Sex After Radical Prostatectomy

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tooyoung
New Member


Date Joined Feb 2007
Total Posts : 12
   Posted 2/19/2007 2:11 PM (GMT -6)   
I had nerve sparring surgery on Feb 5th (two weeks ago). I had my cathetor removed on Wednesday Feb 14th and after these few days have only some minor leakage when I stand up. I have found that I do not need the pads at night and occasionaly wear the light ones when I am out and about. I have not talked to my doctor about the timing to try and have sex after the surgery and have wondered if anyone can help me with this. I have noticed that my penis is quite unresponsive to touching since the surgery, and that I will likely need help at this time if I am going to try to engage in sex.
Please let me know any information on the above would be appreciated.
 
Tooyoung
 
PSA on Nov 7 2006 - 12.2, Nov 22 2006 17.8
Biopsy Dec 8 - 3 out 8 cancerous - Gleason 3 + 3
Radical Prostatectomy - Feb 5 2007 - nerve sparring
Cathertor removed and biopsy report (confined to prostate) - Feb 14th
Age 45 years young

biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1455
   Posted 2/19/2007 3:49 PM (GMT -6)   
Hey Tooyoung,

My doc told us to have sex 4 times in the next week when he took the catheter out. What a joke! I had a complete "flat tire" for the next month. Only now getting about 50% response but am working on it every day. Keeping the blood flowing and using the blue pill occasionally.

Others have received different instructions so hope they will respond too.

Good luck...

Jim
Age 72. Diagnosed 11/03/06. PSA 7.05. Stage T2B Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2B. Gleason 3+4. Cancer confined to prostate.
PSA on 1/3/07 - 0.04.  Next PSA on 4/4/07.
 
 "Cancer feeds on fear - starve it to death."


naimnut
Regular Member


Date Joined Jan 2007
Total Posts : 93
   Posted 2/19/2007 4:57 PM (GMT -6)   

My doctor-to-be told me that he does not start ANY treatment on this until six weeks have passed.

I think it is a good idea to let the body heal fully before working on this too much.  Just my .02.

Markus


Age, 53
PSA 3.76, Gleason 6, T1c, scans negative
psa doubling time 35 months
Still researching and deciding treatment options.  Leaning towards da vinci robotic.


StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 331
   Posted 2/19/2007 5:35 PM (GMT -6)   
wow, 4 times in the first week after catheter removal would have been unfathomable for me.

my doctor gave me no specific instructions on this, which I took to mean whenever you are willing and able... but he didn't give me a prescription for viagra or cialis at that point, which I also took to mean that he thought I wouldn't be thinking about it at that point. i had a complete flat tire and bad incontinence, not to mention the occasional pain.

but if you are able, go for it! get back on that bicycle as often as you are able, the way I see it!
____________________
 
Prostate cancer diagnosed:  May 15, 2006 (age 40)
Gleason score:  3+3=6
daVinci radical prostatectomy:  July 25, 2006
size of tumor:  approx 1.1 inches
post-surgery Gleason score:  3+4=7; negative margins from surgery
number of pads/day at 3 months after surgery:  3 to 5
number of pads/day at 4 months after surgery:  1 to 2
1st post-surgery PSA:  0 (Nov 2006)
2nd post-surgery PSA:  0 (Feb 2007)
ongoing post-surgery treatment:  Cialis every other day, Viagra "on-demand", ErecAid pump daily Cialis every other day, ErecAid pump twice daily (when I can manage it)
 


aus
Regular Member


Date Joined Sep 2006
Total Posts : 211
   Posted 2/19/2007 5:38 PM (GMT -6)   

It would be worthwhile discussing the subject with your doctor. Viagra or similar is often prescribed soon after surgery to improve blood flow and help recovery time. Most start modest exercises fairly soon, but nothing to heavy.

A few friends had good results in general after 6 weeks, but as we know there is no specific rule for all side effects to suddenly disappear.

