catheter back in 2 days after taken out-unable to urinate extreme pain

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Hortonswho
New Member


Date Joined Dec 2009
Total Posts : 8
   Posted 2/27/2010 11:19 PM (GMT -6)   
Hi All,
I am writing on behalf of my husband. We are 9 days post RRP. He was doing ok but not great. They took the catheter out and he was fine for one day. The very next day he had quite a bit of blood in the urine. we called the doctor and they confirmed that it was normal. That night (last night) he awoke at 2am....in horrible pain. It was unbelievable. I rushed him to the emergency room. The catheter is back in. They said a blood clot blocked the passage of urine. He is exhausted and sore today with a low fever.
Honestly, I am looking for someone to assure us that this is normal.
It was simply horrific. He was in so much pain he couldn't speak.He has been so stoic through everything, never complaining. I kept telling them in the emergency room it had to be unbearable because it is the first time he truly complained about anything.  Now I am scared to death of them taking out the catheter and experiencing this again.
Your thoughts and help are so appreciated!
Hortonwhos wife

Diagnosed at age 46



9/09 PSA 5.7 DRE negative

10/30 PSA 7.1 referred to Urologist

12/09 Biopsy 2 of 12-LLM Cancer GS 3+4 20% involved and LLA Cancer GS 3+4 30% involved

02/18/10 Robotic Laparoscopic Radical Prostatectomy (Bi-lateral nerve-sparing)

02/24/10 - Post-surgery pathology report shows cancer was organ-confined, margins clear.


Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 523
   Posted 2/28/2010 12:49 AM (GMT -6)   
Hortonwhos wife, I had a terrible experience when the catheter was first removed post-surgery that involved going to the E-room via ambulance. It ended up being an ileus (total paralysis of the digestive system). It was very painful, but unrelated to what your husband experienced. They put the catheter back in, and it took me several more days before I had it removed again. I was terrified that the same thing would happen when it went out. It ended up being OK, after my digestion restarted. My surgeon was absolutely wonderful, she was available to me to support me through the troubles I had afterwards.

I share my experience to let you know that sometimes things can go wrong, but they do eventually get righted. My main concern with your hubby would be the fever - I would think that might imply some infection? I am sure your doc is on top of it. It is rare that the sort of thing that he or I went through with this surgery happens, but it does happen. Often it is not a direct result of the surgery per se, but a reaction of your body to the trama of major surgery (that minimally invasive surgery still is). I would recommend staying on top of the fever - let your doc/nurse know if it stays and how it progresses.

To sum up, no, I won't reassure you that what your hubby experienced is normal, but I expect that he will get through it OK. I had a significant amount of clotted stuff coming out in my urine after the surgery, but it never caused a blockage. It sounds like here at the beginning, he had more than the normal amount of clots coming out. If the amount decreases with time (and gets browner, meaning it is not fresh blood), then you should be OK. Don't worry too much, and keep in mind that the numbers they give you to call are OK to call if you get too concerned. Depending on the situation, sometimes they'll tell you to come in, sometimes they'll just tell you to watch how things go.
Hope I helped.
Jeff
Gleason, 3+4; PSA, 7.9
Robotic Prostatectomy, March 2008 (Age 48 then), nerves both sides spared, post surgery analysis confirmed 3+4 Gleason,
pT2c, prostate 60.2g, margins: negative; perineural invasion: present; lymphatic invasion: present; 3 lymph nodes removed, clear; seminal vesicle invasion: absent; Gleason 4 comprises 5-10% of carcinoma
PSA consistently <0.1 since surgery until Oct 09, 0.1; retested Oct 09, <0.1,
Jan 10, 0.2
retest Feb 1 confirmed 0.2
CT scan, bone scan Feb 10 both clear


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2066
   Posted 2/28/2010 3:58 AM (GMT -6)   
Hortonswho
(Welcome to HW)
What a terrible time this must have been for you both. So well done for coping.
Well done for taking him to ER.
This episode reinforces a general tip at HW to get medical help etc, and not just worry about things.

I think that those of us who have had the operation have ALL had blood and/or blood clots in our urine, you husband's problem would simply appear to have been due to the size of the blood clot.

Bladder infections are common enough anyway. A blocked bladder very quickly results in problems such as fever so that aspect is also "normal" your husband's situation will have of course felt worse for having occured so soon after surgery involving that area.

If you are worried that it will happen again (you might for instance be thinking that there is another big clot in there) then again it is a case of asking the doctors what they can do to help. I have an idea that there is something that can be used to dissolve clots or flush the bladder.

I think the first thing, however is to take things quietly and make sure he gets rid of that fever.

