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IBSGOAWAY
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 9/5/2009 8:32 PM (GMT -6)   
So here we go...so far I have been spending most of my time on the IBS website because that is what I was diagnosed with after several rounds of testing.  After western medicine failed me, I turned to alternative medicine, which in my area means chiropractors.  The first chiropractor I went to was a "witch doctor" type and didn't help really.  She had me give up dairy, which didn't help my symptoms of gas and constipation.  The second one I went to had me give up all grain and only eat meat and vegetables and a little fruit.  He also had me on enzymes.  The diet made my gas go away which was great, but the enzymes were making me increasingly sicker and sicker and sicker until I was having diarrhea (sorry for that) and eventually throwing up.  After a horrible trip to the ER which showed up a UTI and that was pretty much all, my family convinced me to stop taking the enzymes.  I was baffled as to why my symptoms changed, but that the gas symptom pretty much went away.  After I ate a piece of white bread and immediately started having gas problems again, I clued in to the fact that it might have something to do with the gluten.  idea So I went gluten free and alot of my IBS symptoms have regulated.  I now have more normal b.m.s and much less gas problems.  So okay...here is my question...I have a doctor's appt. to discuss celiac, but I don't know if it is really going to make a difference because I am already pretty much gluten-free and not willing to eat gluten just for a test.  My mother is the one who wants me to have it because she wants to know if it is a life-time thing or what...but I don't know that the tests would come up positive anyways, since I'm probably skewing them with being gluten-free.  Does anyone have any experience with this? 
 
Oh, I almost forgot...all those enzymes I was taking that were making me so sick?  They all had wheat in them.

Post Edited (IBSGOAWAY) : 9/5/2009 8:39:15 PM (GMT-6)


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 675
   Posted 9/6/2009 2:14 PM (GMT -6)   

You are right about your gluten free diet skewing the test for antibodies to gluten.  It will.  However, the gene markers will not be affected by diet.  I recently tested positive with both genes, and a low positive antibody test.  Along with my signs and symptoms, it was enough to diagnose celiac.  If you do not have either gene for celiac, it is very unlikely that is your problem.  I have read that you can have a wheat sensitivity that is not celiac, though.  At any rate - if you have both genes, the liklihood that you either already have celiac or will develop it at some point is very high (it can be triggered by stress, infection, trauma, etc.)  Knowing you have both genes can be valuable even if you have no symptoms at present, so you can monitor the antibodies from time to time and keep from harming your small intestine unknowingly.

All that said - I am new to celiac, and am in the process of learning about it myself.  I hope someone else will be along to offer you some more advice.  www.celiac.org is a very informative site.  Good luck!

Lucy
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; UCTD & osteoporosis 2007; celiac 2009
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn and lots of vitamins
 
 


IBSGOAWAY
Regular Member


Date Joined Jul 2009
Total Posts : 37
   Posted 9/6/2009 6:40 PM (GMT -6)   
Thank you so much for answering Lucy. I really appreciate it. How do they test to find out if you have the genes, so that I can ask for that. I'm sort of worried that my daughter is having problems digesting too...she has had the big D for two weeks and I immediately thought celiac. She is less than two, so a diagnosis of this would be so much more usual for her. However, she does seem to be regulating, so she just might have only had a long lasting virus.

lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 675
   Posted 9/8/2009 9:19 PM (GMT -6)   

There are blood tests for both the gene presence and antibodies to gluten.  I'm not well versed enough to be more specific - but there is a lot of info on the web.  Celiac is under diagnosed - so if you suspect it, I wouldn't wait, especially with your little one.  I wish I had been tested long ago - as they say - an ounce of prevention is worth a pound of cure...best of luck.

Lucy


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998; UCTD & osteoporosis 2007; celiac 2009
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn and lots of vitamins
 
 

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