 


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1722
   Posted 2/19/2007 5:50 PM (GMT -6)   
Do whatever makes you feel right. A little petting party would do most couples some good early on. Go with whatever your body is okay with.

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 2/19/2007 7:01 PM (GMT -6)   
tooyoung,

My surgeon started me on a penile rehabilitation program at the three week anniversary of my surgery. This included taking 25 mgs of Viagra everyday for six days without any sexual stimulation and then 100 mgs on the seventh day and to try sex. I was still leaking on that first try and only got about a 50% erection which was not enough to penetrate. I did that for the next four weeks but no improvement except the leakage got a lot better. While we did not have intercourse we did do a lot of petting and we both were able to have an orgasm. I am still working on getting back to a quality sex life but have not made it yet. I do see some improvement as I now achieve about a 50% erection without any help. Using the Vacurect pump does allow for penetration but it feels so artificial that it lacks in fulfillment. There are the exceptions on here who were able to get their erections back soon but I believe the average PC guy has got to have patience.

Tamu
Diagnosed 7/6/06
1 of 10 core samples, 40%
Stage T1c, Gleason 3+3
Da Vinci on 11/01/06
Catheter out on 11/13/06
56 Years Old
Post Op Path
Gleason 3+3
Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07


SJC
Regular Member


Date Joined Jul 2006
Total Posts : 113
   Posted 2/19/2007 11:07 PM (GMT -6)   
TY:

Your continence recovery sounds a lot like mine. I had minimal drips after my RRP and four weeks of a single pad per day before I went padless for good. You'll be padless before me. You and I are both blessed.

As far as the ED issue, I agree with those posts above...experiment as much as you like. However, don't get discouraged. Your nerves were traumatized during surgery and it takes some time to recover.

Overall, sounds like to me you're on a fast-paced track for a complete and total recovery.

M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 2/20/2007 8:58 PM (GMT -6)   
tooyoung, Jeff had an orgasm with no erection a few days after he had the catheter out. it was very intense and somewhat painful, so he waited another week before doing that again. he is pretty much where most of the guys who have posted are - gets about 60-75% there with an erection, but not enough for intercourse. when he uses the pump, we can have intercourse, but he's not too excited about using it. he takes cialis every other day. he has more feeling in his penis and gets a tingling sensation so we know the nerves are healing. we're very hopeful that he will be able to achieve an erection with no help within the next several months. it's frustrating at times but we have to be patient. kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test 0.1, 2nd post-surgery PSA test 0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06


tooyoung
New Member


Date Joined Feb 2007
Total Posts : 12
   Posted 2/20/2007 11:01 PM (GMT -6)   

Thanks to all for your insight into the next stage of this journey. Please continue to discuss this topic if there are more experiences to be shared. I am always learning.

tooyoung


BK
New Member


Date Joined Feb 2007
Total Posts : 2
   Posted 2/22/2007 10:26 PM (GMT -6)   

New to the Forum.

I had surgery on December 8th, 2006. After three weeks my wife and I were told to try to have sex three times a week. I was able to have an orgasm, but there was no erection.

I appreciate the discussion, because it is very frustrating to know what is "normal" at this point in recovery. I am taking one-half of a 20mg cialias daily and started using a VED (Osbon) yesterday.

I look forward to joining the discussion.


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/22/2007 10:45 PM (GMT -6)   

Hi ~ BK...

We hope you'll start a new thread to give us a little informatin about you and your journey...

We would really like to welcome you on “your” own personal thread…

Thanks for joining us!!!  and Please continue to post!!!! :-)

In New Friendship ~ Lee & Buddy

(Direct Link ~ just click on the title below and a new window will open!  

Reminder … click on the REFRESH icon once you get there)

Click Here…. > Helpful Hints for New Members... Hope this helps you! :)


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 2/22/2007 11:03 PM (GMT -6)   

Hi TooYoung,

 

Good to hear from you!  and Great News… about the urinary control.   Listen to your body….   :-)  

 

Partial Quote from above…. 

but if you are able, go for it! get back on that bicycle as often as you are able, the way I see it!