Best wishes
Alfred

BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1821
   Posted 2/28/2010 5:16 AM (GMT -6)   
Although it is difficult try to relax about it. A tough and frightening experience but now you know the cause. Quite a few members ( including myself) had urinary problems, usually small obstructions or urinary infections (the passage to your bladder is now wide open). Tell him under no circumstances to be stoic............the sqeaking wheel gets all the attention. Congratulations on the post surgery pathology.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01
PSA August 09 (2 year mark), <0.01
PSA December 09 <0.01

My Journey: www.yananow.net/Mentors/BillM2.htm


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1785
   Posted 2/28/2010 7:22 AM (GMT -6)   
Horton's Wife, sorry to read about you and your husband's horrible experience. My husband passed a fair number of clots as well but only for the first couple of days while the catheter was in. One night, while still in the hospital, I had to stay with him and walk him up and down the hallway to get the clot to pass through (it did). He didn't say anything about pain but had a terrible sense of his bladder backing up...he definitely was in a panic mode.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (single small EPE in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009- 0.1, September 0.3, October back to 0.0, December 0.0. Thank you God!


In This Together Wife
Regular Member


Date Joined Dec 2009
Total Posts : 135
   Posted 2/28/2010 8:10 AM (GMT -6)   
Welcome Horton's Wife.  Wow, what an awful time for you.  It is so scary when our "for the most-part healthy, and non complaining men" have an issue come up.  Sounds like you handled it right and got some good ideas from others here.
Please keep us posted.  Will be praying for smooth road of recovery for you both.
CareBear
(Bear's stats) Age 49
 8-4-09    Family Practioner for back pain  PSA 4.9
8-20-09  Consult with urologist                PSA 4.89
9-2-09    Biopsy          3 cores positive 7% 3+3 (6) gleason
11-13-09 DaVinci
11-23-09 Cath removed  Path report cancer contained neg. margins
Feb 2010 wil be followup PSA


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 24007
   Posted 2/28/2010 10:40 AM (GMT -6)   
Boy, this is one story that brings back bad memory. I feel so sorry for your husband. It's almost a repeat of what happened to me. I was on the original catheter for 30 days after surgery. It was taken out, almost nothing every came out, it was late in the day. Went to bed, woke up in severe pain, as by then, I had total blockage. As soon as my uro was open, my wife rushed me there, and of course, they installed a new cath. Its hard to explain the pain to someone when you can't urinate at all. Your bladder is full, is backs up to the kidneys, and besided the feeling of wanting to explode in the bladder, the pain travels up your back and through your hips. You will either panic, or keep having feeling of severe panic, you think you are going to die, pain levels can easily hit 9-10 if you are full enough. I found pacing back and forth was remotely less painful than sitting while waiting. It's the one time you are glad to see a catheter being inserted into your penis, you would do anything to relieve the pain. Once it gets to the bladder, and urine starts to rush out, the pain abates almost as quickly as it started. Once emptied, you feel like you will live another day. Dramatic account? Not really, been there done this too many times.

The second time they took it out, on a Friday, Uro closed early. I didnt make 4 hours on my own. By the time wife got home from work, we rushed to local ER, only 2 blocks away. Between waiting and how ineffecient they were at this little hospital, took another 3 1/2 hours of sheer pain and hell. Even they talked by phone to my Uro with specific instructions on what size foley to use and how to thread it since I was so soon from surgery, they did it all wrong which caused me even more pain and agony. This was a week before Christmas.

That catheter stayed in a month, as I was not going to have my entire Christmas ruined by any more catheter attempts, and I was so sore from my surgery.

I will add, that my blockages had nothing to do with passing clots or debris, that is uncommon, but not unheard of. Mine are caused by strictures and closings at my bladder neck.

I can relate to what your husband went through, I hope and pray he doesn't have to repeat that episode. I write this as I am still on my 12th catheter 16 months later, awaiting Tuesday 5th surgery to remove still another stricture or blockage.

Good luck to the both of you.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


Hortonswho
New Member


Date Joined Dec 2009
Total Posts : 8
   Posted 2/28/2010 2:11 PM (GMT -6)   
Hi All,
I can't fully explain how much your support means to us. We are feeling slightly overwhelmed by this.
He is in such good shape otherwise....he runs and takes good care of himself. The doctor said that and his age factor (46) should make his recovery speedy. Instead his blood pressure dropped dangerously low, he had difficulty breathing, and had to stay in the hospital longer than expected. Now this. It was not what we expected at all.
Today he seems a bit better energy wise. He wants to try going for a walk...but has pretty bad rectal pain...which I think is to be expected. I am turning into an internet junkie trying to find answers to all of this.
The only comfort I am getting is from this site.
"Purgatory"....it truly helped to hear your story. He said he has never felt pain like that before and yes it does sound dramatic but it isn't. I thought I was losing him. Though I am saddend to hear of your pain I am thankful you shared your story. It also makes me wonder if this is more than a blood clot. Where the strictures and closings at my bladder neck due to the surgery?
Im_Patient" hearing your story helped too and your questions about infections are helping me form the questions I need to ask the doctor tomorrow.
Hearing "English Alf" and "In this together wife" tell me I did the right thing helps too. I was so scared.
"Billy mac" and "Sephie" I will encourage him to share when it is hurting. He doesn't always have to be so tough.
We have 3 daughters (17, 14 and 9) I think he is trying to be upbeat so they don't worry more than they already are.
Again!!!
Thanks so much everyone for your willingness to share and to help.
This isn't a path I would want for anyone, but I am thankful as we go down it we have people to turn to.
Diagnosed at age 46



