Can I have gluten sensitivity??

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Cardonab
New Member


Date Joined Mar 2012
Total Posts : 1
   Posted 3/2/2012 6:50 PM (GMT -6)   
I recently got the results back from a blood test that I DO NOT have Celiac Disease.  I also have been tested for alleries, including wheat, oat's, etc, and that came back negative.  Can I have a gluten sensitivity even though those have been ruled out?  I just want to make sure I really can eat gluten, does anyone have an answer?

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8382
   Posted 3/3/2012 10:55 AM (GMT -6)   
Why don't you try a gluten-free diet for a few weeks and see if that helps?
*******************
49 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day)Colazal (9 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed. Gluten free as of 5/30/11.

paperbagprincesses
Regular Member


Date Joined Apr 2011
Total Posts : 94
   Posted 3/3/2012 5:48 PM (GMT -6)   
You can have an intolerance/sensitivity to gluten without having positive blood tests for allergies or Celiac Disease. Check out this- http://celiacdisease.about.com/od/glutenintolerance/a/Gluten-Intolerance-Research.htm. You could remove gluten from your diet and see if you feel better.

draco
New Member


Date Joined Mar 2012
Total Posts : 1
   Posted 3/6/2012 4:47 PM (GMT -6)   
I was told at the age of 5 that I had dermatitis herpetiformis.....I am now 50 years, so I basically have had this all my life...I take medicine called dapsone that controls the gluten ...well it did until recently I guess after 45 years I may have become immune to it.

If i eat gluten my skin breaks out in a form of Leprosy.... I have started a gluten free diet... what I am wondering if anybody else has this type of celiac...? I have never known anyone to have the type that I have.. Please if you read this and know of someone that is this type of celiac disease I would be grateful....I feel like I am the only person with this...:)

Whatevz
New Member


Date Joined Mar 2012
Total Posts : 6
   Posted 3/9/2012 3:01 PM (GMT -6)   
Absolutely, you can have gluten intolerance.  I didn't have a scope or anything else.  I just got blood tests and my Gliadin levels were high.  It was suggested that I try a gluten free diet.  I can't even begin to tell you the difference it has made!  As much as I loved everything that had gluten in it, I'm gluten free for life.  It's one of the hardest things to do, but when your digestive system starts working again, you will never want to eat anything that may disrupt it.  Some of my most amazing results took a year or longer to notice, so please don't get discouraged.

my daughter has C>D I thi
New Member


Date Joined Mar 2012
Total Posts : 3
   Posted 3/15/2012 9:35 PM (GMT -6)   
can anyone give me some advice on headach meds for my daughter untill we can get this glutin & wheat out of her system, i been letteing her take b.c powder but i just seen where its hurting her gut really bad to take this & thank you very much

greenrabbit3
New Member


Date Joined Mar 2012
Total Posts : 4
   Posted 3/17/2012 2:11 AM (GMT -6)   
Cardonab- Yes, you can! I have it and it doesn't show up on tests! However, after a few months of no wheat, the results spoke for themselves! My natural health doc did something called an NAET test, which I rolled my eyes at, but it confirmed my suspicions! I actually ended up cutting grains out of my diet completely, and I am doing infinitely better since I have! Also switched to raw milk... just to cover all my bases!
 
draco- I have never heard of that specifically, but a lot of gluten-intolerant people have acne breakouts when they eat gluten/wheat. Since both Leprocy and Acne are bacteria-driven, I would assume it's the same problem; the wheat is feeding "bad" bacteria, then it causes skin problems, especially since the skin is one of the main ways that the body removes the "bad" things and toxins. Going gluten-free is the best bet, even if it's just to see what works! You could also consider getting tested for Candida, which has a variety of related symptoms.
 
my daughter has C>D I think- Be careful with anything that causes digestive problems- that can make headaches worse and slow the healing of the intestinal tract! Acupunture is often recommended for this type of headache, as well as to speed the re-balancing of the body systems. Magnesium is often recommended for migraines, and I have heard of the use of PA-free Butterbur too since it's anti-spasmodic and anti-inflammatory. Cayenne and ginger (capsules) help digestive issues, and cayenne is frequently recommened for pain relief in general- in this case it may prove very helpful since the cause is in the digestive tract, and the headaches are coming from that (as strange as it sounds, headaches can come from digestive issues).
 
Hope you all are doing well!
 
-Tracey

RocketJ
Regular Member


Date Joined Nov 2011
Total Posts : 47
   Posted 4/5/2012 1:27 PM (GMT -6)   
 

Just wanted to included a positive note and share some great progress:

 

My daughter is 34... Beginning in high school she became troubled somewhat by IBS and it continued in a "mild" (it is relative) form until 2006 or so. At that point she became miserable, soon lost her job and socially unsecure.

 

We tried all of the gastroenterologists in two major hospital groups, endocrinologists and local medical schools. Allergy testing, scoping, swallowing cameras, bacteria tests, enzyme tests, testing to all susceptibilities - including gluten.  We tried eliminating fat and many other items too.

 

But through all of this the doctors told her that she didn't have an issue with dairy or gluten. Her suffering continued...

 

Six weeks ago, her mother finally suggested that she give up gluten and dairy at the same time.

 

What a difference that has made! She can actually sit at the table and finish a meal without running... her outlook is positive again.

 

So, I wanted just to share this encouragement and say that sometimes, doctors don't have all of the answers, and it may be a good idea just to listen to your Mom.

 
Thanks for letting me post to your forum. :-)
 
  

Chronicoles
New Member


Date Joined May 2012
Total Posts : 1
   Posted 5/9/2012 5:53 AM (GMT -6)   
draco said...
I was told at the age of 5 that I had dermatitis herpetiformis.....I am now 50 years, so I basically have had this all my life...I take medicine called dapsone that controls the gluten ...well it did until recently I guess after 45 years I may have become immune to it.

If i eat gluten my skin breaks out in a form of Leprosy.... I have started a gluten free diet... what I am wondering if anybody else has this type of celiac...? I have never known anyone to have the type that I have.. Please if you read this and know of someone that is this type of celiac disease I would be grateful....I feel like I am the only person with this...:)


Draco - I have the same thing. It started 2 years ago. Have been told its not Celiac or dermatitis herpetiformis but after 2 years of prednisone and dapsone, I went to a gastro myself and had an endoscopy last week. Waiting for results anxiously!
How can ii contact you, or you could try me!

yelloworange
Regular Member


Date Joined May 2013
Total Posts : 64
   Posted 12/14/2013 4:23 PM (GMT -6)   
If you have dermatitis herpetiformis, you can be diagnosed through a skin biopsy from a knowledgeable dermatologist. No need to do the endoscopy!
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