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justtom
New Member


Date Joined Sep 2007
Total Posts : 11
   Posted 6/27/2008 9:59 PM (GMT -6)   
Sorry, I really messed that last message up..  I don't know what happened to my messeage.  Anyway, I have peyronies and am hoping for success stories from you fellow victims.  I am taking a couple of drugs by mouth without success.  My Urologist is talking about injections of Verapamil to break up the plaque.  Any help appreciated.  For the good part, I am having some erections without help.  I have actually began to have desire since the harmone shot has worn off.  It really gets better but it has been 14 months.  I have been having nocturnal erections for about 2 months.  I wish everyone the best. 
AGE 54, DIAGNOSED PROSTATE CANCER 3-13-07
11 OF 12 BIOPSIES POSITIVE, PSA 7.2 GLEASON 4+3=7
RADICAL 4-27-07, NERVES SPARED ON THE LEFT, REMOVED FROM RIGHT SIDE..
PSA 1 MONTH AFTER 0.05
ELIGARD 45 GIVEN 6-05-07
NEXT PSA DEC.07
JUSTTOM


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 6/27/2008 10:47 PM (GMT -6)   

I have had Peyronie's for 24 years...since age 33.

Was unusable for almost a year, but taking 400 mg of Vitamin E helped a lot.  It still has a curvature, but is usable for sex without any problems (qualifying comment....post surgery, it is usable when I inject).


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


Bob D
Regular Member


Date Joined Mar 2008
Total Posts : 187
   Posted 6/28/2008 1:50 AM (GMT -6)   
I got peyronie's about 8 years ago. Way before my prostate cancer showed up. It was weird, but not painful. I had an indentation in my penis. I did not go to the doctor and it went away about 2 months later. If it had not gone away, I would have seen my doctor about it.
Age 59, psa 4.7 in Jan. 08. Biopsy: one positive sample out of 13. 1% of one sample cancer. Prostate removed on 3/5/08. Nerves spared. Cath out 12 days later. Continence good. No pads needed since 6/10/08. First PSA: Less than 0.1 on 6/17/08. First erection five days post op and have been improving well since then. Full erection now possible but not as easy to maintain as pre op. As of 6/18/08 with Lavitra a full erection easily maintained is now possible. I am pleased with the progress so far. Married to same wonderful woman for 39 years.
She is still beautiful and sexy as ever. A great help in my recovery !!


kcragman
Regular Member


Date Joined May 2008
Total Posts : 230
   Posted 6/30/2008 11:47 AM (GMT -6)   
I have peyronie's. It started in Jan 2008, and I was diagnosed with PCa in March 2008. It was very painful going from limp to erect and back again at first. It seemed to be settling out (painwise) by the time I had the surgery. If I stood up and looked down at it during an erection, it was staring straight back at me. The curve was significan to say the least.

Most doctors will tell you that you have to let it run its course for 12 -15 months before it stablizes enough for them to do anything about it. My wife is a physical therapist (PT) with connections in the UK where PTs do a lot more with dysfunctional sexual equipment. They say to jump on it asap with ultrasound, so my wife was giving me ultrasound treatments (with the doctor's approval) for several weeks prior to the surgery. - in an attempt to break up the plaque. I have not tried Vitamin E, because I was told that restricts clotting and was not a good thing before surgery.

Since surgery, (8 weeks now) my penis is surprisingly small, I get almost zero reaction to any stimulation, it has swollen a couple of times but nothing close to an erection, and of course everything is made more difficult by the fact that I am still leaking like a sieve.

At this point in time it is hard to believe that in December 2007 I was normal, (mostly) healthy, functioning guy. Now most days my crotch feels like a friggin train wreck. I can't think about it too much.

Good luck to all out there,
kcragman
Age: 52
March 2006: PSA 2.5
Dec 2007:   PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th did not look good.
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.
Post op: Gleason 9 (4+5). 15% of prostate involved. Negative margins. Lymph nodes and associated glands all appear to be cancer free.

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