New Penile Implant

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Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 12/21/2009 1:01 PM (GMT -6)   
This past Thursday I had an AMS 700 LGX penile implant installed.  The surgery was done by Dr. Doug Milam at Vanderbilt Medical Center in Nashville.  The surgery took a little over two hours.  As expected I have a lot of swelling and have been on pain pills since the surgery.  I have to admit this surgery is worse pain and recovery wise then the Da Vinci I had three years ago.  Dr. Milam does two or three of these implants a week.  I spent one night in the hospital.  Actually, they kept me in a surgical holding room that night because I was released very early the next morning.  I was instructed to stay on my back with my feet above my heart as much as possible for five days and to wear an athletic supporter for the five days.  As you can imagine the penis goes through a lot of trauma in this surgery and healing takes a while.  I have an appointment on the 30th.  I have been instructed to pull down on the pump that is in the scrotum.  My first impression is the pump is bigger then I thought it would be.  Since I am right handed it is located on the right side of my scrotum.  The other surprise was the difficulty in urinating.  Because of the swelling the uretha is compressed and this makes for a small stream and I have irritation from the catheter that I had overnight after the surgery.  All in all I am pleased with my decision and will be glad to answer any questions.
 
Merry Christmas
 
Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06, 6/25/07, 1/8/08
No more pads as of 1/13/07
Began injections in April '07
 


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 12/21/2009 1:38 PM (GMT -6)   
Sounds like a nifty christmas present once you get over the healing.
Larry
Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Final Path report:
20% of the prostate Invovled
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear, Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 24283
   Posted 12/21/2009 2:01 PM (GMT -6)   
Tamu, sounds a bit rough there, but hopefully, when the pain and swelling is gone, and its activated, it will be worth it all to you.\ Good luck.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA:
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 in place


skeener
Regular Member


Date Joined Dec 2009
Total Posts : 214
   Posted 12/21/2009 2:28 PM (GMT -6)   
What a nice Christmas gift!! You will have to let us know how it works!!

Skeener
Age:  63
 
Biopsy May 09 showed 2 of 12 cores positive for prostate cancer -- 1 at 5% and 1 at 25%.  Cancer indicated as non aggressive.  Gleason score 3+3.
 
Considering all the controversy about whether action is needed or not (I could die with prostate cancer not from it), gave consideration to active surveillance.
 
Had open RRP on Oct 23/09 in London, Ontario.  Excellent surgeon.
 
7 Weeks Post Op -  The fears I had about bad things about the operation and recovery did not materialise except of course ED!!.  Otherwise, everything went very smoothly.  Incontinence not a problem.  Wear a pad when out just in case. Pain was never a problem.  Forum tells me can't do anything about ED right now.  Give it a rest!!
 
Nothing of concern in the pathology report. 
 
First followup PSA and visit in Feb 09.      


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 3652
   Posted 12/21/2009 2:55 PM (GMT -6)   
Best of luck with the healing. What a nice Christams present after 3 years. Keep us posted some of us may be going the same direction.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


Thor2160
New Member


Date Joined Dec 2009
Total Posts : 3
   Posted 12/23/2009 10:52 AM (GMT -6)   
Hope it all gores well. Dr. Milam is doing mine on January 6th.

I'll be interested in hearing about your recovery.

Question - We live about 4 hours from Nashville. My wife is worried about me making the ride home right after surgery. What do you think, should I stay in Nashville a day or two or just head on home?
49 years old
Prostatectomy January 2007
rising PSA
Radiation July & August 2007
rising PSA
Casodex & Finasteride - 2008
rising PSA
Hormone implant July 2009
lowest PSA since diagnosis - Oct 2009 = 0.7


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 12/23/2009 8:39 PM (GMT -6)   

