Injection Therapy for ED

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Little Jem
New Member


Date Joined Sep 2007
Total Posts : 16
   Posted 9/14/2007 6:50 AM (GMT -6)   
 
Hi Everyone,
 
My hubby is just about to embark on injection therapy (Cavaject) for ED following his RRP in June 2006.
 
Viagra, Cialis nor Levitra produced anything 'worthwhile' and he can't get on with the pump - he finds the rings very painful - so he's decided to give the injections a go.
 
Anyone have any advice they could offer to a 'newbie' starting out down the injection road?
 
Any comments much appreciated.
 
Thanks
 
Little Jem

Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 9/14/2007 7:57 AM (GMT -6)   
Jem,

As my urologist told me the biggest step to make with injections is getting over the fear of injecting your penis. Once you are motivated, and sounds like your hubby is, then it is just getting the technique down. I could not use Caverjet due to the aching it caused. I am using Bimix. One of the first things you need to do is to check what gauge needle you will get with the Caverjet. Because of the fear of the needle breaking off and potential of a law suit my understanding is that the needle that is provided by the Caverjet drug company is larger then it needs to be and therefore causes more injection pain. I know one of the forum posters shared their experience with the larger needle which was not good. The syringe I use has a 30 gauge needle that is a half inch long. You would recognize this as being an insulin type of needle.

I assume that the first injection will be done in your urologist's office. This will establish the starting dosage. Do not be upset if the erection is short of expectations as the initial dosage will be less then what is expected to be the dosage level. Even though I was expecting it the time duration of the erection was the most surprising. Be prepared for an erection that could last up to two hours. Knowing this do not have any plans for afterwards. The injection has to be as near the 3 and 9 o'clock positions as possible and about halfway between the base and the head. Avoid any obvious veins. My inital tendency was to inject quickly. I have found out that doing it slowly has less pain. You will also have to alternate sides. Once you inject then massage the penis to help distribute the medication. For me it takes about 15 to 20 minutes for the full effect. The erection will become firmer with stimulation so do not worry if it is real firm with just the injection. There may be a little bleeding at the injection site and some small bruising. That only occurred for me when I was injecting faster then I am now. Since slowly injecting 95% of the time I have no issues with the injection site and in fact cannot even find it the next day.

As I mentioned I my initial injection done by my urologist's PA was with Caverjet and I was miserable for the next two to three hours. Others have had the same reaction. If this occurs with your hubby do not expect it to have to be the case. It took me a month after that initial bad reaction to try the injection again with Bimix. The Bimix has worked great with no aching at all. Caverjet is prescribed intially in many cases because it has a lower complication rate for priapism and Peyronies. Bimix and Trimix are the other two drugs but both of these are compounded and due to stability issues must be refrigerated. Caverjet has also been reported to be more expensive but many insurance companies will cover the cost of the Caverjet under the prescription benefit where they will not do that for the compounded drugs.

Hope all of this helps. I also did not like the rings and the quality of the erection from the pump. You will find that the erection from the injection is about as close to a normal erection as you can get and in some cases better.

Good luck!

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 584
   Posted 9/14/2007 10:25 AM (GMT -6)   

Hi Little Jem

I moved the discussion regarding" Pumps" to the top for you.  It contains some comments about injections.  good luck


 
Biopsy 10/16/06
T2A,  PSA 4.7
Gleason 4+4=8 right side
adrenocarcinoma of prostate
DaVinci Surgery 01/16/07
Post op report,confirms Gleason4+4=8
no extra extension/invasion identified
age 65
Back on the golf course...
90 day PSA  less than 0.01 (undetectable)
Six Month PSA still undetectable
Beginning injection therapy for ed (08/07/07)
 


not me!
Regular Member


Date Joined Jan 2007
Total Posts : 30
   Posted 9/15/2007 8:37 AM (GMT -6)   
Caverject worked great for me. Needle was painless. You adjust the dosage as required. Some pain afterward, but well worth it.  I have also used the pump- this is much more natural feeling.

56 year old male. 02/06 PSA 5.5  Subsequent Gleason 3+3=6 DaVinci Surgery 7/06 fully contained, nerve bundles spared, returned to work (desk) 1 day after surgery, cath removed 7/12, no pad - 1 week after cath removal, occas leaks 6mo post opp after long day. No ED prior to surgery. ED since, some improvement 12 mo post op, tried all three Drugs, they help some. Found out about pump --here-- 6mo post op, it was a blessing. Getting ready to try shots.

