Penile implants

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James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4438
   Posted 12/15/2008 1:51 PM (GMT -6)   
There's a Blogosphere link I have that was discussed recently as to its appropriateness to post, contains graphic before and after implant photos and stories.  Maybe this is what you are looking for?  If so, I go the link, just ask.

James C.
Co-Moderator- Prostate Cancer Forum
Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
Present- 1 year: ED- Viagra, pump continues, no response- Trimix ..35ml x 2 weekly continues
Post Surgery PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 1 Year-.02.


q52indy
New Member


Date Joined Nov 2008
Total Posts : 5
   Posted 12/15/2008 7:59 PM (GMT -6)   
There's not much message traffic this month but the home page will give you access to messages as far back as 2005.  I hope this helps but I know of no person with a 10 year history with one implant.  Good luck.
Age:  58
2002:  radical retropubic prostatecomy
2006:  oral ED drugs began to fail
10/23/07:  AMS LGX implant (scrotal) done in Indianapolis
12/13/07:  implant removed due to pseudomonas aeruginosa infection
1/6/09:  2nd implant scheduled at the Cleveland Clinic


Art662
Regular Member


Date Joined Sep 2008
Total Posts : 54
   Posted 12/15/2008 8:51 PM (GMT -6)   
q52indy said...
Guys...the yahoo link:  http://groups.yahoo.com/group/penileimplant/
There's not much message traffic this month but the home page will give you access to messages as far back as 2005.  I hope this helps but I know of no person with a 10 year history with one implant.  Good luck.

Thanks Indy -
The one that I joined was penileimplants - We appreciate the link.
Good luck with your implant in January.
Art

1979: Organic impotence at age 25 from drug reaction to coumadin.
1979 Half shunt & vena cava clip emergency surgery - 4 weeks in Ohio State Medical Center
1981 IPP implanted - 3 1/2 weeks Baylor U. Houston by F. Brantley Scott
1981 IPP replaced - 10 days Baylor U. Houston by F. Brantley Scott
1985 IPP replaced IPP due to implant shift - 1 week Mayo Clinic by William Furlow
1985 IPP replaced, penile degloving to correct scarring, shortening and cylinder contracture. Suspensatory Ligament procedure - 2 1/2 weeks Mayo Clinic by William Furlow
1989 IPP replaced, repair of Tunica albuginea around corpora cavernosa . Degloving to relive penile shortening - 10 days Baylor U. Houston by F. Brantley Scott.
2000 IPP removed due to fluid loss and possible infection - 6 days Cleveland Clinic by Dr. Karl Montague
2000 IPP replaced - 4 days Cleveland Clinic by Dr. Karl Montague.
2002 IPP replaced, penile degloving to correct penile shortening due to IPP removal for 2 months. Repair of Tunica albuginea around corpora cavernosa - 3 days U of Washington, Seattle Dr. Richard Berger.


q52indy
New Member


Date Joined Nov 2008
Total Posts : 5
   Posted 1/1/2009 5:49 PM (GMT -6)   
leucadiabeach said...
well, all this information is very helpful. Is there anybody out there who got an implant and it worked fine for the advertised 10 years and was happy about it? I have not heard it yet. All this talk of shortening is very discouraging, especially after the RP shortening that nobody tells you about. If it gets any shorter, whats the use.

I think there needs to be a fundamental advance in this technology before I sign up.
 
 
 
Guys,
I found a member of the yahoo penileimplant group who has had an implant for 7 years.  Log on and read the posts from swampy0142...quite enlightening.
Age:  58
2002:  radical retropubic prostatecomy
2006:  oral ED drugs began to fail
10/23/07:  AMS LGX implant (scrotal) done in Indianapolis
12/13/07:  implant removed due to pseudomonas aeruginosa infection
1/6/09:  2nd implant scheduled at the Cleveland Clinic


luke111
New Member


Date Joined Sep 2008
Total Posts : 15
   Posted 2/12/2009 7:15 AM (GMT -6)   

Hi guys I'm now 5 months post implant,I have gained back some of my loss,I have the AMS700 LGX which expands lengthwise.

I have a question for those of you that have had an implant for awhile. Do these things set off the alarm at airport screening?


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 2/12/2009 8:33 AM (GMT -6)   

I think I have read somewhere that implants do not set off the alarm at airports.  However, if this new technology x-ray is used which shows through clothing, someone will get an eye full, since the implanted penis appears larger when it is flacid than the natural, un-implanted one.

Gene214


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices are working very good and surgeon was very pleased that I am very pleased.
 


Art662
Regular Member


Date Joined Sep 2008
Total Posts : 54
   Posted 2/12/2009 8:58 PM (GMT -6)   
luke111 said...