Thor,

You should be okay on the ride home as long as you stop a couple of times to go to the bathroom.  They took my catheter out about 5:30 AM the next morning and I was told to push the liquids.  They will not release you until you have urinated a certain amount.  You need to continue to push the liquids.  Hopefully you will not end up with the cartheter irritation I have had which is a lot worse then when I had the catheter in for 13 days after my PCa surgery.  Make sure you take a pain pill just before leaving and perhaps another along the way.  It also helps if you can lean back.  The passenger seat in our car would lean back almost all the way and this helped.  If you wait another day the travel will just be worse on you as the swelling kicks in in the first 24 to 36 hours.  Also, when they tell you to stay off of your feet for five days as much as possible do it.  I had little pain laying down but sitting or standing was a challenge for the first three to four days.  Today I can walk around okay and the swelling is way down and I have only taken a half a pain pill today so it gets better in a hurry.  You will probably be kept in a surgical holding room the night of the surgery.  You should ask for a regular hospital bed as they had me on a gurney until about 9:00 PM which I just could not get comfortable on.  You may have a night nurse named Rosalie.  She is great and trys to help as much as possible.  The only thing I am a little disappointted about is I never saw or spoke to Dr. Milam.  He did talk to my wife and they told me in the surgery room he was coming in to talk to me but the next thing I know I am waking up in recovery.

Good Luck!

Tamu


Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06, 6/25/07, 1/8/08
No more pads as of 1/13/07
Began injections in April '07
 


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 12/28/2009 4:41 PM (GMT -6)   
Tamu,
Congrats!  Welcome to the club.  I have had no complications for the 17 months with the device, except mine is CX model.  Mine gets a work-out about once a week now.  It was twice a week for the first 3-4 months, but...  Anyway, it works.  It works good.
Gene214
PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Post-Surgery psa  -- .011
Removal of stricture 6-07, incontinence continues
01-15-08 psa -- .05
AUS, IPP implanted 07-16-08
AUS, IPP activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices work well.
10-20-08 psa -- .05
05-15-09 psa -- .07
 


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 375
   Posted 12/28/2009 8:15 PM (GMT -6)   
Congratulations. A friend of mine had an implant, and said the pain was so great he wouldn't have done the procedure had he known that in advance. Another complication was that it failed - and his erection failed to deflate - and his MD office was closed for several days. Every time I hear those funny Cialis commercials about "call your doctor if your erection lasts more than . . . " I think about the now deceased friend and his pump malfunction. Not having an erection for years bothered him to the point he had the surgery, and after the malfunction he had it removed. Be careful what you wish for!

Age:  60 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (1/2 light pads per day)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0; 12/08: 0.0; 4/09: 0.0; 9/09: 0.0

 


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 12/28/2009 10:07 PM (GMT -6)   
Mavica,

While the pain was worse then my PCa surgery it was bearable with the pain pills. I am now 10 days post op and I have no pain at all. I knew the risks before making my decision but in my case it was either move on to the inplant or just let the sex part of our lives just wither away as with the injections and the planning needed around them was just making sex a mechanical action. I already am getting excited about the activation and getting to the six weeks post op so we can get back to enjoying that part of our lives.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06, 6/25/07, 1/8/08
No more pads as of 1/13/07
Began injections in April '07
 


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 297
   Posted 12/29/2009 4:47 PM (GMT -6)   
Any particular reason that you had the model installed that you did? I know that AMX has one for patients with Peyronies Disease.
Age 60, PSA 2007 4.1, PSA 2008 10.0
Diagnosed April 2008, Biopsy: 6 of 12 cores positive, Gleason 4 + 5 = 9
CT and Bone Scan negative, Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared, Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th, pT2c, lymph nodes negative
PSA Sept 28, 2008 0.00, PSA Jan 22, 2009 0.00, PSA June 29, 2009 0.00
ED Status- Currently using Trimix, Levitra daily for increased blood flow.
Noctural Erections have completely returned on a nightly basis, same hardness as before.


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 12/29/2009 7:49 PM (GMT -6)   
hb,
The AMS 700 LGX is the latest model by AMS. The LGX stands for length and girth expansion. Models before this one could do one or the other but not both. This is the one recommended by Dr. Milam but I am not sure if he uses this model for Peyronies Disease.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06, 6/25/07, 1/8/08
No more pads as of 1/13/07
Began injections in April '07
 


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 297
   Posted 12/30/2009 9:55 AM (GMT -6)   
Tamu
 
Actually it is the one for patients with Peyronies. One of the guys on the PD Forum site was able to regain an inch of length that he had lost due to PD. He was also highly satisfied with Dr Milam.
 
I suspect that within a year, you will feel that this is the best decision that you ever made. The only negative issue that I have read about with the AMX brand of implants, is that after about 7 or 8 years, you can have tissue growth around the implant tubes. This growth will reduce the effectiveness. But it doesn't happen to every guy.
 