 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1455
   Posted 9/15/2007 5:06 PM (GMT -6)   
Hi Little Jem,

Tamu's advice and summary are excellent. I use Viagra and Trimix. The initial dose was way to much and I have cut it way down. No pain and it works great....

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 7/18/07 0.00. 
T level on 4/2/07 - 48     On 7/16/07 - 613
Started Tri-Mix on 8/7/07.  .02 ml and 50 mg Viagra.  It works!!!
Next PSA and T tests on 10/17/07
 
"Patience is essential, attitude is everything."
 


Little Jem
New Member


Date Joined Sep 2007
Total Posts : 16
   Posted 9/17/2007 1:31 AM (GMT -6)   
Hi Guys,
 
Thanks for the advice, particularly Tamu.  First Caverject (10 micrograms dose) certainly 'worked' but he did have some aching afterwards (worth putting up with he says though).  He will have his second this week and be taught how to inject himself. 
 
Thanks again guys for the advice.
 
Little Jem

Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 9/17/2007 8:40 PM (GMT -6)   

If you read another post of mine I made today, you will sense I am growing impatient with all of this.  I must somehow get past it all. 

Therefore, I called my urologist office this morning and got an appointment to receive injections next week.  This took lots of courage and I'm still not sure I will go through with it.  My probem?  Shucks.  I think I can handle a little pin-prick.  But I'm really have problems with the mental image of me up laying on a table fully exposed... with an inflated you-know-what! 

It gets worse. The image gets unbearable if I think the assistant who supervises me in this first episode is a female.  I'm afraid if my wife even suspected it could be a female, she'd call it off for me. 

Someone please tell me that either the urologist will do it or there will be some male person there supervising me.  I know, I know, the person, whomever it is will be a professional.  I'm sure I'm too modest, but... help.  ... And no smart jokes, please. Would someone who has gone through this please respond? 

Gggggeeeeeennnnn


Age: 63
First biopsy 07/05;
Diagnosed: "Suspicious looking cells". Dr. says wait and watch.
Second biopsy: 12/27/06
Diagnosed cancer: 01/24/07
Gleason Grade: 3+3=6
Radical Open Nerve-sparing Prostatetomy: 02-14-07
Cancer confined to prostate
Pathology Stage of cancer: T2c
First Post-Op PSA on 04-18-07: 0.011
Bleeding problem at 6 weeks post surgery...No resolution despite several trips to surgeon, antibiotic treatment.
05/31/07: Cystoscope reveals "stone", due to "Stricture" (narrowing of uretha at prostate removal site).
06/12/07: Procedure to remove stone & dilate uretha at stricture: Successful procedure, but is most likely a temporary fix, and incontinence continues.
8/16/07: Start bleeding again in urine.  Get to see a new urologist same day.  He thinks stricture is back, but send home with Cipro.
8/20/07: Go back to dr. for cystoscope.  "No sign of stricture"!  Wonderful news!
8/31/07: Back to new urologist for regular check up & received 2nd post-op Psa.  It was 0.05 (non-deteactable).  PTL!
8/31/07:  First Bio Feedback session.  The little lady is very positive that I can gain control.  That's what I want more than her.  New urologist is not very sold on effectiveness of Kegals???  
 
 
 


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 9/17/2007 10:26 PM (GMT -6)   
Gene . . when we went throught the initial stages of injections (yes I went with Bob) it was done very tastefully (by the male urologist) . . . Bob actually stood up and dropped his pants for the injection and then the dr. left the room for about 15 mins and came back. All in all very professional.

The biggest problem after Bob knew how to inject himself was getting up the courage to do just that. Once he overcame that obstacle he's been fine ever since . . it's only the first time that takes the courage. Take Tamu's advice and don't "jab", just push it in slowly.

Good luck and keep us posted.

;o) Linda & Bob
Bob (61) - Laproscopic Prostate Removal Sept 27, 2006.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
 
Pathology - cancer completely contained, even a second more aggressive, previously undetected cancer)
PSA UNDETECTABLE Nov 2006, Feb and May,2007.

Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1455
   Posted 9/17/2007 11:02 PM (GMT -6)   
Hey Gene,

My experience was just like Linda and Bob's. The uro had me drop my pants while he drew the Trimix. Then he told me to be sure to inject in the side not the top or bottome of the penis. Urethra lives on the bottom and nerves down the top. He then took hold and stuck me and injected it. Took about 3 seconds. I was standing all the while. Didn't have to lay down with my boner sticking up so don't worry about that. He came back in about 15 minutes, looked, said excellent and told me to report my progress at my next PSA appointment. Nothing to it. By the way I got home in time to put it to good use. First sex in 8 months. It works great and injecting myself is no big deal.

I have since cut the dose way down. It stays up for about an hour and I have no pain. Its great to be back in action again. The only reason I waited so long to start injections is that I lost about 3 months fighting low testosterone. If I did it again, I would start injections as soon as possible.

Good luck...

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 7/18/07 0.00. 
T level on 4/2/07 - 48     On 7/16/07 - 613
Started Tri-Mix on 8/7/07.  .02 ml and 50 mg Viagra.  It works!!!
Next PSA and T tests on 10/17/07
 
"Patience is essential, attitude is everything."
 


StrictlyInc
Regular Member


Date Joined Dec 2006
Total Posts : 331
   Posted 9/17/2007 11:30 PM (GMT -6)   
I am seeing a urologist for Peyronies, which seems to be stabilizing and going away, to some degree. On visits to him (Dr. Rajfer at UCLA Urology), he has me lay on a table and injects me with 2cc bimix, which produces very usable erections for 2+ hours. When he injects, he does it much faster than I do, and it is a bit more painful. Of course, they tell you not to tense up, as adrenaline fights the injection drug(s), but how can one not tense up...

Anyhow, it was mentioned above that one person would be embarrassed laying on the table with an inflated penis. I'm on the other side of that fence, I rather not be laying there, 6'5", with a hospital gown that is way too small, with a completely wilted penis, but such is life.

Last visit he asked if an intern could watch it all. I said OK (always do, figure if it helps someone...) So in comes the intern, young girl who must have skipped a couple of grades, because she looked *very* young. Named Madonna, of all things. anyhow, she watched the injection, and also came back to see the result with him 10 minutes later, and watch him check for plaque, etc (injection worked, always does when he does it, painful though it is). I'm sure he wouldn't have had her come in if I was uncomfortable. Everyone has to find their own comfort with the doctors, so if you don't want a female, just tell them, hopefully they can accomodate. At the same time, I figure, what if the best doctor is female.

Back to the original topic, I would just suggest you go back after you do a couple of injections and have them check you. I didn't, and when I didn't press the issue when I thought something might be wrong, they didn't either. I eventually got diagnosed with plaque which Dr. Rajfer said is likely from injecting in the wrong place. I hope to go back to injections soon myself, under greater supervision. The pump doesn't cut it.
____________________

Prostate cancer diagnosed: May 15, 2006 (age 40)
Gleason score: pre-surgery 3+3=6; post-surgery 3+4=7
daVinci radical prostatectomy: July 25, 2006
size of tumor: approx 1.1 inches; negative margins from surgery

- number of pads/day at 3 months after surgery: 3 to 5
- number of pads/day at 4 months after surgery: 1 to 2
- number of pads/day at 6-12 months after surgery: 0 to 1

- 1st post-surgery PSA: 0 (Nov 2006); 2nd post-surgery PSA: 0 (Feb 2007)
- 3rd post-surgery PSA: 0 (May 2007); 4th post-surgery PSA: 0 (June 2007)

The search for timber: took Viagra/Cialis approx. every other day, ErecAid once a day, injections. Peyronie's diagnosed 7/5/07. Now on Cialis, L-arginine and pentoxyfylline, ordered to be celibate for 6 weeks.

- PGE1 batting average: .364 (4 for 11)
- Bimix batting average: .500 (4 for 8)
- Trimix batting average: .500 (1 for 2)

"Lost in the valley without my horses, no one can tell me what my remorse is..."


