I am 70 was diagnosed in 2005 Nov. a Gleason 9 with a PSA of 9.3. I had a Prostatectomy in 2005 and 40 treaments of radiatio+ 2 years of LUPRON. My prostate cancer came back in 2007 with my PSA hitting 22.6 now on a new test trial at Johns Hopkins called TAK-700. I started Oct 2010 PSA at 17.6 with good results my PSA as of April 2011 is 3.71. Lots of ankle swelling plus a spike in blood pressure
As of 06-2011 PSA is down to 1.04.
I go back to Johns Hopkins 12-2011 for my next PSA.
After 6 years, waiting for a PSA does not get any easyer.
Post Edited (robertcool) : 11/22/2011 12:39:38 PM (GMT-7)
I do not know about you guys out there that get PSA regularly, but I find it is getting harder as the years go by, staying out of depression.
Does anybody have any solutions to my PAS doldrums?
Do not suggest liquid as (due to the test trial) no Jack Denials.
It has been a year since I had my last drink. Does great for my liver but not my frame of mine.
For the last year and TAK-700 there is a renewed lite at the end of the tunnel.
I am thankful for it but PSA’S seem to be my down fall.
It will all be over Dec. 13 @9:30 am.
When my prostate cancer returned, it has changed my feelings and emotions that are very difficult to get through. I feel a sense of loss, failure. I have found more than 40 percent of people diagnosed with metastatic disease have these feelings. It is also be hard to talk with others about this as I work through the physical and emotional aspects of having treatment NOW FOR 6 LONG YEARS..
Mr. Jerry L
You are tooooo young to get prostate Cancer! Prostate cancer is for us old folks.
If you read my history we are close in treatments options. Only thing is I had open surgery, you had the best. At the time they would not take a Gleason 9.(did not want there stats to go down).
How do you like the drug casodex?? It put you head in a spin. I had to get off it after 4 weeks as it made a mad man out of me. I have been on LUPRON for 6 years. (Don’t own a long sleeve shirt or a heave coat. And I live in Maryland) The hot flashes are wonderful. But being on TAK-700 the hot flashes are very lite and few. I get three bone scans a year + ct scans. I am glowing most of the time.
Thanks for your posting.
Wheels for Prostate Cancer Research Inc.
Prostate Cancer Survivor
There was not a Christmas present in the results of my 12/13/2011 PSA.
I had a 63% increase from 1.04 to 1.65
This is my first red flag of the test trial TAK-700.
If I get three consecutive rises (red flags) of least 20% I am out of the trial.
Wheels for Prostate Cancer Research, Inc.
Fighting PROSTATE CANCER With PROVENGE