Hurts when sitting- surgery 4 wks ago- Normal? was No Subject

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Timmy77
Regular Member


Date Joined Jul 2009
Total Posts : 40
   Posted 7/12/2009 12:58 PM (GMT -6)   
Trouble sitting. I have had my cath out for 2 weeks had my surgery almost 4 weeks ago. It hurts when I sit the doctor said it was not normal? anybody else? How long does it go on? Pillows help some but not all together.
 
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Post Edited By Moderator (James C.) : 7/12/2009 1:51:05 PM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 23862
   Posted 7/12/2009 1:12 PM (GMT -6)   
Hello Tim, and welcome to HW Prostate Cancer group. Sorry you have a need to be here, but glad you found us, you will be among friends quickly.

Not trying to be your doctor, but not sure why he would say it was not normal to hurt sitting so soon after a major abdominal type surgery? It is very common to hurt while sitting for any length of time, or sitting on the toilet, or even getting up from a seated position.

How long it goes on depends on so many thing, as each body heals differently and at different rates. Taking regular OTC med like Advil should help with the pain and swelling associated with where you hurt.

You have been through a lot, my friend, your poor body has been through surgical hell and your innards have been re-arranged somewhat. It will take time.

I had open surgery, and a very good surgeon, he said in reality, it takes the body about a full year to completely heal from the effects of the surgery. I am 8 months out, and still have the occassional ache and pain. The worse was over for me about 2 months out.

Hang in there, and listen to your body, if it hurts, it's telling you to back off and give it a chance to heal.

Glad you are here, please keep us posted.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, July 13 - meet with radiation oncologist
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 7584
   Posted 7/12/2009 1:14 PM (GMT -6)   
hi Timmy77,
Welcome to HealingWell. Wow, I don't know Timmy, you might clear right up soon, or it can take longer, I remember being a little bit sore but only for a week. I was pretty much good when the catheter came out. But I did do quite well with the healing from the surgery. I know I did a lot of walking and I believe that helped me heal quicker. Can I ask what your pathology numbers were?

Peace, and welcome,

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


stxdave
Regular Member


Date Joined Nov 2008
Total Posts : 65
   Posted 7/12/2009 1:22 PM (GMT -6)   
It is quite normal for you to have pain when you sit for a while. Many of us have used "donuts" to sit on after any kind of surgery around the bladder neck. I don't know where your doc has spent his time but it was certainly not listening to his patients.

This pain usually goes away in a few weeks and walking plus kegel exercises will hasten it's exit. Just another one of those side effects we hear about.

Dave
Dx'd 1999, Age 60, PSA 43, Gleason (3+4=7), T3c
42-3d EBRT w/Lupron/Casodex for 24 months.
July 2001 - Intermittent ADT. Lupron only, MDAnderson biopsy revised Gleason (4+5=9).
March 2007 - Diminishing returns with Lupron, Prostate biopsy (5+4=9) in unradiated lobe.
August 2007 - RRP and bilateral orchiectomy. PSA <0.1
99% continent immediately
Sept 2008 - PSA 0.45, Nov 2008 - PSA 0.67,
Dec 2008 - Resume Casodex, Stricture in bladder neck requiring surgical removal. 99% incontinent immediately.


oldflyingfarmer
Regular Member


Date Joined Jun 2009
Total Posts : 32
   Posted 7/12/2009 3:56 PM (GMT -6)   
Hello, I to have rear end pain or at least discomfort. At work, I sit on a partially deflated donot. It really helps, but I still can't sit but a short while without needing to get up and move around. My RRP was on May 27th so it has been a little over 6 weeks for me. I do feel improvement so don't give up. I guess we are all effected and heal differently.
Age 55
Diabetic on insulin pump
PSA started rising in 2007
2 negative biopsiesthru 2008
2009 PSA 31, TURP found Gleason 9 cancer
Started holistic approach while waiting for surgery
RRP on May 27, 2009
Cath out 2 weeks after surgery
Very little drip, some pain
Waiting for post-op doc visit July 16, 09 with fingers crossed


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 7/12/2009 6:38 PM (GMT -6)   

Greetings, Timmy.  Pain in the rear is fairly common and not unusual to have to sit on a donut for awhile. 

