RESTARTING TESTOSTERONE REPLACEMENT AFTER RADICAL PROSTATECTOMY

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W.Ross
New Member


Date Joined Sep 2009
Total Posts : 6
   Posted 9/19/2009 5:09 AM (GMT -6)   
Help ! I live in Sydney Australia (very new to this online chat thing- now my first - be gentle !) and am finding it very difficult getting info from men of a similar age group (me 59). I had a radical prostatectomy in early May & my last two (3 monthly) PSA levels have been nil & am trying to deal with the loss of manhood (eg no erections, incontinence & and what appears to be a shorter penis. My main concern is, the past 6 years I was using 50mg testosterone gel as my reading was (& still is) less than lowest score on the normal range for men & am finding it difficult with afternoon energy levels as I have an active job. After much asking, the doc who did my surgery said it was OK to restart a half packet each day but my GP says not to take the chance so I am confused. Has any men out there with low levels of testosterone been through this ? My email address is baku2222@hotmail.com and I am able to check this every day so I would really appreciate any help. Thank You.
W.Ross

johnj
Regular Member


Date Joined Dec 2007
Total Posts : 78
   Posted 9/19/2009 9:28 AM (GMT -6)   
YOU have to decide. Is it worth it? My experiance,removed prostrate 2003. Urologist would not even discuss the possibility of replacement till 5 years of 0 psa. I was told the posibility of cancer returning was there, but after five years of 0 psa he is now willing to start replacement for my low levels.
Asacol x2 two to three times aday
Probiotics once aday
neupogen  twice aweek (causes bone pain and flu like symt's)
 Was using tyl4 for bone pain. dr. who started me said stop...so I stopped...but it was also helping the colitis for some unknown reason
 Prostate Cancer 2003
 Left bicep ripped of from forearm 2004
lung cancer 2007
THe rest of the crap in line for me can take a number 'cause I'm busy!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 23847
   Posted 9/19/2009 10:09 AM (GMT -6)   
John, sounds like you got more than a plate full going on in your life, sorry to hear that. The good news in your post, is that you been pulling 0 PSA on your prostate cancer, that sounds mighty good, hope it stays that way for you.

Your advice on the subject makes good sense, hope the original poster takes that up with his doctor.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20%, Contained in capsule, 1 pos margin
2009 PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/09 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl., agreed to start radiation, does not rec. HT at this time, mapping on 9/21/9


Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 370
   Posted 9/19/2009 11:27 AM (GMT -6)   
While my ED has continued to slowly but steadily improve, I've had issues with decreased libido, low energy, foggy brain, strength/muscle wasting, etc.----Right after my surgery (1/26/09) I had the libido I had pre-surgery. Then about 3 months out, it dropped off the horizon. Although my first T Level at 3 months was 263, fairly low, it has risen lately to around 400. But the libido has not..........both my surgeon and treating urologist stated that they would not consider replacement therapy until I posted 0 PSA's for the first year. Even at that point, they would be reluctant but not adamant. On the other hand, as my urologist pointed out, it's not as if we're totally devoid of testosterone, and if there's a cell left behind, it's going to find it whether low levels or high levels. (A mouse doesn't need a block of cheese to find a morsel somewhere)........so, yes, it comes down to weighing risk/reward. And, different MD's have differing opinions. I'm taking their advice and waiting to have the discussion after a year of 0's and not doctor shop.
 
                       Arnie in DE
 
Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point.
3 month PSA--<0.1
6 month PSA--<0.1


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 7582
   Posted 9/19/2009 12:17 PM (GMT -6)   
Hi W.Ross,
Welcome to HealingWell. We have had a few guys here with testosterone replacement after RP and I bet they will check in soon. This subject came up at a major prostate cancer convention last weekend. The speaker was Dr. Charles "Snuffy" Myers and here is basically what he said about it. For those naturally deprived of testosterone, testosterone replacement after RP is not a critical issue. A typical man has a T level of between 300 and over 600 even after RP so for a guy to have injections to get to a safe T level, it likely won't affect progression of the disease. He said that for quality of life reasons he recommend T replacement unless the patient was in relapse and needed to have androgens suppressed.

Another Dr. spoke the same way at our US Too group this passed week. He too is a well known prostate cancer oncologist - Dr. Bob Leibowitz.

After seeing quite a few guys in the same boat here taking testosterone replacement therapy, you will likely do just fine with it...


Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


W.Ross
New Member


Date Joined Sep 2009
Total Posts : 6
   Posted 9/19/2009 4:52 PM (GMT -6)   
Thank you all for taking the time to to reply, I have much to consider. Yesterday my GP said that because my tesosterone levels are lower than the lowest level for a male of 59, this can bring on other health issues so we have decided to use half a dose of testogel at noon each to help with energy levels at work and we will monitor it regually.
W.Ross

TONY - I will write to your email address as there are a few extra questions I have for you

Jimmy2110
New Member


Date Joined Sep 2009
Total Posts : 1
   Posted 9/19/2009 6:11 PM (GMT -6)   
They took my prostate between 5 and 8 years ago...most all they took was the prostate...I still have erections (not quite as hard as they used to be but anythings good - right) and I still have ejaculations...just no juice...I'v not heard of testrone theropy...just stumbled on to this site while I was looking for "prostate transplant"...apparently there is no such thing...oh well...my PSAs are 0 since the surgery...tell me guys dose testrone therapy improve the quality of an erection...and maybe bring back some of my labido...I am going to get with my urologist on Monday and talk with him about this...any info will be appreciated...

65 year old male
kidney cancer about 30 years ago-golf ball size tumor-surgery-no re occurance...

W.Ross
New Member


Date Joined Sep 2009
Total Posts : 6
   Posted 9/19/2009 6:50 PM (GMT -6)   
Jimmy, I used Testogel 50mg every morning since 2003 because of low testosterone & hence feeling tired all the time & no labido - I was amazed how great I felt. The only bad side effect I didnt like was feeliny "horney" all the time like I was when I was 16. Didnt do much about making the erection harder but I felt so much better. Cheers, W.Ross
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