AMS800 Artificial Urinary Sphincter

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stxdave
Regular Member


Date Joined Nov 2008
Total Posts : 65
   Posted 4/26/2010 11:18 AM (GMT -7)   
On April 20th I had the AMS800 Artificial Urinary Sphincter installed. It is due to be activated in early June. At present I am doctoring an ugly scar on my scrotum and still enduring a persistent incontinence. I was told to be "resourceful" in keeping my incision dry although I am still leaking uncontrollably.

I am not complaining because everything seems to be healing as I expected. I can keep the incision clean. I can't keep it dry.

Is there anyone here who has experience, or knows someone with experience, with this device ?
Dx'd 1999, Age 60, PSA 43, Gleason (3+4=7), T3c
42-3d EBRT w/Lupron/Casodex for 24 months.
July 2001 - Intermittent ADT. Lupron only, MDAnderson biopsy revised Gleason (4+5=9).
March 2007 - Diminishing returns with Lupron, Prostate biopsy (5+4=9) in unradiated lobe.
August 2007 - RRP and bilateral orchiectomy. PSA <0.1
99% continent immediately
Sept 2008 - PSA 0.45, Nov 2008 - PSA 0.67,
Dec 2008 - Resume Casodex, Stricture in bladder neck requiring surgical removal. 99% incontinent immediately.
Feb 2010 PSA 2.8 Added Avodart, More strictures requiring surgical removal. Artificial sphincter scheduled in April or May.


Wigs
Regular Member


Date Joined Mar 2009
Total Posts : 89
   Posted 4/27/2010 2:43 PM (GMT -7)   
stxdave,

I had the AMS800 installed in May 2009 and was totally incontinent until it was activated in July 2009. I was using 4 diapers with 6 -8 pads in a 24 hour period. I didn't do anything different. Anytime I changed a pad or diaper, I would wipe off with an antiseptic wipe.

Wigs
Diagnosed @ age 46 - September 1997
PSA 5 / Gleason 3+3
Seed Implant - January 1998 @ Trident Hospital, SC
PSA 2.4 - July 2007
PSA 2.7 - July 2008
PSA 3.0 - November 2008
Diagnosed @ age 57 - December 2007
Gleason 4+3
Salvage Prostatectomy & Colostomy - March 2008 @ MSKCC, NY
Suprapubic cathether installed - July 2008 @ Cleveland Clinic, OH
Urethral-Rectal Fistula Repair - August 2008 @   Cleveland Clinic, OH
PSA < .03 - Aug 2008
Penile catheter removed October 2008
Suprapubic catheter removed December 2008
Colostomy Reversal - January 2009 @ Cleveland Clinic
Urethral stricture removed - January 2009 @ Cleveland Clinic
(Total incontinence - 4 diapers & 6 - 8 pads per 24 hour period)
PSA < .03 - Jan 2009
AUS implant - May 2009 @ Cleveland Clinic
PSA < .03 - May 2009
AUS activated - July 2009
(Wearing a light pad daily.)
PSA < .03 - July 2009
Penile Implant - December 2009 @ Cleveland Clinic
PSA < .03 - December 2009
Penile Implant activated - February 2010
PSA < .01 - April 2010 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 24401
   Posted 4/27/2010 2:58 PM (GMT -7)   
dave,

good luck with your healing from the device. i am sure the keeping it dry and clean is much easier said than done. i hope in june when its activated, it will change your life.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 4/23 put in


