Penile implants

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leucadiabeach
New Member


Date Joined Jul 2008
Total Posts : 8
   Posted 8/10/2008 4:09 PM (GMT -6)   
I am coming up on my one year anniversary of my RP. Sadly, erections are not happening and trimix and bimix are not giving a suitable erection.

I am seriously seeking real information on implants from guys who have them. I thought surely this board would have guys with some experience, but I don't find it. Its a situation where making a decision requires real practical information.

Examples:
How good is the implant erection?
Do you still feel the same sensations?
Is it obvious that there is something artificial in there to you and your partner?
Can you ride a bicycle with one of these implants.
Do you feel it when its not inflated?
What do you look like in the locker room when its not inflated?

The list goes on, but I wish there was a FAQ written by a real consumer
PSA jumped from baseline of 3 to 7.6 on 1/06 at age 51
Biopsy 4/06, negative
PSA still elevated for a year
Biopsy 5/07, one core positive at 1%, Gleason 3+3
open RP on 8/30/07 at Johns Hopkins at age 52
Tumor volume "miniscule", 3+3, large prostate
No pads within 2 weeks of catheter removal, urine control not a problem
Use vacuum device to stretch out
No erections without Trimix, erections painful
5 mg Cialis daily (only started this a month ago)
Noticed raisin size lump in penis a month ago, urologist says its Peronie's disease
Very discouraged


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 8/10/2008 4:16 PM (GMT -6)   
Email me and I will send some information.
 
I am looking ahead to next May when I might take the implant plunge (that will be my 18 month post-surgery mark).
 
I have exchanged information with two implant patients and can point you to a good blog that is very informative.
 
In addition, there ARE some implant men here who I am sure will post some good first hand info for you soon.
 
DanMan
Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason score 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology stated that cancer was confined to the prostate
Unrelated surgery January 2008 delayed incontinence recovery, which is now showing good signs of improvement (fraction of a pad a day as of late April 2008)
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, next test August 2008


Dutch
Regular Member


Date Joined Feb 2007
Total Posts : 400
   Posted 8/10/2008 6:03 PM (GMT -6)   

You can go to the second post from top (Resources) and scroll down to the ED section for some posts about the IPP.  Also can type in penile implants or IPP in the search site above and get some of the posts on this site.  Also, Gene214 has a thread just a few lines down.

Also might check out this info:

http://boards.webmd.com/webx?THDX@@.89a3e7bd!thdchild=.89a3e7bd

Best of luck.   Dutch

 

 



Diagnosed Feb 2001  (Age 65)  Currently 72
PSA 4.8      Gleason 3+3=6      Stage   T2b
Completed Proton Therapy @ Loma Linda - 2001 - No side effects.  My journey is at: http://www.healingwell.com/community/default.aspx?f=35&m=727565
7yr PSA - 0.2
Our responsibility now is to educate men about Pca, PSA and the importance of early detection. 
 
 
 

Post Edited (Dutch) : 8/10/2008 5:08:44 PM (GMT-6)


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 8/10/2008 10:46 PM (GMT -6)   

You can go to my post regarding my recent implants of AUS and IPP.

You can email me with any question and I'll answser.  My contact info is to the left.

How good is the implant erection? 

I will be activated in one week.  I perhaps could answer yor question after that time.  From what I read of others who have had the implant, the general consensus is that the implant erection is good.


Do you still feel the same sensations?

Yes.


Is it obvious that there is something artificial in there to you and your partner?

It's obvious to me because I know it as a fact.  But I am told others do not notice unless informed.  There is some extra "hardware" in the scrotum, but it is not readily noticable.


Can you ride a bicycle with one of these implants.

Yes; after the doctor releases you to do so.


Do you feel it when its not inflated?

I have not yet been inflated.  Will know in a week.


What do you look like in the locker room when its not inflated? 

I have not been to the locker room and only my surgeon, his nurse, the uro nurse at the hospital, the class of medical student (Next day after surgery...boy, was that an experience), and a PA has seen it.  But I can tell you in that in the mirror I look good.  I mean, in my opinion, I've never looked better.  I think my wife agrees.

