Post Prostatectomy Penis Pain

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Sunbird
Regular Member


Date Joined Apr 2008
Total Posts : 127
   Posted 3/7/2010 11:51 AM (GMT -6)   
I underwent open prostatectomy on February 8th.  Following surgery, my scrotum swelled to the size of an orange.  Eventually, the swelling went down, but I continue to have groin pain.  Last Wednesday, I developed a new painful sensation in my penis that seems to be exacerbated by getting in and out of a chair or bending over.  I guess you could best describe the pain as a stinging sensation.  I decided to visit the local VA Hospital for blood labs and a urine check.  I don't have the results of those tests, but the emergency room doc prescribed doxycycline 100 mg, and I've been taking it since last Thursday with no improvement in  penis pain.  I'm beginning to wonder if stretching of the urethra is causing the problem, and maybe getting in and out of a chair or bending over is actually stretching a taut urethra to some degree.  Funny that this pain would develop over 3 weeks out of surgery.  I have a strong stream, no fever, no discharge, etc.   Anybody else experience penile pain after surgery? 
1996, Age 48, Stage III Colon Ca, Colon Resection followed by 18 chemo treatments.
 
2000, Colon Ca Metastasis to upper left lung lobe.  Lung lobe surgically removed.  24 chemo treatments scheduled.  Took 1, declined the rest.
 
9/08 PSA is 2.8, 12/08 PSA is 4.56??  Chalk it up to prostatitis due to urinary retention after Nissen Fundo Surgery.  VA docs prescribe 30 days of Septra.  Prostate feels normal.  PSA hovers around 4.1.  VA docs want prostate biopsy but can't seem to get me into the schedule.  Continue through Spring and Fall of 2009 thinking I have prostatitis.  Bacteria cultures are always neg.  PSA drops to 3.1 10/09.
 
12/09 Prostate Biopsy performed
3 of 10 cores positive, 5%, 25%, & 35%, 3 + 3= Gleason Six with perineural invasion.
 
Doc wants CT Scan due to prior Colon Ca. Findings: "The seminal vesicles are irregular & there is nodularity in the periprostatic fat such that local extension cannot be excluded.  Shotty lymph nodes in both groin measuring 2.3 cm."
 
Doc wants Endo-rectal MRI (OUCH!) Findings: Mild central zone BPH, no discrete focus of carcinoma is identified, no evidience of invasion into the periprostatic fat or seminal vesicles.  Normal size iliac chain lymph nodes.
 
2/08/10 Open RP surgery.  Findings: Gleason Six upgraded to Seven.  3 + 4, Stage pT2c, Bilateral w/perineural invasion, No pos lymph nodes,  margins uninvolved, no extraprostatic extension, no seminal vesicle extension,  39 grams, blood loss 1200 ml (didn't want a transfusion & didn't get one) nerve bundles spared bilaterally.  current age-61


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 659
   Posted 3/8/2010 12:42 AM (GMT -6)   
Sunbird,

My experience is different, but there is some similarity. I had robotic rather than open, and a month later, there was no particular pain, most of the time. Except, I was lucky enough to be able to have erections, but as I hit around 90%, I got a sharp pain in my penis. The doctor and nurse said it would lessen with time. It is now a year later, and I stilll have the pain, but it is noticeably less. My picture of the process is that the urethra gets stretched, and after a certain point, it hurt. But that was the only stretching that hurt; I have the usual range of motion for everything else as far as I can tell.

DJ
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)
4/23/09, 07/30/09, Oct 2009, Nov 09, Feb 10 still undetectable (<0.01)!


marke
New Member


Date Joined Feb 2010
Total Posts : 4
   Posted 3/26/2010 8:22 PM (GMT -6)   
I'm having a similar problem. I'm 7 weeks post RP. I'm still getting perineum pain when sitting for a while. I will also occasional get a sharp pain on either side of the base of the penis. At the same time my penis stiffens a bit and gets rigid but does not really grow in length. The pain will subside after a few minutes. It is not excruciating but any pain there freaks me out. It almost feels like it might be radiating from somewhere in side me, if you get what I mean. I asked my doc about this and he says that along with the perineum pain this is common and will eventually go away.

I have searched the internet but it does not look like this is very common. I would feel a whole lot better if I knew some others guys ran into this and could assure me it will eventually go away. I have also tried having an erection but nothing. The doc says its too early, the nerves need more time to heal.