tallguy
Regular Member


Date Joined Oct 2009
Total Posts : 399
   Posted 4/27/2010 6:31 PM (GMT -7)   
Looks like you are a short way to success. Dealing with the hygine issue will be a bother but hopefully a short term problem.
 I am headed to the AUS also sometime later this year. Question, it sounds like the incision was on the scrotum. I was under the impression the incision for the AUS is in the area between the scrotum and anus. Can this be done more than one way? I also read on the forum that someone had both the AUS and a penil implant done at the same time. My Uro does not do this and says they need to be done at different times.
64  year old male in excellent physical condition.
PSA jumped  3 to 8 in one year
pt2b NO Mx with a Gleason score 3+3=6.
DaVinci RP,  7/23/08. Tumor type: Acinar
size 5.5 cm x 5.7 cm weight: 77 gm.
Largest tumor nodule: 1.3 cm. All margins negative.
Incontinence & ED. Dry nights , no control during day.
Imipramin and detrol, Phy ther. and kegals no help.
FUDS and cystourethroscopy testing 10/09.
24 hr pad wt. 219gm. AUA sympton index 13/35=moderate
Incontinence symp. index severeity score=22
Rec. for sling surgery. Dr. does mostly InVance.
Researched and decided on either AdVance or Virtue.
Virtue sling surgery 2/3/10 NYU med center by Dr. Victor Nitti
Appeared to help but gradually returned to pre surgery condition.
Back to 3-4 pads/day, stopped drugs, plan for AUS next winter.
Latest PSA 4/1/10negative.
 


stxdave
Regular Member


Date Joined Nov 2008
Total Posts : 65
   Posted 4/27/2010 11:10 PM (GMT -7)   
It may be my incision was directly into the scrotum because I had a bilateral orchiectomy at the same time I had salvage surgery in 2007. There are no testicles to contend with, making the incision site uncontested.

I appreciate the responses.
Dx'd 1999, Age 60, PSA 43, Gleason (3+4=7), T3c
42-3d EBRT w/Lupron/Casodex for 24 months.
July 2001 - Intermittent ADT. Lupron only, MDAnderson biopsy revised Gleason (4+5=9).
March 2007 - Diminishing returns with Lupron, Prostate biopsy (5+4=9) in unradiated lobe.
August 2007 - RRP and bilateral orchiectomy. PSA <0.1
99% continent immediately
Sept 2008 - PSA 0.45, Nov 2008 - PSA 0.67,
Dec 2008 - Resume Casodex, Stricture in bladder neck requiring surgical removal. 99% incontinent immediately.
Feb 2010 PSA 2.8 Added Avodart, More strictures requiring surgical removal. Artificial sphincter installed April 20, 2010.


Wigs
Regular Member


Date Joined Mar 2009
Total Posts : 89
   Posted 4/28/2010 9:09 AM (GMT -7)   
tallguy,

I asked my doctor about doing the AUS and Implant in the same surgery. While he said that he has performed both procedures in the same surgery, in my case he felt that they needed to be separate. With that being said, it sounds like it's a case by case decision for some doctors.

Wigs
Diagnosed @ age 46 - September 1997
PSA 5 / Gleason 3+3
Seed Implant - January 1998 @ Trident Hospital, SC
PSA 2.4 - July 2007
PSA 2.7 - July 2008
PSA 3.0 - November 2008
Diagnosed @ age 57 - December 2007
Gleason 4+3
Salvage Prostatectomy & Colostomy - March 2008 @ MSKCC, NY
Suprapubic cathether installed - July 2008 @ Cleveland Clinic, OH
Urethral-Rectal Fistula Repair - August 2008 @   Cleveland Clinic, OH
PSA < .03 - Aug 2008
Penile catheter removed October 2008
Suprapubic catheter removed December 2008
Colostomy Reversal - January 2009 @ Cleveland Clinic
Urethral stricture removed - January 2009 @ Cleveland Clinic
(Total incontinence - 4 diapers & 6 - 8 pads per 24 hour period)
PSA < .03 - Jan 2009
AUS implant - May 2009 @ Cleveland Clinic
PSA < .03 - May 2009
AUS activated - July 2009
(Wearing a light pad daily.)
PSA < .03 - July 2009
Penile Implant - December 2009 @ Cleveland Clinic
PSA < .03 - December 2009
Penile Implant activated - February 2010
PSA < .01 - April 2010 
 

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