Incontinence-if coffee, alcohol,soda are bad, what could help?

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cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 11/2/2009 4:11 PM (GMT -7)   
Hi Guys,


You might know from a recent previous post of mine that my post-DaVinci incontinence has caused me no end of pee-pad neurosis. I've read in the posts here, and was told also by the nurses at Moffitt Cancer Center in Tampa, to avoid soda, alcohol, and, most horribly for me, coffee.



So yesterday I was watching the Vikings-Packer game at the neighbors and was offered: a coke? (no thanks), a beer? (no can do), a cup of coffee? (sadly, no). A few minutes later, a cup of Chamomile tea was plopped down on the table next to me. I was not thrilled because I don't like it, it's a womans drink, and I know Arnold Swatzennegger would never touch it. But...I drank it to be polite and because I didn't have anything else anyway. A while later I needed to whiz badly, so slowly got up, rediculously hunched over, and slowly crabbed my way to the head. Then something amazing happened. Although I leaked a little all the way to the loo, I managed to retain a magnificent quantity of urine for direct deposit. The best by far I have done since the catheter came out ten days ago. A definate ah-ha moment. I tried some more this morning and still was able to repeat some of that initial success. The story on Chamomile tea (made from flowers from a plant cqlled matricula recuita )is as follows; It's been used for ages by women to ease menstrual cramps because it's a strong anti-spasmotic, it calms the whole digestive tract as well. It is used to relieve stress, promote sleep, and allay anxiety. It's also used as an antiseptic, which can't be bad for the healing of a DaVinci-ravaged urinary tract system. The big one here is the anti-spasmotic action I think it has on the bladder.



All I can tell you, unscientifically, is what happened to me. It's cheap and safe. Too bad it tastes like a beverage make from the dust from the wife's vacuum cleaner bag.



Steve

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 7713
   Posted 11/2/2009 4:19 PM (GMT -7)   
Steve,
Most diuretics will cause excessive urination, as does alcohol. The important thing for incontinence is to make sure you are getting enough fluid to sustain healthy living. I know some people will refrain from drinking adequate enough water just to avoid issues with incontinence, but that is not the answer.

But that said, you don't need to quit the coffee, or the beer ~ at least for this reason. I leaked just briefly, but I enjoyed my coffee anyway...

Tony
Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
Hormone Therapy May '07 to September '09 ~ Currently off.
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (October 7, 2009): <0.1

My journey is at: www.caringbridge.org/visit/tonycrispino

My InfoLink page is at Tony's Prostate Cancer InfoLink Page

STAY POSITIVE!


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1821
   Posted 11/2/2009 4:34 PM (GMT -7)   
A lot of these exotic?? teas can be very beneficial. Although I do enjoy a cup of coffee, green tea is my thing. (I used always to be a big traditional tea drinker). I have to use two bags though and sweeten it with honey or raw sugar. I prefer it strong and sweet much like myself. shocked
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01
PSA August 09 (2 year mark), <0.01


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 24334
   Posted 11/2/2009 4:42 PM (GMT -7)   
Steve, got me interested on the anti-spasmodic part, as I have been plagued with endless bladder spasms from long term catheters. Don't drink tea or coffee normally, but my check that out.

What I was told when I was originally going dry, to stay away from all soda, all fruit juices, all coffee, and all booze, all things that tend to irratate the bladder. That part didnt bother me, because for years I have been caffine free, a non drinker, and not fond of most juices. I
am use to years of just drinking water, which is a good thing.

Tony's right too, don't dehydrate yourself because you don't want to leak, better to leak and keep your system flushed out.

Good luck to you.

