could this be celiac

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cry
Regular Member


Date Joined Jun 2006
Total Posts : 58
   Posted 10/2/2009 6:52 PM (GMT -6)   
                                  New to this forum am usally at lupus ,or fibro page . Went to neuroligist  a few weeks ago for derma myostios which is part of my lupus, My symptoms were really tired , weak mussles , which is common , but she decided to check my vitiam B and it was low and I take 2 a day over the counter , so she said I should see my pcp and get shots for it , so made that appointment that I went to yesturday . Well we get to talking cause I am also lactose intollarte ,  (please bear with me on the spelling , been running all day and am very tired ) and my pcp asks if I am having bowel trouble , I said yes for the past 4 months now and they look oily . I was only checking them cause I have dogs and I thought I must of got worms off these dogs lol , cause no lie I think I go more than I eat . Well hears they symptoms we went over .
allergic to milk, acid reflux , tingling in fingers , achey , weird looking stools , constant going , and adomial cramping alittle up from pelvic area , but it's not really cramping it's more like a shooting pain that comes and goes , bloating , Of course I have alot of the same symptoms ,cause of my lupus , but I have been in a contant flare now for 4 months , maybe one week out of the month I feel ok . Doc seems to be certain I have celiac , she gave me a script for bloodwork but said I didn't have to take it until next week when I come back for shot , cause I didn't fast the day I seen her .So now I wait until next thursday . My stomache gets really bloated out and crampy to when I eat until I use the bathroom , Guess my question is do u think this is celiac . Would be very thank ful for any help .
Dx : Lupus , fibromyalgia , Meds : predasone 5mg morning and 5 at night , 400mg plaqunil a day , 400mg sulfazine a day , algeria , flexeril , vicodin , as needed .


cry
Regular Member


Date Joined Jun 2006
Total Posts : 58
   Posted 10/3/2009 6:49 AM (GMT -6)   
          Hi  , sorry I was so tired last night . Here is a list of how eveything has happened to me in last 5 months .
 1. Hair started falling out .
  (Rumey thought it was plaqunil , so I started taking Super B complex vitiams
   with folic acid , that seemed to work)
  2. Easy bruising
   (thought that was cause of prednisone . but pcp says i don't take a high
    enough dose for that )
  3. Muscle Cramps
    (muscle's are getting stuck in my hands and feet , like charlie horses .
      very painful and have to massage them back out )
  4. Going to bathroom all day long
     (allready went 5 times and it is 8:44 starting at 4:00 this morning and it is
       alot , even wakes me up with cramps )
  5. Cramps in Abdominal
      ( sharp pains in colon area ,cause I looked it up on line just figured it was
        from all the going )
  6. Muscle Weakness and sore muscle's
  7. Nausea , and Viertigo , ( thought buidling was moving last week .
Dx : Lupus , fibromyalgia , Meds : predasone 5mg morning and 5 at night , 400mg plaqunil a day , 400mg sulfazine a day , algeria , flexeril , vicodin , as needed .


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 10/3/2009 7:37 AM (GMT -6)   
Yes, many of the symptoms you list, including hair loss, stomach cramps, etc. are symptoms of celiac disease. Celiac can cause a milk "allergy" because the villi in the small intestine are under attack, and the first part to go is the tip of the villus, which is where the enzyme lactase is produced. Lactase allows you to digest lactose.

Untreated celiac disease can actually lead to other autoimmune diseases. If you're interested in an explanation, please visit the following website:

http://www.umm.edu/news/releases/zonulin.htm

If you do have celiac, it's important to stay on a gluten free diet. Don't start the gluten free diet until after all blood tests and biopsies have been done, though, or you risk false negatives. The number of false negatives is fairly significant anyway, and since you're on prednisone it's highly likely that your tests will be negative, as mine were.

I was tested for celiac disease while taking Imuran and prednisone for my autoimmune hepatitis. Bloodwork and biopsy were negative, but my gastroenterologist diagnosed me with celiac anyway, because I have one of the main celiac genes (HLA DQ8), a family history of celiac disease, a positive response to the gf diet, and my predisposition for developing autoimmune diseases. He said he pretty much expected negative blood work because of the immunosuppressant drugs I take.

Please keep in mind that the very best way to tell if you have a gluten problem is to simply go gluten free. Don't start the gf diet until all testing is over, but you should try it even if everything comes back negative. If you feel better gluten free, and worse when you go back on gluten, then you have your answer. Trust your body to tell you if you need to make changes to your diet.

Good luck! I hope you start feeling better soon!
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Reynaud's syndrome. Possible lupus and/or Sjogren's Syndrome - diagnoses pending.


cry
Regular Member


Date Joined Jun 2006
Total Posts : 58
   Posted 10/3/2009 8:26 AM (GMT -6)   
Thankyou , Nasalady ,
Have been reading through the fourms and everything is very helpful , Don't plan on started the diet until blood work is done . Husband wanted to go food shopping yesturday for the month told him to wait until next week , I also thought of the prednisone . Made a list for doc . the one I posted . Gone to tell her next week I am gone to start the diet . I acually might just go monday and do the blood work so I can aleast get started on feeling beter , they are open all week but she is so certain she said it could be done when I get vitiam B shot . Well thankyou so much for your help .
Crystal
Dx : Lupus , fibromyalgia , Meds : predasone 5mg morning and 5 at night , 400mg plaqunil a day , 400mg sulfazine a day , algeria , flexeril , vicodin , as needed .


cry
Regular Member


Date Joined Jun 2006
Total Posts : 58
   Posted 10/14/2009 8:06 AM (GMT -6)   
blush  Quick update , got blood work done on thursday hasn't come in yet but my other blood work has , I am postive for Pernicious anemia Intrinsic factor , which is also anthor immune system disease , was wandering if anyone else with celiac has this to , I am afraid to start the diet until my test come back , because she only did blood work and might want to do more testing , any help I would be greatly thankfull for . This disease has alot of the same sytoms as celiac , I am a immune system mess right now blush , will have to get vitam b12 shot now once a month for the rest of my life . Well any help would help me .
Thank you
Crystal


Dx : Lupus , fibromyalgia , Meds : predasone 5mg morning and 5 at night , 400mg plaqunil a day , 400mg sulfazine a day , algeria , flexeril , vicodin , as needed .

Post Edited (cry) : 10/14/2009 8:11:48 AM (GMT-6)

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