Little Jem
New Member


Date Joined Sep 2007
Total Posts : 16
   Posted 9/18/2007 2:02 AM (GMT -6)   
Hello Gene,
 
My Hubby had his first injection done by a lady whilst I was in the examination room with him.  He dropped his trousers and sat on the edge of the bed whilst she explained some of the anatomy of the penis.  Then she prepared the injection and showed him how and where to inject and whilst he did pull a bit of a face whilst she did the injection itself it was soon over.  Then she pulled a curtain around the bed and left us alone saying she'd be back in 10 mins to see the results.  Not sure what she thought we needed a curtain around for!!!
 
After she left Hubby kept checking wanting to see the results himself and after 6 or 7 minutes had a big grin on his face for the first time since his RRP 15 months ago!!!  After 10 minutes had passed the nurse knocked on the door and asked if she could come in?????  Hubby dropped his trousers again for her to check the results.  She had given a low dose (10 micrograms) and from the result thought that would probably be sufficient bearing in mind the surroundings and a stranger present too - not terribly romantic - result probably would be better if we were at home, in more comfortable surroundings and 'in the mood' so to speak. 
 
It certainly did work and lasted for about 2 hours.  The result was far more 'natural' than the pump ever produced.  He did ache a little afterwards but says this is certainly not unbearable and worth putting up with for the result!!! 
 
He's going back to see the same lady again today to learn how to do the injections himself and then I guess we're on our own.
 
Don't think he was entirely comfortable with the procedure but he says how could he be embarrassed after all the prodding and poking that he's had to endure following the RRP - he had quite a few complications after the surgery, several cystoscopies 'cause urethra didn't heal and cathether in for 14 weeks, then stricture, retention, you name it he had it or so it seemed at the time.
 
One comment he did make was that he thought because it was a lady doing the injection she was probably a little more 'caring' and 'gentle' if they're the right words to use than perhaps a man might have been so that's one thing to consider.  And at the end of this, they're doing something for your own benefit not theirs and I'm sure they've seen every shape, size and variation before so you've nothing to hide.
 
And if you can't think of a worse place to have an injection if you have to have one at all then I think I can and have only one word to say .....   EYEBALL!!!!!!
 
Hope this experience might help.
 
Little Jem
 
 

lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 9/18/2007 8:21 AM (GMT -6)   
Jem - great dialogue . . . thanks for your story. Our doctor also knocked and asked if he could come in . . . I said . . . . did you think you were interrupting anything . . . .his response was "I HAVE HAD THAT HAPPEN!!
;o) Linda & Bob
Bob (61) - Laproscopic Prostate Removal Sept 27, 2006.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
 
Pathology - cancer completely contained, even a second more aggressive, previously undetected cancer)
PSA UNDETECTABLE Nov 2006, Feb and May,2007.

Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 9/18/2007 8:25 AM (GMT -6)   
Little Jem,

I am pleased that the first injection went well. The 10 micrograms is actually a fairly good dose. The little aching he has can be helped by taking some ibruprofen before the injection. As I mentioned in my earlier reply the erection with the injection alone will become firmer and larger with stimulation so when you get to try it at home for the first time my bet is that you will find that you may not need as large a dose. I would also asked about taking one of the ED drugs prior to injecting. This has allowed me to reduce my dosage.

I agree with your hubby that after the surgery that any modesty that we had goes out the window. My wife equates this to her having a baby. Prior to surgery I had a phobia of needles. I could get a shot and almost faint. I gave blood once and they told me to not ever do it again. When I woke up after surgery and saw all of the tubes and needles it just did not bother me for some reason. I was just so thrilled at being pain free and feeling as good as I felt I think that it just took my whole mind off of the needles and now I inject myself, in the penis, without any hesitation.

Have Fun!!

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


not me!
Regular Member


Date Joined Jan 2007
Total Posts : 30
   Posted 9/18/2007 6:18 PM (GMT -6)   

Doctor asked me if I wanted him to inject me in the office or just go home and do it myself. After a moment of reflection, I told him that about 45 years ago while in a 7th grade, a teacher made me to stand up in front of the class so she could see what I was hiding in my pocket. She obviously hadn't considered what my raging hormones were capable of putting in my pocket. I confided to the doctor that based on that earlier experience, at the age of 56, I'd rather not walk through a urologists waiting room with the same thing in my pocket that had been there in 7th grade and I preferred the self administered version at home. He warned me that some men find it difficult to inject themselves in this sensitive area the first time. I assured him that it wouldn't be a problem for me because I had done numerous stupid things in my life in order to have sex and stabbing myself in the penis with a needle wouldn't even make the top 10. Big talk, huh, -  I was apparently convincing enough though, because after he stopped laughing, he gave me a couple of "make sure you do this" orders and sent me home.