David Riley
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 7713
   Posted 11/2/2009 4:44 PM (GMT -7)   
LOL. You Aussies never kicked the tea habit, eh? We dumped ours into the Boston Harbor...It's been a long hard recovery since...lol

Tony

Post Edited (TC-LasVegas) : 11/4/2009 10:20:36 AM (GMT-7)


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1821
   Posted 11/2/2009 4:54 PM (GMT -7)   
I suppose it's a traditional thing Tony. I did not know anybody who drank coffee when I was a child. Tea was the staple drink with all meals including children. Coffee consumption did not become common probably till the late 50's with the large increase in European migration.
Bill

mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 11/2/2009 7:05 PM (GMT -7)   

Hi Guys

Tony is right.  We all worry about drinking too much liquid.  You need it to get the insides working again.  On my first evening in the hospital and on my first lap around the old ward, I went past the break room for the nurses and smelled the wonderful smell of fresh coffee.  It smelled so good.  Later when my Dr. came by to check on me I told him it was probably against the rules but I really need a cup of coffee.  He agreed and my nurse told me she was going to make a fresh pot for my wife and I.  It was really good.  I used pads for a few months and probably used them longer than I really needed them but I am really dry except for the times I try to drive too long before stopping or twisting or bending over in an unusual position.   So enjoy your tea and have a second cup for me.  And by the way, Duke University Hospital has the best hospital coffee and every time I go there for PSA test I make sure I get a cup.

 

Take care

 

Mika  

 


age at dx 54 now 57
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
ED is getting better
the shots work great, still can't give them to myself
two years of zero's


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 375
   Posted 11/2/2009 7:11 PM (GMT -7)   
You're expecting a lot so soon after your surgery. Relax, and let your body recover. I've never given up my diet Coke, nor my occassional glass of wine or tea - but I'm still on 1 pad a day 14-months post-op. By the way, my incontenence didn't really improve much until the 3-month post-op period and it took 6 months or so for it to get really better. And, by the way - the tea you were offered isn't for "women" alone - many men drink it too - including me. So, let go of your hang-ups and preconceived notions and do and eat and drink what you want, in moderation and as long as it won't harm you.

Age:  60 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (1/2 light pads per day)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0; 12/08: 0.0; 4/09: 0.0; 9/09: 0.0

 


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 11/2/2009 7:33 PM (GMT -7)   
Mavica,


Hang ups and preconceived notions!? Whoa. I was joking about TEA, not gay rights or health reform. Relax, don't take it personally. And the point was it could help a lot with bladder spasms.



Steve

pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 390
   Posted 11/2/2009 7:49 PM (GMT -7)   
I love my coffee...  never did give it up...  Figured I would pass along my long term experience so far...
 
I am at 31 months post op davinci ...  Things dried up for me greatly around the 2-3 month time frame...  I consider myself "pad free" except...
 
1)  If I drink a lot of coffee in the morning and then do some moderate "construction" work on the house involving getting down on the ground anf getting up again....  lifting....  or going up/down ladder...   I will have a squirt if I forget to concentrate and keagle...
 
2) No matter what I drink or do not drink,  if I plan on doing heavy lifting,  I put a small pad on...   Like loading/unloading hay bales...  keagles or not...
 
3) If I drink more than a few glasses of wine in the evening and forget to keagle when getting up/down out of a chair...   maybe a small squirt
 
4)  If I am just plain physically tired at the end of a hard days work... and forget to keagle...   maybe a small squirt...
 
I do not let any of this really affect my lifestyle...  Most of the time, squirts are due to me forgetting to keagle...
And if I plan on some heavy strenuous activity,  I put a small cup style pad on for proactive safety...
 
That has worked well for me to the point of not really thinking about it anymore...
 
pasayten
 


After 3-4 years of annual PSA 4-6, biopsy recommended
3/13/2007 - 12 point biopsy - Left 0/6  Right 1/6 Gleason 3+3 T1c
4/24/2007 - DaVinci performed at Virginia Mason hospital in Seattle
5/2/2007 - Catheter Out! Final pathology of Gleason 6  T2c Nx Mx, approx 20% of prostate involved, positive margin, but only at 2 focal points.  
6/28/2007 9 weeks incontinance... Overnite, went from 4-6 soaked pads a day from prev 8 weeks to 2 barely wet pads a day.
7/12/2007 11 weeks post-op  Minimal leakage...  one small pad a day
7/18/2007 First Post-Op PSA...  0.01 !!! 
9/10/2007 Pad free and ED at 75% with 100mg Viagra generic
6/26/2008 2nd Post-OP PSA at 14 months...  0.02 
12/2/2008 3rd Post-OP PSA at 20 months...   0.02
11/1/2009 4th Post-OP PSA at 31 months...   0.13 (moved and diff lab)


O Buddy Boy
Regular Member


Date Joined Oct 2009
Total Posts : 106
   Posted 11/2/2009 7:59 PM (GMT -7)   
Interesting approach with the chamomile tea.

