Cialis, after radical prostatectomy.

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SteveNYC
New Member


Date Joined Jul 2012
Total Posts : 17
   Posted 8/1/2012 4:44 PM (GMT -6)   
Hi, any suggestions as to the best time of the day to take the once-daily 5mg Cialis that my Urologist prescribed? The side effect I've read about online from other users sound pretty uncomfortable. Because of these i hesitate to start taking tonight in case they destroy a good night's sleep Did anyone else experience these side-effects that I've read about, like back and leg pain?
Steve, aged 48
Robotic Da Vinci radical prostatectomy, July 2012

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 8/1/2012 5:04 PM (GMT -6)   
the side effects lasted 1-2 weeks with me. Everyone reacts differently.

I started taking it every 36 hours 1 month out of surgery (it's already a blur!) for blood flow purposes in view of attempts at rehabbing 4-6 weeks out of surgery. I had a strict schedule initially for those purposes then after a few months would only take it an hour or so before sex. Don't take them much anymore and don't need them but I attribute that to many things including my quick and constant use so soon after surgery.
40 years old - Diagnosed at 40
Robotic Surgery Mount Sinai with Dr. Samadi Jan, 2011
complete urinary control and good erections with and without meds
Prostate was small, 34 grams.
Final Gleason score 7 (3+4)
Less than 5% of slides involved tumor
Tumor measured 5 mm in greatest dimension and was located in the right lobe near the apex.
Tumor was confined to prostate.
The apical, basal, pseudocapsular and soft tissue resection margins were free of tumor.
Seminal vesicles were free of tumor.
Right pelvic node - benign fibroadiopse tissue. no lymph node is identified.
Left pelvic node - one small lymph node, negative for tumor (0/1)

AJCC stage: pT2 NO MX

Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 8/1/2012 5:09 PM (GMT -6)   
I felt a low-grade headache when initially taking Cialis.  I started taking 2 ibuprofen at the same time as dosing the Cialis at my doctor's recommendation and I haven't felt another headache since.

SteveNYC
New Member


Date Joined Jul 2012
Total Posts : 17
   Posted 8/1/2012 5:18 PM (GMT -6)   
Thanks guys. I just had my catheter removed today and am dealing with incontinence....I don't want to add another side effect,etc. I'd like to be able to sleep without a catheter and side effects of cialis for at least one night. David, you and I have the same MD, BTW.
Steve, aged 48
Robotic Da Vinci radical prostatectomy, July 2012

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 8/1/2012 5:24 PM (GMT -6)   
Steve:

I wasn't thinking ED pills that early. My first day after catheter removal all my energy was focused on urinating. I had a complete mental breakdown after I got home and assumed I couldn't urinate, literally freaked out and was on my way to the ER until Helen calmed me down and gave me good and logical advice.

I think Helen or Ann will want you starting Cialis in a month based on our MDs advice. You should call them and iron that out and ask them for samples too. You might do better on Viagra or Levitra. This is the time to experiment,

How was your pathology? Sorry if I missed it in another thread. They went over that with you today, right?

How was your experience with our MD? I've been overseas for a year and can't wait to catch up with him. I like having him in my corner.

SteveNYC
New Member


Date Joined Jul 2012
Total Posts : 17
   Posted 8/1/2012 5:33 PM (GMT -6)   
Hi, all I learned about my cancer is that it was confined to the left side and had made it to the surface, but they're hopeful that it didn't breach the capsule (outer membrane). I have to go in for more tests every three months for the foreseeable future. The funny thing is that my PSA scores were always very low. I had the catheter in for two weeks because when they initially removed it a week ago, there was some swelling that prevented me from urinating. I filled up like a water balloon and ran back to the office where they were unable to cath me because my urethra was swollen too tightly. I had to go to the ER for a smaller cath. So, my bladder muscles are pretty atrophied, despite all the pre-op kegels I did.

I'll call Helen tomorrow to see when I should commence the cialis. I'll certainly not start anything tonight. I'm glad you shared your timing. Ciao.
Steve, aged 48
Robotic Da Vinci radical prostatectomy, July 2012

zampilot
Regular Member


Date Joined Aug 2009
Total Posts : 152
   Posted 8/1/2012 6:32 PM (GMT -6)   
Levitra had always worked better for me......

