after prostate has been removed

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stevec60
New Member


Date Joined Aug 2012
Total Posts : 2
   Posted 8/5/2012 1:25 PM (GMT -6)   
Now for the last three months I have no blater control at all is this normal.I know 5 men that have had there prostate removed and hove not had the problemI am haveing.Please help! Steve

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 5921
   Posted 8/5/2012 2:52 PM (GMT -6)   
Steve,
 
Hate to have to welcome you to this part of the internet, but you're welcome just the same.
 
Getting the incontinence under control is a challenge. I was a Depends pant + eight pads a day guy for three months after DaVinci surgery, so I can say I understand.
 
First thing to do is to go back to your urologist and or surgeon, and ask them to get you in to see a continence therapist. My uro has one on staff, and the hospital where your surgery was done may have one as well. They can help you with figuring out if you are doing Kegels correctly, and what other exercises may help. It is certainly worth the effort to try.
 
The next is to understand that progress may be in plateaus, not really recognizeable until after they happen. I suddenly realized I was at five pads a day when the mega-packs started lasting longer. It was about five months before I got to three pads a day.
 
What I learned the hard way was that I was overdoing the Kegels - too many are worse than not enough. Also, I split up my routine. I would walk three times a day for a shorter distance, and do one set of Kegels when I got in from each one. I went to the physical therapy nurse at the hospital where I did my surgery to get feedback on Kegel method, and discussion of the foods and beverages that can cause bladder irritation, and thus make the recovery harder.
 
One really hard to understand concept for most is that you need to keep up your plain water intake. The reason is to keep the bladder cleared of irritants.
 
I'm sure a lot of the guys here will chime in. Some of us have had some long battles with incontinence.
 
And just so that you don't feel unusual, there are several guys in one of my groups who had the same surgeon. Results range from dry the first day to having to have surgical implants. Part is the surgeon, but a lot has to do with each of our condition before surgery, and the recovery process.
Moderator - Prostate Cancer
(Not a medical professional)

DaVinci 10/2009
My adjuvant IGRT journey (2010) -
www.healingwell.com/community/default.aspx?f=35&m=1756808

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3256
   Posted 8/5/2012 3:58 PM (GMT -6)   
Hey Steve,

Welcome to HealingWell. Don't get discouraged - yet. After surgery about 2/3 of guys are dry at 3 months. That means 1/3 are still leakers. After a year, 2/3 of the leakers are dry. That leaves one "lucky" guy in 9 still wearing pee pads. (I was one of them.)

If, after one year, you are still dribbling there are surgical solutions that can fix you up.
In the meantime, stash extra pads in every pocket.

There is an interesting, unpublicized, side benefit to all this: When you're wearing a pee pad, the ladies think it's your well endowed "package". Walk proudly. ;-)

Remember, it will get better... it will get better...
Jeff
Age: 59, Mar 36 yrs, 56 dx, PSA: 4/09 17.8, 6/09 23.2
Biopsy: 6/09 7 of 12 Pos, 20-70%, Gleason 4+3 Bone, CT Neg
DaVinci RP: 7/09, U of Roch Med Ctr
Path Rpt: Glsn 3+4, pT3aNOMx, 56g, Tumor 2.5x1.8 cm both lobes and apex
EPE present, PNI extensive, Sem Ves, Vas def clear, Lymph 0/13
Incont: 200ml/day ED: Trimix
Post Surg PSA: 10/09 .04, 7/10 <0.01, 7/11 <0.01, 1/12 <0.02
AdV Sling 1/10/11 Dry

stevec60
New Member


Date Joined Aug 2012
Total Posts : 2
   Posted 8/7/2012 9:42 AM (GMT -6)   
Thanks for the replys.Now I do not feel so bad.I do wear a clamp as much as I can but I get a burning sensation after having it on for a while.Then I take it off.I guess its all part of getting used to the change in my body.With out the clamp I never get the sensation that I have to go and if I try there is nothing there.Thanks again Steve

A Yooper
Veteran Member


Date Joined Jul 2012
Total Posts : 1632
   Posted 8/7/2012 9:56 AM (GMT -6)   
Hi Steve,

Can I ask what treatment you had for you PCa, and what your vital stats were that lead up to your treatment?

I'm in the info gathering stage and currently trying to determine my "best" path of treatment, looking at both RRP and Brachy.

Thanks, and good luck with it all - also from my experience there is an incredibly supportive community out here that will help you beyond what you could hope for, so stay tuned here as you work through this!
55 years old, excellent health (up until this. . . .) diagnosed with PCa early July 2012
NO symptoms or signs of PC
PSA rose from 3.8 to 5.8 over past 3 years
Biopsy 6/27/12
8 of 12 Gleason: 3+3 <5%, 3+3 <5%, 3+3 <5%, 3+3 <5%, 3+4 5-10%, 3+4 <5%, 3+4 5-10%, 3+4 30-40%, 3+4 15-20% (All negative for perineural invasion)
Negative DRE (3 in the past 4 months)
NO,
MO
T1C
Gland size 40gm
Vol. 22gm

BillinChicago
Regular Member


Date Joined May 2012
Total Posts : 76
   Posted 8/7/2012 10:47 AM (GMT -6)   
I'm at one pad a day now. Really just for work. It's often dry. Nurse/therapist told me not to overdue the kegels, and stick with the schedule she gave me. Also to stay hydrated because otherwise the urine becomes too acidic and aggravates the bladder. Kind of counter intuitive but it's been a big help I think.
age at DX 57
PSA Aug 2011 4.0
PSA Sep 2011 3.9
PSA Feb 2012 4.6
Biopsy Mar 2012, 12 cores, 4 of 12 positive for CA, Gleeson 6 (3+3)
DaVinci 4/16 stage pT2a Tumor involved less than 5% of gland, margins clear, perineural invasion not identified.
Catheter removed 5/2; 4 to 5 pads per day.
Completed 8 wks of pelvic floor therapy on 7/31/12. One pad day, nights dry. Probably could skip the 1 pad
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