Penile Implant the cons.?

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sonar
New Member


Date Joined Nov 2010
Total Posts : 3
   Posted 11/9/2010 10:06 PM (GMT -7)   
Hi guys I am new to this forum and on top I do not have PC but have a bad case of ED and my reason for the posting is due to what seems to be good experienced people.

I am 36 and in my early 20's after using a pump I managed to damage something which has left me with a bad case of ED.

My main problem has always been maintenance and so far:

1. Viagra - easy to bring up but lets me down in under a minute.

2. Cialis same as above

3. Muse pellets - useless - just gives me pain in corona (head)

4. Injections so far up to 20 MG but again has not risen for the occasion and gives me pain in corona

5. Levitra - first attempt 7 minutes (without touching it and keeping mind occupied with sexual material)
2nd attempt a week later same scenario 3 mins then after continuous retries it came down to 1 minute and left with real bad back ache (hardly worth it for 1 min)


Without any of these around 10 seconds before it drops.

Question 1:

The pattern with the above seems to be tolerance - the first attempt or if none of the pills not touched for a few months (6 months or so) I get better results than doing it regular. Is there any information on this ? are some people likely to build up a tolerance more than others for it to be less effective.

------------

I could try taking injection dose up then again unhappy with injecting myself and get the shakes.


So my options left are the implants

Semi rigid has quite a few downsides (pencil penis, it bursting through, not as big as it could be, concealment for things such as beach)

the pump system - silicon leaks, life span

I was told if I was to use the pump system once a year it would last a life time, right OK but this also means if a silicon leak was to occur it would take me another year to find out.

Question 2:

My question is would the people agree here that my only real option left is implants or should i still pursue the injection


Question 3:

If I went for the pump system and got active and used it once/twice a day how short would the life time become?


Question 4:
What would happen in the cases that I felt in the mood (alone) and wanted to release but did not want to pump it (to maximise its life span)

being in mid 30's you can see that to do replacements once every 10 years (if I used probably once a week) is still a lot of pain and operations


Or do I just give up being a man, since this is really the stage I am at.

Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 846
   Posted 11/10/2010 4:09 AM (GMT -7)   
An implant is very much a last resort, and before embarking on serious surgery (maybe more than one if the implant needs to be replaced), you need to be really sure that there is no prospect of getting satisfactory erections any other way.

You seem to have no trouble getting it up, but the issue seems to be keeping it up. If that is due to a venous leak, you may find adding some constriction as soon as you have a full erection will help with that -- a few office rubber bands wrapped around the base or the delicately named "cock ring".

Getting injections working properly takes a fair degree of practice and experimentation. It took me about 20 attempts with quite a few failures to master it. If you experience unacceptable aching, there are other formulations without or with reduced alprostadil (the component responsible for the ache). I used Bimix (without) and had no aching at all.

You didn't mention any recent attempts with the pump. If you haven't sworn off that for life, that is probably worth trying again, but be prepared for a bit of a learning curve with that too. Are you really sure the pump is responsible for your present problems?

There are other things you can do to improve erections and your general health at the same time. Good diet and exercise, no smoking or recreational drugs and limited alcohol are among them.

As always, the advice we give here is no substitute for seeing a doctor, in particular one who specializes in ED. Good luck.

pogmothoin
Regular Member


Date Joined May 2010
Total Posts : 84
   Posted 11/10/2010 7:48 AM (GMT -7)   
Just a word about MUSE and injections. It might be worth trying bimix, without the prostaglandin. That is the ingredient in trimix that is most often associated with pain. I couldn't tolerate trimix, but have good success with bimix. It takes a higher dose, I'm currently at 45-50 and I'm pretty happy with the results. There's a thread or two here with tips for techniques that might help. You also might want to try something like the Inject-Ease to help make injecting a little less intimidating.

lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 584
   Posted 11/10/2010 10:34 AM (GMT -7)   
Just a note of explanation.  Piano and Pogothon both referred to the ingredient that often causes aching.  Yes it is called both 'alprostadil' and 'prostaglandin'.  It is also marketed as Caverject.
 
I use bimix which has no alprostadil and have had great success.
PSA July 2006 4.7 , Nodule found
biopsy 10/06 very agressive gleason4+4=8 identified
DaVinci surgery, January 2007
Post Ob confirms, gleason 4+4=8 with no extension or invasion
no long term continence problems
post surgery PSA continues to be undetectable at 3 years
ED continues, using bimix
born 1941

sonar
New Member


Date Joined Nov 2010
Total Posts : 3
   Posted 11/10/2010 11:40 AM (GMT -7)   
Thanks guys yes it has been caverjet that I have used to will ask the the doctors for the bimix and inject ease.

After trying Levitra yesterday I got a severe back ache (amongst other side effects), the back ache is still ongoing today and I find this hardly a worth while solution for the result achieve although I did have a mild erection this morning.

I also wanted to ask :

NPT test produced weak erections. They then asked for it to be done with 100MG viagra (which whilst awake does not do much, helps in easier gain but does not last ). The results of this test produced good outcome and they said you could not ask for more.

What I found towards the morning is although awake lying in bed I would get an erection with the device on (which if you ask me, for some one who can gain erections using hands to stimulate this kind of takes away accuracy since it is a bit like using hands to keep it maintainted) but as soon as I stood up it dropped, standing up or sitting up made it both drop.

Tried this 3 times in a row before I took it off and found lying in bed seemed ok as soon as standing up/sitting up it dropped ?

Was wondering if was a common reaction to venous or is this more likely to be linked to T11-L2 and the second is S2-S4. (back nerves)

http://www.spinalcordcenter.org/manual/pdf-files/scimanual-chp17-nov2009.pdf
pg20 talks about people with spinal injury

I have been in a car crash but its not left me disabled or anything obvious but do suffer from lower back aches quite a bit

Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 846
   Posted 11/10/2010 3:00 PM (GMT -7)   
Its good news that your test went well -- it means that at least you have a good blood flow to the area. If you have suspected nerve damage, that places you in a similar situation to many of us here who have nerve damage in abundance!

If you find one of more of the oral medications give unacceptable side-effects, then of course stop taking them. We all react differently, and something that works well for some won't necessarily work for others. Continue experimenting.

I strongly recommend injections -- with a good blood flow you have a head start. Now it's a matter of finding the formulation, dose and technique that work for you.

I found injections worked well for me one month after surgery, with erectile nerves completely wiped out. However, it still took a while to master the techniques to get consistent results. I took no oral meds.

After 100 or so injections, I noticed a slight bend developing. Opinions are divided on whether injections can cause this, but as I never really liked the physical aspect of the injections, I switched to the pump, which after practice (again!) gives results almost as good as injections.

You still have a way to go. Lots of testing with injections. Try the pump again, experiment with constriction to keep the blood from escaping too soon, and you may still find an oral med has a place in the mix. I expect that something will work for you -- now it's just a matter of finding it.

sonar
New Member


Date Joined Nov 2010
Total Posts : 3
   Posted 11/10/2010 6:44 PM (GMT -7)   
Thanks for the positive advice and attitude, (I presume you understand without oral meds it was weak erections and with them things seemed ok)

I believe you mean peyronie's disease which can develop with injections. Yes to be honest with 20 when i got a slight raise I had noticed it slightly (it looked more wonky than per normal) will check out with nurse if and when I do injections next (will call them tomorrow to arrange more) and ask them to confirm and if not will be looking out for it.

will also enquire if the pumps are a good idea since initially when things went wrong it was the pump that caused it and initial doctors not much help but suggested never again.

Also for those with peyronie's disease or those suspect of it should read this:

http://www.ncbi.nlm.nih.gov/pubmed/8230513

Patient-partner satisfaction with semirigid penile prostheses for Peyronie's disease: a 5-year followup study.

Montorsi F, Guazzoni G, Bergamaschi F, Rigatti P.

Institute of Human Anatomy, Scientific Institute H. San Raffaele, Milan, Italy.