Hi guys I'm now 5 months post implant,I have gained back some of my loss,I have the AMS700 LGX which expands lengthwise.

I have a question for those of you that have had an implant for awhile. Do these things set off the alarm at airport screening?

Hey Luke -
I travel a lot  and you are safe with the airport alarms - now the x-ray thing might put you in a room for a strip search. I hate it when the bomb dog sniffs down there.
Art
1979: Organic impotence at age 25 from drug reaction to coumadin.
1979 Half shunt & vena cava clip emergency surgery - 4 weeks in Ohio State Medical Center
1981 IPP implanted - 3 1/2 weeks Baylor U. Houston by F. Brantley Scott
1981 IPP replaced - 10 days Baylor U. Houston by F. Brantley Scott
1985 IPP replaced IPP due to implant shift - 1 week Mayo Clinic by William Furlow
1985 IPP replaced, penile degloving to correct scarring, shortening and cylinder contracture. Suspensatory Ligament procedure - 2 1/2 weeks Mayo Clinic by William Furlow
1989 IPP replaced, repair of Tunica albuginea around corpora cavernosa . Degloving to relive penile shortening - 10 days Baylor U. Houston by F. Brantley Scott.
2000 IPP removed due to fluid loss and possible infection - 6 days Cleveland Clinic by Dr. Karl Montague
2000 IPP replaced - 4 days Cleveland Clinic by Dr. Karl Montague.
2002 IPP replaced, penile degloving to correct penile shortening due to IPP removal for 2 months. Repair of Tunica albuginea around corpora cavernosa - 3 days U of Washington, Seattle Dr. Richard Berger.


James186282
New Member


Date Joined Feb 2009
Total Posts : 6
   Posted 2/23/2009 9:52 AM (GMT -6)   
Hi Luke I googled your Prothesis and found

http://www.amslgx.com/index_data.htm

Is this right? Does it really improve girth and length by 10 to 15%? That seems like a hell of a plus to me vrs the ones that make you loose a half an inch?

Not that size (cough) matters...

Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 2/23/2009 3:25 PM (GMT -6)   

James188262,

Generally speaking, those whom I am in contact with who have the AMS 700 LGX do, at least, retain most of the pre-surgery length.  None of them (manufacturers) will tell you it will increase over your original length, although the website you referrd to does give you that indication.  It does not work that way.  I do know (personally) of one guy who has this model, and he still experienced shortening, and of course he was dissapointed.  So, as "they" say, it really depends upon an individual guy's anatomy... I think.  It also depends upon the experience of the surgeon.  My doc wanted to use the 700 CX. He said it is more rigid than the lgx.   I went with his advice and have the CX.  I did experience some shortening, but I'm not sure if it was actually post prostate removal or post penile implant installation.  I did increase in girth size, at least, and wife says that's good.

Gene214


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices are working very good and surgeon was very pleased that I am very pleased.
 


luke111
New Member


Date Joined Sep 2008
Total Posts : 15
   Posted 2/28/2009 7:07 AM (GMT -6)   

Well I made it through airport security without setting off the bells. I was a little nervous as you can imagine.

 As far as the lengthening all I can say is that I've gained back about 1/2 inch,not that I took percise measurements prior to implant.As to the rigity well if it got any harder I would worry its like I'm 30 again

 


Art662
Regular Member


Date Joined Sep 2008
Total Posts : 54
   Posted 2/28/2009 10:48 AM (GMT -6)   

One other issue on the LGX - there are some long term implant patients (like me) that experienced tunica albugina failure. This is due to the connective sheath tissues weakening over time and causing failure. So to the guys who are trying to get a larger size by stretching the tissues past normal - just be mindful of this. I know others who have experienced this failure as well.

Art

Gene214 said...

James188262,

Generally speaking, those whom I am in contact with who have the AMS 700 LGX do, at least, retain most of the pre-surgery length.  None of them (manufacturers) will tell you it will increase over your original length, although the website you referrd to does give you that indication.  It does not work that way.  I do know (personally) of one guy who has this model, and he still experienced shortening, and of course he was dissapointed.  So, as "they" say, it really depends upon an individual guy's anatomy... I think.  It also depends upon the experience of the surgeon.  My doc wanted to use the 700 CX. He said it is more rigid than the lgx.   I went with his advice and have the CX.  I did experience some shortening, but I'm not sure if it was actually post prostate removal or post penile implant installation.  I did increase in girth size, at least, and wife says that's good.

