Unanticipated Memories

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clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2639
   Posted 9/14/2017 6:32 AM (GMT -6)   
Facebook frequently adds entries on people's "Timelines" to remind them of something they posted about in years past. This showed up in this morning's Facebook feed:

"Just got home from 18 holes of golf at Petrifying Springs north of Kenosha, WI, with my 3 regular league partners. I sure didn't think I'd be back on the course just three and a half weeks after surgery, but it felt great! Thanks again to everyone who sent good wishes and prayers. They helped more than I can tell you."

The following Spring, I was cleaning out the pockets in my golf bag and found an unused pad that I had taken with me in case I needed it during the round. I do remember that we played 18 holes, but that I was fairly exhausted by the end of the round. Yeah, it felt great being on the course, but the energy level was still fairly low, and my uro chewed me out when he found out what I had done.

All that seems so long ago, it's as if it's from another lifetime. This is one of the few pleasant memories of those weeks in August 2010.
Age 72
Dx June 2010.
PSA rose for 3 years to 6.2
Bx shows cancer in 6 of 12 cores, all left side
Gleason 7 (3 + 4)
DaVinci 8/20/10
Negative margins; negative seminal vesicles
5 brothers, ages 59-74 ; Two of us have had PCa
Continence after 7 weeks.PSA 1/3/10: <0.01; 6/12/11: <0.01, 1/26/12: <0..01; 10/12: <0.01
8/13:<.01; 4/15:<0.01, 7/16: <.01;8/17:<0.01

fiddlecanoe
Regular Member


Date Joined Oct 2016
Total Posts : 188
   Posted 9/14/2017 6:55 AM (GMT -6)   
Congratulations on seven years of "less than" signs. May you have many more!
Age: 62
Diagnosed in July 2016 with G7 (4+3) PC & PNI
Bone & CT scans clear
Surgery at Lenox Hill Hospital in NYC, 9/12/2016
Post-surgery pathology showed G7 (3+4), with SVI and PSM
Lymph nodes clear
First post-surgery PSA October, 2016: <.008
Second post-surgery PSA December, 2016: 0.01
Third post-surgery PSA June 2017: 0.05
IMRT begun: July 18, 2017 (35 fractions)

Subdenis
Regular Member


Date Joined Aug 2017
Total Posts : 174
   Posted 9/14/2017 7:24 AM (GMT -6)   
Outstanding thanks for sharing hope! Denis
65 YO healthy man, PSA 4.1/2 for couple years PSA 5/1/17 4.6, Multiparametric MRI, 5/15/17 showed lesion. 13 core biopsy 3 positive 3+3 and one positive in lesion, may be overlap All cores less than 30% 8/22/17 - second opinion Yale pathology shows small amount of (3+4) in one core, < 5%, ordered decipher to inform next steps Leaning towards Active Surveillance. Thanks, Denis

InTheShop
Veteran Member


Date Joined Jan 2012
Total Posts : 7761
   Posted 9/14/2017 8:21 AM (GMT -6)   
Here's to many more years of memories,
Andrew
I'll be in the shop.
Age 57, 52 at DX
PSA:
4.2 10/11, 1.9 6/12, 1.2 12/12, 1.0 5/13, .6 11/13,
.7 5/14, .5 10/14, .5 4/15, .3 10/15, .3 4/16, .4 10/16, .4 5/17
G 3+4
Stage T1C
2 out of 14 cores positive
Treatment IGRT - 2/2012
My latest blog post

mattamx
Regular Member


Date Joined Aug 2015
Total Posts : 213
   Posted 9/14/2017 9:15 AM (GMT -6)   
Great story. I love it when those little surprises like the pad in the pocket happen. Nice reminders of time passing in a good way.