Gene214
PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP activation appointment: 08-18-08


leucadiabeach
New Member


Date Joined Jul 2008
Total Posts : 8
   Posted 8/10/2008 11:42 PM (GMT -6)   
I appreciate you guys providing some info. Its very personal stuff, but you can't really decide about it without asking tough questions!
Dave
PSA jumped from baseline of 3 to 7.6 on 1/06 at age 51
Biopsy 4/06, negative
PSA still elevated for a year
Biopsy 5/07, one core positive at 1%, Gleason 3+3
open RP on 8/30/07 at Johns Hopkins at age 52
Tumor volume "miniscule", 3+3, large prostate
No pads within 2 weeks of catheter removal, urine control not a problem
Use vacuum device to stretch out
No erections without Trimix, erections painful
5 mg Cialis daily (only started this a month ago)
Noticed raisin size lump in penis a month ago, urologist says its Peronie's disease
Very discouraged


aus
Regular Member


Date Joined Sep 2006
Total Posts : 211
   Posted 8/12/2008 5:54 PM (GMT -6)   
I do not have any detailed information, but know two men who had implants a few years ago: Both said they have been happy with the results and did not experience any major problems.

luke111
New Member


Date Joined Sep 2008
Total Posts : 15
   Posted 9/7/2008 7:38 PM (GMT -6)   
Hi Guys,I'm a new kid on the block. I have been reading your comments about the penile implant.
 I'm 2 years post RP,have tried all the things and now have opted for an implant. Its scheduled for the 19 th. Will let you know how it goes.

Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/7/2008 9:49 PM (GMT -6)   

Luke111,

Please do keep us informed.  I received my penile implant on July 16 and was activated on Aug. 18.   I am now three weeks post activation and still learning how to use it.  There are a couple of sites with implantees who discuss their experiences, etc.  If you email me, I will give you the websites, if you wish.

Gene214


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
 


luke111
New Member


Date Joined Sep 2008
Total Posts : 15
   Posted 9/25/2008 8:48 AM (GMT -6)   
Well I had the implant on the 19th,lots of pain and swelling.Pain pills help some,going to have the staples removed today. Will keep you updated

Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/25/2008 11:48 AM (GMT -6)   
Luke
 
The surgery is tough but healing and ease of pain come.  Hang in there.  Staples?  I suppoe they opened your abdomen?  Mine was completely through my scrotum, but either way works. 
 
One frustration I had was getting my surgeon's attention when I felt things might not be healing properly.  They did heal with minor healing complications.  My doc kept telling me that but I still worried needlessly.  If you need to chat with someone who's been there and done that, email me or come back and post.  My email address is available.  But don't hessitate to call the doc if you think there may be problems. 
 
I think that in time that you will be glad you did this.  I am glad for both of my devices.
 
Gene214
PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
 


Art662
Regular Member


Date Joined Sep 2008
Total Posts : 54
   Posted 9/25/2008 1:03 PM (GMT -6)   
Hey Luke and Gene -

Wait, I'm not the doom and gloom guy here today.
Congratulations on the implant.

As Gene well knows, it is more than a tingle when you get one of these babies put in.
Yep staples - had those a couple of times, and sutures the rest. The staples work great.

My advice is to be patient, and go 'bottomless 'as much as possible at the beginning.
Cool and dry was my motto.

Depending on your body's reactions, it might take several months for the hematomas to be reabsorbed into the body. Seepage and wound tenderness are pretty common.
Trust me, your body will revert back to it's natural look.
I look normal, even after my 'adventures in surgery'.

Gene is a pretty open and helpful guy and will have real-time answers to your questions.

I'm the old timer, having had 7 of these so far, so if complications arise, please feel free to contact me as well.

It is a great invention and 1st time implants have very good results.

