Bladder Control

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raymorris
New Member


Date Joined Dec 2011
Total Posts : 15
   Posted 7/26/2012 9:57 AM (GMT -6)   
I had my rectum and prostate removed on 9/6/2011 and I still have bladder control problems. Sure take a long time to get that full control back. I have no problem with peeing but leakage while sleeping as a small problem. No question hear; just an observation.

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2603
   Posted 7/26/2012 2:47 PM (GMT -6)   
Ray,

Welcome to HW. Glad you posted.

Sounds like you had more than just the average prostatectomy. Not many guys here have the rectum removed.

Average time here seems to be 3 to 4 months for continence to return, if it is going to. Took me 8 months, but I still squirt a little here and there. I wear a small pad just so I don't have tell everyone I spilled my drink in my lap every day.

I would assume you are doing kegals. A lot of guys here do not leak at night, but occasionally leak during the day. Hopefully you will tighten up a little at night in the next few months.

Good luck, be thankful you got the cancer out. I figure I can trade a few drops in the pants for a few more years on this side of the grass.
Goodlife


Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9 Da Vinci, Cleve.Cl 4/14/09 pT3a NO MX,
Neg Margins, PSA 6 wk,<.03, 3 mo. <.01 (dif lab),
mo. <.03 , 6 mo. <.01, No pads, 1/1/10, 9 mo. < .01, 1 year .01, 15 mo. <.01, 18 mo. .01, 21 mo. .02, 24 mo. .03, 27 mo. .02 , 30 mo .02, 33 mo .04, 36 mo. .06. 37 mo. .06
SRT begun 6/14/12

mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 657
   Posted 7/26/2012 3:36 PM (GMT -6)   
Ray,

Welcome.

My surgeon told me before my RRP that there might be a chance of a colostomy. Permanent or temporary. This was due to repeated bouts of painful prostatitis. The surgeon said that there could be significant scar tissue due to the prostatitis that could make a colostomy necessary. If there was too much scar tissue, part of my rectum could have been removed...meaning a permanent colostomy and no reversal.

I did have a quick look at your info and saw that you had rectal cancer.

Good luck with the leaking and hope it corrects...and hope you're cancer free.

Mike
- mid 2007 pain in perineum
- prostatitis dx, several cipro regimens
- PSA 7's by mid 2008
- biopsy 5/8 high core content Dec 2008
- open RP May 2009, no bladder leaks within 48 hours of cath removal
- EPE all else OK, upgraded to 4+3
- ED, oral drugs don't work
- Dec 2009 started trimix, had priapism. Started at 0.1 mL, stopped at 0.02 mL.
- Less than 5 mG Levitra 100%

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 24028
   Posted 7/26/2012 4:36 PM (GMT -6)   
ray, welcome to our corner of the net, glad you found us, sorry you had the need.

yes, any type of incontinence, small or big, is an aggervating problem to deal with. have you been working directly with your doctor(s) on this subject? Have they given you any suggestions or help? there are many men here experienced with long term incontinence, perhaps you will pick up some good tips, other than the standard answer of keagels. i never did them, except for one day, as i had the opposite problem, i had so many stricture problems, i couldn't go most times on my own, so dripping or leaking was never an issue. to make a long story short, ended up having to have my bladder bypassed and have an urostomy (stoma) and will forever pee into a bag that is part of a 2 piece device. without the device, from a technical point of view, i would be considered 100% incontinent forever, such is the life of someone with an ostomy.

hope you "dry up" soon, and can put this part behind you. good luck with the rest of your recovery, and please keep us well posted of your journey.

david in s.c.
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incont & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA still rising
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries
Member of Prostate Cancer & Chronic Pain HW Communities Since 10/2008
“I live in the weak and the wounded” – Session 9

raymorris
New Member


Date Joined Dec 2011
Total Posts : 15
   Posted 7/27/2012 10:53 AM (GMT -6)   
Great info and thoughts y'all. Yup, I have rectal cancer and it was spreading to my prostate so both had to come out. I'll be pooping in a bag for the rest of my life but feel fortunate it was caught early. My 16 hour surgery was on 9/6/2011 and I still wet myself a little sometimes. Usually when sleeping or lifting something heavy. Also had 13 lymph nodes removed so I had a CT done and node showed up. While on my first six months of chemo the nodes did not grow. move, multiply... nothing. After 3 months off chemo had another CT and the lung nodes were growing so while on chemo it must have made them dormant but I have now started yet another round of chemo. I don't have "lung cancer" I have rectal cancer that spread to my lungs so basically the chemo is the same drugs. I'm also on a double blind clinical trial. Might be getting another, might not. Nobody knows but the drug company. I feel good, get around good (except for this cast on my broken foot, but that's another story) and being positive that me, my oncologist, and the Lord are going to heal me. I have cancer, but cancer doesn't have me! Cheers to you all my friends. Stay close.
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