You can order seeds from Burpee and harvest the flower pods yourself. I do. I use it to help sleep on restless nights. Arnold Schwartzenegger recommended it. LOL.

I haven't had much of an incontinence problem from the get-go. Just a few leaks. My approach has been "bring it on!" Four cups of coffee in the AM, maybe five. Then gobs of water. I want my bladder full again and go like Austin Powers after 40 years of deep freeze.

BTW, Coffee is indeed the American Freedom drink. It is why folks in the USA have some of the highest per capita consumption in the world. The American Revolution was planned in coffee houses.

OBB
55 yo
Dx:9/29/09
DRE: Susp
PSA: 3.5
Gleason: 3+4/7
6/12 Cores Positive; Sextants were 1%, 3%, 8%, 15%, 12%, 0%
RALP: 10/09/09
PATH:
Margins: Clear
Lymph Nodes: Clear
Seminal Vesicles: Clear
Gleason: No increase from biopsy 3+4/7
Some perineural and capsule invasion.
T2c,NO,MX
Incontinence: Minor. 1 light pad a day. Some days don't need it.
ED: Natural with encouragement. 20mg Cialis and pump just makes things more fun.


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3277
   Posted 11/3/2009 10:55 AM (GMT -7)   
OK Cocrgolfer,

I'm in. It's 11:49 and my wife just poured me a 12 oz cuppa' sweetened with honey to cover the freshly mowed lawn smell. I'm going to refill after I finish this one in about 30 minutes and then... watch out! If you hear of floods in western NY or rising tides in Bangladesh you'll know the cause. This might also be a good time to go long on Kimberly Clarke.
Guys you've been warned. ;-)
Jeff

12:42: Starting the 3rd 12 oz cup. That's a total of 1.1 liters! Stand back from the keyboard boys.

1:32 Just came back from filling the bird feeder out back and noticed my pants were wet. I must be so relaxed I didn't feel a thing. By the way, unless I am lying down, when I kegel, I squirt. 10 kegels will produce 10 squirts.
Hmm, I wonder if the squirts are now scented with the aroma of Chamomile.

2:35 Just finished taking a shower. I'm flowing like Niagara Falls kegel or no kegel. - this can't last much longer.
I am going to consider this one hour of bladder shock therapy. I'll try it again in a week.

Swimmingly yours,
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 10/31 3 months, Still no activity, nada, zip
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/17 2 months: Still 3 pads per day.
10/31 14 weeks: Still 3 pads per day. At this rate I'll be fine in 2012.
Post Surgery PSA - 9/3 6 weeks- 0.05, 10/13 3 months- 0.04 undetectable.

Post Edited (Worried Guy) : 11/3/2009 12:39:12 PM (GMT-7)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3277
   Posted 11/4/2009 6:50 AM (GMT -7)   
OK here's my update :
First, I noticed that Kimberly Clarke Stock closed .32 higher from 11:30 when I started to drink the tea. A correllation?
I drank normally last night before bed and managed very healthy flow this morning and 99% of it went into the toilet. My wife even mentioned it.
I'm not one count my pee pads before they're soaked but I'm going to drink another 2 or 3 cups today just for grins. I'm also going to keep my eye on Kimberly Clarke.
If Warren Buffett calls me for stock advice, I'll be sure to let you guys know.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 10/31 3 months, Still no activity, nada, zip
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/17 2 months: Still 3 pads per day.
10/31 14 weeks: Still 3 pads per day. At this rate I'll be fine in 2012.
Post Surgery PSA - 9/3 6 weeks- 0.05, 10/13 3 months- 0.04 undetectable.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 24334
   Posted 11/4/2009 9:25 AM (GMT -7)   
You may just make po bo Warren a rich man one day, keep up the good work
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2090
   Posted 11/4/2009 10:02 AM (GMT -7)   
Helloe fellow drinkers,
 
I was lucky with this coffee dilemma I suppose, as I'd switched to decaffinated stuff about four months before I was diagnosed with PCa.
 
