New here & need to vent

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Winter
Regular Member


Date Joined Sep 2005
Total Posts : 209
   Posted 2/21/2010 1:28 PM (GMT -6)   
After a blood test, my Dr informed that I had a high content of gluten in my blood. He instructed me to go gluten free which I did. I don't have celiac disease I don't have a problem with it since I was a big bread eater to begin with. So now I just watch other foods for gluten. Now to vent, my family knows that I am gluten free. Yet today for lunch, my mother in law made chili with spaghetti in it. She informs me that she didn't put much in so it shouldn't be too hard to pick it out. She was right, she didn't have a lot of spaghetti in the chili but what was in there were very tiny pieces. I would need tweezers to pick it out. Then the issue of gluten already been release in the chili plus I am sure the chili mix was not gluten free. Then she made a pie for dessert which she knew was my favorite. The crust was about 2 inches thick on top. I ate a little bit of the filling so I wouldn't make here feel bad but not the crust. I know I was still exposed to gluten. Then she tried to send the rest of the pie home with me. It is so hard to explain that food cooked with a gluten contaminates the rest of the food. I can't just pick out the pasta or eat the filling without eating gluten. Well just had to vent & get it out of my system thanks for listening. :-)
 
 

Lialda 1.2GM    3 tablets daily Methotrexate 2.5 mg 3 times a week Remicade 5mg per kilos Triamt/HCTZ 37.5-25 Famciclovir 500 mg 1 tablet 2 times daily Cimetidine 400 mg 2 tablets twice daily Acitvated B 2 pills 2 x a day R Alpha Lipioc Acid 1 pill 2 x a day Beta Carotene 4 tablets 2 x a day Folinic Acid 1 pill 2 x aday D3-5000 #250  3 pills 2 times a day Niacin 100 mg 4 pills 2 times a day. Pantothenic Acid 500 mg 1  tablet 2 times a day Vitamin K 1 tablet 2 times a day Zinc AG 1 pill 2 times a day Copper 2 mg -3 per week


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 2/21/2010 3:00 PM (GMT -6)   
Hi Winter,

I know this is a difficult situation for you; family members can really cause problems if they are not being supportive. If you know that your MIL is in this category, you HAVE to bring your own food to eat every time you visit her. You CANNOT trust her to cook food that you can eat. Even if she did not use any gluten-containing ingredients in her chili, for example, she's still cooking in her gluten-contaminated kitchen with her gluten-contaminated pots and pans and her gluten-contaminated utensils.

You have to understand that it's not just a matter of preventing you from having a stomach-ache; the more you expose yourself to gluten, the more likely it is that you will develop additional health problems in the future, including other autoimmune diseases and/or cancer!! This is serious stuff!

Your health has to come before your MIL's feelings. If she doesn't understand, she doesn't understand. Here is a great website about going gluten free: How to Start Living Gluten Free. It's quite lengthy but VERY helpful. You might want to print out part 4 for your MIL; it's all about eliminating every speck of gluten contamination from your kitchen. Also, see this article for why it's so important to stick to your diet: Zonulin and Celiac Disease. Zonulin can literally "open the door" for other autoimmune disease to develop.

Celiac disease is nothing to play around with. It can even attack your bones and your brain. The sooner you let your family know that you won't eat gluten under any circumstances the better.

Good luck!
JoAnn
Lyme Disease, AIH, Hashimoto's, "lupus-like" CTD?, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel, Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP, Darvon, Morphine Sulfate

autoimmunediseasesgfliving.blogspot.com


Winter
Regular Member


Date Joined Sep 2005
Total Posts : 209
   Posted 2/21/2010 6:55 PM (GMT -6)   
Thanks for the advice & the website. I have Ulcerative Colitis so I already have an autoimmune disease. I am just trying to stay healthy
 
 

Lialda 1.2GM    3 tablets daily Methotrexate 2.5 mg 3 times a week Remicade 5mg per kilos Triamt/HCTZ 37.5-25 Famciclovir 500 mg 1 tablet 2 times daily Cimetidine 400 mg 2 tablets twice daily Acitvated B 2 pills 2 x a day R Alpha Lipioc Acid 1 pill 2 x a day Beta Carotene 4 tablets 2 x a day Folinic Acid 1 pill 2 x aday D3-5000 #250  3 pills 2 times a day Niacin 100 mg 4 pills 2 times a day. Pantothenic Acid 500 mg 1  tablet 2 times a day Vitamin K 1 tablet 2 times a day Zinc AG 1 pill 2 times a day Copper 2 mg -3 per week


Nor_TX
Regular Member


Date Joined Nov 2008
Total Posts : 360
   Posted 2/23/2010 10:23 AM (GMT -6)   
I guess I am not the only one who hears, "Well, just have a little bite... surely a little bite won't hurt you???" And you know what??? It always does.

We unexpectedly met up with some friends and had Sunday lunch out and although I tried my best, I was glutened and finally this morning, the pain, gas, bloating and nausea is calming down. I have a hard time being as strong as I know I should. I just figure at 60, I should be having an easier time than I am. *sigh*
Presently on: 600 mg. Remicade every 5 weeks
                   Venofer infusion every 5 weeks
                   B12 every 5 weeks              
                   12 Asacol daily
                   Zofran as needed
Dealing with Colitis since 2003, Gastro-Paresis, Reflux, IBS and Gluten and Dairy Intolerance
"Food is in my dreams and in my nightmares!"


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/3/2010 11:06 AM (GMT -6)   
I have crohns and it is really sad n frustrating that some ppl just dont get it ya know....
Hoping better days ahead n HAPPY EASTER TO ALL
HUGGS
LYN
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN

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