Don't have celiac but...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

cinnamon10
New Member


Date Joined May 2010
Total Posts : 8
   Posted 6/14/2010 11:39 PM (GMT -6)   
Was having pain radiating thru my back from my stomach & intestinal problems. Endoscope & biopsy showed chronic inflammation in my stomach and I was told this was increasing my cancer risk. Doctors tested me for celiac - negative. They wanted to put me on prescription acid blocker. Instead I eliminated wheat and dairy from diet. Months later had endoscope again and this time no inflammation at all. Cured!! Guess just an intolerance - not celiac - but my body sure doesn't like the stuff. I can tolerate a little dairy wi lactaid but wheat - no way. Alway thought an intolerance was no big deal but change my mind. Haven't had wheat now for almost two years - two pain free years.

Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5948
   Posted 6/15/2010 5:59 PM (GMT -6)   
This is very interesting to me because I just went gluten-free three weeks ago. I have so many random symptoms it's ridiculous, and so do my daughters. You give me hope! I'm glad you cured yourself!
  Achey 
 
    Diagnosed: Fibromyalgia, possible Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
 
Be yourself.  Everyone else is already taken.


caligirl2001
Regular Member


Date Joined Jan 2010
Total Posts : 197
   Posted 7/21/2010 12:39 PM (GMT -6)   
I tested negative as well, but I had been so sick for so long, and my symptoms seemed to fit so well with a problem with gluten that I decided to try GF anyway. It couldn't do any harm, and I felt so terrible already, an elimination diet seemed a pretty easy fix when everything else had been tried. I had already eliminated pasta from my diet months before they tested me for celiac because I had noticed that within 2 bites, I became so nauseated that I couldn't eat any more of any food that night. I was a bread addict too. The more whole grain it was, the more I ate. Within 2 days of cutting out gluten, my worst symptoms were significantly better and by 6 weeks, I felt like a new person. So for me, regardless of the blood test results, my body gave me the only answer I really needed. It didn't like gluten. At all. My symptoms return within an hour of ingesting any kind of gluten and last anywhere from 3-7 days, depending on the quantity I'm exposed to.

The blood test I was given was a tta/IGA but my results never gave the actual number, just said that the normal range was 0-19, and that I was within normal. For all I know, I was at the top of the range. I get so sick, I'm not willing to go back on gluten to re-test in order to find out if I had a false negative. When I told my doctor of my results with the GF diet, he told me to stick to it because obviously despite the test, I am intolerant of it and results speak for themselves. He also said he has had several patients reap similar results despite negative blood work.

I'm glad you also were able to find your own answer! As helpful as doctors can be, sometimes it doesn't take a medical degree to find the answer.
Fibromyalgia, High BP, Migraines, anxiety, Non Celiac Gluten Intolerant
Current medications: Topamax, Maxalt, Lotrel, Wellbutrin


Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4896
   Posted 8/6/2010 7:08 PM (GMT -6)   
Some people have simple wheat allergy without celiac.
 
I happen to not be able to eat bakery products, but not because of wheat or celiac.  I'm allergic/intolerant/sensitive to the "dough conditioner" - sulfite.  Bakeries mostly don't mix their own ingredients.  They buy everything, bread, cakes, rolls, everything frozen.  Pizza crust too.
 
I get gastric reflux which triggers tachycardia.
 
No, it's not sulfate or sulfa.  Just SO3-   sulfite.
Alcie
 
 
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, October 19, 2017 2:26 PM (GMT -6)
There are a total of 2,884,337 posts in 316,479 threads.
View Active Threads


Who's Online
This forum has 157602 registered members. Please welcome our newest member, Heleneddworr.
464 Guest(s), 21 Registered Member(s) are currently online.  Details
alephnull, Froggy88, Dahlias, Doggiedo, Purrrsiankitty, island time, Pirouette, Michael_T, getting by, Lynnwood, JJ-3, gabybee, Yellow Cat, ks1905, FLBeachgal, UCinGV, Scooterbuglyme, three 5's and a jack, xy123, Charlie1950, garyDouglas


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer