For the first time - I JUST NEED TO VENT

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Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2130
   Posted 6/3/2010 12:41 PM (GMT -6)   
Well this pain in the arse of life, PCa, has finally started to get me and my positive attitude down.

The anti stress pills are not working. The sleep aids aren't working. I am apparently suffering from some really long lasting fatigue. I have a shorter fuse about everything. I am losing weight, losing interest and losing my patience.

I HAVE ONE NERVE LEFT AND EVERYBODY KEEPS DANCING ON IT.

So I have called my Primary Care Physician ( who is also with MD Anderson) and who understands the issues of health and well being that go along with battling cancer and begged my way into an appointment this afternoon. I am leaving now.

I met with the new Radiation Oncologist last week about the spot on my femur and we have a plan in place. I am meeting with him as soon as I get back from a trip Lynn and I have planned (and I am not going to cancel it) the first week of July. I'll go through the set-up procedure and the next week we will begin 10-15 radiation treatments on the spot.

I could go on and on at this point, but you get the picture. I am just fed up and sick and tired of being sick and tired.

I'll check in after the appointment. Thanks for letting me vent. I couldn't let this out with Lynn or my son. They don't need any more to carry than they already have.

Love you folks for being here,

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 5852
   Posted 6/3/2010 12:46 PM (GMT -6)   
Sonny,

We are here - I for one have leaned on your advice a lot - time to give back, I think.

Let us know how it went -

lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 6/3/2010 1:34 PM (GMT -6)   
Vent away Sonny. We all can't be 100% positive all the time. Some times it helps me to just let it out! Keep us updated as I know you will once you start your new round of treatments.
 
Any ideas for new T-shirt slogans on this second go around? Such as Double shooting Kills the bast*rds for good ?

Larry
Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Final Path report:
20% of the prostate Involved
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear, Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0
Six month PSA - 0


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 200
   Posted 6/3/2010 2:04 PM (GMT -6)   
Vent all you need Sonny and believe it or not, we are listening, paying attention and praying for you to get out of this situation SOON! In the meantime, get yourself an old tire, put it in a place where no one knows and go there and kick the crap out of it, whenever you need to vent.
Age, only 71.
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. Negative.
Started Casodex 50mg. on Nov. 6, first pill of 30.
Got Lupron 22.5mg ( 90 day ) on  November 19.
No real side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week. Also I dont have a need to shave anymore so now I can save my 'shaving' allowance and direct it to my stash of Depends !
 
Christmas Day got my first hot flashes. Thanks Santa!
 
Open surgery done on Jan. 20th. by Dr. J. Chin at London's University Hospital.
 
Cath removel scheduled for Feb. 8th. Yes, I know,
that will be 19 days. Dr. is out of country until then.
====================================
Pathology Report:
 
Gleason Score: cannot be determined due to hormone therapy effects. ???????
Extraprostatic Extension:
present, left radial, multifocal
present, left basal, multifocal
Resection Margins:
Apical: involved by invasive carcinoma, multifocal
Bladder Neck: involved by invasive carcinoma, unifocal on left side.Other: non-tumoural prostatic present at resection margin.
Perineural Invasion: present.
Seminal Vesicle Invasion: absent
Lymphovascular Invasion: absent
Lymph Node Status: no malignancy in regional lymph nodes
Additional path. findings:
high grade prostatic intraepithelial neoplasia
 
Pathology Stage: yp T3a NO MX
==================================
Radialogist appointment was on Friday Feb. 26 with Dr. Glenn Bauman in London.
Got another Lupron 90 day shot today and he wants to start IMRT soon. CT Scan plus measure scheduled in about 3 weeks. ( march 15)
 
First PSA test since surgery on March 18th.
with the results of <0.03 !!!
 
Started a Facebook page for bikers with prostate issues at:
 
IMRT to started on May 10. Going to get 33 units.
 
.


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 265
   Posted 6/3/2010 2:08 PM (GMT -6)   
You are under enormous stress that normally you keep under the surface I bet.... I'm no doctor (no kidding) but leaking some of it out helps... I dare say that in the quiet of night I leak a tear or two thinking about my wife having to live without me and other stuff.

Good luck at the appointment.

Our best to all,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy, psa at 6th week salvage IMRT up to .4


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 3986
   Posted 6/3/2010 2:09 PM (GMT -6)   
Time to make a pitcher of lemonade yeah
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 24053
   Posted 6/3/2010 2:13 PM (GMT -6)   
Vent all you need, and if its not enough, come back and vent some more. I understand where you are coming from, my friend. That pressure has to get out some how, some way, so blow it off here.