Good luck
Age 60, PSA 2007 4.1, PSA 2008 10.0
Diagnosed April 2008, Biopsy: 6 of 12 cores positive, Gleason 4 + 5 = 9
CT and Bone Scan negative, Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared, Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th, pT2c, lymph nodes negative
PSA Sept 28, 2008 0.00, PSA Jan 22, 2009 0.00, PSA June 29, 2009 0.00
ED Status- Currently using Trimix, Levitra daily for increased blood flow.
Noctural Erections have completely returned on a nightly basis, same hardness as before.


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 12/30/2009 2:27 PM (GMT -6)   
hb...
 
Are you referring to the AMS when you write "AMX"?
 
Also, regarding the tissue growth around the cylinders...or "tubes"... I had not heard that but it does seem possible.  But I'm wondering if that tissue growth is due to guys only rarely inflating instead of regularly inflating.  It seems to me that inflating often would prevent this from happening.
 
Gene214 
PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Post-Surgery psa  -- .011
Removal of stricture 6-07, incontinence continues
01-15-08 psa -- .05
AUS, IPP implanted 07-16-08
AUS, IPP activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices work well.
10-20-08 psa -- .05
05-15-09 psa -- .07
 


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 297
   Posted 12/30/2009 2:37 PM (GMT -6)   
Yes, sorry I meant AMS. Even though I don't have an implant, I belong to the Implant Group on Yahoo besides the Peyronies Disease Forum. I'm strongly considering one after my 12 months of PD has elapsed in June, 2010.
 
On one of those sites, the advantages/disadvantages of both the AMS and Colorplast implants were discussed. Some medical researcher did a follow-up study of patients to find out how long each one lasted before it had to be replaced. The study reported that a useful life of 8 to 12 years was the norm. That time range was pretty much confirmed by the implant patients on the yahoo group. One guy has had six implants, both brands and issues with both the surgery and equipment.
 
Anyone interested in an implant should join the yahoo.group. Btw, it has alot of pretty graphic pictures and videos
Age 60, PSA 2007 4.1, PSA 2008 10.0
Diagnosed April 2008, Biopsy: 6 of 12 cores positive, Gleason 4 + 5 = 9
CT and Bone Scan negative, Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared, Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th, pT2c, lymph nodes negative
PSA Sept 28, 2008 0.00, PSA Jan 22, 2009 0.00, PSA June 29, 2009 0.00
ED Status- Currently using Trimix, Levitra daily for increased blood flow.
Noctural Erections have completely returned on a nightly basis, same hardness as before.


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 12/30/2009 3:54 PM (GMT -6)   
I was told that my inplant has a warranty of 10 years on mechanical failure. I have to say I am already getting excited about the inflation. I had my two week post op appointment this morning and everything looks good. The inplant is partially inflated to make sure the chambers get stretched. The pump is now in the right place in the scrotum and I was told that I do not need to pull it down anymore. I go back on February 10th to get it inflated and then be turned loose. One thing I know I like already is no more turtle necking. It actually is kind of cool having a partial erection right now although it gets in the way now and then when I am stooping or bending to pick something up.

I was asked about my pain experience by the PA this morning. He told me they have started to use lidocaine around the incision to help with the pain and their experience is that most men start dropping back on the pain medication on the third day after surgery and are generally off of the medication by day five.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06, 6/25/07, 1/8/08
No more pads as of 1/13/07
Began injections in April '07
 


PCa@47
New Member


Date Joined Dec 2008
Total Posts : 4
   Posted 1/5/2010 1:48 PM (GMT -6)   
I looked for the specific Yahoo group, but could not find it. What's the exact name?
Diagnosed: June 2008
Nerve Sparing: Sept 2008
Dr. Tewari at NY Pres
Six Week PSA: 0.04
 
Life is Good
 


Thor2160
New Member


Date Joined Dec 2009
Total Posts : 3
   Posted 1/25/2010 11:40 AM (GMT -6)   
Update on my experience.

Two week post op at Vanderbilt last Thursday. Everything as it should be. Return in four weeks for followup and release to begin using device.

Unlike Tamu, I have found this to be more painful than I anticipated. Taught a class Saturday, up walking and moving around for 3 hours plus 45 minute drive to and from. By the end I was more than sore. No pain meds during the day - Alleve some days. But still taking meds more nights than not. Each day is better than the last, but the soreness gets to be distracting. Any bumping on something (grand daughter squirming in lap) of the penis is very painful.