Although I'd been thinking about the shot therapy for awhile, I had purposely not discussed it with my wife because previously, on more than one occassion, she had passed out while getting a shot. Although she's a trooper, I knew that once I shared the details about the therapy with her, neither of us would benefit by having an extended period of contemplation.  So, about four hours after arriving at home from the doctors office, I showed my wife the injection kit. While she was still dazed from the sight of the needle, I successfully coaxed her into the bedroom where she displayed her normal amount of eagerness and enthusiasm, which I'm confident now comes from loyalty and love rather than exerberence and anticipation. Meanwhile, I was in the bathroom wide eyed and naked in front of the mirror with a syringe in one hand and my helpless, not so promising looking Johnson in the other, trying to read instructions printed in 6 point type. 

I must tell you that since puberty, I have not successfully kept many secrets from that little guy between my legs. Aware of my intent, he had assumed a self defense mode and was attempting, with some success, to shrink to a small size not previously seen. I remember looking down at the situation and thinking - "that needle will go clear thru it and come out the other side." Somehow I was able to compose myself long enough to maneuver the little guy, against his will, into a position that allowed me to plunge the needle in. Surprisingly, there was no pain, and as I injected the medication, he instantly quit struggling, looked up at me with an expression that seemed to be saying, "thankyou". I joined my lovely bride in bed and the not so little guy showed his appreciation by providing my wife and me with the best couple of hours that we've had in a long time. ---  recovery is getting better- 

 

  


56 year old male. 02/06 PSA 5.5  Subsequent Gleason 3+3=6 DaVinci Surgery 7/06 fully contained, nerve bundles spared, returned to work (desk) 1 day after surgery, cath removed 7/12, no pad - 1 week after cath removal, occas leaks 6mo post opp after long day. No ED prior to surgery. ED since, some improvement 12 mo post op, tried all three Drugs, they help some. Found out about pump --here-- 6mo post op, it was a blessing. Getting ready to try shots.

 


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 9/18/2007 11:56 PM (GMT -6)   

not me,

Motivation is a huge power and you are proof of it.  Since I started injections and enjoyed the results I have sought to help motivate others so they too can get back some of what PCa has taken.  Your testimony is a strong incentive.  I would suggest though that having that first injection in the office would have been better.  The amazing part to me is the little or no pain with the injection.

Enjoy!!

Tamu


Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


not me!
Regular Member


Date Joined Jan 2007
Total Posts : 30
   Posted 9/19/2007 8:52 AM (GMT -6)   
Tamu,

Yes to everything you said. I have a number of friends who have been through this. All with different doctors (some very prominent). A common thread is that the doctors seem to have a lot less interest in our life after they have been paid for the surgery. My surgery was done in a very prominent center and I was very pleased with the surgery, but I have had to pull them along on the recovery path - everything from viagra daily, the pump, and now the injections. It's like they know a little bit about it, but don't want to talk about it. - And I when mention this stuff, it becomes obvious that I know a lot more about it then my doctor. Other friends have told me that their doctors tend to poo poo anything that wasn't the doctor's idea.

not me,

56 year old male. 02/06 PSA 5.5  Subsequent Gleason 3+3=6 DaVinci Surgery 7/06 fully contained, nerve bundles spared, returned to work (desk) 1 day after surgery, cath removed 7/12, no pad - 1 week after cath removal, occas leaks 6mo post opp after long day. No ED prior to surgery. ED since, some improvement 12 mo post op, tried all three Drugs, they help some. Found out about pump --here-- 6mo post op, it was a blessing. Getting ready to try shots.

