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49packard
Regular Member


Date Joined Jul 2011
Total Posts : 135
   Posted 11/22/2011 2:24 PM (GMT -6)   

 

I am 70 was diagnosed in 2005 Nov. a Gleason 9 with a PSA of 9.3.  I had a Prostatectomy in 2005 and 40 treaments of radiatio+ 2 years of LUPRON. My prostate cancer came back in 2007 with my PSA hitting 22.6 now on a new test trial at Johns Hopkins called TAK-700. I started Oct 2010 PSA at 17.6 with good results my PSA as of April 2011 is 3.71. Lots of ankle swelling plus a spike in blood pressure

 

As of 06-2011 PSA is down to 1.04.

I go back to Johns Hopkins 12-2011 for my next PSA.

After 6 years, waiting for a PSA does not get any easyer.


robertC
Veteran Member


Date Joined May 2011
Total Posts : 969
   Posted 11/22/2011 2:36 PM (GMT -6)   
I'm glad you are responding to this new medicine. Please keep us updated.

en.wikipedia.org/wiki/Orteronel

Post Edited (robertcool) : 11/22/2011 12:39:38 PM (GMT-7)


49packard
Regular Member


Date Joined Jul 2011
Total Posts : 135
   Posted 11/23/2011 10:58 AM (GMT -6)   

Hi Robertcool:

I do not know about you guys out there that get PSA regularly, but I find it is getting harder as the years go by, staying out of depression.

Does anybody have any solutions to my PAS doldrums?

Do not suggest liquid as (due to the test trial) no Jack Denials.

It has been a year since I had my last drink. Does great for my liver  but not my frame of mine.

 

 


robertC
Veteran Member


Date Joined May 2011
Total Posts : 969
   Posted 11/23/2011 11:43 AM (GMT -6)   
49Packard:

I try to embrace secure thoughts that new treatments will help control the disease. There are a lot of new treatments coming. Also the TAK-700 seems to be helping.
If you can not change your thoughts, maybe an anti-depressant would help. Hang in there.
Robert

49packard
Regular Member


Date Joined Jul 2011
Total Posts : 135
   Posted 11/23/2011 5:00 PM (GMT -6)   
 
 
VIEW IMAGE
robertcool
Thanks for the come back.
I have been on the anti-depressant but was glad to be off them..

For the last year and TAK-700 there is a renewed lite at the end of the tunnel.

I am thankful for it but PSA’S seem to be my down fall.

It will all be over Dec. 13 @9:30 am.


Jerry_Delaware
Regular Member


Date Joined Jul 2011
Total Posts : 146
   Posted 11/23/2011 5:11 PM (GMT -6)   
@49packard:

Glad to hear you're doing well on the TAK-700. I'm also doing a trial at Johns Hopkins (Avastin/Lupron/Casodex) - just 2 months into it.

Give my best to Donnie! She's the greatest!

...Jerry
PCa History: VIEW IMAGE

49packard
Regular Member


Date Joined Jul 2011
Total Posts : 135
   Posted 11/25/2011 8:37 AM (GMT -6)   
Mr. Jerry:
Thanks for the come back
Check out my web site    WWW.WFPCR.ORG/
Leave me a message there.
I sure pray that my PSA is as great as your's on December 3, 2011
 
This next PSA date has put me in some noode,.
 
 

When my prostate cancer returned, it has changed my feelings and emotions that are very difficult to get through. I feel a sense of loss, failure. I have found more than 40 percent of people diagnosed with metastatic disease have these feelings. It is also be hard to talk with others about this as I work through the physical and emotional aspects of having treatment NOW FOR 6 LONG YEARS..


Jerry L.
Veteran Member


Date Joined Feb 2010
Total Posts : 2426
   Posted 11/25/2011 8:17 PM (GMT -6)   
49packard,
 
Not to confuse matters with another Jerry (by the way -- best name on the board)...but I love your website...great job..
 
Jerry L.
Nov. 2009 Dx at Age 44
Dec. 2009 DaVinci Surgery
Jan. 2010 T3b, G9
Feb. 2010 Adj. Radiation
March 2011 PSA Rise/Scan/Spot on Pelvic Bone
April, 2011 Casodex/Lupron
May 2011 Spot Radiation
Oct 2011 Bone/CT Scan - No new spots; spot is 1/2 as intense (whatever that means)

PSA History:
-----------------
Nov. 2009 4.30
2010 <.05
March, 2011 .09
April, 2011 .06
Oct, 2011 <.05

49packard
Regular Member


Date Joined Jul 2011
Total Posts : 135
   Posted 11/26/2011 6:20 PM (GMT -6)   

 

 

Mr. Jerry L

You are tooooo young to get prostate Cancer! Prostate cancer is for us old folks.

If you read my history we are close in treatments options. Only thing is I had open surgery, you had the best. At the time they would not take a Gleason 9.(did not want there stats to go down).

How do you like the drug casodex?? It put you head in a spin. I had to get off it after 4 weeks as it made a mad man out of me. I have been on LUPRON for 6 years. (Don’t own a long sleeve shirt or a heave coat. And I live in Maryland) The hot flashes are wonderful. But being on TAK-700 the hot flashes are very lite and few. I get three bone scans a year + ct scans. I am glowing most of the time.

Thanks for your posting.

49packard


Jerry L.
Veteran Member


Date Joined Feb 2010
Total Posts : 2426
   Posted 11/27/2011 6:11 PM (GMT -6)   
49packard,
 
- Yes, too young for this, but I don't recommend it at any age.
 
- I was only on Casodex for 6 weeks or so.  I didn't have any major problems with it.  I'm sure I'll see it again on the menu.
 
- Maryland...you are right next door (Hershey, PA)
 
- I'll have to add TAK-700 to my list of drugs to watch...to be honest, I haven't heard of it til this post.
 
- I did sense a glowing personality from you, now I know why....I, too, seem to be glowing a lot these days...but it is the Christmas season and it helps on the decorations.
 
Jerry

49packard
Regular Member


Date Joined Jul 2011
Total Posts : 135
   Posted 11/27/2011 6:23 PM (GMT -6)   
 
 
Jerry L
 
Hi almost neighbor.
 
Thanks for the come back
Check out my web site    WWW.WFPCR.ORG/
Leave me a message there.
 

Respectfully

Gilbert

President

Wheels for Prostate Cancer Research Inc.

Prostate Cancer Survivor


49packard
Regular Member


Date Joined Jul 2011
Total Posts : 135
   Posted 12/21/2011 8:26 AM (GMT -6)   

Hi All:

There was not a Christmas present in the results of my 12/13/2011 PSA.

I had a 63% increase from 1.04 to 1.65

This is my first red flag of the test trial TAK-700.

If I get three consecutive rises (red flags) of least 20% I am out of the trial.

49PACKARD


49packard
Regular Member


Date Joined Jul 2011
Total Posts : 135
   Posted 10/11/2012 10:21 PM (GMT -6)   
Hi All:
 
My Dr.'s appointment went without any (you crazy or your out of here).
Dr. Tutrone gave my wife and I all the time we needed, and answered all our questions.
We went in with a paper full of questions and concerns. It turned out we we both thinking the same plan.
Lets not let the PSA over rule Provenge.(not adding any new treatments yet)
When I went into this(May 1,2012) I said six months and that is what we are going to do.
Let Provenge do its job.
 
I feel great, better than I have felt for the last seven years.
 
Bring on CHRISTMAS.
 

President

Wheels for Prostate Cancer Research, Inc.

Fighting PROSTATE CANCER  With PROVENGE

www.WfPCR.org/

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