 

Don’t think this means to ride your stationary bike, bicycle, lawnmower, etc. After surgery….  That’s not what he means. 

 

The sphincter muscle is very “important” to your urinary continence and if you damage this little muscle that is sooooo valuable… you will definitely be in trouble. 

 

I put this here for newbies coming along…. They may read this and think oh! I can still ride my bike….. Don’t!!!!!!!  At least not at this time …  You must heal and then you still have to be careful he's got to last a lifetime.

 

Keeping you close ~ in our thoughts and prayers.

In Friendship ~ Lee & Buddy


mama bluebird - Lee & Buddy… from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  53 on surgery day

RRP / Radical Retropubic Prostatectomy with "wide excision"

PSA 4.6   Gleason  3+3=6    T2a   Confined to Prostate

2nd PSA 02-06-2007 Less than 0.1 Non-Detectable :)


CanadianWife
New Member


Date Joined Jun 2006
Total Posts : 5
   Posted 2/24/2007 8:23 PM (GMT -6)   
Just to let you know my dh is young too (just a little older than you.) We are 1+ years into the process.

Since the little blue pills and variations didn't work on the ED in the years before the surgery and since they give my dh a heck of a hangover, he wasn't interested in them.

We were having success getting mutual orgasms but without penetration (again, after having years of experience with ED).

But he wanted more so opted to try the injections at the 5 month mark. They are working wonderfully for us, rolling the clock back more than 20 years. It gives us lots of options and while the sensations aren't all there (and probably won't be due to some nerve damage) we are very pleased with the results. As time goes on, he is using less and less to get the same results (now down to about 1/3 dose).

We travel extensively for work and left the needles at home for a trip around the world. Had some success with penetration once, without any pills. But that was just once. Since we travel so much and see the injections as therapy, we have started to travel with the meds in a thermos. That creates new issues (learning where the nearest hospital that uses English is before we start, just in case) and keeping the med from getting too cold (it doesn't work on my dh when it is too cold) but it has led to some great sex all over the world.

Keep at it and keep trying until you find what works for you. My husband was deathly afraid of needles until he started to inject himself. Never in a million years would I have thought he could do this (I had to have my IV covered when I was in the hospital because it made him faint) but he is and it is working great for us.

And bonus, the cost is about $60 per vial, which lasts about 3 months before it gets old. That gives you up to 45 injections. So about 1/10th the cost of the pills.
DFil died of PC Dec. 2004 at 72.
Dh diagnosed August 2005, age 47
RRP Jan 2006 (delayed surgery so he'd be healthy over Christmas)
Had 2 PSA tests at 0 since the operation.
All side effects of operation are under control, using Trimix injections

Life is good.


djhouston
Regular Member


Date Joined Jan 2007
Total Posts : 68
   Posted 2/26/2007 7:21 PM (GMT -6)   
Hi TY,
At the risk of sounding repetitious from some of the other posts I've made, I strongly agree and support what Mama Bluebird said about the need for the sphincter to heal.

This operation involves taking out the part of the urethral tube that goes through the prostate (duh!) and then sewing the free end of the tube back to a newly made bladder neck replacement. Since this tube is like a macaroni, you can imagine the careful stitching the doctor had to do.

Have patience. My doctor told me no sex of any kind for six weeks to allow this sphincter area to heal. If it tears, because of exuberant sex or the muscle contractions of orgasm, you could develop an internal leak. I had one anyway, without the sex, and had to have the catheter in for a month. You don't want to have the catheter put back in.