Comment in:

* J Urol. 1993 Dec;150(6):1833.

Abstract

The long-term acceptance of and satisfaction with penile prostheses were assessed in patients with Peyronie's disease and their partners. From 1985 to 1987, 50 men with advanced Peyronie's disease and associated erectile dysfunction were treated with a semirigid penile implant without additional plaque surgery. A total of 48 patients and 29 partners was reassessed at a followup of at least 60 months. Only 23 patients (48%) and 12 partners (40%) were totally satisfied with the long-term functional result and would repeat the same operation. Among the 25 dissatisfied patients (52%) loss of complementary erection resulting in a pencil-like penis, decrease in penile sensitivity, poor concealment and persistence of penile deviation were the major complaints. Of the partners 17 (60%) were dissatisfied due to poor penile girth, sensation of a cold glans penis, sensation of unnatural intercourse and dyspareunia. Eight patients (16%) chose to substitute the semirigid implant with a 3-component inflatable prosthesis. On a long-term basis, placement of a semirigid penile prosthesis for Peyronie's disease is associated with a significant patient-partner dissatisfaction rate.

PMID: 8230513 [PubMed - indexed for MEDLINE]

----------------------------------------

It seems that if it gets to that stage implants (semi rigid) seems to have 50/50 satisfaction.

I guess having this problem has made me research quite deep and get a good over all understanding but nice to talk with others and exchange views for even a better understanding.

Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 11/11/2010 12:53 PM (GMT -7)   
You can do a search on my posts & see my positives/negatives (mostly positives) for implant, but I would not know what to say about your age.  Had mine for 28 months with use of at least once per week, sometimes twice.  I wish you well in your quest.  Oh yes, since you have not had prostate removal, I'm not certain abut how much size you will lose, but will probably lose a little.  I lost 3/4". Some lost more, some less. Gene214

tedgard
Regular Member


Date Joined Feb 2008
Total Posts : 94
   Posted 11/12/2010 10:13 PM (GMT -7)   

sonar,

 

After my PC surgery and resulting ED I tried all the options (i.e.: pump, pills, shots...) without satisfying results.  I finally made the choice to get a penile implant and went through with that surgery in March '09.  This was the best choice for me and I have been very satisfied with the results.  I know that there are a some men that simply would be scared to make that choice for themselves, but I am happy I did.

 

If you wish to discuss this further and want any details in regard to what the operations was like or what the results were please feel free to let me know.  I will be happy to discuss it in whatever details you may need.

 

Sincerely,

Ted.


dhm089
New Member


Date Joined Jan 2014
Total Posts : 4
   Posted 1/11/2014 12:09 PM (GMT -7)   
I am post implant recipient (10/28/13) I am told by surgeon that my reservoir is encapsulated. he has scheduled operating on me again and said he needs anathesia to keep from hurting me as he is going to break the encapsulation. I can deflate ok when I get an automatic erection.,but can only get a partial erection. just enough to perform but not satify partner. I have read about pain from others but my pain is 24/7.I am worried that the pump is not working properly. The pain need to recognize need to urinate is now completely in my scrotum different from before.

PeterDisAbelard.
Forum Moderator


Date Joined Jul 2012
Total Posts : 4149
   Posted 1/11/2014 1:12 PM (GMT -7)   
Hello DHM089,

I've started a new thread for you so folks can say hello and tell you if they have had a similar problem.

Welcome to the forum. Sorry you need to be here but glad you found us.
60
Slow PSA rise 2007-2012: 1.4=>8
4 bxs 2010-2012:
1)neg (some inflammation),
2)neg,
3)positive 1 of 14 GS6(3+3) 3-4%, 2nd opinion GS7(3+4)
4)neg.
Mild Pre-op ED
DaVinci RRP 6/14/12. left nerve spared
Path: pT3a pN0 R1 GS9(4+5) Pos margins on rt
Start 24 mo ADT3 7/26/12
Adjuvant IMRT 66.6 Gy 10/17/12 - 12/13/12
Leaky but better, Trimix, VED
Forum Moderator - Not a Medical Professional
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