Here's hoping to a speedy recovery.
1979: Organic impotence at age 25 from drug reaction to coumadin.
1979 Half shunt & vena cava clip emergency surgery - 4 weeks in Ohio State Medical Center
1981 IPP implanted - 3 1/2 weeks Baylor U. Houston by F. Brantley Scott
1981 IPP replaced - 10 days Baylor U. Houston by F. Brantley Scott
1985 IPP replaced IPP due to implant shift - 1 week Mayo Clinic by William Furlow
1985 IPP replaced, penile degloving to correct scarring, shortening and cylinder contracture. Suspensatory Ligament procedure - 2 1/2 weeks Mayo Clinic by William Furlow
1989 IPP replaced, repair of Tunica albuginea around corpora cavernosa . Degloving to relive penile shortening - 10 days Baylor U. Houston by F. Brantley Scott.
2000 IPP removed due to fluid loss and possible infection - 6 days Cleveland Clinic by Dr. Karl Montague
2000 IPP replaced - 4 days Cleveland Clinic by Dr. Karl Montague.
2002 IPP replaced, penile degloving to correct penile shortening due to IPP removal for 2 months. Repair of Tunica albuginea around corpora cavernosa - 3 days U of Washington, Seattle Dr. Richard Berger.


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/25/2008 8:35 PM (GMT -6)   

Luke,

Going bottomless as much as possible is very good advice.  I did that and helped with the incision healing.

Art,

I have a couple of questions about your signature.  What is "penile degloving"?  What is albuginea? 

Gene214


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
 


Art662
Regular Member


Date Joined Sep 2008
Total Posts : 54
   Posted 9/26/2008 7:42 AM (GMT -6)   
Hey Gene -

good to see you here.

Oh, degloving - well, this is going to sound a lot worse than it is - well - it is pretty bad.
Degloving is the removal of the skin of the penile shaft. A circular cut is made around the head of the penis and the tissues are pulled back. Degloving is done to allow access to the deep tissues for scar removal and to the Tunica albuginea, which is the web of tissue that covers the corpora cavernosa. The implant cylinders are inserted into this area.
Those who have had a degloving know of the 'crown of thorns', which is the stitching around the head of the penis.
It's a tingler, to say the least. But you survive.
A few penile implant patients will develop an aneurysm in the Tunica albuginea - a weakening of the penile shaft wall that requires strengthening so the implant cylinders will inflate properly.

Gene, very few people have near the problems that I have had with the IPP.
Advanced surgical techniques and improved equipment have made the modern implant much more reliable.

I hope my posts don't disillusion anyone. I am a great supporter of these things.
I have had my problems with them, but am thankful I don't have to face some of the challenges the rest of you face each day.
I hope that if anyone does have problems with their implant I can at least give my perspective and history as to what worked, and what didn't work - at least in my situation.
1979: Organic impotence at age 25 from drug reaction to coumadin.
1979 Half shunt & vena cava clip emergency surgery - 4 weeks in Ohio State Medical Center
1981 IPP implanted - 3 1/2 weeks Baylor U. Houston by F. Brantley Scott
1981 IPP replaced - 10 days Baylor U. Houston by F. Brantley Scott
1985 IPP replaced IPP due to implant shift - 1 week Mayo Clinic by William Furlow
1985 IPP replaced, penile degloving to correct scarring, shortening and cylinder contracture. Suspensatory Ligament procedure - 2 1/2 weeks Mayo Clinic by William Furlow
1989 IPP replaced, repair of Tunica albuginea around corpora cavernosa . Degloving to relive penile shortening - 10 days Baylor U. Houston by F. Brantley Scott.
2000 IPP removed due to fluid loss and possible infection - 6 days Cleveland Clinic by Dr. Karl Montague
2000 IPP replaced - 4 days Cleveland Clinic by Dr. Karl Montague.
2002 IPP replaced, penile degloving to correct penile shortening due to IPP removal for 2 months. Repair of Tunica albuginea around corpora cavernosa - 3 days U of Washington, Seattle Dr. Richard Berger.


luke111
New Member


Date Joined Sep 2008
Total Posts : 15
   Posted 9/26/2008 9:47 AM (GMT -6)   
Art, Your a better man than I Gunga Din

Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/26/2008 11:44 AM (GMT -6)   

Luke... How are you?  By now at one week the pain and bruising is probably a little less... right?

