VACUUM PUMPS FOR ED

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kreplerfp
Regular Member


Date Joined Oct 2008
Total Posts : 56
   Posted 1/21/2010 5:58 PM (GMT -6)   
I know that this is probably and old topic but, I would like some advice on buying a pump for my ED. Its been 16 months since my RP. I have tryed to inject with bimix and trimix but there alot of burning and I can`t seem to get the right amount for proper erection and I don`t like needles. Can others tell me what they use and what kind of success they have with them. Are the erections long and hard enough for proper penetration. Also what are the best brands and the easiest to use. Help would be greatly appreciated.

Thanks Fred
Diagnosed Feb 08
 
PSA 6.3
gleason 3+3
T2C
first biopsy 1 of 10 needles positive
surgery Sept 18 08
bone scan negative
evidence of sinus histiocytosis?
involvement of the margins identified at right and left apex and right anterior surface
also perineural invasion
no extraprostatic extention
no seminal vesicle invasion
tumor cells aggressive features of moderate to severe pleomorphism
1st PSA nov 08 undectable
kept left side bundle of nerves but lost some of the right side bundle
also had laser surgery in July 2008 to save eye sight from glaucoma hospitalized twice for kidney stones  in summer of 2008


Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 519
   Posted 1/21/2010 6:26 PM (GMT -6)   
My insurance paid for an Osbon ErecAid. Good device. With the included bands, the erection could be retained for intercourse. My wife and I didn't like that as much as the injections... the band can be pretty constricting, and it gave both of us kind of a "balloon" sensation rather than an actual erection (kind of difficult to describe). I am sure some here will swear by the pumps, though.

I recall the cost was pretty high, though covered by my insurance - something like $500. The salesman, while he was jumping through all of the hoops he had to to get it approved for coverage, remarked that they would not cost nearly that much if it were easier to collect their payment from the insurance.
Gleason, 3+4; PSA, 7
Robotic Prostatectomy, March 2008 (Age 48 then), nerves both sides spared, post surgery analysis confirmed 3+4 Gleason,
cancer contained, no penetration, lymph nodes clear
PSA consistently <0.1 since surgery


Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 519
   Posted 1/21/2010 6:30 PM (GMT -6)   
I should mention that one guy that I talked to had not been able to have intercourse after surgery, in spite of using pills, until he started using the pump (at about 15 months). He said that somehow it "retrained" him to have good enough erections, and after a few months he was good to go without the pump, but that wasn't my experience (as much as I hoped it would be).
Gleason, 3+4; PSA, 7
Robotic Prostatectomy, March 2008 (Age 48 then), nerves both sides spared, post surgery analysis confirmed 3+4 Gleason,
cancer contained, no penetration, lymph nodes clear
PSA consistently <0.1 since surgery


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 845
   Posted 1/21/2010 7:12 PM (GMT -6)   
I suggest start with a cheapie from a sex shop. Just make sure it has a quick release valve -- if you suck a testicle into the tube, you want to release the pressure fast! smhair

This is a low cost way of trying out a pump to see if it works for you. There probably won't be a satisfactory way of applying constriction. I use office rubber bands doubled over and flipped off the end of the tube at the same time as I pull the tube off. That works well enough that I haven't bought a more expensive model -- needs a bit of practice though.

As far as erection quality is concerned, it isn't as good as the natural, or what I was getting with injections. But still satisfactory for intercourse, and stays up long enough. I am seeing some natural recovery in my case, so that helps. I find orgasm comes more quickly than with the injections, no needles of course, and no risk of scarring -- all plus factors for the pump.

I have the balloon effect too, but not too badly -- I think it is because the constriction swells up skin and other tissue that doesn't normally swell. My wife wanted nothing to do with it at first, but I told her it was just like having a new guy. :-)
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
19-month: 0.09 (maybe)
ED:
After a learning curve, Bimix injections (0.2ml) worked well. From 14 months, occasional nocturnal erections. Have "graduated" to just the pump.


kreplerfp
Regular Member


Date Joined Oct 2008
Total Posts : 56
   Posted 1/21/2010 8:00 PM (GMT -6)   
I am seeing some small signs myself of an erection but not near enough to penetrate for intercourse. I did have a funny experience last week though. I had to have surgery to remove a stricture in my bladder neck. My wife told them that she thought I had sleep apnea, so they wouldn`t give me a general, only a spinal. Well near the end of my surgery I heard my Dr. say, well, well, Mr Punch It looks like you`ve got an erection here, right in front of the 2 nurses assisting him, well I thought I was hearing things under the meds, because when they did my RP 15 months ago, they had to cut my nerves on the left side. So before I left the hospital after the spinal wore off. I asked the dr if that was what he really said, and he said it was true, that my nerves must be healing, so I guess theres hope for me.
Well maybe I`m going to have to try and learn to do the injections again. I have tryed using bimix and trimix, But I`m afraid to use too much in case I get an erection that won`t go down. I can`t imagine going to the emergency that way