 


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 9/19/2007 11:09 AM (GMT -6)   
not me,

Yea, I have counted my blessings in having a urologist that is focused upon the quality of life in addition to getting rid of the cancer. I have not had to push him along as he wants me to achieve all that I had prior to the surgery. It really gets to me when we have new forum members come aboard seeking help with their post op ED and it has been months since their surgery and the urologist has only told them that it takes time.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 9/20/2007 7:58 AM (GMT -6)   
Not Me,
You really need to post your experience to the "Things about the Journey that force you to laugh" thread. I'm still laughing! I've been considering the shots, and your post has made my decision making easier. Thanks Little Gem for starting this thread!
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical
October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist
November 2005 - Biopsy negative
July 2006 - PSA 5.9 at regular Physical
October 2006 - After several more rounds of anti-biotics PSA 8.1
November 2006 - Second biopsy - Positive
December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one nerve able to be spared. Margins clear.
February 2007 - Three to four pads a day, no erection with viagara.
March 2007 - Down to two pads a day, had first intercourse with Erecaid pump and bands, otherwise still flat tire.
April 2007 - First Post-Surgical PSA 0.02 and a great relief! Down to one pad a day. Still unable to achive erection without pump.
May, 2007 - Still one pad a day, even try a smaller pad on occasion. Slight improvement on the ED.
July, 2007 - Six Month Post-op: PSA 0.04 still Non-Detectable. One small pad/day for a few drops only! No change in ED.
"If patience is a virtue, I feel like the most virtuous guy on the planet!"


justtom
New Member


Date Joined Sep 2007
Total Posts : 11
   Posted 9/20/2007 11:57 AM (GMT -6)   

 Hello Everyone,

I just found the site and it is a real blessing.  I am not in this alone...  I was diagnosed March 2007 and had a radical April 27, 2007.  Could not get the Davinci because the tumor was to large.  I had my first PSA in Feb. and amazingly had a physical 1 year before, double Ingrenal Hernia, and a colon scope.  They never checked my PSA.  I was biopsied in March and 11 of 12 were cancerous..  I had a Gleason of 4+3=7 and psa 6.2 which was 7.2 after a retest two weeks later.  My Urologist felt I should hurry and have the surgery because it was a fast mover..  I had 12 lymph nodes removed and biopsed of which 1 did have cancer cells.  After the surgery I wore the catheter for 2 weeks and had little trouble with incontinence.  I did wear the big diapers at night but seldom wet them.  I never had a problem while awake.  On June 7th, I had a psa retest and it was 0.05..  I thought that sounded good but when I returned to my Urologist on the 10th,  he recommended I take Harmone therapy, Eligard 45.  This is a 6 month shot that prevents testosterone.  I understand by reading the computer that it is a wonderful alternative to CASTRATION!!!  The worst thing is little sexual desire and Heat Flashes.  On the brighter side I left the 22nd of June and rode my Harley 4300 miles in 10 days.  I left La. and rode west to the Yellowstone's, Tetons, Deadwood.  Saw old Faithful, Mt.Rushmore, Chief Crazyhorse and had no trouble.  My friends were understanding that I travel with and joked very little about the bid diapers..lol yeah

2 weeks ago although I'm not a sex maniac like my earlier years I had a new friend and it was important to me to be a little more active..  I know it is always said that size don't matter but I don't remember hearing that a soft was ok...  I had tried Viagra and Cialis without any luck at all.  So, I tried the injection and not only did it work, it was like being young again.. My friend made the comment, my goodness, I could hang a towel on it.  Course, I had better plans for it and for about 90 minutes we both enjoyed the new toy.  The injection was a three drug formula that was given to me by a Dr. friend that had used it for years.  It was Papaverine. Prostagladin and another drug and I'm not sure the name.  I will find out and post it as soon as I get a full prescription being mailed to me.  I did call my Urologist and his CFNP said he could prescribe the drug for me also.  My injections were 1/4 cc in an insulin syringe and very little pain during or after.  I have used it 6 times and with about the same results.  Very important to inject the proper place. 

I Hope this hasn't been to boring and good luck to all of you.  I am 54 and very computer Illiterate..I also can't spell to good but hopefully this will make since to some..

Best Regards,

JUSTTOM

 


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1727
   Posted 9/20/2007 6:05 PM (GMT 0)   
Justtom,

Good for you! It sounds like things are looking in the right direction. Glad to have you aboard.

PS: The injection you mention is TriMix. Many of our members use the mixture with good success. Thanks for sharing such a positive expeience with everyone.

Swim
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1455
   Posted 9/20/2007 3:30 PM (GMT -6)   
Hey Justtom,

Welcome to this place. I use Trimix and inject .02 ml after taking 50mg of Viagra. Works great for me and I too have no pain. The doc started me on .1 ml but it was way too much. Stayed up too long and hurt like you know what.