Art,

Well, I am almost sorry I asked.  It is difficult to even imagine such things.  I am sorry you had all that difficulty and I am glad my implant came along in 2008 instead of the 80's. 

I am a "sucker" for questions, I guess.  Here goes: What I am wondering now is "How much is too much use of the penile implant?"  In other words, since I have this new bionic penis, which I really like to use, should I use it sparingly so as not to cause too much wear or should I put it to use, as I am now doing, when the opportunity affords itself, which is two or three times a week?  What do you think?  Is this something an implantee like myself should be concerned about

I hope this is not too much for this forum.  Someone let me know if I am going too far.  I think the more we prostate cancer survivors know about these things, the better decisons can be made.  But I really do not want to offend anyone.

Gene214


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
 


Art662
Regular Member


Date Joined Sep 2008
Total Posts : 54
   Posted 9/26/2008 12:37 PM (GMT -6)   
Hey Luke, Gene and Tony - and the rest of the gang.

I think you all do a great service to those who may not prefer to participate in these forums.
I know many read these q&a's and it is important.
You can feel pretty helpless without some input from real people in real situations.
I admire all of you who face the battle in this forum.
I have nothing to complain about. The most that could happen in my situation is that my 'unit' falls off.


So on to the question.

From my experience - 'fire away'...
The implants are very durable, and it is important to inflate the implant on a regular basis. This helps keep the cylinder pocket stretched and more pliable.
You want to avoid scarring contracture at all costs. This will shrink you faster than an ice water bath.
Most of my procedures were for this contraction, and allowing a very famous urologist to remove my implant for 2 months. I lost over 2" in that escapade.
The next surgeon brought back an inch.
So, ask your doctor about how much and how long to keep inflated.
1979: Organic impotence at age 25 from drug reaction to coumadin.
1979 Half shunt & vena cava clip emergency surgery - 4 weeks in Ohio State Medical Center
1981 IPP implanted - 3 1/2 weeks Baylor U. Houston by F. Brantley Scott
1981 IPP replaced - 10 days Baylor U. Houston by F. Brantley Scott
1985 IPP replaced IPP due to implant shift - 1 week Mayo Clinic by William Furlow
1985 IPP replaced, penile degloving to correct scarring, shortening and cylinder contracture. Suspensatory Ligament procedure - 2 1/2 weeks Mayo Clinic by William Furlow
1989 IPP replaced, repair of Tunica albuginea around corpora cavernosa . Degloving to relive penile shortening - 10 days Baylor U. Houston by F. Brantley Scott.
2000 IPP removed due to fluid loss and possible infection - 6 days Cleveland Clinic by Dr. Karl Montague
2000 IPP replaced - 4 days Cleveland Clinic by Dr. Karl Montague.
2002 IPP replaced, penile degloving to correct penile shortening due to IPP removal for 2 months. Repair of Tunica albuginea around corpora cavernosa - 3 days U of Washington, Seattle Dr. Richard Berger.


luke111
New Member


Date Joined Sep 2008
Total Posts : 15
   Posted 9/26/2008 4:18 PM (GMT -6)   
For all
The Dr. kept my implant inflated and only after I had a problem urinating did he ease up. Not too bad now.
Got the bill from the hospital today,almost had the big one $44,400 and thats not with the Dr bill. How about the rest of you guys ?

Art662
Regular Member


Date Joined Sep 2008
Total Posts : 54
   Posted 9/26/2008 4:50 PM (GMT -6)   
Luke -

I'm with you on this one. The bills for the implant are amazingly expensive.
The implant hardware runs over 20k. And now the bad news to many of you.
Insurance companies have revised their policies to exclude any erectile dysfunction in any form.
In 2005 the Indiana legislature allowed this new exclusion to take effect. This was due to the new oral meds that were originally covered under many insurance policies.
I have been had several conversations with our state insurance commission on this one.
The bottom line. There is no individual insurance in the state of Indiana that covers erectile dysfunction in any form.