Still hopeful and positive about the experience.

Got the bills filed with insurance - exceeded $40,000. Told my wife this was the most expensive toy she would ever get.
49 years old
Prostatectomy January 2007
rising PSA
Radiation July & August 2007
rising PSA
Casodex & Finasteride - 2008
rising PSA
Hormone implant July 2009
lowest PSA since diagnosis - Oct 2009 = 0.7


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 297
   Posted 1/25/2010 3:46 PM (GMT -6)   
The yahoo group is penileimplant@yahoogroups.com.
Age 60, PSA 2007 4.1, PSA 2008 10.0
Diagnosed April 2008, Biopsy: 6 of 12 cores positive, Gleason 4 + 5 = 9
CT and Bone Scan negative, Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared, Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th, pT2c, lymph nodes negative
PSA Sept 28, 2008 0.00, PSA Jan 22, 2009 0.00, PSA June 29, 2009 0.00
ED Status- Currently using Trimix, Levitra daily for increased blood flow.
Noctural Erections have completely returned on a nightly basis, same hardness as before.


luke111
New Member


Date Joined Sep 2008
Total Posts : 15
   Posted 2/11/2010 12:46 PM (GMT -6)   
Hi Good luck with your new "TOY" I had my LGX put in a year ago and am quite pleased with it,as is the wife. It takes a little getting used to using the pump but will become second nature after awhile,also I let the wife do it just for fun.

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 2/11/2010 4:07 PM (GMT -6)   
Update: My penile implant was activated yesterday. The PA deflated what I had from the surgery and then pumped it up. Penile tenderness was minimal but scrotum tenderness was touchy when he did it. He had me do it three times and it was not as bad as when he did it. The pump is actually more difficult to work then I thought but it is getting easier each time I pump it. I was told to pump it up and deflate it two to three times a day and leave it pumped up about two minutes each time. I have pumped it up about four times since leaving the clinic. I am able to pump a little more before the tenderness gets a little touchy. The only place I feel tender is right at the head of my penis. The PA measured my length and it was right at 5 inches. He said I was a little longer then most of the men with penile implants at this stage but he said I was left pumped up more after surgery then normal. He tolds me over the next 6 months I will gain length and girth and how much depends upon how many times I pump it up. When pumped up I am definitely more firmer then I ever was with injections. Also, I have more girth now then I ever had with injections. So, I am happy with the results and look forward to enjoying sex again.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06, 6/25/07, 1/8/08
No more pads as of 1/13/07
Began injections in April '07
 


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 2/11/2010 4:29 PM (GMT -6)   
Tamu,
Hope this question is not too personal. My implant is a CX and "they say" it does not expand in length.  I think I lost a total of 3/4 inches (including prostate surgery & penile implant).  That's measuring from the pubic bone.  I'm left with a 5 1/2 inches.  Did your pa press to the pubic bone to measure or simply from the obvious tissue on top of the bone?  Again, hope this is not too personal for this site or for you.
 
Gene214
PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Post-Surgery psa  -- .011
Removal of stricture 6-07, incontinence continues
01-15-08 psa -- .05
AUS, IPP implanted 07-16-08
AUS, IPP activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices work well.
10-20-08 psa -- .05
05-15-09 psa -- .07
 


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 2/11/2010 7:24 PM (GMT -6)   
Gene214,

He pressed to the pubic bone just like you described.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06, 6/25/07, 1/8/08
No more pads as of 1/13/07
Began injections in April '07
 


schmitman
New Member


Date Joined Jul 2010
Total Posts : 1
   Posted 7/16/2010 6:22 AM (GMT -6)   
Tamu,
I was wondering how your penile implant is working out.I am 2 years out from prostate surgery and 54 years old in excellent shape cancer free  thank god.I have tried everythind with little or no success.Had a bad experience with the injections and do not like the lack of spontanaty with sex.I am considering the implant but going slow until more research and feedback.Your thoughts and results are greatly appreciated.

slippersmom
New Member


Date Joined Jul 2010
Total Posts : 1
   Posted 7/25/2010 9:17 PM (GMT -6)   
Has anyone had experience with the malleable (bendable) implant? my husband is getting that procedure done this week -- any info would help. also -- i am having trouble finding the yahoo group -- any advice how to join that?
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