Jazzman1
Veteran Member


Date Joined Sep 2010
Total Posts : 978
   Posted 8/1/2012 8:54 PM (GMT -6)   
I never had any side effects at that dosage. My doc had me taking them every other day, since it's a 36-hour pill. I took them in the morning; no trouble sleeping.
Age 57

Biopsy 8/10
Three of 14 cores positive: 10%, 60% & 80%
Stage T1C; Gleason 6
---------------------------------------------------------
open RP at Cleveland Clinic 11/10
Post-surgical pathology: Gleason 7 (3+4)
Three positive margins; Stage T2c(+)
PSA since surgery: <.03

AdVance sling: 12/11 -- Much drier than before

Bobbiesan
Regular Member


Date Joined Mar 2012
Total Posts : 119
   Posted 8/1/2012 8:56 PM (GMT -6)   
Steve,

Good luck on everything.

Have been on daily 5 mg cialis two weeks now. Only symptom is mild indigestion. Every day. But I started 1000mg pom extract at same time. Take both in am. Have had cast iron stomach all my life, so it's got to be either cialis or pom ex, but which, I don't know.

Levitra (live apart from wife so only use it once/mth or so) 5mg always gives me headaches, flushing, and sometimes a little stuffy nose. Has always worked pretty well, less so since surgery. Can't say about cialis--is supposed to heal surgery damage via blood flow?

The good news is, 4 mths out from surgery, I'm not entirely sure. but, I think:

IT'S ALIVE!!!

Robert
age: 62
Jan '08-'11 PSA=2.2 2.5 2.7 2.6, DRE neg
Jan '12: PSA=3.6, DRE=pos
Jan '12: MRI=4.5x3x4, marr/sem/rectoprost all neg; 11mm nod affects contour, recomm biop
Feb '12: biop PCaDx on 4/12 cores; 3 of 3+3, 1 of 4+3; 3% of cores; path=pT2a
Apr '12: RALP; path=pT2c pN0 pMx; 31g; 3+4=7; r lat marg focally pos; no EPE; pos perineural; 8 lymphs and sv neg
post PSAs: @6 wks <.01 @10wks < .01

Post Edited (Bobbiesan) : 8/1/2012 8:01:05 PM (GMT-6)


SteveNYC
New Member


Date Joined Jul 2012
Total Posts : 17
   Posted 8/2/2012 5:25 AM (GMT -6)   
Robert, thanks for your info. Glad to hear that things are awakening. Funny thing, I read your response and misread "Pom" for "Po rn".... Couldn't figure out where you got a 1000mg po rn pill! Lol. BTW, does Pom mean pomegranate?

Bobbiesan said...
Steve,

Good luck on everything.

Have been on daily 5 mg cialis two weeks now. Only symptom is mild indigestion. Every day. But I started 1000mg pom extract at same time. Take both in am. Have had cast iron stomach all my life, so it's got to be either cialis or pom ex, but which, I don't know.

Levitra (live apart from wife so only use it once/mth or so) 5mg always gives me headaches, flushing, and sometimes a little stuffy nose. Has always worked pretty well, less so since surgery. Can't say about cialis--is supposed to heal surgery damage via blood flow?

The good news is, 4 mths out from surgery, I'm not entirely sure. but, I think:

IT'S ALIVE!!!

Robert

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4046
   Posted 8/2/2012 5:59 AM (GMT -6)   
For Rehad - I was told to take the meds before bedtime AND to avoid any hanky panky...
Age 57 - 5'11" 215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6
06/25/08 - Da Vinci robotic laparoscopy
11/15/11 - 42 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.

"Lord, I seek your wisdom and guidance in making me the person my dog thinks I am."

Bob D
Regular Member


Date Joined Mar 2008
Total Posts : 187
   Posted 8/9/2012 11:55 PM (GMT -6)   
Cialis worked for me. Started about 2 months after surgery. Erections started without it but
Cialis gave them that extra boost.
Age 59, psa 4.7 in Jan. 08. PC found. Prostate removed on 3/5/08. open Surgery. Nerves spared. PSA .04 post op 2008 to .14 2012. SRT Jan 2012. PSA Apr 2012 back down to .04. Good continence and full natural erections.

Bobbiesan
Regular Member


Date Joined Mar 2012
Total Posts : 119
   Posted 8/10/2012 6:34 AM (GMT -6)   
SteveNYC,

Yes, the pom refers to pomegranate extract pills. I do those because the juice has too many carbs for my borderline pre-diabetes.

Finished the urologist's 30 day 5mg cialis sampler recently. Have stayed on the pom pills. The mild indigestion stopped at same time as I quit cialis, so cialis definitely was the cause. Read about one dr. prescribing cialis for tues and fri. then levitra other times as needed. I guess to get the best combo of blood supply effects plus ED support when needed. I think that would be great for me since I only see my wife every month or so anyway. Will ask on next urologist visit if he will prescribe that way. Don't know what to do until I see uro in Oct.