My out of pocket expenses with my previous implants averaged 6,000 to 10,000. Due to the physicians I selected and where they practiced.

When my next implant is due. It will be all out of pocket.
One little plus, the AMS implant is warranted at the price it was at time of implantation. So, in 2002, that was 15,500. The rest will be on me. So I will be looking at least 40,000. Happy time ahead.
1979: Organic impotence at age 25 from drug reaction to coumadin.
1979 Half shunt & vena cava clip emergency surgery - 4 weeks in Ohio State Medical Center
1981 IPP implanted - 3 1/2 weeks Baylor U. Houston by F. Brantley Scott
1981 IPP replaced - 10 days Baylor U. Houston by F. Brantley Scott
1985 IPP replaced IPP due to implant shift - 1 week Mayo Clinic by William Furlow
1985 IPP replaced, penile degloving to correct scarring, shortening and cylinder contracture. Suspensatory Ligament procedure - 2 1/2 weeks Mayo Clinic by William Furlow
1989 IPP replaced, repair of Tunica albuginea around corpora cavernosa . Degloving to relive penile shortening - 10 days Baylor U. Houston by F. Brantley Scott.
2000 IPP removed due to fluid loss and possible infection - 6 days Cleveland Clinic by Dr. Karl Montague
2000 IPP replaced - 4 days Cleveland Clinic by Dr. Karl Montague.
2002 IPP replaced, penile degloving to correct penile shortening due to IPP removal for 2 months. Repair of Tunica albuginea around corpora cavernosa - 3 days U of Washington, Seattle Dr. Richard Berger.


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/26/2008 5:05 PM (GMT -6)   

Luke,

In one of my posts after implant, I named myself the $70,000 bionic man.  That's about what my total bill was, but of course it included not one but two implants:  AUS and IPP.  I am blessed with medicare parts A & B and a hospital supplement policy. My surgeon was glad to receive Medicare and my suplement.  Younger guys can have some problems with affording it.

I accused my doctor of leaving me partially inflated but he kept saying (via email) that he did not leave inflated.  It sure looked inflated.  The day after surgery, while they were trying to get me out of the hospital, I practically refused to leave because I thought the doctor had made a mistake and left me partially inflated.  Finally, I (with a red face) got the urology nurse on the floor to come check me out.  When I began blushing, she said, "Don't worry hon.  I've seen them in all color, shapes, and sizes."  That brought a laugh to all three of us (includning the wife).  She felt around and finally said it was not inflated, just gigantically swelled.  Also, I didn't realize that the prosthesis never recedes into the body, neither does it hang limp.  So, in other words, it all hangs out, making it look really a lot bigger than it was when flacid.   

The above story really happened.  I shared it so I could laugh again.  Hope the rest of you got a laugh, too.

Gene214



PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
 

Post Edited (Gene214) : 9/26/2008 4:08:58 PM (GMT-6)


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 9/26/2008 10:10 PM (GMT -6)   
  Dang Gene....I never thought of this one.....   I ought to get one just for looks cause I could use a little more "hang".  Just teasin.  I will keep what I have since it still works.  The AUS was bad enough.  Don't need to experience the IPP unless I have to.  Glad to hear things are working well.  See you soon in Dallas.  I will send a e-mail or call you soon
 
KW
    43 at Dx and Surgery
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/27/2008 3:57 PM (GMT -6)   

Right, KW.  These implants are only for those who really need them.  Laying all jokes aside, what we are born with is much, much better... if it works.

I am guessing your healing is going as expected.  I'm sure you're now counting the days until AUS activation.

See you in Dallas

Gene214


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
 


luke111
New Member


Date Joined Sep 2008
Total Posts : 15
   Posted 9/27/2008 4:36 PM (GMT -6)   
Gene
The uro did leave it inflated and when I had trouble urinating he deflated it some. When I went to have the staples removed he deflated it some more. Will return in 3 weeks for a follow up.
By the way my nurse said the same thing and proceeded to tell me a story about a patient who brought his wife to learn how to operate it and then had his girl friend in
the following week. This guy must have some big ones.

Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/27/2008 5:11 PM (GMT -6)   

Luke,

When we go to a doctor, we must listen to what he/she advises.  However, sometimes doctors/surgeons tell us as little as they can get by with.  I am sure it has something to do with their training.  But I am one who had rather hear all the details.  So your surgeon has a reason, I am sure, for leaving your penis partially inflated. 

However, one thing I have heard/read about the penile implant is that the reservoir should be full of solution during most of the healing time before activation and the penis should not be left inflated for long periods of time.  The reason is that the full reservoir will cause expansion in the area of tissue/muscle where it it placed and there will be produced a capsule around the reservoir in your abdomen.  This is important because if it (the reservoir) stays deflated too long a time, the flesh will harden around the deflated reservoir, making it impossible to contain all the fluid it was deigned to hold. When the implantee desires to return his prosthesis to the flacid state, after erection, there would not enough room in the reservoir for the fluid, therefore stays in the penis, not allowing for full deflation of the penis. 

I hope I am clear in all of this.  My point is to talk with your surgeon and make sure he is comfortable with the amount of saline left in your penis and left in the reservoir during healing.  Again, I am sure he knows what he is doing, but sometimes physicians make mistakes... sometimes.

Please understand I am not questioning your surgeon.  I just want you to know what I have heard and read about inflation/deflation of the prosthesis and the reservoir.  It it were me, I probably would want to cover that subject with my surgeon sooner rather than later.

Hope I don't cause you unneed anxiety with this.  Not my intention. 

Gene214   


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
 


Art662
Regular Member


Date Joined Sep 2008
Total Posts : 54
   Posted 9/28/2008 3:49 PM (GMT -6)   
Hi Luke -

In every one of my implants the cylinders were left partially inflated. A certain amount of volume is needed in the cylinders to keep the same thing from happening as to what Gene is referring to. Encapsulation, or the contracture of scar tissue will make the cylinders more difficult to inflate and make your unit shorter. Most will split the difference, keeping the reservoir pretty full and the cylinders expanded as well.
My discussions with the surgeon on that issue is that if, you have an encapsulation problem, it is better to be in the reservoir than the cylinders.

Hope that eases your mind. But like Gene says ask your doctor directly.
I always bring in a sheet of paper with my questions and concerns. I hand on copy to the doc, and we go through the list.
1979: Organic impotence at age 25 from drug reaction to coumadin.
1979 Half shunt & vena cava clip emergency surgery - 4 weeks in Ohio State Medical Center
1981 IPP implanted - 3 1/2 weeks Baylor U. Houston by F. Brantley Scott
1981 IPP replaced - 10 days Baylor U. Houston by F. Brantley Scott
1985 IPP replaced IPP due to implant shift - 1 week Mayo Clinic by William Furlow
1985 IPP replaced, penile degloving to correct scarring, shortening and cylinder contracture. Suspensatory Ligament procedure - 2 1/2 weeks Mayo Clinic by William Furlow
1989 IPP replaced, repair of Tunica albuginea around corpora cavernosa . Degloving to relive penile shortening - 10 days Baylor U. Houston by F. Brantley Scott.
2000 IPP removed due to fluid loss and possible infection - 6 days Cleveland Clinic by Dr. Karl Montague
2000 IPP replaced - 4 days Cleveland Clinic by Dr. Karl Montague.
2002 IPP replaced, penile degloving to correct penile shortening due to IPP removal for 2 months. Repair of Tunica albuginea around corpora cavernosa - 3 days U of Washington, Seattle Dr. Richard Berger.


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/28/2008 5:14 PM (GMT -6)   
Art,
 
Thanks for the clarification.  Of couse, now I wonder if my surgeon made a bad call about not leaving me partially inflated.  Hmmmmm. 
 
Gene
PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
 

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