9/09 PSA 5.7 DRE negative

10/30 PSA 7.1 referred to Urologist

12/09 Biopsy 2 of 12-LLM Cancer GS 3+4 20% involved and LLA Cancer GS 3+4 30% involved

02/18/10 Robotic Laparoscopic Radical Prostatectomy (Bi-lateral nerve-sparing)

02/24/10 - Post-surgery pathology report shows cancer was organ-confined, margins clear.


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2602
   Posted 2/28/2010 2:37 PM (GMT -6)   
You make me cross my leags just thinking about the pain.

On of the standard instructions from the guys on this side is drink, walk, drink. The more he can drink, the more he will dilute the urine, and dissolve clots.

Hopefully, it was just a big clot, and not a sign of something like David has experienced.

Best of luck !
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 24007
   Posted 2/28/2010 4:06 PM (GMT -6)   
Goodlife, I wouldn't want my twisted journey to be wished on anyone. Your advice was good, if it's clot and debris related, very common after our kinds of surgery, then flush flush flush by drinking water water water, that's the best way to get all that nastiness cleared out.

When I have had to deal with the literally hundreds of bladder spasms over the past year or so, the only consulation I ever got was from a nurse that was tending me, reminding me, that no matter how bad it hurt, they wern't going to cause any real physical damage, because the bladder is one of the strongest and thickest sets of muscles in the human body, and it can withstand a lot. Didn't make the pain hurt any less, but at least when I was going through one of them, I knew it wasn't going to kill me.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 in at the same time, 2/8-Cath #11 out - 21 days


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 659
   Posted 2/28/2010 6:50 PM (GMT -6)   
Goodlife,

I had the same thing, day after one of David's experiences, as I recall comparing notes. I remember my wife driving me to the emergency room, and as the pain increased, it seemed like every little noise was tremendously loud, and every little bump in the road hurt so much that I held myself off the car seat for the whole trip. In my case, it might have been a clot, but might also have been that the tissues were still a bit irritated and had swollen shut. When I had the catheter removed a week later, they had me take ibuprofen to keep the swelling down. I asked if I could self-catheter in case I were to swell shut again. But they said that wasn't a good idea since I'd be poking into healing tissue. Anyway, I was fine the second time, lucky for me.

In retrospect, I realized that since it was around 2 or 3 am, and there was no traffic, it must have been very quiet. Could have been a lot worse, if it had been daytime and lots of stop and go traffic.

The second time, they did xray first. Forgot what this was called, but they inject liquid up the catheter, and you can watch it on the screen to see if the plumbing is OK. Fun to watch, if a bit weird, but it was a little uncomfortable.

DJ
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)
4/23/09, 07/30/09, Oct 2009, Nov 09, Feb 10 still undetectable (<0.01)!


Hortonswho
New Member


Date Joined Dec 2009
Total Posts : 8
   Posted 3/2/2010 11:37 AM (GMT -6)   
Update: My doctor told me yesterday that he would like me to keep the catheter in for a week or so before attempting to take it out again. The extra time should alleviate the swelling and bleeding. There is less blood in the urine today. I am praying the plumbing will start to work better the 2nd time around.
Diagnosed at age 46



9/09 PSA 5.7 DRE negative

10/30 PSA 7.1 referred to Urologist

12/09 Biopsy 2 of 12-LLM Cancer GS 3+4 20% involved and LLA Cancer GS 3+4 30% involved

02/18/10 Robotic Laparoscopic Radical Prostatectomy (Bi-lateral nerve-sparing)

02/24/10 - Post-surgery pathology report shows cancer was organ-confined, margins clear.