With the delicacy of this part of the surgery, it amazes me that more doctors don't tell their patients to cool it for six weeks. My doctor's nurse educator told me, quite to the contrary of Biker's doctor who said to have sex four times a week after the catheter came out, that if some miracle occurred, if God had given me an erection during that time (which she knew wouldn't happen), just to admire it, but NOT to use it. She gave me an Rx for 25 mg of Viagra to take once a day, but this was to provide a minimal amount of blood flow to continue, not to get it on.

Take care,
dj
dj's stats:
PSA (10/04): 2.9; PSA (2/06):4.4, on Androgel (serum T about 450) at age 56; negative DRE, no symptoms.
PSA (5/06):5.7 with a free PSA% of 8, OFF Androgel (serum T 163). 
Biopsy (5/06): 4/12 samples positive; postitive samples only on right side; max Gleason 4+3=7 (in 2 of the 4 -from area nearest bladder.
DaVinci robotic-assisted laparoscopic radical prostatectomy + bladder lift + Right nerve plastic surgery (8/23/06).
Catheter out 4 weeks postop, due to internal pinhole leak at bladder-urethra junction.
Final pathology report:T2c-both sides,but in capsule; neg. margins, neg. lymph nodes, neg. seminal vesicles; final max Gleason still 4+3=7.
Follow-up PSA (11/06): <0.008; serum T: 195 OFF Androgel (at present).


Denny2
New Member


Date Joined Apr 2007
Total Posts : 5
   Posted 5/18/2007 8:39 AM (GMT -6)   
yeah New to the Forum,
Halo to evryone from Down Under,
I hawed Radical Prostatetcomy in Novemb 2006,so to this date is aprxm 6months is pass.I'm 58years old ,very fiit no smoker or drinker all my life involved in some kind of sport activitys. my previous sex life was exelenet i was very proud of that.My doctor was telling me that i wiil be ok after operation in regards of sexual activitys but with slightly lees in strength of erection.So far that is just illusion, have no erection at all.Exept some times during the sleep at night. I hawed try VIAGRA,CIALIS, LEVITRA,MAXIDUS,nothing only what is help is CAVERJET inject. which i dont' liked at all.My recent PSA is 100% clear untraceble so that is OK.My libido is 'GONE WITH THE WIND'
I know that i hawed nerve sparring operation and that still only 12% mans hawed ful recovery from ED, after R.P. iwould like to hear at list one of them on this forum,some one who hawed Radical Prostatetcomy 3-5 years ago .what stage is he nau in regards of sexual activities?? If that person realy exist it wiil be very nice to let us know How he feel nau..

Best Regards to you all.. Denny2

Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 5/18/2007 9:05 AM (GMT -6)   
Hi Denny!
My experience is much like many on this board. My urinary control has improved at a much faster rate than my ED. It's still very frustrating to have a nearly total lack of erection at 4 months post surgery. The erections with the pump allow us to have intercourse, but like some on this forum have noted, it's not particularly fulfilling. I have, in recent days, noted that with viagara and stimulation I see an increase in size (maybe a 25% erection). Nothing nearly hard enough for use, but a step in the right direction that gives me some hope! Hang in there and give yourself time to heal. Take faith in any progress no matter how small!
We're all in this together,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical
October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist
November 2005 - Biopsy negative
July 2006 - PSA 5.9 at regular Physical
October 2006 - After several more rounds of anti-biotics PSA 8.1
November 2006 - Second biopsy - Positive
December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2007 Robotic Prostatectomy - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear.
February 2007 - Three to four pads a day, no erection with viagara.
March 2007 - Down to two pads a day, had first intercourse with Erecaid pump and bands, otherwise still flat tire.
April 2007 - First Post-Surgical PSA 0.02 and a great relief! Down to one pad a day. Still unable to achive erection without pump. Patience..Patience!!!!!!