We will always be here for you.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 1798
   Posted 6/3/2010 3:23 PM (GMT -6)   
Sonny,
Glad that you are taking care of yourself and as someone stated earlier, you are under immense pressure. It takes a toll and there has to be an outlet, or two, or three. Venting is one way, but glad you are seeing your PCP. Keep us posted.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3220
   Posted 6/3/2010 3:37 PM (GMT -6)   
Sonny,
There are plenty of pee pads here to soak up anything you want to expel. Feel free.
Jeff

Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1785
   Posted 6/3/2010 3:37 PM (GMT -6)   
Sonny, lots of broad shoulders on this forum (including my own) ... feel free to come and rest your head on them anytime you feel the need.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 3613
   Posted 6/3/2010 3:52 PM (GMT -6)   
My Dear Friend Sonny: We talked about that last week. Good move with the Dr appointment. I know there are some magic pills that will help a bit. As a counselor I fully know that we must have a place to dump the issues for just a bit. Yep almost all of us have had that Issue of snapping at the ones we love so very much becuase we can. Buddy I am all ears to you. Any time you want to vent feel free.

Great care, love, and concern to you and Lynn.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2130
   Posted 6/3/2010 4:36 PM (GMT -6)   
Oh yeah! I forgot to mention that when I got up about 4am (to pee)I almost fell over from the pain shooting out of my left knee. Don't know what I did yesterday or during the night, but it was a 8 on the scale. I have had a number of knee surgeries on both knees and know that in time I will have problems with arthritis but I ain't ready for it now. The thing has been killing me all day. Luckily I have a personal friend who is an orthopedic and just across the street from MD Anderson. Called his cell and he told me to come right over. Took some xrays and then gave me a shot in the knee. All for no charge. It's good to have friends.

The meeting with my PCP went really well. She saw the look on my face when she entered the room, sat down and told me she had no where to be and we could talk as long as I needed. Really like her and her manner.

We talked for about 45 mins. In the end she changed my previous anti-stress (the world is alright) pill and my sleep aid. She also had me go down to the lab and have blood drawn. She is running a battery of tests to see if there is something that may be contributing to my fatigue or than the fact that I am not sleeping well because of stressing over everything. Really hope she finds something physical.

I do feel a little better this afternoon and it is probably due in large part to the tremendous out-pouring of support that you guys have once again bestowed on me. Jeez but you folks are great.

So thanks once again for being here. I have said it too many times before but it remains true to today. This is a journey that I would not want to take without you folks.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1251
   Posted 6/3/2010 4:55 PM (GMT -6)   
Hey Sonny, every now and then even the blue bird of happiness has to lift its tail feathers and drop a load.

I'd be more worried about you, if you didn't.

You and Lynn remain on my prayer list.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02
PSA on April 9 less than 0.02 
 
  


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 6/3/2010 4:58 PM (GMT -6)   
Sonny, it really is hard to vent. I don't think any of us want to burden our spouses or children with how we are feeling when we are down. My 36 year old son, who I have a great relationship with, has drifted apart a little. We don't have long conversations like before. His concern I think is his fear of ending up with PCa like me, and he doesn't want to see me in any kind of pain. I use my one hour commute home each night (when I am not swearing at all the incompetant drivers on the road) to think things out and to try and get home with a good attitude. I feel your pain on the knee injury. Hurt mine April 23 and have been in agony ever since. Had xrays and a shot (didn't help). Took Ultram pain killers for a few days (helped a little), but had to stop because I started radiation and don't want to be constipated. Had an MRI and will finally see an ortho specialist on Monday. Knee surgery will sure complicate the IGRT. Hope your knee is not serious and hope you get back to your cheerful self soon. Get in that RV and take a trip! Squid.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place.
*03/11 - Bladder neck surgery. Cath #4 in place.
*03/15 - Cath #4 out. Great urine stream. Unfortunately, incontinence back to post surgery level.
*04/14 - Six month PSA - .21.
*05/15 - Incontinence basically under control.  99% dry.  Wear pad daily at work "just in case".
*06/10 - Started IGRT.   39 treatments scheduled.
 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2603
   Posted 6/3/2010 6:00 PM (GMT -6)   
Sonny,

Few of us can imagine what weight you are carrying around. If your own personal situation isn't bad enough, most of us would crumble watching our spouse suffer like yours has.