56, PSA was 6 prior to surgery, Gleason 7 (3+4) prior to surgery, 7 (4+3) post surgery pathology. Good surgical margins and last PSA test was undetectable. Still incontinent but it does seem to be getting better.

Mark

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 24306
   Posted 3/26/2010 8:40 PM (GMT -6)   
I had open surgery, and had lots of problem with a variety of penile pains post surgery. My surgeon always told me that they would fade away eventually. It hurt on and off for a good six months after surgery, then it was pretty well gone. After I recently went through salvage radiation treatments, I have had lots of penile and rectal pains, my radiation ended 4 months ago, and it still bothers me most days. Hoping it too will fade away in the future.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, Caths #13 & #14 same time, 3/6 Cath #13 out - 4 days


Sunbird
Regular Member


Date Joined Apr 2008
Total Posts : 127
   Posted 3/26/2010 8:50 PM (GMT -6)   
Marke,

I don't know if the pain you're experiencing is similar to the pain I wrote about on March 7th, but my pain has left me. It wasn't an infection, just residuals of surgery. I'm doing fine now, and I'm back to riding my bicycle daily.
1996, Age 48, Stage III Colon Ca, Colon Resection followed by 18 chemo treatments.
 
2000, Colon Ca Metastasis to upper left lung lobe.  Lung lobe surgically removed.  24 chemo treatments scheduled.  Took 1, declined the rest.
 
9/08 PSA is 2.8, 12/08 PSA is 4.56??  Chalk it up to prostatitis due to urinary retention after Nissen Fundo Surgery.  VA docs prescribe 30 days of Septra.  Prostate feels normal.  PSA hovers around 4.1.  VA docs want prostate biopsy but can't seem to get me into the schedule.  Continue through Spring and Fall of 2009 thinking I have prostatitis.  Bacteria cultures are always neg.  PSA drops to 3.1 10/09.
 
12/09 Prostate Biopsy performed
3 of 10 cores positive, 5%, 25%, & 35%, 3 + 3= Gleason Six with perineural invasion.
 
Doc wants CT Scan due to prior Colon Ca. Findings: "The seminal vesicles are irregular & there is nodularity in the periprostatic fat such that local extension cannot be excluded.  Shotty lymph nodes in both groin measuring 2.3 cm."
 
Doc wants Endo-rectal MRI (OUCH!) Findings: Mild central zone BPH, no discrete focus of carcinoma is identified, no evidience of invasion into the periprostatic fat or seminal vesicles.  Normal size iliac chain lymph nodes.
 
2/08/10 Open RP surgery.  Findings: Gleason Six upgraded to Seven.  3 + 4, Stage pT2c, Bilateral w/perineural invasion, No pos lymph nodes,  margins uninvolved, no extraprostatic extension, no seminal vesicle extension,  39 grams, blood loss 1200 ml (didn't want a transfusion & didn't get one) nerve bundles spared bilaterally.  current age-61


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2087
   Posted 3/27/2010 2:46 AM (GMT -6)   
What Marke describes sounds very similar to what I experienced felt.
I rechecked the notes I made at the time and found a comment two weeks after I saw the robot that says that I had a lot of pain at the base of my penis and that no chair was comfortable to sit in.
It went away, why I don't know, but I tried to do a lot of walking, and when I wanted to rest I lay down. I think I had also been trying to reduce the amount of paracetamol I was taking from 4 a day to 2 a day so simply went back to 4 for a few more days.
Alfred

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 2720
   Posted 3/27/2010 11:28 AM (GMT -6)   
Penile pain is part of the pkg of RRP, I am 5 mos post op and still have a tinge of pain, when doing #1. Earlier I would occasionally get the sharp shooting pain out of nowwhere. If you are still concerned talk to your surgeon, or uroligist. My surgeon explained it this way," post op its a mess in there, and the pain has to go somewhere".
age 66 First psa 4/17/09 psa 8.3, 7/27/09 psa 8.1
8/12/09 biopsy 6 out of 12 pos 2-70%, rest <5% 3+3
10/19/09 open rrp U of W Medical Center, left bundle spared
10/30/09 catheter out. continent from the jump.
pathology- prostate confined, only thing positive was the report.everything else negative
9% of prostate affected. gleason 3+4, I suppose thats a negative
After reading pathology myself, gleason was 3+4 with tertiary 5, 2-3 foci That is a negative, but I am a positive !!
Ed an issue but keeping the blood flowing with the osbon pump
8 week psa 0,0

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