Welcome to the forum - you are among friends.  David


Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1250
   Posted 7/12/2009 7:59 PM (GMT -6)   
Hi Timmy77:

One thing PCa has done for me is introduce me to areas of my anatomy I never new existed, or cared much about before. One such is a delightful spot called, I'm told on the authority of my nurse wife, the perineum. This has been provided by The Great Ga, best I can tell, as a filler for unused crotch space between the scrotum and the anus in men. Newer male models may well contain an adaptive Darwinian update, but for the moment this area can hurt like Billy Be Darned after prostate surgery when sitting on anything less soft than a rubber donut. At least, that's my experience.

But, The Great Ga has also provided an excellent solution, which I am taking advantage of as I type. This is a summer chair, with aluminum frame, that tilts back, raising a foot rest while you recline on a canvas sling held to the frame with threaded cord. This has two great advantages. First, you 'sit' really 90% lying on your back allowing the perineum to be free of any pressure and you free of any pain. Secondly, once you are tilted back it looks far more difficult than it really is for you to get up which means a, "Dear, would you please bring me ....?" is far more likely to result in a glass of water, dish of ice cream, or your book from where you left it than the traditional, "You lost a prostate, not your legs. Exercise is good for you."

And, at out local department store this afternoon my "Victory Garden" (I kid you not, that's what it's called) Zero Gravity Lounge Chair, at 70% off (thanks to the abysmal failure of Global Warming and one of the coldest summers on record --- where's Al Gore when you need him?) was $45 and that included the services of Jordan to carry it to the trunk of the car. It was light enough I could have managed easily, but there has to be some advantages to recovering from surgery, right?

So, Timmy77 I suggest you seek out one of these magical Zero Gravity Lounge Chairs. And don't you dare tell my wife I really could get out of it easily to refesh my rum and coke.
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good  


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 1778
   Posted 7/12/2009 8:06 PM (GMT -6)   
Timmy,
Pain is part of the bargain I guess, but mine is still there 2 months after surgery. Walking or laying down gives me the best relief. What I have noticed is that each person on here heals on their own time frame and I was in good shape with no other health problems, so go figure. The other thing that I have noticed about pain and me is that I have a difficult time talking about it. I just kind of shut down and distance myself and maybe as men we still have that notion of being the strong and silent type. When the Dr's office asked to what the pain level was on a scale from 1 to 10 I really didnt know how to answer that question. Think I said five, but shoot it felt like a 9er to me. But hang in there and welcome to HW.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when dx
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better
hope to start ed tx 7/17
Michael


DS Can
Regular Member


Date Joined May 2009
Total Posts : 193
   Posted 7/12/2009 10:02 PM (GMT -6)   

Hi timmy77,

my pain began at about 3 1/2 weeks, right when I went back to work - desk job. It was the worst from 4 weeks to six weeks and has gotten better steadily since then. It really doesn't bother me much any more,

Keep healing,

Dan

ps: any stats to post in a signature?


PSA 01/07 1.2, PSA 01/08 1.9, PSA 01/09 2.5
BIOPSY 02/24/09  PCa DX age 52
Right: 3+3=6, 3/6 cores 10% involved,PNI-Y
Left:  3+3=6, 1/7 cores <5% involved,PNI-N
LARP 04/09/09 nerve sparing. Final pathology:
GS 3+4=7, Margins uninvolved, 2 lymph nodes negative
Catheter out 04/17, 1st no-pad day 05/03
25 mg Viagra nightly for ED
Followup PSA 05/28/09 <0.1
 
 


jacketch
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 7/13/2009 5:50 AM (GMT -6)   
Like DS C, my recovery was a pain in the butt primarily from week 3 through week 6 and then it started to ease off.
62yo
V10.46 Dx Feb-09
RRP 5-5-09
No adverse SE
PSA 6-19-09 -0-
 
Thriving, not just surviving!
 