Gene214



1979: Organic impotence at age 25 from drug reaction to coumadin.
1979 Half shunt & vena cava clip emergency surgery - 4 weeks in Ohio State Medical Center
1981 IPP implanted - 3 1/2 weeks Baylor U. Houston by F. Brantley Scott
1981 IPP replaced - 10 days Baylor U. Houston by F. Brantley Scott
1985 IPP replaced IPP due to implant shift - 1 week Mayo Clinic by William Furlow
1985 IPP replaced, penile degloving to correct scarring, shortening and cylinder contracture. Suspensatory Ligament procedure - 2 1/2 weeks Mayo Clinic by William Furlow
1989 IPP replaced, repair of Tunica albuginea around corpora cavernosa . Degloving to relive penile shortening - 10 days Baylor U. Houston by F. Brantley Scott.
2000 IPP removed due to fluid loss and possible infection - 6 days Cleveland Clinic by Dr. Karl Montague
2000 IPP replaced - 4 days Cleveland Clinic by Dr. Karl Montague.
2002 IPP replaced, penile degloving to correct penile shortening due to IPP removal for 2 months. Repair of Tunica albuginea around corpora cavernosa - 3 days U of Washington, Seattle Dr. Richard Berger.


DanmanBob
Regular Member


Date Joined Feb 2008
Total Posts : 467
   Posted 2/28/2009 4:48 PM (GMT -6)   

I am set to finish my salvage radiation in late March.  22 treatments so far with 16 remaining.

Unless complications arise, I expect to have an implant done in late May or early June.

I have met in person with 3 men who are implant guys, including my friend gene214.  All three are pleased.

Hope everyone here is doing well.

Dan Man


Danman Bob, Born 1951
Nerve-sparing, open prostate surgery November 13, 2007
Gleason 9, PSA 14; Biopsy result - 9 of 12 sticks showed cancer
Post-op pathology results - cancer confined to the prostate
100 MG Viagra 3 times a week beginning December 2007
Osbon Erec-Aid Esteem manual pump for therapy beginning mid-February 2008
30 MG papaverine/1 MG phentolamine bimix injections beginning late April 2008
Five week post-op PSA 0.2, five month post-op PSA 0.1, nine month PSA 0.1, 13 month PSA 0.4 (recurrence was likely due to very high Gleason, even though margins were deemed clear after surgery)
Radiation using Calypso Localization System to begin in January 2009


Texman
New Member


Date Joined Oct 2006
Total Posts : 7
   Posted 3/1/2009 7:52 PM (GMT -6)   
Take it slow with the implants. There is no turning back.
Keep trying different amounts of Trimix (did not work for me) or
Bimix (Phento .5mg and Papa 30mg) 6-8 or more units in a 1/2 cc syringe. This works great for me.

fredgerman
New Member


Date Joined Sep 2009
Total Posts : 1
   Posted 9/13/2009 6:34 PM (GMT -6)   
I have a question for you guys, as long i get an implant what will happen if i change my medical plan? They will support the future implants?

I'm only 37 years old ...I'm think that i will attached to the same plan forever...

Regards confused

Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 845
   Posted 9/13/2009 11:58 PM (GMT -6)   
Hi Fredgerman, and welcome to the forum. You're right in thinking about the future, because at your age with present technology, you may need several replacements.

I can't answer the medical plan question, but I would again advocate caution. Be very sure that none of the reasonable alternatives will work for you: pills, injections or pump. Some experimentation will be necessary -- for injections and pump I needed a *lot* before getting it right.

If you can post some more details of what you have tried and perhaps a signature, we can probably help out with some specifics to suit you.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
ED:
After a learning curve, Bimix injections (0.2ml) are working well. VED also works but we find it inferior to Bimix.
14 months: Occasional nocturnal erections.


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 10/4/2009 6:22 PM (GMT -6)   
Colin, please keep us updated on your condition.
 
Gene214
PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Post-Surgery psa  -- .011
Removal of stricture 6-07, incontinence continues
01-15-08 psa -- .05
AUS, IPP implanted 07-16-08
AUS, IPP activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices work well.
10-20-08 psa -- .05
05-15-09 psa -- .07
 


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 10/5/2009 8:24 AM (GMT -6)   

As you can tell from my signature I am approaching the three year mark since prostate surgery.  The ED has been the issue that I have been dealing with over these years.  I have been using injections for two and a half years but during that time my wife and I have not been pleased with the quality of our sex lives.  While the injections work the lack of spontaneity has decreased the frequency of our sex by a lot compared to prior to surgery.  In my case my erections with the injections last three to four hours and if I decrease dosage to counter this then the firmness of the erection suffers and so does the quality of the sex.  I have been studying penile implants for a long time and have now scheduled surgery for December.  I am having the AMS 700 LGX implant installed.  I elected to go back to where I had my prostate surgery that being Vanderbilt Medical Center in Nashville.  Dr. Milam will be the surgeon and he has done many of these implants.  My goal is to return to being able to perform when the mood hits us and not any increase in penile size although Dr. Milam told me there would be increase in girth.  This decision took a while to make as there is a risk I could lose the ability to have sex but the way our sex life is going now the benefit far outweighs the risk.