Here are the costs I got from pharmacy for various scripts:

levitra - 10ea of 5mg for $228
cialis - 10ea of 10mg for $282 (maybe I could cut in halves)
cialis - 30ea of 5mg daily blister pack $133

That's with insurance helping a bit. Guess the big ins. co.s don't think it's required.

No other side effects from cialis. I have been in a yoga class on base. Don't know if that's why I missed the leg and back pain SEs. I am hoping the yoga instructor will cover levitation at some future class! She is very cute. But my brain is still not getting signals through to mr. wrinkles. Just with my wife. Which is ok with me.

Off to the lab next week for my next PSA.

Bobbie
age: 62
Jan '08-'11 PSA=2.2 2.5 2.7 2.6, DRE neg
Jan '12: PSA=3.6, DRE=pos
Jan '12: MRI=4.5x3x4, marr/sem/rectoprost all neg; 11mm nod affects contour, recomm biop
Feb '12: biop PCaDx on 4/12 cores; 3 of 3+3, 1 of 4+3; 3% of cores; path=pT2a
Apr '12: RALP; path=pT2c pN0 pMx; 31g; 3+4=7; r lat marg focally pos; no EPE; pos perineural; 8 lymphs and sv neg
post PSAs: @6 wks <.01 @10wks < .01

Post Edited (Bobbiesan) : 8/10/2012 5:43:28 AM (GMT-6)


SteveNYC
New Member


Date Joined Jul 2012
Total Posts : 17
   Posted 8/10/2012 6:59 AM (GMT -6)   
Hi Bobby,

Thanks for the info. I've found that the cialis pills cause moderate insomnia. I think I'll switch to taking it in the morning or taking every other day. Otherwise I don't seem to have any side effects, save some congestion and a small headache that occurs aout an our after taking a dose, but goes away pretty quickly.

Bobbiesan said...
SteveNYC,

Yes, the pom refers to pomegranate extract pills. I do those because the juice has too many carbs for my borderline pre-diabetes.

Finished the urologist's 30 day 5mg cialis sampler recently. Have stayed on the pom pills. The mild indigestion stopped at same time as I quit cialis, so cialis definitely was the cause. Read about one dr. prescribing cialis for tues and fri. then levitra other times as needed. I guess to get the best combo of blood supply effects plus ED support when needed. I think that would be great for me since I only see my wife every month or so anyway. Will ask on next urologist visit if he will prescribe that way. Don't know what to do until I see uro in Oct.

Here are the costs I got from pharmacy for various scripts:

levitra - 10ea of 5mg for $228
cialis - 10ea of 10mg for $282 (maybe I could cut in halves)
cialis - 30ea of 5mg daily blister pack $133

That's with insurance helping a bit. Guess the big ins. co.s don't think it's required.

No other side effects from cialis. I have been in a yoga class on base. Don't know if that's why I missed the leg and back pain SEs. I am hoping the yoga instructor will cover levitation at some future class! She is very cute. But my brain is still not getting signals through to mr. wrinkles. Just with my wife. Which is ok with me.

Off to the lab next week for my next PSA.

Bobbie

PeterDisAbelard.
Forum Moderator


Date Joined Jul 2012
Total Posts : 3862
   Posted 8/10/2012 9:22 AM (GMT -6)   
Most PDE5i drugs (Cialis/Levitra/Viagra) come in various per-pill dosages that cost, roughly, the same thing. If 10mg works for you you can save some money by getting a scrip for the 20mg and buying yourself a pill cutter. And I think the pharmacy at WalMart has an unusually good price for Levitra.

Cialis is the longest-lasting of the popular PDE5i drugs and it makes the least difference with Cialis what time of day you take it. With your morning handfull o' pills should be fine. Levitra makes me sensitive to bright light so taking that in the morning is a problem, especially if I forget my shades.
59
gradual PSA rise 2007-2012 from 1.4 to 8
four biopsies 2010-2012:
1)negative (inflammation observed),
2)negative,
3)positive in one of 14 cores GS6(3+3) 3-4%, 2nd opinion gs7(3+4)
4)negative.
DaVinci RRP 6/14/2012
positive margins in apex and 1mm margin in base. GS9(4+5)
Started 24 mo ADT (Triple w/ Lupron) 7/26/12
sched for adjuvant radiation therapy
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