Post Edited (HelpingmyDAD) : 1/3/2010 9:00:07 PM (GMT-7)
Post Edited (BillyMac) : 1/3/2010 10:03:14 PM (GMT-7)
April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior
June '08 had biopsy, 2 days later told results positive but in less than 1% of sample
Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days
Dr. recommended robotic removal using da Vinci
Northwestern Memorial Hospital, Chicago, IL
Dr. Robert Nadler, Urologist/Surgeon
Post-op Gleason's: 3+3, Tertiary 4
Bladder & Urethral: Free
Seminal vesicles: Not involved
Lymphatic/Vascular Invasion: Not involved
Tumor: T2c; Location: Bilateral; Volume: 20%
Catheter: Removed 12-days after surgery
Incontinent: Yes (1/2 light pads per day)
Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08
Returned to work 9-29-08 (18-19 days post-op)
PSA test result, post-op, 10/08: 0.0; 12/08: 0.0; 4/09: 0.0; 9/09: 0.0
Post Edited (BillyMac) : 1/4/2010 3:01:40 AM (GMT-7)
Post Edited (zufus) : 1/4/2010 7:28:15 AM (GMT-7)
Julian - my dad had prostate cancer and I spent significant time and effort trying to help him, over the years, with various aspects of his treatment, so I can, in some way, relate to what you are trying to do.
With respect to "the best" surgeon, I don't think there is such a thing. Or, if there is, I don't think there is any way someone can determine who that person is. (Think of it this way -- who is "the best" philosopher in the United States, or "the best" chef, or "the best" architect). Instead, I think what you want is a surgeon who is very experienced, with a credible hospital, has a reputation for excellence, who your father can trust, and who is not too geographically inconvenient. If you find a surgeon who is affiliated with one of the leading teaching hospitals in the United States, and has done more than, say, 1000 prostate surgeries, and still does at least a few of them every week, that would probably be a reasonable place to start -- IF your dad has decided that surgery is his preferred course of action (rather than, say, radiation).
I don't think you should necessarily limit your search to "robotic" surgery. Indeed, some of the most prominent surgeons in the country do not do robotic surgery. If your dad does choose robotic surgery, definitely find a doc who has done LOTS of them. There's a real learning curve.
One other "helping dad" point I will make -- all this stuff needs, ultimately, to be his decision. It is more difficult than it might seem to be helpful without "telling someone what to do." Through the course of his treatments, my dad made some decisions that I disagree with. I still think I was right. But that is OK -- it was his body and his illness and his life, and he made the decisions that he wanted to make.
Best wishes, Medved
Post Edited (James C.) : 1/4/2010 3:55:13 PM (GMT-7)
Post Edited (Purgatory) : 1/5/2010 8:02:12 AM (GMT-7)
My research led me to Dr. Menon. He has trained others and has done almost 5000 surgeries. Additionally, he uses an abdominal catheter, supposedly much better than the Foley.
I was extremely impressed when I personally consulted with him and his team.
My surgery is in under 3 weeks. I've made my decision and I am reasonably confident all will go well.
Click on his site:
5 out of 12 cores positive. Gleason 4+3. More specifically: 2 cores were 3+3 (one 5% and the other 30%) on one side. On the other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C
REVISED BIOPSY REPORT: The previous was read by Umich. Slides were then sent to Dr. Menon at Ford Hospital. Here is their report (much better) -- changes in bold print below:
5 out of 12 cores positive. Gleason 3+4. More specifically: 2 cores were 3+3 (one 5% and the other 20%) on one side. On the other side, 3 cores were 3+4 (5%, 5%, 20%)
Latest: Surgery with Dr. Menon at Ford Hospital, set for 1/25/10