Hi Little Jem
I moved the discussion regarding" Pumps" to the top for you. It contains some comments about injections. good luck
56 year old male. 02/06 PSA 5.5 Subsequent Gleason 3+3=6 DaVinci Surgery 7/06 fully contained, nerve bundles spared, returned to work (desk) 1 day after surgery, cath removed 7/12, no pad - 1 week after cath removal, occas leaks 6mo post opp after long day. No ED prior to surgery. ED since, some improvement 12 mo post op, tried all three Drugs, they help some. Found out about pump --here-- 6mo post op, it was a blessing. Getting ready to try shots.
If you read another post of mine I made today, you will sense I am growing impatient with all of this. I must somehow get past it all.
Therefore, I called my urologist office this morning and got an appointment to receive injections next week. This took lots of courage and I'm still not sure I will go through with it. My probem? Shucks. I think I can handle a little pin-prick. But I'm really have problems with the mental image of me up laying on a table fully exposed... with an inflated you-know-what!
It gets worse. The image gets unbearable if I think the assistant who supervises me in this first episode is a female. I'm afraid if my wife even suspected it could be a female, she'd call it off for me.
Someone please tell me that either the urologist will do it or there will be some male person there supervising me. I know, I know, the person, whomever it is will be a professional. I'm sure I'm too modest, but... help. ... And no smart jokes, please. Would someone who has gone through this please respond?
Doctor asked me if I wanted him to inject me in the office or just go home and do it myself. After a moment of reflection, I told him that about 45 years ago while in a 7th grade, a teacher made me to stand up in front of the class so she could see what I was hiding in my pocket. She obviously hadn't considered what my raging hormones were capable of putting in my pocket. I confided to the doctor that based on that earlier experience, at the age of 56, I'd rather not walk through a urologists waiting room with the same thing in my pocket that had been there in 7th grade and I preferred the self administered version at home. He warned me that some men find it difficult to inject themselves in this sensitive area the first time. I assured him that it wouldn't be a problem for me because I had done numerous stupid things in my life in order to have sex and stabbing myself in the penis with a needle wouldn't even make the top 10. Big talk, huh, - I was apparently convincing enough though, because after he stopped laughing, he gave me a couple of "make sure you do this" orders and sent me home.
Although I'd been thinking about the shot therapy for awhile, I had purposely not discussed it with my wife because previously, on more than one occassion, she had passed out while getting a shot. Although she's a trooper, I knew that once I shared the details about the therapy with her, neither of us would benefit by having an extended period of contemplation. So, about four hours after arriving at home from the doctors office, I showed my wife the injection kit. While she was still dazed from the sight of the needle, I successfully coaxed her into the bedroom where she displayed her normal amount of eagerness and enthusiasm, which I'm confident now comes from loyalty and love rather than exerberence and anticipation. Meanwhile, I was in the bathroom wide eyed and naked in front of the mirror with a syringe in one hand and my helpless, not so promising looking Johnson in the other, trying to read instructions printed in 6 point type.
I must tell you that since puberty, I have not successfully kept many secrets from that little guy between my legs. Aware of my intent, he had assumed a self defense mode and was attempting, with some success, to shrink to a small size not previously seen. I remember looking down at the situation and thinking - "that needle will go clear thru it and come out the other side." Somehow I was able to compose myself long enough to maneuver the little guy, against his will, into a position that allowed me to plunge the needle in. Surprisingly, there was no pain, and as I injected the medication, he instantly quit struggling, looked up at me with an expression that seemed to be saying, "thankyou". I joined my lovely bride in bed and the not so little guy showed his appreciation by providing my wife and me with the best couple of hours that we've had in a long time. --- recovery is getting better-
Motivation is a huge power and you are proof of it. Since I started injections and enjoyed the results I have sought to help motivate others so they too can get back some of what PCa has taken. Your testimony is a strong incentive. I would suggest though that having that first injection in the office would have been better. The amazing part to me is the little or no pain with the injection.
I just found the site and it is a real blessing. I am not in this alone... I was diagnosed March 2007 and had a radical April 27, 2007. Could not get the Davinci because the tumor was to large. I had my first PSA in Feb. and amazingly had a physical 1 year before, double Ingrenal Hernia, and a colon scope. They never checked my PSA. I was biopsied in March and 11 of 12 were cancerous.. I had a Gleason of 4+3=7 and psa 6.2 which was 7.2 after a retest two weeks later. My Urologist felt I should hurry and have the surgery because it was a fast mover.. I had 12 lymph nodes removed and biopsed of which 1 did have cancer cells. After the surgery I wore the catheter for 2 weeks and had little trouble with incontinence. I did wear the big diapers at night but seldom wet them. I never had a problem while awake. On June 7th, I had a psa retest and it was 0.05.. I thought that sounded good but when I returned to my Urologist on the 10th, he recommended I take Harmone therapy, Eligard 45. This is a 6 month shot that prevents testosterone. I understand by reading the computer that it is a wonderful alternative to CASTRATION!!! The worst thing is little sexual desire and Heat Flashes. On the brighter side I left the 22nd of June and rode my Harley 4300 miles in 10 days. I left La. and rode west to the Yellowstone's, Tetons, Deadwood. Saw old Faithful, Mt.Rushmore, Chief Crazyhorse and had no trouble. My friends were understanding that I travel with and joked very little about the bid diapers..lol
2 weeks ago although I'm not a sex maniac like my earlier years I had a new friend and it was important to me to be a little more active.. I know it is always said that size don't matter but I don't remember hearing that a soft was ok... I had tried Viagra and Cialis without any luck at all. So, I tried the injection and not only did it work, it was like being young again.. My friend made the comment, my goodness, I could hang a towel on it. Course, I had better plans for it and for about 90 minutes we both enjoyed the new toy. The injection was a three drug formula that was given to me by a Dr. friend that had used it for years. It was Papaverine. Prostagladin and another drug and I'm not sure the name. I will find out and post it as soon as I get a full prescription being mailed to me. I did call my Urologist and his CFNP said he could prescribe the drug for me also. My injections were 1/4 cc in an insulin syringe and very little pain during or after. I have used it 6 times and with about the same results. Very important to inject the proper place.
I Hope this hasn't been to boring and good luck to all of you. I am 54 and very computer Illiterate..I also can't spell to good but hopefully this will make since to some..
I've just read this thread and it truly amazes me how Powerful this Forum is!!! Thanks to all of our members.... and to each of you for caring enough to share!!! You truly touch lives ~ and I thank you for touching so many lives...
v bluebird ~ Moderator for Prostate Cancer Forum