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 657
   Posted 7/13/2009 6:25 PM (GMT -6)   

I had incredible pain in my perineum before dx and surgery. This pain would completely take me off my feet while waiting for the 4 or 5 extra strength tylenol to kick in. I've had this same pain several times since surgery. Although it seems to be more in my rectal area than between scrotum and rectum, it is still a 5 alarm event. I'm glad to say it is subsiding and has an awful lot to do with what I'm sitting on for extended periods. With the donut pillow, I'm OK sitting for a couple hours working. Without it, it could be anywhere from 10-20 minutes before I would have to swallow a handfull of tylenol and seek relief on the toilet seat (no pressure on the perineum).

The worst for me was 3-6 weeks post-surgery. I am now at a high level of physical activity, which helps. It will get better.

 

Mike

 
Lower left groin hernia: mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3..... PSA June of 2008: 7.3
14 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology (see below). Prostate about 40 cm sq.
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
Barium enema X-ray (March 09 due to several days of blood in stool)
MRI with endorectal coil (April 09 as part of a study)
3D advanced TRUS (April 09 as part of a study)
CT (April 09 as part of a study)
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes. 30%-65%. One core perineural invasion. 2 cores "foamy" and suspicious. All +ve cores, 3+3 GS 6.
Open RP surgery: May 5/09 Surgeon spoke to my wife and was very positive. Said both nerve bundles spared and not damaged. Bilateral lymph node dissection performed. Discharged 48 hours after surgery. Staples out, catheter out and pathology sheduled for May 21.
Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
Physical State: Getting back to working out slowly. Urinary control pretty much from the time of catheter removal. Rectal pain, sometimes bad but, told is normal. Erectile function at best 25-30% of presurgery. Trying Levitra...first 10 mG dose gave me nasal congestion, 50% chubby and a 24 hour headache...may go away with more use or change of meds. Considering pump. Recovery from surgery going very well.
Mental State: Pre-surgery anxiety gone. Positive attitude. Some anxiety about seeing radiation oncologist and upcoming 3 month PSA. 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2593
   Posted 7/13/2009 7:57 PM (GMT -6)   
Mike,

I hope you are following carefully the new gudelines about Tylenol. That stuff will kill your liver. I have a friend who is waiting for a liver transplant from excess Tylenol.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03


Timmy77
Regular Member


Date Joined Jul 2009
Total Posts : 40
   Posted 7/13/2009 8:02 PM (GMT -6)   
Thanks all of you I am trying to get as much info to try and manage my recovery. Like everyone says everyone is different. My doc said that some people just needed Tylenol 3 after surgery. I told him I was not a brave soldier I just wanted drugs. the more the merrier I am no hero. I told his nurse what he said and she said she would like to meet that patient? He is young and I do not believe most Drs listen to their patients they are always in a hurry to move on to the next. I am looking into a support groups to talk to people about what to expect and what to do. So thanks for your input it really helps
48 yrs old
Robotic RP
6-15 2009
Surviver


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 23862
   Posted 7/13/2009 10:35 PM (GMT -6)   
Pain Management is an important part of recovery after a major surgery. A good doctor is well aware of that, and should work with you with the proper medications for your pain threshold.

Toughing it out with post surgical pain is counter productive, as it will retard the bodie's ability to heal in a timely manner.

Not saying to be a pain pill junky, but there is a correct pain management plan for every patient. Make sure your doctor is really listening to you.

I was on prescription pain pills for 3 weeks after I got home from 4 days in the hospital, and make no apologies for it. I was in a lot of pain, and my wife being a nurse watched closely over me. When it was time to wean off of the meds and onto OTC pain meds, I was ready and in shape to.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11, July 13 - meet with radiation oncologist
 
 


