.  When this started to occur, my movement specialist referred to for a pain management evaluation.  It was decided that an intrathecal pump implant would be the best way to deliver my Baclofen.  Because the pump has a catheter that does directly into the spinal column, the Baclofen can be delivered to the brain without having to cross the blood brain barrier.  What this means is that you only need 1/100th of the oral dose to effectively treat the dsytonia.  I have had good success with my Medtronic Baclofen pump.  My dsytonia affects my back muscles, legs, and diaphragm.  Dsytonia can affect any major muscle group in the body.  Many people with PD and dsytonia also suffer from RLS and other abnormal muscle movements, like myoclonus and myoclonic jerks. Good luck, the key is to find a good movement disorder specialist that is familiar with all types of abnormal muscle problems and treatment options.    I also tell people that if they are experiencing pain with the PD, to get a referral to pain management. 


Stella Marie

Words that soak into your ears are whispered...not yelled.
Live simply. Love generously. Care deeply. Speak kindly. Leave the rest to God
 
 
l


fiestytex
Regular Member


Date Joined Apr 2007
Total Posts : 27
   Posted 4/22/2007 7:26 PM (GMT -6)   
Hi Bob,
I get leg cramp only in my left calf and only at night. I take a calcium suppliment everyday and that has helped alot. I also strech my muscles a few times
every day. It really helps. Good luck!!
fiestytex

sylvie74
Regular Member


Date Joined Mar 2007
Total Posts : 443
   Posted 4/23/2007 12:16 PM (GMT -6)   
Stella.. that's very interesting that you said you have this in your diaphragm. How did you know that it was dystonia, and not something like an ulcer or some kind of gastrointestinal issue? I'm curious what it felt like, and if the dr knew right away it was related to the problems in your legs and back?
(undiagnosed) chronic pain, for nearly 10 yrs and counting..


Purple49
New Member


Date Joined Apr 2007
Total Posts : 2
   Posted 4/23/2007 7:26 PM (GMT -6)   
  1. This is my first posting. I have had PD for 7 years and was diagnosed when I was 50 years old.  I have managed pretty well so far, however I am having a problem with foot drop on my right foot.  It is very painful and has resulted in a tendonitis due to the stretching of the muscles on the top part of my ankle.  I would like to know if anyone else has had this problem and what they have done about it.  I have run out of ideas.  I have used orthotics in my shoes and have now been thinking about a right angled brace for my foot and lower leg to keep it in proper alignment. i have already had several falls due to tripping over my own feet. Thank you for any suggestions you might have.

Irishgramp
New Member


Date Joined Feb 2006
Total Posts : 19
   Posted 4/23/2007 8:34 PM (GMT -6)   

Hey all,

My neuro does not feel I have PD, but, some of the symptoms make it appear that I do.  I take Klonopin which is supposed to help with spasms and cramps.

Walking is always an issue, it may be time for PT for foot drag, but also try to remember to point your toes to your nose.  There is a lot to concentrate on so I am not allowed to walk and chew gum anymore.

Good luck

Jerry


Purple49
New Member


Date Joined Apr 2007
Total Posts : 2
   Posted 4/27/2007 7:16 PM (GMT -6)   
Thank you to all. I will follow up with advice presented here. I have tried quinine for cramps (tonic water) and it does work sometimes. Keeping up the calcium in my diet also helps. The tonic is about 3 tablespoons once before bed,which in that amount I don't think has any side effects. After all, gin and tonic is enjoyed by some people. However it seems that I have to follow up more closely with the diagnosis of tendonitis and the tendon involved, and whether or not there is anything else wrong with my ankle. I'll keep you up to date with what I find out.

yodapark
New Member


Date Joined May 2007
Total Posts : 2
   Posted 5/1/2007 11:27 PM (GMT -6)   
MORNING it is 05.30ish in the uk and i am very pleased to have found such a useful site.I am 59 years young , dxd 9 years now ...have had to give up skate-boarding and pole-dancing but hey , reckon the world is a poorer place....hope my sense of humour not offended anyone.....

yodapark
New Member


Date Joined May 2007
Total Posts : 2
   Posted 5/1/2007 11:36 PM (GMT -6)   
ok need to explain that woke up two hours ago with the leg dramps thingy ....hate it .....yodapark

yekkimo
Forum Moderator


Date Joined Apr 2003
Total Posts : 1279
   Posted 5/2/2007 6:23 AM (GMT -6)   
Yodapark,Welcome to Healing Well.Keep up the sense of humor.Have a great day in the U.K.Best wishes.Ed

Ed-Moderator Parkinson's disease forum.
Diagnosed with Parkinson's Disease in 1998.As long as I can fish life is good.Keep a great attitude.It benefits all.Meds:Stalevo,Mirapex
 
support Healing Well thru the sponsors and with donations.The light is always on stay well,and listen to your neurologist.


