extreme fatigue after surgery/treatment

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davidg
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Date Joined Feb 2011
Total Posts : 4093
   Posted 4/5/2011 11:42 AM (GMT -6)   
did anyone else experience beyond normal extreme fatigue 2-3 months out of surgery or treatment?

I am really exhausted each and every day. I'll wake up early in the morning and go back to sleep by 10AM if I have the option.

I never slept more than 4-5 hours per night so I am not attributing this continued pattern to my exhaustion.

Someone here mentioned post traumatic syndrome.

I feel stress and mild depression might have something to do with it.

My worst thought is that I have cancer all over my body. I know, highly unlikely but after learning of my PC that thought is always there.

I haven't been able to workout consistently enough to either blame the exhaustion on it or to verify if daily exercise can energize me as it used to just a few years ago.

Magicianatx
New Member


Date Joined Feb 2010
Total Posts : 14
   Posted 4/5/2011 11:47 AM (GMT -6)   
Hi David, I had open prostate surgery in January 2010. It took 6 to 8 weeks before I felt as I did pre-surgery. But since the low-energy post surgery 6-8 weeks I am feeling better than I have in many years.
Diagnosed: June 2009
Age: 54
PSA: 8.0
Gleason: 3+3
Surgery, open Prostate: Jan. 4, 2009

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 24007
   Posted 4/5/2011 11:48 AM (GMT -6)   
davidg - i did, and still do, the results of 8 operations and 2 months of radiation in the past 2 years, plus as the results of earlier radiation and other ops for non pc cancers. i am officially dianosed with chronic fatigue syndrome, something i have to live with every day of my life since about year 2000. some days are better than others.
hopefully you will recover fully over time, most men do

david in sc
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/5/2011 11:57 AM (GMT -6)   
interesting. I actually visited the chronic fatigue syndrome forum here at HW because I wondered. What si the connection between cancer/stress/surgery and CFS?

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 24007
   Posted 4/5/2011 12:03 PM (GMT -6)   
my CFS has more to do with undergoing major radiation twice within 10 years, different parts of the body of course. The 70 gys I had in 2000, were old school wide beam radiation, and it was particually brutal, any kind of neck/throat/head radiation is very rough. at the time, my medical oncologist said i would be lucky if i could ever recovery 70% of my former energy level. that was pretty accurate estimate, and i was 11 years younger at the time. add the 11 years, another 72 gys of radiation and all the other stuff i have been through, my poor body is just plain maxed out on the stuff.

david
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,

fertree
Regular Member


Date Joined Jun 2010
Total Posts : 118
   Posted 4/5/2011 12:23 PM (GMT -6)   
It took me close to 6 months (according to my wife, I thought it was closer to 4 or 5) to get past the total exhaustion midday issue. I had no depression, no weight loss, no anything other than the extreme need for a nap because otherwise I might pass out. I would lie down, fall asleep within minutes, and be out an hour or 2. My mom had gall bladder surgery many years ago and her biggest complaint was the same 6 month exhaustion problem. I remembered that, and therefore was not concerned and never even asked the doc. I had open RP, so I don't know if Da Vinci, being less invasive, would have made a difference.
PSA 2.1 on Avodart
Biopsy: 1 of 12 cores positive >5%, Gleason 8
open RP: 05/10/2010 Dr. Gary Steinhoff, Victoria BC
Pathology: pT2c Gleason 3 (80%) 4(20%)=7, no lymph invasion, no extraprostatic extension, negative margins, tumor 5% of tissue.
Nerve bundles removed (based on original Gleason 8 biopsy)

F8
Veteran Member


Date Joined Feb 2010
Total Posts : 3211
   Posted 4/5/2011 12:24 PM (GMT -6)   
davidg -- i'm not sure what beyond normal is but fatigue has been an issue for me the whole time.
 
ed
 
 
age: 56
PSA on 12/09: 6.8
gleason 3+4 = 7
HT, BT and IGRT
received 3rd and last lupron shot 9/14/10
2/8/11 PSA <.1, T= 6 ng/dl

DaSlink
Veteran Member


Date Joined Feb 2011
Total Posts : 667
   Posted 4/5/2011 3:38 PM (GMT -6)   
I've noticed that I fatigue a lot easier. Before surgery I did a lot of heavy lifting at my job,currently unemployed. Today I used a post hole digger,dug 3 holes and installed 3 posts and I'm just wore out!. I was not like this after hernia surgery,also robotic.Back to full time work in 4 weeks!
I do use the elliptical machine at home and walk when weather permits. Could this be mental? Meeting with SRT Doc on Thursday.
Every minute you fish or ride,adds an hour to your life!

Age 52 Dx age 53 daVinci surgery
prostate volume 32 grams
Biopsy 12 cores with 7 positive
Gleason score of 7
1st PSA 38.7 10/05/2010
2nd PSA 49.9 11/23/2010
CT neg.
BS Negative
RRP on 01/25/2011
PT3a -40% involved
margin involved-Left anterior
lymph nodes -clear
1st post op PSA-0.26-03/16/11

Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 1393
   Posted 4/5/2011 10:52 PM (GMT -6)   
I had a lot of fatigue post surgery and for many months after. It was about a year after before I felt back to my normal energy level. I did not feel extreme fatigue, except in a week or so following surgery.

hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 297
   Posted 4/6/2011 9:51 PM (GMT -6)   
I was never fatigued after two recent surgeries. I had bypass surgery in 2005 with 5 bypasses, then a RP open Surgery in 2008. Was back to work in 6 weeks after each one and totally amazed everyone that I work with, because I had so much energy.
 
However, I just finished up 39 sessions on IMRT and the last week really made me tired. I was taking a nap every day around noon and falling asleep early every night. It's been three weeks since it ended and I'm finally being able to watch TV until 10:00 PM now.
 
I would definitely vote for the radiation as being more difficult to deal with.
Age 60, PSA 2007 4.1, PSA 2008 10.0
Diagnosed April 2008, Biopsy: 6 of 12 cores positive, Gleason 4 + 5 = 9
CT and Bone Scan negative, Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared, Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th, pT2c, lymph nodes negative
PSA Sept 28, 2008 0.00, PSA Jan 22, 2009 0.00, PSA June 29, 2009 0.00
PSA Sept 2009 0.00, PSA Dec 21, 2009 0.02, PSA March 29, 2010 0.03
ED Status- Currently using Trimix, Levitra daily for increased blood flow.
Noctural Erections have completely returned on a nightly basis, same hardness as before.
Stopped the injections except for "Fun" weekends. Really don't need them anymore.

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 5176
   Posted 4/6/2011 10:09 PM (GMT -6)   
I made a great full recovery from surgery. My energy has been fine before and after.
 
BUT... I am now doing SRT. 12 down, 26 to go.
 
I've been told to expect significant fatigue.
 
I teach and so far I've had good energy. I hope it holds out. After this week, 3 more weeks of classes, then Exams
 
Mel

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2066
   Posted 4/7/2011 1:44 AM (GMT -6)   
! saw my RT doc yesterday, and, among other things, I mentioned that I still feel tired.
He said that I am only 10 months on from my RT finishing (note his use of "only" here). He said they don't understand the mechanisms that cause this tiredness, but it is very common for people to have trouble dealing with tiredness for up to two years after RT finishes (though he said that there are also people who recover very quickly). Another factor he mentioned is the idea that you can no longer have any reserves of energy, but also the somewhat contradictory idea that taking more exercise that previously can help.

The type of thing I have noticed recently is that when I had a bad cold I felt twice as worse as I used to feel before treament, and that even after I was better it took at least a couple of weeks to recover.
I also feel like I encounter a "wall" sometimes, even if just doing soemthing like walking from the train station to the hospital (about a mile) but if I push myself I can get through it, and then find I can walk back to the station without much trouble after my appointment.

Alf
Born Jun ‘60
Apr 09 PSA 8.6
DRE neg
Biop 2 of 12 pos
Gleason 3+3
29 Jul 09 DaVinci AVL-NKI Amsterdam
6 Aug 09 Cath out
PostOp Gleason 3+4 Bladder neck & Left SVI -T3b
No perin’l No vasc invasion Clear margins
Dry at night
21 Sep 09 No pads daytime
17 Nov 09 PSA 0.1
17 Mar 10 PSA 0.4 sent to RT
13 Apr CT
66Gy 28 Apr to 11 Jun 10
Tired + weird BMs
14 Sep 10 PSA <0.1
12 Jan 11 PSA <0.1
Erection OK

BuiDoi
Regular Member


Date Joined Aug 2010
Total Posts : 227
   Posted 4/7/2011 4:55 AM (GMT -6)   
fertree said...
It took me close to 6 months (according to my wife, I thought it was closer to 4 or 5) to get past the total exhaustion midday issue. I had no depression, no weight loss, no anything other than the extreme need for a nap


Ditto !