BillyBob@388
Veteran Member


Date Joined Mar 2014
Total Posts : 2510
   Posted 9/14/2017 1:29 PM (GMT -6)   
Thx for sharing the memories from a long time ago!
PSA 10.9 ~112013
Bx on 112013 at age ~65yrs, with 5 of 12 pos with one G9(5+4), 1 PNI, T2B.
RALP with lymph nodes at Vanderbilt 021914. (nodes clear, SV+, G9 down graded to 4+5, cut wide, but 1 tiny foci right at the edge of margin ) Pros. 106.7 gms!
At 15 months, not wearing a pad most days, mostly dry
PSA <.01 on 6/14 and all until 9/15 = .01, still .01 9/16, .02 on 3/17,6/17

Ravineman430
Regular Member


Date Joined May 2014
Total Posts : 156
   Posted 9/14/2017 8:56 PM (GMT -6)   
great story. There are good outcomes for many here, and I admit that sometimes I forget how lucky I have been.

Thanks for the reminder about my last 5 years. I am still here and feeling pretty good most of the time. I keep telling myself to not spend another moment being scared and to enjoy everything to the max. It surprises me how much work it is for me to "live it up"

An38
Veteran Member


Date Joined Mar 2010
Total Posts : 1143
   Posted 9/15/2017 7:26 AM (GMT -6)   
Clocknut,

My husband and you had the op on exactly the same day and with your golf stories you could have a doppelgänger at the other end of the world, in spirit at least...

...So happy to hear that you are continuing to do well. Its great things have worked out for so many of the August 2010 RP guys, Paul has stayed at 0.01/0.02 for all these years. I believe Aimzee's husband Ron is also doing well in terms of his PSA.

Smiles,
An

clocknut
Veteran Member


Date Joined Sep 2010
Total Posts : 2639
   Posted 9/15/2017 10:41 AM (GMT -6)   
It's always great to hear from you, An, and so glad to hear Paul is continuing to do well. I think of the Aug. 2010 group every time the anniversary rolls around.

They say we all have a doppelganger somewhere. Let's hope both of our PSA's continue to be near zero and that our golf games continually improve. It's also good to know that Aimzee's husband is doing well.

Aimzee
Veteran Member


Date Joined May 2010
Total Posts : 1388
   Posted 10/12/2017 9:24 PM (GMT -6)   
Oops, a little late - but so happy to hear from my August, 2010 friends. (Purgatory - David also posted a lot on that thread.) Ron and I didn't even realize the anniversary this year. We also have good news. His PSA remains stable. Indeed, that August group was close knit. It is good for others to hear the successful reports that we have shared. Continued success! *Hugs*
Husband Ron, age 63 (2010)
4/1/10 PSA 5.5 Prostate size = 50 grams
Biopsy on 4/20/10 12 samples. Adenocarcinoma: 3 positive cores on right side-No Perineural Invasion Gleason 6 (3+3) Bone Scan/CT Negative 8/18/10 - Da Vinci Prostatectomy. Post Op: Gleason 7 (3+4) Negative surgical margins & lymph nodes. Both nerve bundles spared. No incontinence; ED a problem. 2/13 PSA 0.01 2/16 PSA 0.04

Aimzee
Veteran Member


Date Joined May 2010
Total Posts : 1388
   Posted 10/12/2017 9:37 PM (GMT -6)   
I put "August Surgeries" in the Google search engine (above) and our thread did come up. We were blessed to have found each other for support and information. It seems like so long ago. How wonderful that everyone on that thread is doing (reasonably) well.
Husband Ron, age 63 (2010)
4/1/10 PSA 5.5 Prostate size = 50 grams
Biopsy on 4/20/10 12 samples. Adenocarcinoma: 3 positive cores on right side-No Perineural Invasion Gleason 6 (3+3) Bone Scan/CT Negative 8/18/10 - Da Vinci Prostatectomy. Post Op: Gleason 7 (3+4) Negative surgical margins & lymph nodes. Both nerve bundles spared. No incontinence; ED a problem. 2/13 PSA 0.01 2/16 PSA 0.04
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