Pain/tightness in chest

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Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 4/24/2007 11:58 PM (GMT -6)   
Still on the sinemet trial. Neuropathic pain awful, would love to hear how others treat this or even have this.
Hands are on fire, the palms red and burning sensation.
Chest and throat feel very tight, more now then it did.
Practically no sleep at present. Increased sinemet two days ago, still no change in the jigging and jerking and last night the dystonia seem to come back full blown!
Very low.
xAnn
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 4/27/2007 1:47 AM (GMT -6)   
I had a problem with tightness in my chest. The cause was muscle spaciticy caused by related dystonia. I would experience muscle tightness in my diagphram - resulting in difficulty breathing and eating. Baclofen solved the problem for me.

As for sleep, most neurodegenerative disease are notorious for causing major sleep problems. Has you physician ordered a sleep study to check exactly what is causing your ongoing sleep issues. I was told my atypical Parkinson's affected my ability to go into REM sleep. There is no way to correct it = so you just have to adjust your lifesyle around the fact that you prabably will not be sleeping 6 or 7 hours in a row. I get about 3 stints of 2 1/2 hours and am thankful for that.

Stella Marie

 Dx:  Rare rapidly progressing neurodegenerative disease called Multiple System Atrophy (brain rot, autonomic system failure, neuropathic pain and a whole lot more).  Added improvements:  Intrathecal pump, spinal cord stimulator, oxygen and a nice shiny power wheelchair with a horn and all the trimmings!  At this rate I could almost be bionic by Christnas.

 

Medications: Sinemet, Requip, Klonopin, Baclofen, Provigil, Lyrica, Cymbalta, Fentanyl patches, Dilaudid, Fentora/Actiq, Zofran

(The cost of these meds are unbelievable and could feed a starving nation for a month or longer!)

Words that soak into your ears are whispered...not yelled.  Live simply. Love generously. Care deeply. Speak kindly. Leave the rest to God......

 
 
l


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 4/27/2007 2:27 AM (GMT -6)   
This is one of the worst aspect of illness. I am woeful when I dont sleep!
Thanks Stella!
xxAnn
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream


billy
Regular Member


Date Joined Mar 2006
Total Posts : 49
   Posted 4/27/2007 2:38 PM (GMT -6)   

Ann

 

I too suffer with poor sleep and when I get desperate, say after 2 or 3 nights of very poor sleep I take Amitryptyline 1 tablet of 10mg.  This is prescribed by my GP who tells me it is absolutely safe and non addicting.   It certainly gives me a very good unbroken sleep if taken a couple hours before going to bed.

 

The only downside is that it makes me feel a bit sleepy the following day but after a few sleepless nights I put up with that. 

God Bless

 

Billy 


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 4/27/2007 2:42 PM (GMT -6)   
Thanks for that Billy, I would take arsonic if I thought it would work!!!!
xAnn
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream

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