I stick to Ne****e Gold Decaff now, but then again I've always had sinus trouble and my nose ain't much good.
I also find that fresh coffee and alcohol stop me sleeping properly and I can do without that right now.
 
I have some camomile tea around somewhere, but it looks like what comes out of me which I find very off putting, but I'll try it even though I reckon I'm doing quite well.
 
Alfred
 

Age at Dx 48         No Family history  of Prostate Cancer

Married 25 years, and I cannot thank my wife enough for her support.

April 2009: PSA 8.6  DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.

RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.

Partial erections on 1st and 2nd Aug 2009, Catheter out on 6th Aug 2009. 

Dry at night, but wearing pads 24/7

Post-op Gleason 3+4. Seminal Vesicles invaded, but otherwise negative margins,

Erection 100% on 15th Aug 2009   Stopped wearing pads on 21st Sept 2009

Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc.

 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 24334
   Posted 11/4/2009 10:13 AM (GMT -7)   
Jeff, thinking about sending you a box of 100% virgin corks, in assorted sizes of course.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 11/4/2009 10:27 AM (GMT -7)   
Ok Ok Worried Guy point taken. If Chamomile tea was really a cure for incontinence, I'd repackage it, call it something like "Get Dry Now" and sell it for $49.99 a hit. HOwever, it is very possible that it IS a bladder anti-spasmotic, mild tranquilizer, and anitbacterial. There're lots of decent studies on those accounts. You still have to choke down the stuff however, which I am doing, as a poor surrogate for too much coffee. Doing that in the morning has helped me, and in the "journey of a 1000 miles" I'm about three steps down the road, which is three steps better than I was twelve days ago.

The best to you,

Steve

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3277
   Posted 11/4/2009 11:15 AM (GMT -7)   
Steve,
I wasn't knocking it. I am willing to try anything to get out of these darn pee pads. I just think I overdid it a bit. I am drinking more tea today. I liked the side effect of not having dry mouth. I felt pretty good yesterday so I'm doing it again.

On a slightly different note, I found a way to reduce pee pad cost. I bought a pack of Poise Pads Moderate absorbency that have "leak block" ends. Since they are made for women, they are symmetrical so I can cut them in half and get two uses for the price of one. From personal testing I can say that each half will hold 100 ml of pee and they take up less space in my undies.
I hope your progress is faster than mine.
Jeff

David, I thought Goodlife's suggestion of using a golf tee as a plug was very fitting. Fore!

Post Edited (Worried Guy) : 11/4/2009 10:18:48 AM (GMT-7)


Buzzdriver
New Member


Date Joined Oct 2009
Total Posts : 13
   Posted 11/4/2009 3:06 PM (GMT -7)   
A couple of thoughts - 1) Chamomile tea has been very helpful for me, and I've experimented with all kinds of exotic teas, with Chamomile working the best.  And I'm a 2 cup a day coffee guy - haven't stopped or changed that practice at all.
 
2) I've been using an Alpha-Dry system for the on-again, off-again leaking that I do have, and find it more comfortable than a wet pad when I do leak.  It's essentially a condom catheter with it's own reservoir.  Anyone else using these things?
 
Paul
57 Now
Age 54 at DX.  Gleason 6, PSA 4.2, a .78 rise in one year. 
 
Had High Dose rate brachytherapy at California Endocurie Therapy Center in Oakland, CA in February of '06.  Very successful - PSA came down quickly and steadily to current .08.  No problems.
 
Developed flow restriction in summer of '08 - had bladder neck resection in March of '09 - immediately incontinent, immediately in severe and constant pain, ultimately left job because I could not function because of pain and incontinence.
 