Tamu   


Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06, 6/25/07, 1/8/08
No more pads as of 1/13/07
Began injections in April '07
 


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 10/5/2009 10:28 AM (GMT -6)   
Tamu,
 
Having only my personal experience and the experiences of others who have shared their experiences and who have had the penile implant, I think you will be pleased with your decision.  I wish you well... and as you can see in my profile, I've had mine for 14 months now and I am still very pleased.   At least you do not have to deal with the incontinence thingy.  I had to also have the AUS implanted at the same time.
 
There is another member on this forum who is having his implant today.  I do not think he posts any longer, but we have visited several times and have remained in constant contact.   
 
Gene214
PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Post-Surgery psa  -- .011
Removal of stricture 6-07, incontinence continues
01-15-08 psa -- .05
AUS, IPP implanted 07-16-08
AUS, IPP activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices work well.
10-20-08 psa -- .05
05-15-09 psa -- .07
 


Art662
Regular Member


Date Joined Sep 2008
Total Posts : 54
   Posted 10/5/2009 3:59 PM (GMT -6)   
Hi Tamu -
Being one of the 'old guys' with the penile implant - I wish you all the best. I think your choice of Dr. Milam is a good one. As you can see from my signature, I have been down the implant road a few times. and take it from me, they can fix about anything. Is the implant perfect? Nope - but it sure beats the alternative.
All the best to you.
Art
1979: Organic impotence at age 25 from drug reaction to coumadin.
1979 Half shunt & vena cava clip emergency surgery - 4 weeks in Ohio State Medical Center
1981 IPP implanted - 3 1/2 weeks Baylor U. Houston by F. Brantley Scott
1981 IPP replaced - 10 days Baylor U. Houston by F. Brantley Scott
1985 IPP replaced IPP due to implant shift - 1 week Mayo Clinic by William Furlow
1985 IPP replaced, penile degloving to correct scarring, shortening and cylinder contracture. Suspensatory Ligament procedure - 2 1/2 weeks Mayo Clinic by William Furlow
1989 IPP replaced, repair of Tunica albuginea around corpora cavernosa . Degloving to relive penile shortening - 10 days Baylor U. Houston by F. Brantley Scott.
2000 IPP removed due to fluid loss and possible infection - 6 days Cleveland Clinic by Dr. Karl Montague
2000 IPP replaced - 4 days Cleveland Clinic by Dr. Karl Montague.
2002 IPP replaced, penile degloving to correct penile shortening due to IPP removal for 2 months. Repair of Tunica albuginea around corpora cavernosa - 3 days U of Washington, Seattle Dr. Richard Berger.


dhm089
New Member


Date Joined Jan 2014
Total Posts : 4
   Posted 1/17/2014 6:06 PM (GMT -6)   
I had s implant on10/28/13 and am still aware of the foreign objects in scrotum and penis though getting better daily. now about encapsulation. because of excessive swelling doc could not inflate me this went on for too long and the reservoir became covered with body tissues. I had to be put to sleep again as the doc did not want to hurt me. he did not have to cut me open but manipulated the reservoir with "great pressure" . this procedure was easy and I felt nothing and still don't. I can inflate and deflate my self. thus you can see why partial inflation is important. as for recovery time I as wrong to think 3 months would put me back to normal probably will be 6 months though I can have sex with all the normal feeling keep on pumping and deflating often don

PeterDisAbelard.
Forum Moderator


Date Joined Jul 2012
Total Posts : 3100
   Posted 1/17/2014 7:42 PM (GMT -6)   
DHM,

I've copied your comment here to the newer thread I started for you. It is here: www.healingwell.com/community/default.aspx?f=35&m=2960974
60
Slow PSA rise 2007-2012: 1.4=>8
4 bxs 2010-2012:
1)neg (some inflammation),
2)neg,
3)positive 1 of 14 GS6(3+3) 3-4%, 2nd opinion GS7(3+4)
4)neg.
Mild Pre-op ED
DaVinci RRP 6/14/12. left nerve spared
Path: pT3a pN0 R1 GS9(4+5) Pos margins on rt
Start 24 mo ADT3 7/26/12
Adjuvant IMRT 66.6 Gy 10/17/12 - 12/13/12
Leaky but better, Trimix, VED
Forum Moderator - Not a Medical Professional
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