Even tho venting is a temporary relief, I believe it is one of the major benefits of Healing Well. I just haven't found the same level of comraderie on other sites.

Perhaps you may need to find a counselor of some sort who you can meet with on a regular basis to help you unload in appropriate ways and deal with the tremendous load you are carrying.

Thanks for having the trust in us to tell us what you are really feeling. We are here for you and every other guy/gal having a hard time dealing with the stress of PC.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 935
   Posted 6/3/2010 7:18 PM (GMT -6)   
Glad to realize you are human!!! You are still tops in my book. Like others have said, you have a lot of "stuff" going on right now. I know you are handling far better than I would. I gain strength by yours and other posts. Again, hats off to you. I know you have a plan and will work toward a plan to get that cancer out of you.
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2337
   Posted 6/3/2010 7:53 PM (GMT -6)   
Sonny,
You have been patient with every thing happening to you and Lynn. It is OK to vent your anger and anxiety. WE are all here to support you in any way we can. Please keep us posted. I'll send a prayer your way.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2814
   Posted 6/3/2010 8:27 PM (GMT -6)   
Sonny-
Just a simple add on to the others offering support and care - venting helps keep things on a slightly even keel - and if we are lucky , we can see the forest for the trees.... or is that a safe harbour.. whatever it is, you need and deserve a break... wishing you and your family all the best.
hugs
BRONSON

p.s. you nailed it when you described your frustration as - "I HAVE ONE NERVE LEFT AND EVERYBODY KEEPS DANCING ON IT..." - we all feel that at times, with some more frequent than we wish...
p.p.s. hugs again
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night - May 25 - 1 pad during day - 1 pad at night for security (barely needed at all) - stress incontinence at work - lifting trees and shrubs...
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/3/2010 10:04 PM (GMT -6)   

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2130
   Posted 6/4/2010 7:06 AM (GMT -6)   
Thank you all my friends for the support that has come to be the norm here at HW. HW is more than just a wealth of personal experiences, medical information learned from experience and the willingness to share with others as they begin their journey down the PCa path.

HW is and will always be a place where the medical technicalities can be put aside and the true warmth of personal support comes to the forefront.

I slept warm and comfortable last night covered by the warmth of your responses. It was a rest much needed and charged the batteries to begin anew.

Thank you for your true caring and support,

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 3613
   Posted 6/4/2010 7:15 AM (GMT -6)   
Sonny: So happy that you got some rest. Enjoyed the call yesterday. Take care my friend.

Cajun JEff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1251
   Posted 6/4/2010 9:50 AM (GMT -6)   
Glad to hear you had a good night.

Blessings Sonny, many blessings.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02
PSA on April 9 less than 0.02 
 
  


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 24053
   Posted 6/4/2010 10:35 AM (GMT -6)   
Sonny, glad you went to your PCP, and got some rest. The entire gang is here for your disposal. If you want to bounce some more off me, as I am thick as a brick, give me another call. I will try harder to have my cell phone at least in hearing range from me.

We all have our "moments", and you are entitled to yours equally. I know what you meant, the last thing we want to do, is to go off on the ones we love and care about. When I have been in extreme periods of prolonged pain, even my seams start to come apart, and I want to just lash out at anything and anyone in my path. I usually remove myself from the proximity of others, until my rational side returns.

You and Lynn have so much great family and friends that really love and care about you guys. May peace and tranquility return to your mind, emotions, and heart.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


spottydog10
Regular Member


Date Joined Dec 2009
Total Posts : 258
   Posted 6/4/2010 7:10 PM (GMT -6)   
Hi Sonny,
God only knows how tough it is for you and Lynn.
You'll be strong again tomorrow, take it easy today,
Mike
Age 51
PSA 5.5  june 09
biopsy july 09 gleason 3+3 = 6   5% and 50% in 2 of 12 cores
robotic prostatectomy nov 7 prostate weight 45gm
path report gleason 3+4 = 7 (yukk)
post op psa 22/12/09,  0.04
                    09/04/10 <0.03

no incontinence after 7 days
total ed, good erection using the pump

 


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 458
   Posted 6/5/2010 9:20 AM (GMT -6)   
Sonny,
 
Glad to hear you finally got some needed rest sometimes even that can make us feel better.
Hang in there my thoughts are prayers are with you and Lynn.
 
Jerry1
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start salvage radiation treatments on January 18th. 
Finished IMRT

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