Celticpast
New Member


Date Joined Jul 2009
Total Posts : 1
   Posted 7/14/2009 3:18 PM (GMT -6)   
I am new to this forum and unfortunately also new to prostate cancer which was diagnosed last fall. I hesitate somewhat to contribute to this particular thread because I know we all have enough to worry about, but sitting pain is something I know a lot about. Twenty-two years ago, long before my prostate problems, I developed pain when sitting that was so severe that I was in distress basically 24 hours a day for a year until I took the drastic step of deciding not to sit any more. All forms of clinical investigation and intervention were unproductive. So for the last 22 years I have done no sitting in the conventional sense – I have not driven a car, gone to a movie, sat at a desk. I work lying down and recreate standing or lying down. As long as I don’t sit, I have a tolerable level of mild pain that flares and subsides depending on what I do. about 10 years ago I finally learned by way of the internet that I was not alone. There aren’t a lot of us but at least the disorder does have a name – Pudendal Nerve Entrapment or PNE. There are at least two forums devoted to the topic. There is no consistently effective treatment and while there are a couple forms of surgery being done, I have yet to see convincing evidence it is helpful. The overall topic is too complicated to go into here, but one hallmark of the condition has been that the pain is relieved to a considerable extent if the person sits on a toilet. I don’t want to suggest that it is a hopeless situation because I have known two persons who developed the disorder and got over it spontaneously within about a year.

When I had my prostate surgery I was concerned that they might aggravate the pudendal nerve in the process, and I made a point of talking to the surgeon about it. He said the pudendal nerve runs at an angle where they do not have to touch it and they wouldn’t. I nevertheless came out of the surgery with some enhanced pudendal pain probably because of the position they put you in and the ways they have to press on and manipulate you. Prior to the surgery I had asked some M.D.s involved in PNE whether they had heard of anyone with PNE having it aggravated by prostate surgery, and one doctor said he knew a patient in France (France is the center of PNE investigation) who developed PNE as a result of prostate surgery.

I offer this information not to add concern for those of you who have sitting pain post surgery, but to enhance your store of knowledge so that if you think something mysterious is going on, you can at least feel that you are not in the dark. Being in the dark for 12 years was almost as bad as being in pain.

PNE is a rare condition (I have heard one estimate of 1,800 cases in the whole world) so the odds are that is not the problem if you are having sitting pain.
67 yo
PSA 4.3 Fall 08, 4.85 Winter 08
Biopsy: 1 of 12 cores positive. Gleason 6. Est. 5% involvement.
Second pathology opinion Gleason 3+4, Spring 09
open surgery May 09, Northwestern U Med Center, Dr. William Catalona.
Path: Gleason 3+4, 1% involvement, organ contained.
No incontinence.
ED at 6 weeks post surgery. Just starting to deal with it.
PSA at 6 weeks = 0.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 23862
   Posted 7/14/2009 3:23 PM (GMT -6)   
Celticpast, welcome to HW, your's is a truly amazing story, never heard of a disorder like that, what a lifetime ordeal you have been going through, and now you are dealing with PC.

Glad you found us, sure you will make friends fast.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3,9/8 14.5
3rd Biopsy Sept 08: Positive 7 of 7 cores, 40-90%, Gleason 7, 4+3
Open RP surgery 11/14/8, Right nerves spared, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05, 5/9 .10, 6/9 .11
Lastest 7/13 met with Rad. Oncl, they want to start radiation, 70 gray, I am still considering all options and opinions
 
 


justus1292
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 7/15/2009 2:27 PM (GMT -6)   
RP 3-1/2 years ago and I remember the pain trying to sit AND supervise the setting my new double wide.  A stack of coushions.  Called my uro three times about the pain.... normal.  Okay after about 6 weeks pain subsided over a period of a week.
 
CHECK WITH YOUR DOC!
 
Still trying to find a satisfactory erection.  Too young for this crap.

Tom46
New Member


Date Joined Aug 2009
Total Posts : 1
   Posted 8/30/2009 3:42 PM (GMT -6)   

The pain when you sit is also covered in another form I found called 'perenial pain'.  I just joined due to my pain when I sit down.  For the first two week I could not sit.  Only stand or lie down.  It is now 11 weeks after my surgery.  I still have some pain and use a donut if sitting on a hard serface or driving for over 10 minutes.

When I had my biobsy, it cause pain when sitting.  But that was mild compaired to the pain caused by surgery.

To relieve my pain I could usually lay down for about 10 minutes and I would feel better.  I am incontiment and wear pads.  In the beginning it was to painful to do many kegels.  Now I can do many without much problem.  My Dr was not much help.  He just kept saying ' It will take time'.  It looks like it will take me a long time.

 

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