Fred
Diagnosed Feb 08
 
PSA 6.3
gleason 3+3
T2C
first biopsy 1 of 10 needles positive
surgery Sept 18 08
bone scan negative
evidence of sinus histiocytosis?
involvement of the margins identified at right and left apex and right anterior surface
also perineural invasion
no extraprostatic extention
no seminal vesicle invasion
tumor cells aggressive features of moderate to severe pleomorphism
1st PSA nov 08 undectable
kept left side bundle of nerves but lost some of the right side bundle
also had laser surgery in July 2008 to save eye sight from glaucoma hospitalized twice for kidney stones  in summer of 2008


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 3589
   Posted 1/21/2010 8:05 PM (GMT -6)   
Fred, I got the Osbon from my Dr. office my insurance did not cover it. Yes $500 is correct. If I had to do it again I would do just like Piano. Go to the SEX shop and get a SEX Toy Pump. They do exactly the same thing.

I use my pump for rehab every day it was not acceptable for the activity. As I have seen progress I notice that the pumped member holds the erection longer as I get better in the ED department.

Just my 2 cents.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.
15 months out injections Caveject (success)


pigeonflyer
Regular Member


Date Joined Nov 2009
Total Posts : 85
   Posted 1/21/2010 8:30 PM (GMT -6)   
i bought a cheap pump from the sex shop. i have to call the shop the adult store because my wife would not allow me to go to a sex shop. it does good by allowing the blood to flow in and i think it starts you on your way to recovery faster. i only had it a week. for the pump to work you have to be in the sex frame of mind, it helps with the results. im still going to try the injections in 5 weeks if my next uro visit allows me to do so, but in the mean time pump de pump, pump. neil
50 years
da vinci on 9/28/09
gleeson 3+3
psa before surgery 5.1 oct/09 psa 0.06
cather out on oct 5, back in on oct 5
two more trys for cather out, still in .
cather out nov. 13/09
cystocope nov.13/09 , cather back in , out again on nov 15/o9, was taught to self cath, still pluged with scar tissue but no cather. have to self cath 6 to 8 times a day. scar tissue removed on jan. 11 2010. no cathing and totally dry. 


clearwatercowboy
Regular Member


Date Joined Oct 2009
Total Posts : 128
   Posted 1/22/2010 12:14 AM (GMT -6)   
Fred,
I started with a cheapy sex store version before surgery, as prescribed by my Urologist. It worked really good before the surgery (well duh !!). After surgery,....not so good. Definitely not functional for me, I would have a hinge affect, something that others like myself have described on this forum, meaning that you can pump it up to a workable length and girth, but the tissues that are part of the penis within the abdominal cavity do not enlarge, so you are left with a swinging member, which is difficult to use for intercourse. In addition, the penis becomes cold and purple in color, which was a real turn off for my wife. Frequently the erection would dissolve spontaneously with intercourse, obviously from venous leakage. My second pump I purchased is the Encore, which was considerably cheaper than the Osborn, and I believe it to be just as functional as the more expensive models. I purchased my online for about $180. It has a manual or electric pump, restrictor bands in 5 different sizes. I now use it to pump up before injecting Bimix, a technique also described by some experienced PCa members on this forum. I continue to struggle with getting my Bimix dosage correct, but will continue to pursue that avenue, as we feel that it is much better than the erection created from the pump.

Good luck with your search for something that works. Everyone's experiences vary when it comes to dealing with PCa issues.

Dallas
RRP May 04, 2009
Pre-op Gleason 6
Post-op Gleason 7


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 596
   Posted 1/22/2010 10:05 PM (GMT -6)   
Fred,
The fact is, all the prescription pumps are essentially the same. The preferences come down to electric, manual, and most importantly, the constriction rings. They are different and are interchangeable. Find the ring that is the most comfortable. It also takes practice, practice, practice.

The sex shop ones are great for therapy, and I would recommend them for that, but you can't really use them for sex.

Also, There is a guy in Ann Arbor MI, who has taken the art of pumping to new heights. He has invented a foam penile sleeve that solves all the problems of testicles getting sucked up and suction and getting your pubes yanked out. (BUT still shave/trim your pubes to 1/8 inch at the longest. Shaving is best.) Go to my website and look at the pumps page for more info. He sent me a penile sleeve. I showed it to a sex medicine DR who was totally impressed with it.
Paul
www.franktalk.org
www.franktalk.org ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!


Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 1/23/2010 9:35 PM (GMT -6)   
Why the heck don't our doctors/surgeons give us these tools as part of the surgical costs rather than have us slink around in sex shops (adult stores) for a tinker toy version of a pump?

When my wife and I were first introduced to all this talk about shots, pumps, drugs by my initial urologist I darn near fainted. Maybe it was too much information at the time. After four months though, those things are starting to interest me because so far, zip, zero nada downstairs as far as erections. Not even so much as a twitch.
Age: 62
Pre-op PSA: 4.1

Post-op pathology:
Gleason grade: 3+4=7, present in both lobes, at least 1.1 cm, and occupying less than 5% of prostate by volume. pT2c NX MX
No lymphatic/vascular invasion present.
Seminal vesicles and extraprostatic soft tissue free of tumor.
Inked margins are free of tumor.
High grade prostatic intraepithelial neoplasia is present
Robotic RP: Sept. 15th, 2009 1 day in hospital, cath out on 9th day
Post-op PSA: at 4 weeks --> .04 (undetectable)
ED: Improvement is very slow to non-existent. Doc has not put me on ED drugs yet.
One pad for the first six weeks. Two pairs of underpants now just to play it safe.
Surgery: Dr. Jim Hu. Brigham & Women's Hospital, Boston


kreplerfp
Regular Member


Date Joined Oct 2008
Total Posts : 56
   Posted 1/24/2010 8:37 AM (GMT -6)   
I couldn`t agree more with you. My Dr. after my surgery didn`t really inform us at all about recovery. He said start taking 5 mg viagara and give it a while and everything will be fine. They make it all seem so easy for us, and for most of us its not. I have to make an appointment and have to wait 6 months to go to a clinic to help me learn about ED rehab and to learn about injecting myself. I live in southern Ontario Canada. If there are any PC patients in our area out there, it would be great if they could let me know about clinics in there area to learn about what is the best mix to use and how to learn to inject yourself without the fear of doing wrong.

Thanks Fred
Diagnosed Feb 08
 
PSA 6.3
gleason 3+3
T2C
first biopsy 1 of 10 needles positive
surgery Sept 18 08
bone scan negative
evidence of sinus histiocytosis?
involvement of the margins identified at right and left apex and right anterior surface
also perineural invasion
no extraprostatic extention
no seminal vesicle invasion
tumor cells aggressive features of moderate to severe pleomorphism
1st PSA nov 08 undectable
kept left side bundle of nerves but lost some of the right side bundle
also had laser surgery in July 2008 to save eye sight from glaucoma hospitalized twice for kidney stones  in summer of 2008


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 596
   Posted 1/24/2010 4:28 PM (GMT -6)   
The head of sexual medicine at Mt. Sinai told me that there are NO classes, chapters, instruction - anything on ED that doctors get in med school. So, virtually all doctors have no clue what to do about ED. The know the drugs, pumps, injections, etc, but they are not equipped to discuss them. Even urologists get just the clinical treatment.
I even asked one doc if he had ever tried a pump. He laughed. I told him there are tons of tricks to getting it right. He was interested and sort of grateful.

then, there is the sad truth, that doctors, being normal guys too, probably have some pretty complex issues and feelings about ED themselves. They are men, and without special training in ED are also confronting their own mixed feelings about it. I don't blame them. But it shows a huge gap in the whole medical community about treating ED. We wonder why men don't talk about it with their doctors more? The docs have a hard enough time on their own! LOL.

This is basically the reason why my life has now been taken over with the world of ED. I didn't mean for this to happen - it took me over. I sure did not go seeking it!
Paul
www.franktalk.org ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 1/24/2010 4:50 PM (GMT -6)   
I was prescribed the Osbon ErecAid by my ED dr, not my urologist and only a small portion was not paid by my drug plan ( I think $50)

Honestly I doubt I could ever use the VED for intercourse, it is cumbersome and the ring can only stay on a short period of time.

Your best bet is to refine the Bimix/Trimix injections, that will get you the best performance. The pain you are feeling may be incorrect injection protocol, I have been using Trimix now for almost 5 months, and it never hurts, 100% success rates every time now that I have the procedure perfected and the dosage dialing in
Stats:
Age: 52
PSA (2008)=1.9
Biopsy on Jan 09, 2009
One (1) out of twelve (12) cores was positive, plus external nodule found
Gleason Score = 3+3
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, under .0

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