I would suggest that it was 9 mths. before I felt I could work the whole day without a Nanna-Nap ! tongue
..
.
Nov 2009 = First-PSA 5.3 @ 60yo - Asymptomatic - DRE-Non-Palpable
Jan-'10 = TRUS Bx DX - AC T1c - GS(3+3)=6 , 5 & 45% max., L-MidZone
May-'10 = RRP-Nrv-Spare
Post Op. GS(3+4)=7, 1.1cm3, Pos Margins, EPE (focal) Lateral Left
MI(xtensive) Post, Grade3 x 8mm
+8week PSA<0.01, ED-85%, Incont-30%
+16W PSA<0.01, ED -85%, Cont -5%
+17W First 'DRY' day. ED -90%
+26W ED -60%

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3220
   Posted 4/7/2011 6:18 AM (GMT -6)   
I used to lie down on the couch and tell my wife I was kegeling - with my eyes closed.
Now that I have the sling I need another excuse.
Age: 58, Mar 35 yrs, 56 dx, PSA: 4/09 17.8 6/09 23.2
Biopsy: 6/09 7 of 12 Pos, 20-70%, Gleason 4+3 Bone, CT Neg
DaVinci RP: 7/09, U of Roch Med Ctr
Path Rpt: Glsn 3+4, pT3aNOMx, 56g, Tumor 2.5x1.8 cm both lobes and apex
EPE present, PNI extensive, Sem Ves, Vas def clear, Lymph 0/13
Incont: 200ml/day ED: Trimix
Post Surg PSA: 10/09 .04, 4/10 .04, 7/10 <0.01, 12/10 <0.01
AdVance Sling 1/10/11 Dry

Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 4/7/2011 7:05 AM (GMT -6)   

"Yoga significantly reduces fatigue and improves sleep quality after cancer treatment" -- article by Dr Brian Lawenda, Integrative Oncology  (I thing Tony first provided this link).  LINK

As counter-intuitive as it may seem, exercise helps fight chronic fatigue and sleeplessness, as well as depression and other chronic illnesses...and has also been shown in studies to help (as a stress reducer, when combined with exercise and nutritional improvements) to slow or reverse the growth of prostate cancer in "low risk" patients.  This is, of course, one of the reasons that enables Active Surveillance patients to be successful...every good AS program includes some aspects of exercise, nutrition and stress reduction.


davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/7/2011 7:20 AM (GMT -6)   
exercise gives energy. going out for my first outdoor run with hills shortly.

It's getting over the hump while exercising which is hard. After the activity we feel great.

Yoga is good for mind and body. Was initially concerned with some of the stretching positions after surgery.

I just wish I could get 7 hours sleep a night. If I could, I'm sure most my fatigue would vanish. My not sleeping has more to do with managing two teams on two different continents and nothing to do with cancer.

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 5176
   Posted 4/7/2011 7:31 AM (GMT -6)   
Davidg:
 
Have you tried ambien.
 
I use it sparingly (maybe 1-2 pills in a 3-month period). But I find it gives me a much deeper, healing sleep. I've used it when I'm sick and can't sleep.
 
Mel

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/7/2011 7:43 AM (GMT -6)   
I've thought about it, Compiler. I just hate taking any kind of pill if I can avoid it.

I used to sleep a lot better when I worked out a lot. But I also wasn't online with India in the middle of the night back then.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 24007
   Posted 4/7/2011 9:09 AM (GMT -6)   
I have been on Ambien nightly for 11 full years now, its the only way I can even get 5-6 steady hours of sleep. I come from a family of insomniacs. 6 hours is a lot of sleep for me, an no, I rarely ever nap in the day. You got to do what you got to do to get the sleep you need
Age: 58, 56 dx, PSA: 7/07 5.8, 10/08 16.3
3rd Biopsy: 9/08 7 of 7 Positive, 40-90%, Gleason 4+3
open RP: 11/08, on catheters for 101 days
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos marg
Incont & ED: None
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06 2/11 1.24
Latest: 6 Corr Surgeries to Bladder Neck, SP Catheter since 10/1/9, SRT 39 Sess/72 gy ended 11/09, 21 Catheters, Ileal Conduit Surgery 9/10,