The Bear
Regular Member


Date Joined Mar 2007
Total Posts : 364
   Posted 5/6/2007 9:54 PM (GMT -6)   
Hi Yodapark, I thought Yekkimo got up early but we seem never to go to bed - or we both get up sleepless in Apsley. How's it going wth the cramps. I'm lucky I rarely get them - small mercies for which I am truly thankful. As you're a fellow Brit how are you coping with the medical profession in UK? Interesting readng people's stories here, it's an education in pd that seems unobtainable elsewhere in the UK.
Hi Ed, how's the fishing? Never done it myself but my son when he was three called it 'water watching' it must be like being in the eye of the hurricane.
Peace on you both.
The Bear

neilp02
New Member


Date Joined Oct 2006
Total Posts : 12
   Posted 5/31/2007 12:10 AM (GMT -6)   
Hi All!! Thanks for all the advice & info here. I have had Parkinsons disease now since 2003
when it was first diagnosed and I have the rigidity, spasticity in my left leg & thigh. When I
first started Dr., ing for Parkinsons, they started me on Requip, but later as of 2005 I started
on sinemet cr and went from 100mg 3x daily to 200mg 3x daily in 2006 until the fall of 2006,
when I started to have more rigidity problems and then my dosage was increased to 200mg 4x
daily and then Comtan was added 1x daily, probably largely as a result of some of my own
inquiries, I made to the Ask The Drs. Forum for Parkinsons.

I do feel that I have been getting around better than when I was on the 3X per day schedule,
except for an early morning dystonia problem in my left foot that I am still trying to find a solution for. My mother had Parkinsons and was on a lot of meds and I do think that a person
can end up taking too many things which cause side effects also. I did not agree with that
increase in the sinemet dosage and had some opinions on it given to me from the Drs,. from
the Ask The Dr. Forum. I still went along with it and am on the 50-200mg sinemet 4x daily.

Then they wanted me to start on Mirapex, which I did for a while at the lowest dosage level,
however, after my last visit to the Dr., they wanted me to increase the Mirapex, which I decided I didn't want to do until I had another opinion. Mirapex, may be alright for some, but
I have just read too much about it in the higher dosage levels, so I decided to get off of it at
least for awhile. The Drs. forum suggested Azilect which I started about a month ago from a
new Dr. who's a Parkinsons Specialist. So, I am on this now and in some respects, except for
the early morning dystonia in my left foot which is very crippling for a few hours, I seem to get
around alright. I may have to cut back on the sinemet or try and spread it out if I am having
OFF dystonia problems, which I suspect. Maybe the Azilect will have to be increased, I don't
know. Just would be nice to be freed from the Dystonia problem if that's possible.

Anyway, I appreciate all the ideas and input on this forum and maybe through a sharing of each other's problems we all can learn new ways of dealing with this disease. If anyone wants
to email me on anything, as I do like to keep up on whats going on with things, they can write
me at neilp02@sprynet.com.


Thanks and Have a Great Day
Neil P.

gc
New Member


Date Joined Oct 2007
Total Posts : 9
   Posted 10/21/2007 8:04 PM (GMT -6)   
A banana a day helps with leg cramps.

linda 1
New Member


Date Joined Jan 2008
Total Posts : 1
   Posted 1/18/2008 6:16 AM (GMT -6)   
bob, this is the 1st time i have looked up parkinson's on the internet. my brother for a long time had trouble with his legs and muscles in his legs. his muscles in his legs are moving about as though he has a little mouse running about in them! you can see his calves moving around constantly. he gets pain in his legs and when he walks he takes little shuffling steps and cant seen to gain control of his legs or walking. he has vascular parkinson's disease. the doctors have told my brother that it is all part of his disease

gc
New Member


Date Joined Oct 2007
Total Posts : 9
   Posted 1/20/2008 7:23 PM (GMT -6)   

a banana every day or sweet potato did away with my leg cramps in 10 days. if i stop the bananas the leg cramps come back.

a trainer at the ymca told me about the bananas , not a doctor

i take sinement three times a day, my pd gets worst if i do not get 7 hours of sleep

xanax 0.5 mg helps me with my anaxiety, and sleep. sinemet will cause the anxieties.

i take xanax two or three evenings a week

let me know if this helps

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