I've ridden coast to coast several times in my younger days. Now have a Sportster that I just putt around on.

Good luck,,,

Jim
Age 73. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Pathological stage: T2C. Gleason 3+4. Cancer confined to prostate.
PSAs from  1/3/07 - 7/18/07 0.00. 
T level on 4/2/07 - 48     On 7/16/07 - 613
Started Tri-Mix on 8/7/07.  .02 ml and 50 mg Viagra.  It works!!!
Next PSA and T tests on 10/17/07
 
"Patience is essential, attitude is everything."
 


Tamu
Veteran Member


Date Joined Oct 2006
Total Posts : 626
   Posted 9/20/2007 6:32 PM (GMT -6)   
Justtom,

I use Bimix because I had a bad experience with prostagladin. Bimix is Trimix without the prostagladin. I have been using it since April and it works well. I combine it with Viagra. That has allowed me to reduce the dosage some. Your sharing is appreciated.

Tamu
Diagnosed 7/6/06, 1 of 10 core samples, 40%,Stage T1c, Gleason 3+3
Da Vinci on 11/01/06, Catheter out on 11/13/06
56 Years Old
Post Op Path, Gleason 3+3, Approx. 5% of prostate involved
Prostate Confined, margins clear
Undetectable PSA on 12/18/06
No more pads as of 1/13/07
Began injections in April '07
Undetectable PSA on 6/25/07


pcdave
Regular Member


Date Joined Oct 2006
Total Posts : 444
   Posted 9/23/2007 12:08 AM (GMT -6)   
Gents

This is a great thread on ED and injection therapy! Hopefully, our wonderful Administrator Bluebird will provide a link to this thread under the "Prostate Cancer Resources" thread. The injection therapy has given great hope and salvation to the many PCa patients who have had to face ED already or may have to face it in the future (e.g., radiation therapy in which ED may be delayed until some period of time after treatment).

Dave
68, 29-core biopsy 9/27/06, PSA 7.1, Stage T1c, Gleason 7 (3+4) [less than 20% in one area],  Gleason 6 [less than 5% in two other areas], negative DRE, bone scan and Endorectal MRI. Completed 39 Proton radiation treatments 2/22/07-4/18/07.  First PSA test 7/19/07 (3 months after treatment) was 2.1 or a 70% reduction in my PSA before treatment (this was better than the average expectation of a 50% reduction in PSA at this juncture, according to my radiation oncologist).  The following is a link to My Journey With Prostate Cancer -- Proton Radiation Therapy.  http://www.healingwell.com/community/default.aspx?f=35&m=726381
 


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 9/23/2007 10:16 PM (GMT -6)   

tongue    Done!!!!

I've just read this thread and it truly amazes me how Powerful this Forum is!!!  Thanks to all of our members.... and to each of you for caring enough to share!!!  You truly touch lives ~ and I thank you for touching so many lives...

Yes ~ Dave.... I will get this on the link immediately!!!! 
Forum Family Members.... don't ever hesitate to let me know by clicking here bluebird if there's a link that needs to go on the Direct Links page.....  your help is appreciated!
 
E-mail me with the SUBJECT LINE:  Add this thread to links
 
I've got the key ~ but we can all turn it together!!!
 

v      bluebird ~  Moderator for Prostate Cancer Forum

 


justtom
New Member


Date Joined Sep 2007
Total Posts : 11
   Posted 9/24/2007 9:31 AM (GMT -6)   
Hello Everyone,
 
Could some of you post the formula for the Trimix you are using.  I'd like to have a couple different formula's to try.  The last I used was Prostaglandin, Papaverine and Regitine.  Not sure the amounts of each.  Thanks in advance for any help on this.  This site and the Trimix formula has given me the most hope so far.  I am 5 months post op and feeling much better each day about life..
Also, my Urologist seems the most unconcerned of any Dr. I have used.  He has not offered any advice for the ED.  I have never been offered any info on the pump and found out about injections by searching the web.  So again I thank you all for your post and comments I have read.  Looking for a new Urologist in Alexandria, Baton Rouge or New Orleans Louisiana, know one????? :-)
 
Regards,
justtom
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