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 4/7/2011 9:19 AM (GMT -6)   
owls and larks. I've been to doctors about it in the past.

lowandslow
Regular Member


Date Joined Jan 2011
Total Posts : 111
   Posted 4/7/2011 9:50 AM (GMT -6)   
I'd say it has alot to do with the interrupted sleep at night. That wipes out your normal sleep cycle. Coupled with recent major surgery, and it WAS recent and major, I think you've got your cause. Go take a nap.
Age 48
November 2010 PSA 4.1
Biopsy 12/22/10
Diagnosed 1/12/11
3 of 7 cores positive 30% involvment all on right side. Left side clear.
No perinural invasion noted
Gleason 7 (3+4)
RRP 3/14/11 at James Center Ohio State U. Dr. Abaza

Post Edited (lowandslow) : 4/7/2011 8:55:30 AM (GMT-6)


logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 2676
   Posted 4/7/2011 10:27 AM (GMT -6)   
It was at least 8mos befor I felt normal . I had penile pain most of that time and other annoyances, but 18mos post /op and feeling very fit. And I,m 68. You are young and a little high strung so you seem to take note of everything that is happening to you. Cant remember your'e stats but think they were pretty good. Again there is more positive in your recovery and experience than negative. Try to concentrate on that, be aware of the negative but dont live there. Take naps. At my age afull nights sleep may be a thing of the past. Benedryl is fairly no toxic, gets me sleepy at nite when I need something.
Diagnosed 8/14/09 psa 8.1 66,now 67
2cores 70%, rest 6-7 < 5%
gleason 3+ 3, up to 3+4 @ the dub
RPP U of Wash, Bruce Dalkin,
pathology 4+3, tertiary5, 2 foci
extensive pni, prostate confined,27 nodes removed -, svi - margins -
99%continent@ cath removal. 1% incont@gaspass,sneeze,cough 18 mos, squirt @ running. psa std test reported on paper as 0.0 as of 12/14/10 ed improving

Ger42
Regular Member


Date Joined Apr 2010
Total Posts : 189
   Posted 4/7/2011 11:17 AM (GMT -6)   
I still get tired easily but not as bad as the first 2 months. I'd walk the dogs for 20 minutes and come back and fall asleep. Until about 3 weeks ago I needed to lie down at night around 9 PM or I felt I was going to collapse.
Age 68 weight 185 height 6'
Samples taken 4/19/2010 sent to Bostwick
3 out of 12 samples cancer
1) gleason score 3+3 involving 65%
2) gleason score 3+3 involving 65%
3) gleason score 3+3 involving 10%
PSA 3.5 Mar 19
PSA 2.5 Apr 4
Bone scan clean CT scan clean
Da Vinci 10/12/2010 DR Paul Kahn all nerves spared
Home 10/19/20
Cath out 10/22/2010
Prostate 56 gm. Gleason grade 3+4 = 7
2 MO PSA 0.0

Flytyer2
Regular Member


Date Joined Dec 2010
Total Posts : 33
   Posted 4/7/2011 2:27 PM (GMT -6)   
This is a really good topic; thanks. I, too, get more "tired" than pre-op, but chocked it up to age and weight, but after 3 months am beginning to get some energy back, and don't "need" the nap at about 1 PM. Right or wrong, and because I didn't know the lack of energy was prostate removal driven, I've tried sucking it up, and making myself go to near exhaustion. It seems to have helped.

Again, thanks for this topic as it has answered some questions for me.
Age 61
PSA: 12/09 7.3 (Proscar) -- 7/10 9.06 (Proscar)
Biopsy 9/13/2010
Diagnosed 9/20/2010
One of 12 cores positive: <5%

RRP at Mayo Clinic, Rochester, MN 12/15/2010
Gleason 3 + 4 with tertiary grade 5
Tumor confined to the prostate
Surgical margins negative

Catheter removed 01/03/2011
Pad free with min leakage 01/18/2011

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 5176
   Posted 4/7/2011 5:45 PM (GMT -6)   
I concur that this is an excellent topic. I did not realize at all that fatigue/exhaustion is a SE of PC surgery. But I guess it is after any surgery. But maybe more so in PC surgery?
 
I know the fatigue is listed as a major SE for those undergoing radiation.
 
Mel
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