Denny2
New Member


Date Joined Apr 2007
Total Posts : 5
   Posted 5/18/2007 9:27 AM (GMT -6)   

 Thanks Mike, it is very nice words from you.Still i would like to hear any words from the someone who go trough this 3-5 years ago,or is any one know some one who hawed recovery after Radical prostatetcomy would like to hear from them. There is some Gene therapy for ED.promising in clinical trail any one like to read it is on:http://www.emaxhealth.com/52/8467.html

Is any one  try APOMORPHINE(UPRIMA) would like to know how is that fell??

Thanks again and I liked this forum very much...

 


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1722
   Posted 5/18/2007 9:34 AM (GMT -6)   
Denny2,

I had surgery just over 2 years ago. For close to a year erections were poor or not at all. I used viagra, Levitra, a pump and shots in that first year. Today I have good quality, not perfect but good quality erections with 50 mg. of Viagra or Levitra and occasionally with nothing at at all.

Paul

Denny2
New Member


Date Joined Apr 2007
Total Posts : 5
   Posted 5/18/2007 9:46 AM (GMT -6)   

 Hi SWIMOM,

 Thanks Paul 'you make my day,"beliewed me you are the first person that i hear that  and i do Thank you for that. That is promising,and the give me a bit of hope ..

Greetings from ozzy land...Denny nono


Axeman
Regular Member


Date Joined Oct 2006
Total Posts : 43
   Posted 5/18/2007 10:49 AM (GMT -6)   
Hey Denny2, i'm about 2.5 years since the operation. I'd like to be able to tell you that everything is fine, but it's still lacking in that department. I've tried Cialis and am now on Viagra. Sometimes it helps and sometimes it doesn't. That's the frustrating part. I did get an Osbon ErectAid pump and he definitely helps, it's just awkward to use at the proper moment. So, everyone is different and there are many stories of success here, just keep trying and i'm sure you'll be ok.

Axe
Axe - 59
Diagnosed - October, 2004 - PSA 3.3 up from 2.4
Gleason 3+3 = 6
T2A
DaVinci Surgery - January, 2005
UVA Medical Center
All PSA's at 0.00 since


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32589
   Posted 5/18/2007 11:00 AM (GMT -6)   

A huge welcome to Denny2, BK and tooyoung. 

I am Kitt and I am the moderator for this forum.

Please feel comfortable on this site and know that I support each and everyone here.


Respectfully
Kitt

Moderator Prostate Cancer
My Father and his 5 siblings all died of Cancer.
______________________________________________________
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.” 
~Rosalyn Carter

Post Edited (stkitt) : 5/21/2007 7:09:14 PM (GMT-6)


whoizme8
New Member


Date Joined May 2007
Total Posts : 6
   Posted 5/18/2007 12:27 PM (GMT -6)   

Denny.  You will probably not be happy with my results but here goes.  Had radical in Sept. of 1998.  Since then been incontinent, but down to one pad per day unless heavy lifting etc.  Try to do the exercises but somedays forget.

Have ed since surgery and have tried the two pills but they did not help.  The pump is the only thing that works for me.  Have not tried the injections so don't know if they would work in my case or not.

 


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1722
   Posted 5/18/2007 2:36 PM (GMT -6)   
 Post deleted, off topic.  Please send any personal comments directly to me and I will respond ASAP.
Thank you
Kitt

Post Edited By Moderator (stkitt) : 5/20/2007 8:02:23 AM (GMT-6)


Denny2
New Member


Date Joined Apr 2007
Total Posts : 5
   Posted 5/18/2007 7:17 PM (GMT -6)   
Hi ,WHOIZME8
Thanks for replay, Yes I appreciate you answers and i can tell you that Caverjet inject work for shure,only you hawed to be very carefully,you hawed to start, from very small dosage, and then increasing so you can see what dossage is working for you, not like my self ,my doctor start me from the top of the dossage, 20 microgram and i hawed bloody erect. for 5-6 hours which i don't needed and it was painful for 5 hours ,beside you use tablets like PSEUDOEPHDRINE, then try with ice, etc.. but no help you hawed to wait 5-6 hors to cool down..I don't feel to use that again..
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