In This Together Wife
Regular Member


Date Joined Dec 2009
Total Posts : 135
   Posted 3/2/2010 12:27 PM (GMT -6)   
Thanks for the update!
CareBear
(Bear's stats) Age 49
 8-4-09    Family Practioner for back pain  PSA 4.9
8-20-09  Consult with urologist                PSA 4.89
9-2-09    Biopsy          3 cores positive 7% 3+3 (6) gleason
11-13-09 DaVinci
11-23-09 Cath removed  Path report cancer contained neg. margins
Feb 2010 wil be followup PSA


Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 523
   Posted 3/2/2010 3:20 PM (GMT -6)   
Let's hope this trend continues. Sounds like you have a great, cautious doc, and the next time it comes out you will be fine. At least for me, having the catheter in wasn't nearly as bad as I thought it was going to be.
Jeff
Gleason, 3+4; PSA, 7.9
Robotic Prostatectomy, March 2008 (Age 48 then), nerves both sides spared, post surgery analysis confirmed 3+4 Gleason,
pT2c, prostate 60.2g, margins: negative; perineural invasion: present; lymphatic invasion: present; 3 lymph nodes removed, clear; seminal vesicle invasion: absent; Gleason 4 comprises 5-10% of carcinoma
PSA consistently <0.1 since surgery until Oct 09, 0.1; retested Oct 09, <0.1,
Jan 10, 0.2
retest Feb 1 confirmed 0.2
CT scan, bone scan Feb 10 both clear


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 24007
   Posted 3/2/2010 4:21 PM (GMT -6)   
Horton, good advice from your doctor. In my experiences with this, the extra cath time, annoying as it is, is much better to give the entire area a chance to heal while keeping you open. Good luck my friend

David in sC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 3607
   Posted 3/2/2010 5:04 PM (GMT -6)   
Just reading your post made me need a pain pill! Ouch!!!! I agree with David. As much as we hate the tube it is better than the pain with. Hope you get to feeling better ASAP.

Cajun Jeff
AGE:58, 57dx. PSA 5.4
Biopsy: 9/08 Gleason 3+4=7
open RP: 10?08 Nerve sparing. Path Report : GS 3+3=6 Stg pt2c margins clear
Cath for 10 day. Dry day after removal of Cath
PSA @ 3 months <0.1
6 months <0.1
9 months <0.1
12 months <0.1
16 months <0.1

ED Started VED at 3 months, pills followed VCL none did much, tried MUSE at 9 months (YUCK) Hated it. 15 months out injections Caveject (succecc)


SteveNYC
New Member


Date Joined Jul 2012
Total Posts : 17
   Posted 7/26/2012 1:25 PM (GMT -6)   
I had a da Vinci prostatectomy performed a little over a week ago and had my catheter removed yesterday. However I was unable urinate and was advised to self-cath to induce a stream. I attempted this with limited success - I couldnt get it to the bladder but the cath seemed to create enough pressure so that some of the urine flowed out. I went to my URO's office this morning and they also couldn't get the cath into the bladder, so they arranged for me to go to the ER today to have a a smaller reinserted. This was thankfully done.

They suspect that swelling is the culprit. As someone mentioned above, the pain of this experience is such that you'll gladly allow someone to insert a tube into your penis or even do it yourself. I thought I was going to explode. I bore the pain of the surgery recovery with a handful of Tylenol only, so I'm not a drama queen.

I'm re-cathed now for another week, but am terrified that it's some bizarre scar and not swelling that is the cause. I'm praying a lot right now.


Steve, aged 48.

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 3980
   Posted 7/26/2012 1:58 PM (GMT -6)   
Hey Steve - you darn Yankee...welcome to the site.

I had my cath in for five weeks... Each week I had a "cystogram" done... It's a video type of x-ray to determine if I was leaking... You should ask your URO about it.
Age 57 - 5'11" 215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6
06/25/08 - Da Vinci robotic laparoscopy
11/15/11 - 42 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.

"Lord, I seek your wisdom and guidance in making me the person my dog thinks I am."

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 24007
   Posted 7/26/2012 2:43 PM (GMT -6)   
Steve in NY, you might want to start a new thread, you attached to a two year old thread and it might get lost in the shuffle.

Welcome here. I know all about catheters, as my original one was in for 63 days. THen for nearly two years, I had constant stricture problems, mostly related to over-scarring. I was on 21 caths altogether, and finally was on a suprapubic catheter for 51 weeks, until I underwent a bladder by-pass surgery, leaving me with a stoma (hole) in my side, which I now urinate into a plastic holding bag, and still have to hook up every night to the large catheter bag. Its no fun.

There is no pain quite like that of being blocked up and not being able to pee. Your doc may need to go up with you with a scope, and look around, to make sure that you are not scarring up or having more serious stricture issues like I did. Often, the blockages are right at the bladder neck. In many cases, they can cut away the scarring, or dialate your urethra and open it up.

Good luck, and let me know how that goes. You are preaching to the choir with me on this subject.

David in SC
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incont & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA still rising
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries
Member of Prostate Cancer & Chronic Pain HW Communities Since 10/2008
“I live in the weak and the wounded” – Session 9

SteveNYC
New Member


Date Joined Jul 2012
Total Posts : 17
   Posted 7/26/2012 5:50 PM (GMT -6)   
Thanks, Steve and Dave.
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