Started hyperbaric oxygen therapy (HBOT) three weeks ago - pain virtually gone, blood in urine down to "trace" levels, still pretty leaky.  HBOT has been a godsend with respect to reducing the pain! 
 
Considering sling procedure to get control of leakage. 
 


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 11/4/2009 5:45 PM (GMT -7)   
Jeff,

Great tip. I'm going to look for some tomorrow. This post surgery misery has however been good for my pocketbook. Since all I do all day, after my morning walk, is sit around and drive my poor wife to distraction, I'm saving money like mad. No green fees, no new golf balls (use Pro V1's), no long trips with my kayak in my gas hog Silverado, no restuarants or movies so far, you see what I mean. But, I think the beast is gone so who's complaining?

Buzzdriver-man, that's a hard road you've had. Hope you've turned the corner. Lots of guys here have had fabulous luck with slings, etc. I bet you do too!

Steve

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2090
   Posted 11/5/2009 2:00 AM (GMT -7)   
A camomile tea update:
 
I tried having two mugs of camomile tea last evening instead of two mugs of coffee.
I wouldn't expect there to be any instant change and I didn't notice any difference as far as sleeping pattern: I didn't sleep any better than the last few weeks. I also woke and had to pee at midnight and 4.30. When I got up this morning I also felt tired and had a slight ache in my abdomen. So basically exactly the same as the night before.
 
The only thing that did strike me was that when drinking coffee I nearly always have something sweet to eat with it (cookie, cake, chocolate, fudge, etc ), but with camomile tea I really did not want to have anything sweet at the same time, so maybe that could be an indirect benefit to drinking the stuff. (My waistline has got bigger since the surgery even though I have not put on any weight - nearly all my jeans are now too tight to wear!)
 
And for any of you put off the idea of camomile tea due to the smell I was surprised that the taste was not the same as the smell.
 
I'll try some more today.
 
Alfred

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3277
   Posted 11/5/2009 9:13 AM (GMT -7)   
5:00 am I noticed some full bladder pain, the first in a long time. I managed to get to the toilet and peed in a yogurt container so I could measure the volume- 365ml! That is a world record for me. Last time I checked, ~2 weeks ago, I could only hold about 220ml. I don't know if it was the tea or not but I will continue drinking it today. Already finished my 2nd cup.
Jeff

dogbot
Regular Member


Date Joined Aug 2009
Total Posts : 145
   Posted 11/5/2009 1:42 PM (GMT -7)   
Slightly off subject I know, but I measured the quantity of a pee today and it was 400 mls. That`s the biggest I`ve done since surgery, and boy did I want to get rid of all that liquid.
Diagnosed February 2009. Gleason 6, Psa 7.2, 12 core biopsy, and then Mri scan, which showed organ specific.
DaVinci at Addenbrookes, Cambridge, England 18th May 2009.  Nerves removed one side.
Catheter in for 8 days, no pain, no post op problems apart from an infection, cleared with antibiotics.
Some aching around the penis, which still occurs.
6 week psa 0.1, post op pathology all good, confirming pre op tests. Ed a problem, no treatment as yet.
Light ladies pad during the day, just to control a slight dampness and a Tena for  men pad at night for occassional leakage.
Awaiting 3 month consultation at the moment.
Sept 09 - still awaiting consultation. 99% dry during the day, tena pad at night just in case.
Sept 18th 09. PSA less than 0.1
Sept 29th follow up consultation at Addenbrookes. All ok at the moment
Virtually dry at the moment.


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3277
   Posted 11/5/2009 5:36 PM (GMT -7)   
Hey Dogbot.
Thanks for sending that data. I quickly showed it to my wife as proof that I am not the only crazy person on this forum. ;-)
My capacity when sitting is much lower. Rarely do I see more than 50 ml.
This morning's pee was so good I wished I could have invited my friends to watch.
Hello Youtube! :-)
Jeff

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2626
   Posted 11/5/2009 8:42 PM (GMT -7)   
Jeff,

Be sure and keep those containers labled correctly. I've seen a lot of new yogurt flavors, but pee pee doesn't sound good.

Congarts on your record retention !

Great research. Maybe if you took a bath in it........
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections

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